AASK AMERICA/Aid to Adoption of Special Kids
657 Mission Street
Suite 601
San Francisco, CA 94105
(415) 543-2275
(800) 232-2751

     Disabilities Served:  All handicaps.
     
     Users Served:  Prospective adoptive parents, adoption
     agencies.
     
     The Organization:  Aid to Adoption of Special Kids helps
     to place older children, minority children, and
     emotionally, mentally, and physically handicapped children
     in permanent adoptive homes.  AASK is a licensed adoption
     agency.  It serves the national adoption scene by acting
     as an intermediary between adoption agencies and parents
     seeking to adopt "special kids."  AASK AMERICA is
     headquartered in San Francisco with offices throughout the
     United States and serves all 50 States.  No fees are
     charged to families.  AASK has offices that are licensed
     in California, Arizona, Texas, and New Mexico.
     
     Information Services:  AASK offices maintain files of
     available children, referred by caseworkers of adoption
     agencies throughout the United States, and a registry of
     families seeking to adopt difficult-to-place children. 
     When AASK can match a request of adoptive parents with a
     specific child listed in its files, the parents are
     referred to the appropriate adoption agency.  Individual
     requests for information on the availability and needs of
     adoptable handicapped children, financial resources
     available to adoptive families, and proper adoption
     procedures are answered by phone or letter.
     
     AASK offices in California, Arizona, Texas and New Mexico
     provide placement, recruitment, supervision, and
     postadoption services as licensed adoption agencies.  AASK
     Midwest, in Ohio, is an exchange and provides matching and
     parent support services.
       
     
Academy of Dentistry for the Handicapped (ADH)
211 East Chicago Avenue
Suite 1616
Chicago, IL  60611
(312) 440-2660
 
     Disabilities Served:  All handicaps.
     
     Users Served:  Disabled persons, parents, dentists, dental
     hygienists, and allied professionals.
     
     The Organization:  The Academy of Dentistry for the
     Handicapped (ADH) is an organization of dentists, dental
     hygienists, and allied professionals.  ADH provides
     educational services to professionals and information and
     referrals to handicapped persons seeking dental treatment. 
     The organization also acts as an advocate for improved
     dental treatment, research, and legislation for disabled
     people. 
     
     Information Services:  Information on preventive dentistry
     for disabled people is available to the lay person.  For
     the professional, ADH publishes a bimonthly journal, and
     it sponsors an annual continuing education course on
     improved dental methods and treatment for special
     patients.  ADH maintains a referral directory of dentists
     who treat people with disabilities.
     
     
Accent on Information (AOI)
P.O. Box 700
Bloomington, IL  61702
(309) 378-2961

     Disabilities Served:  Physical disabilities.
     
     Users Served:  Disabled persons, physical therapists.
     
     The Organization:  Founded in 1972, Accent on Information
     (AOI) is a computerized retrieval system containing
     information on products and devices that assist physically
     disabled persons and other how-to information in such
     areas as eating, bathing, grooming, clothing, furniture,
     home management, toilet care, sexuality, mobility, and
     written and oral communication.  The citations in this
     data base, which number 7,000, give two types of
     information:  (1) references to publications on topics
     covered, including sources; and (2) brief descriptions of
     equipment and devices with addresses of manufacturers
     marketing the products.
     
     Information Services:  For a nominal charge, a search of
     the AOI system is made on the requestor's topic.  The
     requestor receives up to 50 of the most recent citations
     for each search.
     
     The Buyer's Guide, which grew out of AOI's information
     retrieval system, lists equipment and devices that assist
     disabled persons in daily living activities. 
     Manufacturers that market these products are also listed.
     
     Other publications available from AOI include titles on
     devices and techniques for persons with the use of only
     one hand, ideas for making your home accessible, clothing,
     attendant care, sexuality, bowel management for persons
     with spinal cord injuries, wheelchairs, and accessories. 
     The Accent On Living magazine, issued quarterly, contains
     information on products, techniques, and money saving
     ideas for disabled persons; true life stories; and other
     practical and inspirational articles.
     
     
Access/Abilities
P.O. Box 458
Mill Valley, CA  94942
(415) 388-3250

     Disabilities Served:  All disabilities.
     
     Users Served:  People with disabilities, their families,
     friends, and service providers, as well as publicly and
     privately funded facilities, employers, travel-related
     businesses, and leisure/recreation services.
     
     The Organization:  Access/Abilities is a consulting,
     problem-solving firm dedicated to finding resources for a
     better life beyond functionality and independence, as well
     as to providing accessibility and awareness training
     services.
     
     The aim of Access/Abilities is to provide resources for a
     better life, not just for a disability.  Local as well as
     national and international resources are available.  If
     Access/Abilities doesn't have the information needed, it
     will get it, if it is at all possible.
     
     Information Services:  Access/Abilities is "one-stop
     shopping" for people having physical impairments, with a
     databank of information about accessible travel
     opportunities, aids and appliances, sports and recreation
     programs, good-looking clothing that really fits, shopping
     and other customized services, and social services.
     
     Access/Abilities offers consulting services concerning
     architectural barriers and accessibility in the built
     environment, providing needs assessments and ideas for
     access solutions in many different types of facilities,
     including arts facilities, restaurants, commercial areas
     and publicly funded buildings.  Access/Abilities also
     offer sensitivity and awareness training regarding
     accessibility and disability issues.
     
     Services are provided on a fee-for-service and/or contract
     basis and vary according to the type of service provided. 
     Special payment arrangements can be made.  No individual
     will be refused service due to inability to pay.
     

Accreditation Council on Services for People With
Developmental
 Disabilities (ACDD)
8100 Professional Place
Suite 204
Landover, MD  20785
(301) 459-3191

     Disabilities Served:  Mental retardation, cerebral palsy,
     autism, epilepsy, and other developmental disabilities.
     
     Users Served:  Consumers, parents, professionals, agency
     personnel.
     
     The Organization:  As the national, independent, voluntary
     accrediting body for agencies serving persons with
     developmental disabilities, the Accreditation Council
     develops standards for services; assesses, on request, the
     compliance of agencies with the standards; and awards
     accreditation to agencies found to be in substantial
     compliance with the standards.  It also offers workshops
     and consultation to help agencies implement accreditation
     standards and prepare for accreditation survey and to
     assist both service consumers and service providers in
     using the accreditation process to help to improve
     services.  Established in 1969 as a component of the Joint
     Commission on Accreditation of Hospitals, the council was
     reorganized as an independent, not-for-profit corporation
     in 1979.  Its sponsoring organizations include the major
     developmental disability consumer, advocacy, and
     professional groups.
     
     Information Services:  The council responds to questions
     about its accreditation process, interprets its standards,
     and provides information concerning requirements for
     quality services.  The Standards for Services for People
     With Developmental Disabilities are available for
     purchase.  The council also publishes several quality
     enhancement guides.
     
     Adaptive Environments Center
374 Congress Street
Suite 301
Boston, MA  02110
(617) 695-1225 (Voice/TDD)
 
     Disabilities Served:  Physical, sensory, and mental
     disabilities.
     
     Users Served:  Disabled persons, parents, teachers,
     therapists, caseworkers, physicians, architects,
     engineers, developers, government agencies, and private
     corporations.
     
     The Organization:  The Adaptive Environments Center, a
     nonprofit organization, offers consultation, workshops,
     courses, conferences, and resource materials on accessible
     and adaptive design and accessibility legislation,
     standards, and guidelines.  The center's library contains
     a comprehensive collection of materials on accessible
     design.  The center is funded through public and private
     contracts and grants.
     
     Information Services:  The center's publications, for
     which there is a charge, include A Consumer's Guide to
     Home Adaptation (obtained through AEC) and Design for
     Access:  A Guidebook for Designing Barrier Free State and
     County Buildings and Access Improvements Workbook
     (obtained through the State House Bookstore).  The library
     is open to the public.
     
     
Administration on Aging (AoA)
Department of Health and Human Services
330 Independence Avenue, SW
Washington, DC  20201
(202) 619-0641

     Disabilities Served:  Aging, including aged disabled.
     
     Users Served:  Older persons and the general public.
     
     The Organization:  The Administration on Aging (AoA),
     created by the Older Americans Act (OAA) in 1965, is the
     only Federal agency devoted exclusively to the concerns
     and potential of older Americans.  Help for the elderly
     under the OAA is provided through programs administered by
     AoA, together with its 10 regional offices and 57 State
     and territorial units on aging, approximately 670 area
     agencies on aging, and Indian tribes.  AoA's primary
     goals, as envisioned by the act, are to (a) support a
     national network of State and area agencies on aging and
     Indian tribes in their efforts to reach out to older
     persons residing in communities across the Nation; (b)
     develop and oversee a comprehensive and coordinated system
     of supportive services and opportunities to meet the
     social and human service needs of the elderly; (c) serve
     as an advocate on behalf of older people.  AoA allocates
     funds to the State agencies on aging to administer and
     support a wide range of community-based supportive and
     nutrition services and other activities, including
     services in the home, services and opportunities in the
     community, access services, and services to individuals in
     long-term care institutions.  Also, AoA supports
     improvements in quality of life and services for older
     people through research and training grants.  Results of
     these studies are made available to professional
     organizations and the public.
     
     Information Services:  AoA has information about its
     programs and connects inquirers with State and area
     agencies on aging for information about local services.
     
     
Administration on Developmental Disabilities (ADD)
Office of Human Development Services
U.S. Department of Health and Human Services
Room 329D
HHH Building
200 Independence Avenue, SW
Washington, DC  20201
(202) 245-2890

     Disabilities Served:  Developmental disabilities, meaning
     a severe chronic disability that:
     
     (a)       is attributable to a mental or physical
     impairment or combination of  mental and physical
     impairments;
     (b)       is manifested before the person attains age 22;
     (c)       is likely to continue indefinitely;
     (d)       results in substantial functional limitation in
     three or more of the     following areas of major life
     activity:  self-care, receptive and     expressive
     language, learning, mobility, self-direction, capacity for
          independent living, and economic self-sufficiency;
     and 
     (e)       reflects the person's need for a combination and
     sequence of special,     interdisciplinary, or generic
     care, treatment, or other services which     are of
     lifelong or extended duration and are individually planned
          and coordinated.
     
     Users Served:  Planning, advocacy, and service agencies
     and facilities; universities; project grantees.
     
     The Organization:  The Administration on Developmental
     Disabilities (ADD) is responsible for administering the
     provisions of the Developmental Disabilities Assistance
     and Bill of Rights Act of 1990, which call for increased
     independence, productivity, community integration,
     interdependence, and inclusion of persons with
     developmental disabilities.
     
     The ADD administers four major program areas:  (1) the
     Basic State Grant program for States to plan and advocate
     for services for persons with developmental disabilities
     and their families; (2) the protection and advocacy system
     by which States protect the legal and human rights of
     persons with developmental disabilities; (3) the
     university-affiliated program by which university-based
     projects provide interdisciplinary training, demonstrate
     exemplary services and technical assistance, and
     disseminate information that increase and support the
     independence, productivity, and integration of persons
     with developmental disabilities; and (4) the projects of
     national significance program, which supports development
     of national and State policies to enhance the lives of
     people with developmental disabilities through such
     activities as data collection and analysis, technical
     assistance, educating policymakers, Federal interagency
     activities, and the enhancement of minority participation
     in public and private sector initiatives in the field of
     developmental disabilities.
     
     Information Services:   Information available from ADD
     relates to the programs it administers and is geared to
     officials of training and service agencies and facilities. 
     Specific information regarding State services may be
     obtained from individual State agencies that operate
     developmental disabilities programs.  For the names and
     addresses of specific State agencies, contact the ADD.
     

Adventures in Movement (AIM) for the Handicapped,
Inc.
945 Danbury Road
Dayton, OH  45420
(513) 294-4611

     Disabilities Served:  All handicaps.
     
     Users Served:  Disabled persons.
     
     The Organization:  Adventures in Movement (AIM) for the
     Handicapped was founded in 1958 to promote the teaching of
     movement using the AIM method, a series of rhythmical
     exercises involving gross and fine motor movements.  The
     purpose of the method is to improve muscle control and
     coordination and thereby enhance self-image.  The program
     can be adapted for instruction to all handicapped persons
     and all age groups.  The organization's major activity is
     the training of classroom teachers and volunteers in the
     AIM method.  Workshops are planned to meet the particular
     needs of sponsoring groups.
     
     Information Services:  Brochures describe the AIM method
     and the organization's workshops.  A handbook, Adventures
     in Movement for the Handicapped, illustrates the exercises
     used in AIM classes.  Maybe Tomorrow, a film of the AIM
     method in actual classroom use, is available for rent or
     purchase.  The organization will provide a list of school
     systems with AIM programs upon request.  For further
     information, contact the Education Department of AIM.  The
     AIM Water Program transposes the AIM method to the water,
     where exercise and movement, rather than actual swimming
     instruction, are emphasized.  An annual newsletter informs
     interested parties about developments within the
     organization.  There is no charge for information or
     services.
     
     
Affiliated Leadership League of and for the Blind of
 America (ALL)
1030 15th Street, NW
Suite 468
Washington, DC  20005
(202) 775-8261
 
     Disabilities Served:  Blindness and visual impairment.
     
     Users Served:  Disabled persons, parents, professionals.
     
     The Organization:  The Affiliated Leadership League of and
     for the Blind of America (ALL) is a coalition of over 80
     national, regional, State, and local membership
     organizations that serve people who are blind.  The
     primary function of the coalition is advocacy; it
     testifies before congressional committees and advises
     Federal agencies and national private organizations on the
     needs and rights of blind persons.  ALL's main interests
     are legislation, regulation, and judicial action affecting
     Federal programs serving blind and visually impaired
     people.
     
     Information Services:  A national delegate assembly is
     held annually, which contains seminars on information
     pertinent to blind people.  An annual legislative seminar
     is also held to instruct members on lobbying techniques
     and issues affecting blind persons.  Task forces are
     established periodically to study major issues.
     
     AIDS Clinical Trials Information Service (ACTIS)
P.O. Box 6421
Rockville, MD  20850
(800) 874-2572
(800) 243-7012 (TTY/TDD)

     Disabilities Served:  HIV infection.
     
     Users Served:  Individuals infected with HIV, their
     families, friends, physicians, and health care
     professionals.
     
     The Organization:  The AIDS Clinical Trials Information
     Service (ACTIS) is a Public Health Service project
     provided collaboratively by the Centers for Disease
     Control, the Food and Drug Administration, the National
     Institute of Allergy and Infectious Diseases, and the
     National Library of Medicine.
     
     Information Services:  ACTIS provides up-to-date
     information on clinical trials that evaluate experimental
     drugs and other therapies for adults and children at all
     stages of HIV infection--from patients who are
     HIV-positive with no symptoms to those with various
     symptoms of AIDS.
     
     Through the service, physicians, health care
     practitioners, individuals infected with HIV, and their
     families and friends can receive free up-to-date
     information about more than 250 federally and privately
     sponsored HIV and AIDS clinical trials and personalized
     assistance from English- and Spanish-speaking health
     specialists.
     
     Callers can receive this information over the telephone;
     also available, upon request, are searches of the clinical
     trials data base.  The information can also be accessed
     directly through two online data bases, AIDSTRIALS and
     AIDSDRUGS, available through the National Library of
     Medicine.
     
     
Al-Anon Family Group Headquarters, Inc.
P.O. Box 862 Midtown Station
New York, NY  10018
(212) 302-7240
(800) 344-2666 (United States Only) Meeting
Information
(800) 442-4525 (Canada Only) Meeting Information

     Disabilities Served:   Lives affected by problem drinkers.
     Users Served:   The relatives and friends of alcoholics
     including younger family members through the Alateen
     program.
     
     The Organization:   Al-Anon is a self-help, spiritual
     program of recovery based upon the Twelve Steps and Twelve
     Traditions.  Thirty-one thousand groups meet worldwide to
     recover from the family disease of alcoholism.  Al-Anon
     also serves Alateen, a program for younger family members
     who have been affected by someone else's drinking. 
     Members recover by attending meetings, reading literature,
     and talking to each other on a one-to-one basis.  Meetings
     do not include counseling or therapy; rather, they are
     based upon members' firsthand experience in applying the
     principles of the Al-Anon/Alateen program to their daily
     lives.
     
     Groups meet in public and private facilities which usually
     have handicap access; literature available in braille,
     audio cassette tape, and large type for visually impaired
     (write for catalog).
     
     Information Services:   General information is available
     to the public and professionals as per request by calling
     or writing Al-Anon Family Group Headquarters, Inc. 
     Meeting information for the United States and Canada is
     available Monday-Friday for those considering membership
     or for current members, 8 a.m. to 6 p.m., Eastern Time. 
     Local Al-Anon Information Service/Intergroup offices
     address and telephone number contact data is available by
     calling or writing.  Al-Anon/Alateen serves anyone whose
     life has been affected by a problem drinker.
     
     
Alcohol and Drug Problems Association of North
America 
  (ADPA)
1400 Eye Street, NW
Suite 1275
Washington, DC  20005
(202) 289-6755

     Disabilities Served:   All disabilities.
     
     Users Served:   Professionals and advocates in the field
     of alcohol and drug abuse prevention, intervention and
     treatment.
     
     The Organization:   The Alcohol & Drug Problems
     Association of North America (ADPA) was established to
     confront the problem of addiction and to minimize its
     consequences on the physical and social health of the
     Nation.  ADPA accomplishes this by serving as a policy
     advocate for those measures that offer a positive impact
     on addiction problems.  ADPA also provides a forum and
     opportunity of professionals and advocates in the field to
     join together to improve the quality of prevention and
     treatment services.
     
     Information Services:   ADPA provides timely
     communications to members of the latest events, new
     programs, and policy developments through the bi-monthly
     newsletter, The Professional.  ADPA also publishes the
     Journal of Alcohol and Drug Education.  Reduced
     subscription fees are available to members.  ADPA also
     conducts an annual national Women's Issues Conference, May
     5-8, 1991, Portland, Oregon, and a national annual
     conference, October 18-21, 1991, Atlanta, Georgia.
     
     
Alcoholism and Drug Treatment Addiction Center
The McDonald  Center for Alcoholism and Drug
Addiction
Department of Behavioral Medicine
Scripps Memorial Hospital
9888 Genesee Avenue
La Jolla, CA  92037
(619) 458-4300

     Disabilities Served:   All physical handicaps.
     
     Users Served:   Adults and adolescents who are chemically
     dependent (alcohol and other drugs) or have an eating
     disorder, adults with chronic pain, and adults with mental
     health disorders.
     
     The Organization:  Scripps Memorial Hospital is a
     nonprofit tertiary care facility.  The Department of
     Behavioral Medicine is a system of centers of excellence. 
     The McDonald Center for Alcoholism and Drug Addiction
     Treatment, the Mental Health Center, and the Pain Center
     are located on the campus of Scripps Memorial Hospital. 
     Using a multidisciplinary approach under the direction of
     a competent medical staff, inpatient and outpatient
     treatment services are available in all centers.  A
     long-term treatment center is available for chemically
     dependent adolescents, ages 11 to 17.
     
     Information Services:   Numerous services are available to
     the public, many at no charge:  educational programs for
     individuals, community and professional organizations,
     businesses, and schools; confidential assessments for
     chemical dependency, mental health disorders, eating
     disorders, and chronic pain; cassettes and videotapes;
     written materials.  Referrals to community-based treatment
     programs, 12-step support groups, and private physicians
     and therapists are provided to all callers not appropriate
     for the treatment services at Scripps Memorial Hospital's
     Department of Behavioral Medicine.
     
     
Alexander Graham Bell Association for the Deaf
3417 Volta Place, NW
Washington, DC  20007
(202) 337-5220 (Voice/TDD)

     Disabilities Served:  Deafness and hearing impairments.
     
     Users Served:  Disabled persons and their families,
     professionals, general public.
     
     The Organization:  The Alexander Graham Bell Association
     for the Deaf, founded in 1890, is committed to the idea
     that hearing-impaired children should be afforded the
     opportunity to develop spoken communication through the
     effective use of amplified residual hearing and
     speechreading skills.  The association's Children's Rights
     Program advocates educational options for deaf children
     and provides consultant services for families pursuing
     their legal rights.  Through this program, volunteers
     throughout the country serve as knowledgeable local
     resources for hearing-impaired children and their
     families.  Special divisions within the association's
     membership are Oral Deaf Adults Section, International
     Parent's Organization, and International Organization for
     the Education of the Hearing Impaired.
     
     Information Services:  The association publishes a
     journal, Volta Review, an annual monograph, and a
     newsletter.  It also publishes a variety of books and
     audiovisual materials concerning the psychological,
     social, and educational implementations of hearing loss. 
     The association sponsors regional conferences and a
     biennial convention.
     
     The association maintains a library of works of both
     historical and current importance in the field of
     deafness.  A lending library of current materials is
     available to members.
     
     The association disseminates printed materials and answers
     inquiries from hearing-impaired persons, their families,
     professionals, and the general public.
     
     Alzheimer's Disease Association 
70 East Lake Street
Chicago, IL  60601
(312) 853-3060
(800) 621-0379 (Outside Illinois)
(800) 572-6037 (In Illinois)
     
     Disabilities Served:  Alzheimer's disease and related
     disorders.
     
     Users Served:  Disabled persons and their families, health
     care professionals, general public.
     
     The Organization:  The Alzheimer's Association  was
     founded in 1980 to heighten public awareness of this
     degenerative brain disorder, provide support for patients
     and their families, and aid research efforts.  Currently,
     the Alzheimer's Association network includes over 200
     chapters and affiliates across the country, representing
     over 1,000 family support groups.  The Alzheimer's
     Association's  board of directors is composed of business
     leaders, health professionals, and family members. 
     Additionally,  The Association's Medical and Scientific
     Advisory Board consults and monitors issues related to
     Alzheimer's disease.
     
     The major goals of the Alzheimer's Association  include
     (1) supporting research into causes, treatment, cures, and
     prevention; (2) providing family support through local
     chapters, affiliates and family support groups; (3)
     stimulating education and public awareness for both
     professionals and the general public on Alzheimer's
     disease; and (4) advocating for legislation that responds
     to the needs of patients and family members at Federal,
     State and local levels.  In addition to its public
     awareness and advocacy activities, the national office
     administers research grant programs to initiate new
     investigations into the cause(s), treatment and cure of
     Alzheimer's disease.
     
     Information Services:  The Alzheimer's Association serves
     as a clearinghouse for information on Alzheimer's disease. 
     The association publishes a quarterly newsletter which
     covers organizational news at the national and
     chapter/affiliate levels, research developments, medical
     issues, and other items of general interest.  As part of
     its educational efforts, the association sponsors a
     month-long public awareness campaign for National
     Alzheimer's Disease Awareness Month each November,
     utilizing radio, television and print media.
     
     The Alzheimer's Association chapters, affiliates and
     support groups offer the most direct link to assistance
     for patients and families.  Support groups are moderated
     by health care professionals and experienced caregivers
     and provide a forum for sharing information, answering
     questions, giving recommendations for patient care
     options, and offering a sympathetic ear to family
     problems.  Major chapter/affiliate activities include
     family help programs, such as information-sharing
     meetings, telephone "helplines," and public awareness
     campaigns.  Many chapters and affiliates publish
     literature aimed at particular caregiving issues and serve
     as the local resources for national Alzheimer's
     Association information.  Some also provide speakers'
     bureaus.
     
     A nationwide 24-hour hotline provides information and
     links families who need assistance with nearby chapters
     and affiliates.
     
     
American Academy for Cerebral Palsy and
Developmental
 Medicine (AACPDM)
1910 Byrd Avenue 
Suite 118
P.O. Box 11086
Richmond, VA  23230
(804) 282-0036

     Disabilities Served:   Persons with neuro-developmental
     disabilities.
     
     Users Served:   Health care professionals, physicians,
     rehabilitation specialists.
     
     The Organization:   The goal of the Academy for Cerebral
     Palsy and Developmental Medicine (AACPDM) is to foster and
     stimulate professional education, research, and interest
     in cerebral palsy and related disorders, and to correlate
     all aspects of this endeavor for the welfare of those
     involved.
     
     Information Services:   Membership in the Academy includes
     a monthly subscription to Developmental Medicine and Child
     Neurology, the newsletter, and reduced fees at all
     educational offerings.  The Annual Meeting includes
     symposia, free papers, posters, and instructional courses.
     
     American Academy of Child and Adolescent Psychiatry
 (AACAP)
3615 Wisconsin Avenue, NW
Washington, DC  20016
(202) 966-7300
     
     Disabilities Served:   Primarily child and adolescent
     mental illness, including children with mental retardation
     and chronic physical illnesses.
     
     Users Served:   Child and adolescent psychiatrists, mental
     health professionals, educators, child care providers,
     parents.
     
     The Organization:   The American Academy of Child and
     Adolescent Psychiatry (AACAP) is a professional membership
     organization, established in 1953, representing 4,600
     child and adolescent psychiatrists.  AACAP members
     actively research, diagnose, and treat psychiatric
     disorders affecting children and adolescents and their
     families, and the academy supports this work through a
     variety of programs including government liaison, national
     public information, and medical education.
     
     
American Academy of Orthotists and Prosthetists
(AAOP)
717 Pendleton Street
Alexandria, VA  22314
(703) 836-7118

     Disabilities Served:   Any condition that requires an
     orthotist's or prosthetist's care, i.e., replacement of
     missing limbs with a prosthesis or the use of bracing for
     the body.
     
     Users Served:   Orthotists and prosthetists certified by
     the American Board for Certification in Orthotics and
     Prosthetics (ABC).
     
     The Organization:   The American Academy of Orthotists and
     Prosthetists (AAOP) is a nonprofit association composed
     exclusively of individuals who have met the educational
     requirements of and have been awarded practitioner
     accreditation by the American Board for Certification in
     Orthotics and Prosthetics (ABC).  Membership in the
     academy signifies a personal commitment to advancing the
     prosthetic/orthotic profession and to enhancing the
     quality of care provided to disabled individuals served
     through education and professional development.
     
     Information Services:   AAOP distributes publications that
     deal in scientific research and general areas of orthotics
     and prosthetics to its membership.  The academy's
     newsletter, entitled Focus, reports on the academy's
     activities, orthotics and prosthetics research,
     educational programs, and governmental relations programs. 
     This newsletter is an unscheduled publication.  A magazine
     published by the American Orthotic and Prosthetic
     Association (AOPA), Almanac, is another publication
     received by membership.  It is the largest circulation of
     any magazine for orthotics and prosthetics and is
     available only to members of the AAOP and AOPA.  The
     Journal of Prosthetists and Orthotists (JPO) is a
     quarterly scientific journal published by the AAOP and
     AOPA.  The academy holds an annual meeting and scientific
     symposium each year and four continuing education
     conferences.  All conferences include in-depth lectures on
     the latest techniques and newest developments in the
     orthotics and prosthetics profession.
     
     
American Academy of Otolaryngology-Head and Neck
Surgery
 (AAO-HNS)
One Prince Street
Alexandria, VA  22314
(703) 836-4444

     Disabilities Served:   Disorders of the ears, nose,
     throat, head, and neck.
     
     Users Served:   Physicians, health care professionals,
     general public.
     
     The Organization:   The American Academy of
     Otolaryngology-Head and Neck Surgery (AAO-HNS) is a
     nonprofit association in its 95th year.  It has more than
     9,000 members who are otolaryngologist-head and neck
     surgeons.  Its primary goals are to advance the science
     and art of medicine related to otolaryngology and to
     provide education services for the specialty.
     
     Information Services:   The academy publishes more than 30
     patient education leaflets on topics related to the
     specialty.  Single copies are free to the public. 
     Geographic referral lists of its members are also
     available upon request.  Its national public service
     campaign THROUGH WITH CHEW provides information about the
     hazards of smokeless tobacco.  It also is a cosponsor of
     "Better Hearing and Speech Month," a national public
     awareness campaign.
     
     To keep its members up to date on new research and
     clinical findings, numerous monographs, a monthly
     scientific journal and newsletter, home study courses,
     self-assessment examinations, video medical education
     programs, etc., are available.  At its annual meeting,
     more than 400 instruction courses, 1 to 3 hours in length,
     are presented in addition to plenary sessions, posters,
     and scientific and technical exhibits.
     American Academy of Pain Medicine (AAPM)
5700 Old Orchard Road
First Floor
Skokie, IL  60077
(708) 966-9510

     Disabilities Served:   Chronic pain syndrome.
     
     Users Served:   Physicians specializing in pain medicine.
     
     The Organization:   The American Academy of Pain Medicine
     (AAPM) is the official organization representing
     physicians active in the field of pain medicine in the
     United States.  Our mission is to enhance the practice of
     pain medicine in the United States by promoting a
     socioeconomic and political climate conducive to the
     practice of pain medicine in an effective and efficient
     manner and to assure comprehensive quality medical care by
     physicians specializing in pain medicine to patients in
     need of such service.  The academy is the only physicians'
     pain medicine organization to be recognized by the
     American Medical Association (AMA), holding a seat in the
     AMA House of Delegates. AAPM is an associate member of the
     Commission for the Accreditation of Rehabilitation
     Facilities and maintains liaison with the American Pain
     Society (APS), a national chapter of the International
     Association for the Study of Pain.
     
     Information Services:   AAPM publishes a quarterly
     journal, Clinical Journal of Pain , which contains
     clinical articles, research information, articles
     concerning socioeconomic issues, and news.  It holds an
     annual meeting and refresher course, and offers regional
     sessions that focus on topics in pain medicine and
     practice.
     
     
American Academy of Physical Medicine and
Rehabilitation
 (AAPM&R)
122 South Michigan Avenue
Suite 1300
Chicago, IL  60603
(312) 922-9366

     Disabilities Served:   Physical disabilities. 
     
     Users Served:   Physicians in physical medicine and
     rehabilitation.
     
     The Organization:   Founded in 1938 by members of the
     American Congress of Physical Therapy, the American
     Academy of Physical Medicine and Rehabilitation's (AAPM&R) 
     mission is to maximize quality of life; minimize the
     incidence and prevalence of impairments, disability, and
     handicaps; promote societal health; and enhance the
     understanding and the development of physiatry.  The
     academy serves its members and their patients, other
     health professionals, and society.  The academy seeks to
     achieve excellence in physiatric practice, education, and
     research through the activities of its organization and
     members.
     
     The academy's Washington Counsel interacts with
     congressional staff, the Health Care Financing
     Administration (HCFA), NIH, and health care provider and
     consumer organizations to impart and articulate the
     physiatrists' viewpoint while identifying and monitoring
     legislation affecting the specialty.  The academy conducts
     CME-approved courses at its Annual Scientific Assembly
     (held each year in late October/early November) and
     develops and publishes the Self-Directed Medical Knowledge
     Program, providing the definitive continuing education
     curriculum for PM&R.  The program includes the Study
     Guide, separate annual Self-Assessment Examinations for
     residents and practitioners, and courses specifically
     related to Study Guide topics during the Annual Scientific
     Assembly.
     
     Information Services:   The academy offers the following
     publications:  the Physiatrist newsletter, published 10
     times annually; Spectrum brochure; membership brochure;
     Annual Assembly program; monthly scientific journal, the
     Archives of Physical Medicine and Rehabilitation,
     published in conjunction with the American Congress of
     Rehabilitation Medicine; Study Guide.  Information
     services are intended primarily for members, and there is
     a nominal charge for materials to cover costs.
     
     
American Alliance for Health, Physical Education,
 Recreation and Dance (AAHPERD)
1900 Association Drive
Reston, VA  22091
(703) 476-3400
 
     Disabilities Served:  All handicaps.
     
     Users Served:  Teachers and professionals in physical
     education, health education, sports, recreation, and
     dance.
     
     The Organization:  The American Alliance for Health,
     Physical Education, Recreation and Dance (AAHPERD) is a
     nonprofit association of professionals concerned with
     improving programs in schools and communities in the areas
     of physical education, sports, health education,
     recreation, and dance.  The American Alliance provides
     members with opportunities and materials for professional
     growth through information on the latest issues, trends,
     technologies, and legislative developments.
     
     Information Services:  The American Alliance issues
     several publications dealing with planning, organizing,
     and conducting physical education, recreation, sports, and
     related programs for disabled persons.  Periodicals of
     general interest include The Journal of Physical
     Education, Recreation and Dance (published nine times per
     year), Health Education (published bimonthly), and
     Research Quarterly for Exercise and Sport.  The annual
     national AAHPERD convention includes numerous sessions and
     in-depth conferences on topics dealing with research
     methods and new developments in the fields of adapted
     physical education, therapeutic recreation, and related
     specialties.
     
     
     American Amputee Foundation, Inc. (AAF)
P.O. Box 250218
Little Rock, AR  72225
(501) 666-2523
     
     Disabilities Served:  Amputations.
     
     Users Served:  Disabled persons, parents, attorneys,
     physical therapists, occupational therapists,
     prosthetists.
     
     The Organization:  The American Amputee Foundation, Inc.,
     (AAF) provides peer support to amputees and their
     families.  Through chapters in 31 States, AAF offers
     counseling, information and referral, direct financial aid
     in the form of grants and low interest loans,
     rehabilitation coordination, and hospital visitation.  The
     foundation distributes educational and self-help material
     to amputee consumers.  AAF has developed a 3 1/2-day peer
     counseling training program, certified by the University
     of Arkansas.
     
     Information Services:  AAF provides a variety of
     publications for amputees and their families, including
     self-help guides, a quarterly newsletter, Ability
     magazine, and a medical data directory on services for
     amputees throughout the United States.  A videotape, One
     Step at a Time, is also available.  Referrals are made for
     services for amputees nationwide, including recreation,
     rehabilitation, medical facilities, and prosthetics, for
     which a computerized system of equipment and certified
     prosthetists has been developed.  AAF provides technical
     assistance in developing outreach chapters in other
     States, including local affiliates.
     American Anorexia/Bulimia Association, Inc.
418 East 76th Street
New York, NY  10021
(212) 734-1114
     
     Disabilities Served:   Anorexia/bulimia.
     
     Users Served:   Individuals with anorexia/bulimia and
     their families.
     
     The Organization:   The American Anorexia/Bulimia
     Association is a nonprofit organization.  While the
     organization does not subscribe to any one particular
     type of treatment, its philosophy is that eating
     disorders are psychological problems that require
     therapeutic intervention.  The organization acts as a
     nationwide referral service consisting of self-help
     groups, organizations, inpatient and outpatient
     treatment centers, and individual professionals
     specializing in this field.
     
     Information Services:   The American Anorexia/Bulimia
     Association offers communication workshops and a quarterly
     newsletter.
     
     
     American Art Therapy Association (AATA)
1202 Allanson Road
Mundelein, IL  60060
(708) 949-6064
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Art therapists.
     
     The Organization:  The American Art Therapy Association
     (AATA) was established to improve the standards of art
     therapy training and practice and to widen employment
     opportunities for art therapists.  Art therapy provides
     the opportunity for nonverbal expression and
     communication.  AATA approves graduate-level training
     programs in art therapy and registers professional art
     therapists. 
     
     Information Services:  Literature on standards of
     registration, a list of university training programs, and
     bibliographies of professional literature are available
     from the association.  AATA publishes a professional
     journal, a newsletter, and the proceedings of its annual
     meetings, which may be purchased.  Audiovisual materials
     depict art therapists working with different populations,
     such as mentally retarded, emotionally disturbed, and
     elderly individuals.  Professionals and students are
     referred to local art therapy associations and
     professional contacts working in specific areas of the
     field.
     
     
     American Association for Continuity of Care (AACC)
720 Light Street
Baltimore, MD  21230
(301) 837-1600
     
     Disabilities Served:   Variety of conditions resulting in
     functional impairment of a patient/client that has some
     effect on his or her ability to be independent or
     conditions that require ongoing medical/social
     intervention.
     
     Users Served:   Health care professionals.
     
     The Organization:   The American Association for
     Continuity of Care (AACC) was founded in 1982 by a group
     of multidisciplinary health care professionals from around
     the United States.  AACC is committed to promoting
     continuity of care within the health care system.  The
     organization promotes the concept that every patient has
     the right to quality, coordinated discharge planning; the
     philosophy that continuity of care is a holistic approach
     that is centered on the patient and family; the belief
     that continuity of care encompasses the preventive,
     therapeutic, rehabilitative, custodial, medical, and
     nonmedical needs of patients, etc.
     
     
     American Association for Counseling and Development 

 (AACD)
5999 Stevenson Avenue
Alexandria, VA  22304
(703) 823-9800
     
     Disabilities Served:  Mental health.
     
     Users Served:   Counselors and human development
     specialists.
     
     The Organization:   The American Association for
     Counseling and Development (AACD) is a 58,000 member
     nonprofit association for counselors and human development
     professionals.  Founded in 1913 and formally established
     in 1952 as the American Personnel and Guidance
     Association, its mission is to promote health; remove
     barriers to human development; support informed
     legislation and social policy; demand high standards of
     professional preparation, practice, and ethical conduct;
     encourage research; publish professional literature; and
     provide continuing educational opportunities that are
     consistent with maintaining professional licensure or
     certification at the State and/or national level.
     
     AACD is organized by 16 divisions, 4 regions, and 56
     chapters in the States and territories.  There is a
     European branch, and members are located in 50 other
     nations.
     
     Information Services:   Division journals, major
     textbooks, a flagship journal, and a newspaper are
     published on a monthly, bimonthly or quarterly basis.
     
     
     American Association for Music Therapy (AAMT)
P.O. Box 27177
Philadelphia, PA  19118
(215) 242-4450
     
     Disabilities Served:  All handicaps. 
     
     Users Served:  All interested persons.
     
     The Organization:  The American Association for Music
     Therapy (AAMT) approves academic programs in music therapy
     and certifies professional music therapists.
     
     Information Services:  Free information is available on
     music therapy as a career, academic program approval, and
     professional registration requirements.  AAMT has a
     suggested reading list for music therapists.  For
     university program administrators, the association
     publishes standards for educating students within those
     programs.  AAMT holds one or two conferences per year,
     where professional papers are delivered on various aspects
     of music therapy.  AAMT publishes a journal; an
     international report on music therapy worldwide; and a
     newsletter containing information about workshops, new
     publications in the field, and activities of AAMT.
     
     
     American Association for Rehabilitation Therapy,
Inc. (AART)
P.O. Box 93
North Little Rock, AR 72116
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Rehabilitation therapists and allied health
     professionals.
     
     The Organization:  The philosophy of the American
     Association for Rehabilitation Therapy, Inc., (AART) is
     that rehabilitation should begin as soon as a patient
     enters the hospital.  Members--occupational analysts,
     industrial rehabilitation therapists, education
     therapists, recreation therapists, and rehabilitation
     therapists--work mostly in hospital settings under medical
     supervision.  AART offers national and regional education
     seminars devoted to these speciality areas.  The
     association sponsors the American Certification Council
     for Medical Rehabilitation Therapists and Specialists,
     which certifies professionals working in these areas who
     meet specific educational and experience requirements and
     pass a national certification examination.
     
     Information Services:  AART publishes brochures on careers
     and training in each of the specialty areas.  It publishes
     a quarterly newsletter, The Rehab Bulletin, and a journal,
     The American Archives of Rehabilitation Therapy.
     
     
     American Association for Respiratory Care (AARC)
11030 Ables Lane
Dallas, TX  75229
(214) 243-2272
     
     Disabilities Served:   Respiratory conditions.
     
     Users Served:   Respiratory therapists and technicians,
     pulmonary laboratory technicians, critical care nurses,
     physicians, students, emergency transport personnel.
     
     The Organization:   Members of the American Association
     for Respiratory Care (AARC) include professionals who
     provide health care to persons with lung disease, such as
     respiratory therapists, respiratory therapy technicians,
     pulmonary laboratory technicians, and critical care
     nurses.  The association divides into several specialty
     sections (e.g., adult acute respiratory care,
     cardiopulmonary, education, management,
     perinatal-pediatrics, and continuing care, rehabilitation,
     and transport); and seminars and workshops are sponsored
     in these areas by the national and State affiliates.  
     CRCE, AARC's Continuing Respiratory Care Education
     Program, assists educators and managers in the development
     of continuing education activities, accredits continuing
     education programs, and recognizes and documents
     membership participation in continuing education.
     
     Information Services:   AARC provides information on
     professional training and career opportunities for
     respiratory therapists and publishes a list of approved
     schools of respiratory therapy.  Information is provided
     to professionals on diagnostic evaluation and treatment of
     respiratory conditions and on equipment and special
     devices used in respiratory therapy.  The association
     publishes continuing education materials for each
     specialty area.  Monthly publications include a
     professional journal, Respiratory Care, and a feature
     magazine, AARC Times, about people working in the
     profession.  Brochures and pamphlets are low cost.  Prices
     and descriptions of professional books and manuals can be
     requested.
     
     
     American Association of Diabetes Educators (AADE)
500 North Michigan Avenue
Chicago, IL  60611
(312) 661-1700
     
     Disabilities Served:   Diabetes.
     
     Users Served:   Diabetes educators.
     
     The Organization:   The American Association of Diabetes
     Educators (AADE) is a nonprofit organization founded in
     1974 to promote the growth of quality diabetes education
     for the diabetic consumer in the United States.
      
     Information Services:   Publications include a bimonthly
     journal, 
     The Diabetes Educator, and a monthly newsletter to the
     membership.  Other publications include Diabetes
     Education:  A Core Curriculum for Health Professionals,
     Healthy Eating for Healthy Growing - Children's Coloring
     Book, Patient Education Handout Sheets, Studies of the
     Patient Perspective Viewpoint:  Nutrition, and AADE
     Reference Manual for Evaluation of Diabetes Education
     Programs.  Price lists and description of various
     memberships offered by the AADE are available upon
     request.
     
     
     American Association of Disability Communicators
(AADC)
c/o National Easter Seal Society
70 East Lake Street
Chicago, IL  60601
(312) 726-6200 (Voice)
(312) 726-4258 (TDD)
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Disabled persons, editors, writers, and
     public relations people concerned with disability.
     
     The Organization:  The American Association of Disability
     Communicators (AADC) was founded in 1983 with the support
     of the President's Committee on Employment of the
     Handicapped and the National Organization on Disability. 
     Its purpose is to identify disability as a major, ongoing
     priority in American society by improving media relations
     and media access for all disability communicators in
     nonprofit agencies, advocacy groups, independent living
     centers, and government.  AADC is also actively involved
     in encouraging job opportunities for disabled people in
     the media and in professional disability communications.
     
     The association serves as a national resource for
     disability communicators, providing materials, unique
     information and opportunities for the exchange of ideas. 
     AADC offers special mailings and technical expertise to
     member organizations and organizes media and disability
     workshops.  Referrals are made to a network of disabled
     people working in the media, including writers,
     broadcasters, editors, and reporters.
     
     In 1989, administration of AADC was absorbed by the
     National Easter Seal Society.
     
     Information Services:  AADC publishes a quarterly
     newsletter, which covers developments and information
     about new ideas and programs concerning disability
     communications and spotlights disabled people working in
     the media.
     
     
     American Association of Homes for the Aging (AAHA)
901 E Street, NW
Suite 500
Washington, DC  20004
(202) 783-AAHA
     
     Disabilities Served:   Frail elderly.
     
     Users Served:   Administrators, staff and residents of
     nursing homes, continuing care retirement communities,
     other related health and housing facilities, and  elderly
     persons in the community at large.
     
     The Organization:  The American Association of Homes for
     the Aging (AAHA) is a national nonprofit organization
     representing and promoting the interests of its
     constituents through advocacy, education, professional
     development, research, and services.  Some issues of
     concern include long-term financing, nursing home quality
     of care, nursing home reform, housing reform to increase
     the availability of affordable housing for the low- and
     middle-income elderly, Federal housing budgets, and
     regulation of continuing care retirement communities. 
     AAHA enhances its members' ability to meet the social,
     health, environmental, and quality of living needs of the
     individuals and communities they serve.
     
     Information Services:   AAHA offers a broad array of
     reference materials on aging, long-term care, housing,
     continuing care retirement communities, and Alzheimer's
     disease.  The association's newsletter, AAHA Provider
     News, is a monthly publication for members providing
     readers with a digest of AAHA's public policy activity and
     alerting them to recent developments and current opinion
     in the field of aging.  Along with reports on trends in
     long-term health care and housing, AAHA Provider News also
     offers "Job Mart", which lists job opportunities
     nationwide in the not-for-profit aging services field. 
     AAHA publishes a directory of members and several
     publications of interest to housing and nursing home
     managers and also offers instructional videotapes and
     educational cassettes.  AAHA's national annual meeting and
     exposition features an extensive program of educational
     seminars that mirror AAHA's interest in the changing needs
     of older adults.  Topics deal with care and services,
     management and planning, public policy, and trends and
     innovations.
     
     
     American Association of Kidney Patients (AAKP)
1 Davis Boulevard
Suite 302
Tampa, FL  33606
(813) 251-0725
(800) 749-2257
     
     Disabilities Served:   Dialysis and transplant patients,
     their families, and health care professionals.
     
     The Organization:   The American Association of Kidney
     Patients (AAKP) is the voluntary, patient organization,
     which for over 20 years has been dedicated to helping
     renal patients and their families deal with the physical
     and emotional impact of kidney disease.  The programs
     offered by AAKP inform and inspire patients and their
     families to better understand their condition, adjust more
     readily to their circumstances, and resume more normal
     productive lives in their communities.
     
     Information Services:   AAKP publishes several pamphlets
     dealing with the emotional and physical effects of renal
     disease.  A twice yearly magazine and a quarterly
     newspaper for patients, their families, and health care
     professionals are also published.
     
American Association of Psychiatric Services 
 for Children (AAPSC)
1200-C Scottsville Road
Suite 225
Rochester, NY  14624
(716) 235-6910
      
     Disabilities Served:  Mental and emotional disorders.
     
     Users Served:  Child mental health professionals,
     organizations, and individuals.
     
     The Organization:  The American Association of Psychiatric
     Services for Children (AAPSC) is a membership organization
     of psychiatric organizations offering treatment, research,
     and training and individual professionals specializing in
     the field of mental health.  The association stresses high
     quality standards for clinical practice, training, and
     services among its goals.  Toward those aims, AAPSC offers
     consultation to service providers on planning,
     development, evaluation, standards, accreditation, and
     financing of child mental health facilities.  AAPSC
     supports and conducts research, represents the concerns of
     its membership before Congress and Federal agencies, and
     cooperates with other professional organizations in
     developing strategies to increase the impact of mental
     health considerations on the health planning process.  A
     roster of available staff positions in the child mental
     health care field is maintained at the national office.
     
     Information Services:  AAPSC's legislative activities and
     general information are reported in a bimonthly
     newsletter.  The association publishes the results of its
     studies and papers in its journal, Child Psychiatry and
     Human Development.  At the conference, short courses on
     aspects of child mental health care are offered for
     continuing education credits.  AAPSC also provides
     referral services for emotionally disturbed children.
     
     
     American Association of Spinal Cord Injury Nurses
(AASCIN)
75-20 Astoria Boulevard
Jackson Heights, NY  11370
(718) 803-3782
     
     Disabilities Served:   Spinal cord injured individuals.
     
     Users Served:   Nurses, health care professionals, general
     public.
     
     The Organization:   The American Association of Spinal
     Cord Injury Nurses (AASCIN) was established in 1983 as a
     nonprofit organization to help solve the many health
     problems associated with spinal cord injury.  Its goals
     are (1) to advance, foster, encourage, promote and improve
     nursing care of spinal cord injured individuals;  (2) to
     develop and promote education and research related to
     nursing care of persons with spinal cord injury and; (3)
     to recognize nurses whose careers are devoted to the
     problems of spinal cord injury and to promote the exchange
     of ideas between such persons.  Its membership is national
     and totals approximately 1,600 persons.  It provides funds
     for research, convenes an annual educational conference,
     and publishes educational materials.
     
     Information Services:   AASCIN publishes a quarterly
     journal, SCI Nursing, and publications, Educational
     Guidelines for Professional Nursing Practice,
     Patient/Family Educational Manual, and provides
     applications for research program grants.
     
     
     American Association of University Affiliated
Programs
 for Persons With Developmental Disabilities (AAUAP)
8605 Cameron Street
Suite 406
Silver Spring, MD  20910
(301) 588-8252
     
     Disabilities Served:   Developmental disabilities, chronic
     handicapping conditions.
     
     Users Served:   Health, education, and social service
     professionals; developmentally disabled and chronically
     ill individuals.
     
     The Organization:   The purpose of the American
     Association of University Affiliated Programs for Persons
     With Developmental Disabilities (AAUAP) is to provide a
     central office and focal point to the 50 University
     Affiliated Programs (UAPs) located across the Nation. 
     UAP's meet the needs of developmentally disabled persons
     through the following services:  (a) comprehensive and
     interdisciplinary training of a broad range of
     professionals and paraprofessional persons; (b)
     comprehensive and interdisciplinary screening, evaluation,
     treatment, planning, and educational programming; (c)
     technical assistance to generic and specialized agencies;
     and (d) dissemination of research findings.
     
     UAP's are located at or affiliated with leading colleges
     and universities across the country.  The association also
     works with Department of Health and Human Services (HHS)
     agencies dealing with developmental disabilities and with
     congressional committees and their staffs.
     
     Information Services:   Lay and professional inquirers can
     request information on its member programs and the types
     of programs and services they provide.
     
     Publications include the quarterly AAUAP Network News,
     which contains reports on association activities and news
     relevant to the UAP network, to the Developmental
     Disabilities program, and to the Title V (Maternal and
     Child Health) program.  Other publications include the
     Resource Guide to Organizations Concerned with
     Developmental Handicaps, published annually, technical
     reports on developmental disabilities and HIV infection;
     guidelines on developmental services for children and
     adults with HIV infection; and prevention matters.
     
     Brochures are available that describe the UAP Network and
     the Shared Communications and Assistance Network (SCAN)
     program.  SCAN is a national electronic link for
     immediate, accurate communication in resources and
     services for disabled persons with State, local, and
     regional options.  Services available include electronic
     mail, file transfer, bulletin boards, information and
     referral, and resource data bases.
     
     
     American Association on Mental Retardation (AAMR)
1719 Kalorama Road, NW
Washington, DC  20009
(202) 387-1968
     
     Disabilities Served:  Mental retardation.  
     
     Users Served:  Professionals and others concerned about
     mental retardation.
     
     The Organization:  The American Association on Mental
     Retardation (AAMR) is an organization of professionals
     working in the field of mental retardation.  It was
     established in 1876 to improve services to people who are
     mentally retarded.  The association has State/provincial
     chapters organized into 9 geographic areas and 18
     divisions for specific professional disciplines.  AAMR and
     each region and State unit hold annual conferences where
     workshops and seminars (some for continuing education
     credits) are offered on a variety of topics related to
     serving persons who are mentally retarded.
     
     Information Services:  AAMR publishes two professional
     journals, The American Journal on Mental Retardation,
     devoted to research in the field, and Mental Retardation,
     devoted to program activities.  A bimonthly newsletter,
     New & Notes, provides up-to-date information on current
     issues and models of service.  The association's testing
     materials include the Adaptive Behavior Scales, a test to
     measure the abilities of people who are mentally retarded.
     
     Other publications include Classification in Mental
     Retardation, monographs, books, and other publications on
     social and legislative issues.  Each region publishes its
     own newsletter.
     
     
     American Bar Association (ABA)
1800 M Street, NW
Washington, DC  20036
(202) 331-2200
      
     Disabilities Served:  Developmental disabilities, mental
     illness, and physical disabilities.
     
     Users Served:  Disability professionals and advocates.
     
     The Organization:  The American Bar Association (ABA), a
     professional membership organization for lawyers, through
     its Commission on the Mentally Disabled, formulates policy
     on mental disability issues and monitors legal
     developments affecting mentally disabled, developmentally
     disabled, and physically disabled persons.
     
     Information Services:  The ABA publishes the Mental and
     Physical Disability Law Reporter, which contains articles
     on important cases, decisions, laws, codes, and
     regulations affecting mentally disabled, developmentally
     disabled, and physically disabled individuals.  Since 1980
     the publication's base of interest has been broadened to
     include education and accessibility issues, Sections 503
     and 504 of the Rehabilitation Act, and other matters of
     interest to all disabled people.  Since 1976 the Reporter
     has covered over 6,000 cases, and each year it covers 1000
     new cases.  The cases are summarized and indexed by over
     200 subject matter topics.  The Reporter is published six
     times per year and is available by subscription.  Other
     major publications include Mental Disability Law:  A
     Primer and A Model Regulating Board and Care Houses: 
     Guidelines for States.
     
     American Board for Certification
  in Orthotics and Prosthetics (ABC)
717 Pendleton Street
Alexandria, VA  22314
(703) 836-7114
     
     Disabilities Served:   All amputees and handicapped
     individuals requiring prosthetic and orthotic treatment.
     
     Users Served:   Orthotists, prosthetists, registered
     technicians, and accredited facilities.
     
     The Organization:   The American Board for Certification
     in Orthotics and Prosthetics, also known as ABC, is a
     credentialing body constituted to identify those orthotic
     and prosthetic practitioners qualified to render essential
     public health services in these disciplines.  ABC conducts
     examinations to test the competency of these individuals
     engaged in the practice of orthotics/prosthetics who
     voluntarily apply for the examination.  ABC also performs
     site inspections and evaluations of interested facilities. 
     Those facilities deemed to be capable of offering quality
     orthotic/prosthetic patient care are accredited by ABC.
     
     Information Services:   The American Board for
     Certification offers brochures on careers in the field of
     orthotics and prosthetics.  Other publications include a
     yearly Registry listing all certified practitioners,
     accredited facilities, and registered technicians.  The
     American Orthotic and Prosthetic Association Almanac, a
     monthly magazine, offers current information on ABC and
     happenings in the field of orthotics and prosthetics.
     
     
     American Burn Association
Baltimore Regional Burn Center
4940 Eastern Avenue
Baltimore, MD  21224
(800) 548-2876
     
     Disabilities Served:   Burn injuries.
     
     Users Served:   Physicians, nurses, therapists, educators,
     health administrators, and other professionals with a
     demonstrated interest in burn injury.
     
     The Organization:   The American Burn Association was
     founded in 1967, as an outgrowth of a series of annual
     seminars sponsored by leading institutions in the field of
     burn treatment.  Standing committees are maintained in
     such areas as Burn Prevention, Organization and Delivery
     of Burn Care, and Education.
     
     It is an organization of health care professionals
     interested in the care of burned patients, education of
     burn team members, prevention of burn injuries, and
     research.
     
     The association's objectives are to stimulate and sponsor
     study and research in the treatment and prevention of
     burns, provide a forum for the presentation of such
     knowledge, foster training opportunities for individuals
     interested in burns, and encourage publications pertaining
     to these activities.
     
     Information Services:   Association communications include
     a membership directory published every other year, three
     to four newsletters a year, and an annual directory of
     educational programs and materials.  Members also receive
     the Journal of Burn Care and Rehabilitation, six issues a
     year.
     
     One task undertaken by the organization was the
     compilation of a list of approximately 210 hospitals in
     the United States and Canada entitled Burn Care Resources
     in North America.  This is published every 2 years and
     receives many requests.
     
     
     American Camping Association (ACA)
Bradford Woods
5000 State Road 67 North
Martinsville, IN  46151
(317) 342-8456
      
     Disabilities Served:  All.
     
     Users Served:  Disabled persons.
     
     The Organization:  The American Camping Association (ACA)
     accredits camps throughout the country according to
     standards of health, safety, and program.  An annual guide
     lists camps that mainstream physically disabled or
     mentally retarded children and others that serve children
     with epilepsy, diabetes, asthma, and learning disabilities
     and children, youths, and adults who are deaf, blind, and
     physically, emotionally or mentally handicapped.  The
     primary focus of the association, however, is not only on
     services to the disabled.
     
     Information Services:  Camping Magazine is the official
     journal of the association.  The annual Guide to
     Accredited Camps lists all ACA camps around the country. 
     An ACA publications catalog is updated annually containing
     titles of more than 400 books and pamphlets on various
     topics related to organized camping (including how to
     serve the handicapped through mainstreaming and special
     programs).
     
     
     American Cancer Society (ACS)
National Office
1599 Clifton Road, NE
Atlanta, GA  30329
(800) ACS-2345
     
     Disabilities Served:   Cancer.
     
     Users Served:  Persons with cancer, their families, and
     the general public.
     
     The Organization:  The American Cancer Society (ACS)
     supports research into the causes and detection of cancer
     and educates primary care physicians and the public to
     recognize the signs of cancer.  ACS offers a variety of
     research project grants to institutions and personnel in
     every aspect of cancer research.  The society's public
     education programs emphasize the value of periodic
     checkups and cancer's seven warning signals and are
     carried out by ACS volunteers in homes, places of
     employment, community meetings, and through the media. 
     Professional education programs, offered through
     literature and conferences, are designed to motivate the
     medical and allied professions to use the latest and best
     possible cancer detection, diagnostic, and patient
     management techniques.  There is an American Cancer
     Society office in most metropolitan areas of the United
     States.  To contact the organization call 
     1-800-ACS-2345.
     
     ACS provides direct services to the cancer patient.  These
     services include Resources, Information and
     Guidance--providing referral to society services,
     community resources, and specific information about
     cancer; Home Care Items--supplying patients with a wide
     range of equipment, supplies, and gifts to enhance their
     care, comfort, and recreation; Transportation--assisting
     patients with the task of getting to and from medical and
     therapy appointments; Rehabilitation--assisting patients
     to return to their families, communities, and occupations
     through trained visitor and group programs such as (1)
     International Association of Laryngectomees, which offers
     speech training and moral support to the laryngectomy
     patient; (2) Reach to Recovery, which provides support to
     women with breast cancer; (3) Ostomy Rehabilitation
     Program, which gives support to those patients who have an
     ostomy; (4) CanSurmount and I Can Cope, which provide
     support to cancer patients and families not covered by
     other specific programs.  
     
     All rehabilitation programs are medically directed and
     supervised.
     
     Patient Education helps patients and their families to
     better understand the disease and its management through
     group education programs like I Can Cope along with
     pamphlets, booklets, and audiovisual presentations.
     
     Information Services:  The ACS reference library functions
     as a repository and clearinghouse of information on all
     aspects of cancer for physicians, nurses, and researchers. 
     Printed materials on cancer safeguards, cancer detection,
     smoking, statistical information, and information on
     unproven methods of cancer detection and treatment are
     available for the lay public.  The society publishes a
     variety of professional journals and publications.  All
     materials are provided free of charge, and some
     information is available in Spanish. 
      
     
     American Chronic Pain Association (ACPA)
P.O. Box 850
Rocklin, CA  95677
(916) 632-0922
     
     Disabilities Served:   Chronic pain.
     
     Users Served:   Anyone with chronic pain.
     
     The Organization:   The American Chronic Pain Association
     (ACPA) is a nonprofit, tax-exempt organization with 443
     chapters in the United States, Canada, Australia, and New
     Zealand.  Its purpose is to provide a support system for
     those suffering chronic pain through group activities, to
     get members out of the patient role and back to being a
     person.  Very briefly, the suggested guidelines for the
     groups are the following:  the group must be open to all
     persons suffering chronic pain, regardless of their race,
     creed, sex; each group must be led by a person with
     chronic pain; no professionals are permitted to do therapy
     of any kind during group meetings, which cannot be held in
     hospital facilities; and finally, groups should not be
     affiliated with any hospital or other such institution.
     
     The ACPA offers training in skills and attitudes that have
     proven effective in helping people deal with chronic pain. 
     Members learn to use physician-approved stretching
     exercises, relaxation techniques, assertiveness training
     methods, sleep hygiene, nutrition, family involvement, and
     a better understanding of the feelings pain creates to
     live more fully.  They learn to recognize limitations and
     to set realistic monthly goals for themselves.  ACPA
     groups do not focus on physical pain but rather on
     developing in members a positive attitude and an enhanced
     perception of self-control.
     
     ACPA group members seek to exchange the passive role of
     patient for that of independent person whose pain is kept
     in a proper perspective.  The group does not take the
     place of traditional medical treatment but works with the
     medical community to allow group members to take more
     responsibility for their own recoveries.  Membership is an
     addition to, not a substitute for, medical and
     professional services the pain person may already have
     pursued.
     
     Information Services:   The American Chronic Pain
     Association publishes a quarterly newsletter, The ACPA
     Chronicle.  In addition, there is a 115-page Member's
     Workbook Manual, which enables anyone with chronic pain to
     gain a better understanding of the problem and provides
     techniques in pain management.  The ACPA Leader's Manual
     provides chronic pain persons with the necessary
     information to organize and operate a self-help support
     group.  Upon request, an information packet will be mailed
     to anyone who requests it.
     
     
     Association Management Center
5700 Old Orchard Road
Skokie, IL  60077
(708) 965-2776
     
     Disabilities Served:  Physical disabilities.
     
     Users Served:   Psychiatrists and other rehabilitation
     physicians as well as administrators, biomechanical
     engineers, occupational and physical therapists,
     orthotists, prosthetists, psychologists, rehabilitation
     nurses, respiratory and speech therapists, social workers,
     and vocational counselors.
     
     The Organization:   Founded in 1923 as the American
     College of Radiology and Physiotherapy, the American
     Congress of Rehabilitation Medicine (ACRM) is a nonprofit,
     multidisciplinary, professional and scientific
     association.  Its members work together to promote and
     advance the art and science of rehabilitation medicine; to
     further interdisciplinary professionalism; to provide a
     forum at which all of the disciplines and professions
     concerned with rehabilitation of the handicapped and
     disabled may communicate; to support and actively advocate
     the interests of their patients, clients, and
     co-professionals; and to advance the education of all
     professionals and the general public toward an awareness
     of the needs, aspirations, and achievements of handicapped
     persons.
     
     An Annual Session is held each year in late October/early
     November for educational, social, and networking purposes.
     
     Information Services:   In conjunction with the American
     Academy of Physical Medicine and Rehabilitation, the
     congress publishes the Archives of Physical Medicine and
     Rehabilitation, a monthly scientific journal which
     includes articles of interdisciplinary interest written by
     rehabilitation professionals.  A subscription is included
     in the membership dues.  Information services are provided
     primarily for members, with nominal fees for most
     products.  The congress also sponsors an annual essay
     contest for medical students, graduate students in
     rehabilitation medicine professions, interns, and
     residents.
     
     
American Council of the Blind (ACB)
1155 15th Street, NW
Suite 720
Washington, DC 20005
(202) 467-5081
     
     Disabilities Served:  Blindness, visual impairment.
     
     Users Served:  Disabled persons, parents, students,
     teachers, professionals.
     
     The Organization:  The American Council of the Blind (ACB)
     advocates legislation for the blind and other handicapped
     persons.  Priority areas of advocacy include civil rights,
     social security and supplemental income, national health
     insurance, rehabilitation, eye research, technology, and
     others.  The council has  21 special interest affiliates. 
     These include the Randolph Sheppard Vendors of America, a
     parents' organization for visually impaired parents and
     parents of visually impaired children, an organization of
     guide dog users, and vocationally oriented organizations
     for professionals (e.g., blind lawyers, blind secretaries,
     and blind computer programmers).  ACB's 51 State chapters
     monitor State laws affecting the blind.  The national
     office offers free direct legal assistance to groups in
     discrimination and benefits cases and to individuals in
     precedent cases.  The council operates "The Washington
     Connection," a legislative hotline offering updated
     information toll-free at (800) 424-8666, 8:00 - 12:00 p.m.
     EDT, Monday through Friday.  ACB also awards scholarships
     to blind postsecondary students.
     
     Information Services:  The organization has information
     about agencies and schools for the blind, scholarships,
     electronic aids, legislation, and legal rights.  It can
     often give advice about specific legal problems over the
     phone.  If ACB is unable to give legal assistance, it will
     provide referrals to other possible sources.  The Braille
     Forum, a free monthly magazine updating developments in
     legislation, education, technology, leisure activities,
     and employment is available in large print, braille,
     computer disc, or cassette.  Affiliates and chapters also
     have newsletters. 
      
     
     American Council on Rural Special Education (ACRES)
National Rural Development Institute
Western Washington University
Miller Hall 359
Bellingham, WA 98225
(206) 676-3576
     
     Disabilities Served:   All handicaps.
     
     Users Served:    Teachers, administrators, support
     personnel, parents.
     
     The Organization:  The American Council on Rural Special
     Education (ACRES), founded in May 1981, is a membership
     organization for persons interested in improving services
     for disabled students living in rural areas.  ACRES has
     initiated a number of national projects to increase
     educational opportunities and to improve direct services
     for the handicapped and rural population.  ACRES sponsors
     an annual national conference, and members participate in
     action task forces.
     
     Information Services:   A brochure on ACRES is available
     upon request.  Members receive a newsletter published
     several times a year, the Rural Special Education
     Quarterly journal, and discounts on other ACRES
     publications.  The organization also offers rural job
     services by which persons seeking positions are linked
     with jobs available.  In addition, ACRES has developed a
     data bank on the members of the organization, which serves
     as a means  for linking professionals or other members
     specific interests and abilities.  Members living in a
     particular geographic area can also be identified via this
     system.  (Each member receives a membership resource book
     upon joining.)
     
     American Dance Therapy Association (ADTA)
2000 Century Plaza
Suite 108
(301) 997-4040
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Dance therapists.
     
     The Organization:  The American Dance Therapy Association
     (ADTA) approves educational programs in dance therapy and
     registers professional dance therapists.
     
     Information Services:  ADTA has free information on
     educational programs, guidelines for dance therapy
     training and internship, professional registration
     requirements, and regional professional contacts.  The
     association publishes The American Journal of Dance
     Therapy (available at reduced rates to members), a
     newsletter, monographs, bibliographies and reports of
     conference proceedings, which are free to members and are
     available for a charge to nonmembers.  ADTA sponsors
     annual educational workshops, and its regional chapters
     hold similar workshops throughout the year.  Nonmembers
     are welcome to attend.
     
     
     American Deafness and Rehabilitation Association
(ADARA)
P.O. Box 251554
Little Rock, AR  72225
(501) 663-7074 
     
     Disabilities Served:   Deafness, hearing impairments, and
     deaf-blindness.
     
     Users Served:   Human service professionals, students.
     
     The Organization:   The American Deafness and
     Rehabilitation Association (ADARA) is a network of
     professionals and community persons who are active in
     delivering services to people who are deaf or hard of
     hearing.   These areas include rehabilitation, mental
     health, education, social work, speech therapy, medicine,
     psychiatry, psychology, and others; students are included. 
     ADARA offers opportunities for professional enrichment to
     its members and serves as a vehicle of communication
     through its forums, conferences, workshops, and
     publications.   ADARA was formerly known as the
     Professional Rehabilitation Workers with the Adult Deaf
     (PRWAD).
     
     Information Services:   ADARA gives referral service
     regarding careers, university programs, job opportunities,
     and general information.  The national office provides
     this service free of charge to inquirers.  Information
     regarding certain legislation, conferences, and workshops
     can also be obtained through the national office.  The
     ADARA publishes the quarterly Journal of the American
     Deafness & Rehabilitation Association, a quarterly
     newsletter entitled The ADARA Update, and occasional
     special publications and monographs.  The most recent
     monograph is At the Crossroads:  A Celebration of
     Diversity.  A publication list with a complete listing of
     all ADARA publications is available upon request from the
     national office.
     
     
     American Diabetes Association, Inc. (ADA)
National Center
1660 Duke Street
Alexandria, VA  22314
(800) 232-3472
      
     Disabilities Served:  Diabetes mellitus.
     
     Users Served:  Persons with diabetes and their families or
     caretakers, physicians, dietitians, and diabetes
     educators.
     
     The Organization:  The American Diabetes Association (ADA)
     is a voluntary health organization supporting diabetes
     research and education.  Founded in 1940 as a professional
     society, today's ADA is an internationally recognized
     association with over 800 State affiliates and chapters
     serving all people with diabetes, regardless of age, type
     of diabetes, or economic condition.
     
     Information Services:  ADA conducts professional seminars,
     scientific meetings, and postgraduate courses for
     physicians and other health professionals.  It publishes
     Diabetes, a monthly research journal,  Diabetes Spectrum,
     a bimonthly clinical care journal, and Diabetes Care, a
     monthly journal for the clinician.  For persons with
     diabetes, ADA publishes a variety of pamphlets, books, and
     cookbooks, including a monthly magazine, Forecast.  The
     monthly magazine includes articles on recent research,
     nutrition information, and recipes and hints for living
     with diabetes.  Affiliates and chapters may sponsor
     educational meetings, in-hospital orientations, weekend
     retreats, summer camping programs for children, and
     professional educational seminars.  Some also serve as a
     referral source to appropriate direct care agencies.  For
     more information about diabetes or becoming a member of
     ADA, contact your local ADA affiliate (number is in white
     pages of your phone book) or call the ADA National Center.
     

American Epilepsy Society (AES)
638 Prospect Avenue
Hartford, CT  06105
(203) 232-4825
     
     Disabilities Served:   Epilepsy.
     
     Users Served:   Neuroscientists, neurologists,
     neurosurgeons, internists, pediatricians, clinical nurses
     specializing in epilepsy.
     
     The Organization:   The American Epilepsy Society (AES) is
     a professional society of physicians, scientists, and
     other professionals concerned with the study,
     dissemination, and application of knowledge concerning
     epilepsy in all of its phases.  Membership is limited to
     residents of North America.  Active members receive the
     journal Epilepsia.  Corresponding membership is available
     to those outside of North America.
     
     Information Services:   The American Epilepsy Society
     publishes a newsletter two times  a year, available to its
     membership.  The society holds an annual meeting designed
     to update those professionals working in the field of
     epilepsy.  The meeting consists of an annual course, an
     investigator's workshop, and a scientific program that
     also includes poster sessions and symposia.  An awards
     program is available to clinical and basic science
     investigators.  In addition, the society offers a junior
     investigator travel award, the William G. Lennox Award,
     and various fellowships and grant programs.
     
     
     American Federation of Teachers (AFT)
AFT Teachers' Network for Education of the
Handicapped
555 New Jersey Avenue, NW
Washington, DC  20001
(202) 879-4460
     
     Disabilities Served:  All handicapping conditions for
     which mainstreaming is possible.
     
     Users Served:  Teachers.
     
     The Organization:  The AFT Teachers' Network for Education
     of the Handicapped, a program of the American Federation
     of Teachers (AFT, AFL-CIO), has as its goal to facilitate
     the ability of regular education teachers to work
     effectively with handicapped children.  The network
     assists AFT locals in providing in-service training to
     regular education teachers with a focus on practical
     instructional techniques to use with the mainstreamed
     child.  The program also assists other educational and
     community organizations by giving workshops and technical
     assistance.
     
     Information Services:  The network responds to requests
     for information on mainstreaming handicapped children and
     has developed a series of pamphlets on mainstreaming
     children with specific disabilities.  The pamphlets have
     information on the disabling condition, instructional
     techniques, and resource materials and organizations. 
     There is a nominal charge for these publications.
     
     A film and video tape, The ACB's of Teaching the Learning
     Disabled Student, is available for rental or purchase. 
     The film and its training manual have been developed as an
     inservice training module to enhance regular educators'
     efforts to teach learning disabled students more
     effectively.
     
     
     American Foundation for the Blind (AFB)
15 West 16th Street
New York, NY  10011
(212) 620-2000
     
     Disabilities Served:   Blindness, visual impairments, and
     deaf-blindness.
     
     Users Served:   Disabled persons and their families,
     professionals, local agencies and organizations, and the
     general public.
     
     The Organization:   The American Foundation for the Blind
     (AFB) was established in 1921 to help blind and visually
     impaired people acquire improved rehabilitation services
     and educational and employment opportunities and to aid
     those persons in daily living activities.  Through its
     national, regional, and legislative offices, AFB provides
     legislative consultation to government agencies and
     advisory services to local agencies and schools involved
     in direct services.  AFB conducts national and local
     surveys on psychosocial needs of blind people and
     technological research leading to the design of a variety
     of devices that help the blind person to lead an
     independent life.  The foundation manufacturers (or
     adapts) and sells more than 400 such devices, including
     braille watches, measuring instruments, shop tools, and
     braille games for adults and children.  AFB records and
     manufacturers about 500 talking books per year for the
     Library of Congress, National Library Service for the
     Blind and Physically Handicapped.
     
     AFB's six regional offices provide a link between
     consumers and providers of services.  They are located in
     Atlanta, Chicago, Dallas, New York, San Francisco, and
     Washington, DC.
     
     Information Services:   AFB publishes a variety of general
     interest pamphlets and films about blindness,
     deaf-blindness, visual impairments, eye disorders,
     braille, assisting the blind, activities of daily living,
     travel, rehabilitation, education, devices, dog guides,
     aging, recreation and leisure, technology, employment, and
     careers for people who wish to work with blind people. 
     Single copies of these public education materials are free
     in print form; films may be rented or purchased.  Priced
     publications are mainly for professionals and include
     materials on research, clinical practice, and
     instructional techniques in the areas of blindness, visual
     impairments, deaf-blindness, and other multihandicapped
     disabilities involving blindness.  Listings of services
     such as The Directory of Agencies Serving the Visually
     Handicapped in the United States and the International
     Guide to Aids and Appliances for Blind and Visually
     Impaired Persons  are also published by the foundation.  A
     few publications are available in Spanish.  Some are
     available in large print, braille, and cassette.
     
     The Journal of Visual Impairments and Blindness covers
     research and practice reports, book reviews, and
     legislative and organizational news and it is published in
     print, braille, and recorded form.  Other regular
     publications include the Washington Report  and AFB News,
     a quarterly newsletter.
     
     AFB's M.C. Migel Memorial Library contains more than
     37,000 books, periodicals, and other publications on
     blindness.  Its services are available to lay and
     professional people who may borrow materials in person or
     by mail.
     
     Requests for information are responded to with the
     organization's publications or with individual letters
     when required.  AFB makes referrals to service facilities,
     local agencies, and other institutions, as appropriate.
     
     American Geriatrics Society (AGS)
770 Lexington Avenue
Suite 300
New York, NY  10021
(212) 308-1414
     
     Disabilities Served:   Work to improve general medical
     care for older Americans.
     
     Users Served:  Membership is primarily physician-oriented.
     
     The Organization:   The American Geriatrics Society (AGS)
     is a medical society dedicated to geriatric medicine. 
     Founded in 1942, the AGS was the first medical society in
     the United States to focus on improving the quality of
     health care for older persons.  Since the society's
     inception, AGS membership has grown to over 6,000 health
     care professionals.
     
     Information Services:   The society does not currently
     provide a formal information service for the general
     public.
     
     
     American Health Care Association (AHCA)
1201 L Street, NW
Washington, DC  20005
(202) 842-4444
     
     Disabilities Served:   All disabilities (including aging)
     requiring long-term health care.
     
     Users Served:   Personnel of long-term health care
     facilities.
     
     The Organization:   The American Health Care Association
     (AHCA), founded in 1949, is a federation of licensed
     nursing homes and allied long-term health care facilities,
     including adult day care, mental health, and child care
     service.  AHCA and its 50 affiliated State associations
     work to promote professional standards in long-term health
     care delivery.  All AHCA members must be licensed by their
     State governments, as must be the administrators who
     manage them.
     
     AHCA represents its members on issues before Congress and
     Federal regulatory and executive agencies and offers a
     variety of professional and educational programs.
     
     Information Services:   Upon receipt of a business-sized
     self-addressed, stamped envelope, AHCA sends free copies
     of its brochure Thinking About a Nursing Home?  A catalog
     of the association's publications and materials on nursing
     home management training and community involvement may be
     purchased.
     
     
American Hearing Research Foundation (AHRF)
55 East Washington Street 
Suite 2022
Chicago, IL  60602
(312) 726-9670
     
     Disabilities Served:   Hearing problems and balance
     disorders.
     
     Users Served:   Hearing impaired, physicians,
     audiologists, hearing health professionals, general
     public.
     
     The Organization:   The American Hearing Research
     Foundation (AHRF) is a not-for-profit organization that
     promotes, conducts, and supports medical research and
     education into the cause, prevention, and cure of
     deafness, impaired hearing, and balance disorders.  The
     foundation also has a public information and referral
     system whereby anyone who calls or writes can obtain
     information on how and where to get medical or educational
     help.  The foundation also provides research grants.
     
     Information Services:   The American Hearing Research
     Foundation disseminates brochures on hearing health and
     research reports for medical specialists on specific
     hearing problems and balance disorders related to the
     inner ear.  For information contact the AHRF at the above
     address.
     
     
     American Heart Association (AHA)
7320 Greenville Avenue
Dallas, TX 75231
(214) 373-6300
     
     Disabilities Served:  Cardiovascular disorders and stroke,
     aphasia.
     
     Users Served:  Persons with cardiovascular disorders,
     stroke patients, health care professionals.
     
     The Organization:  The primary concern of the American
     Heart Association (AHA) is the reduction of disability and
     death due to cardiovascular diseases.  To this end, the
     AHA (1) funds research on cardiovascular function and
     disease and stroke, (2) gathers information on all aspects
     of cardiovascular disease and stroke, and (3) disseminates
     the information to professionals and lay persons through
     its publications and the media.
     
     Information Services:  AHA's 56 affiliates and 1,800 local
     organizations act as information and referral centers. 
     Public education and community programs focus on the early
     recognition, diagnosis, and treatment of cardiovascular
     diseases.  Topics include risk factors, early warning
     signs of heart attack and stroke, control of high blood
     pressure, rheumatic fever prevention, and cardiac and
     stroke rehabilitation.  Also available to lay persons are
     directories of cardiac rehabilitation units. 
     Professionals can obtain printed materials on successful
     rehabilitation programs and facilities, exercise testing
     and training, and standards for testing laboratories. 
     Five journals are published for physicians and
     researchers.  Publications are available from local
     affiliates (from the national office for foreign
     requestors).  There is a nominal charge for materials
     ordered in bulk.  Some information is available in
     Spanish.  AHA holds professional continuing education
     seminars nationwide.  Each AHA affiliate acts as a
     referral agency to direct services available in its
     locality, such as cardiac and stroke rehabilitation
     centers, dieticians, smoking cessation classes, and
     dieting workshops.  For information, contact a local AHA
     office. 
     
     
     American Horticultural Therapy Association (AHTA)
9200 Wightman Road
Suite 400
Gaithersburg, MD  20879
(301) 948-3010
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Horticultural therapists and other
     professionals.
     
     The Organization:  The American Horticultural Therapy
     Association (AHTA) acts as a consultant to institutions
     interested in establishing horticultural therapy programs. 
     It also registers professional horticultural therapists
     and sponsors regional professional workshops in
     conjunction with its 11 regional chapters and with
     university programs.  AHTA operates a job bank for members
     and nonmembers.  
     
     Information Services:  Information is available on careers
     in horticultural therapy.  Special publications are
     printed periodically to offer a means of continuing
     education to professionals on such topics as innovative
     programs and funding agencies.  AHTA has bibliographic and
     audiovisual materials for persons to use in the field or
     to start a program.  It also maintains a speakers' bureau. 
     Members receive a monthly newsletter.
     
     American Humane Association
63 Inverness Drive East
Englewood, CO 80112
(303) 792-9900
     
     Disabilities Served:  Deafness, hearing impairment.
     
     Users Served:  Disabled persons, parents, professionals.
     
     The Organization:  The American Humane Association's
     National Hearing Dog Project focuses on the broad needs of
     all concerned with hearing dogs rather than on "hands on"
     dog training.  A hearing dog is a working animal
     professionally trained to alert its deaf owner to the
     sounds important for daily home survival, thereby
     increasing personal safety, independence, and mobility. 
     The purpose of the project is to provide the
     hearing-impaired individual, hearing dog programs, the
     media, schools, libraries, and the general public with the
     following resources and services:  (1) information and
     referral; (2) national public awareness and advocacy
     programs; and (3) resources for program improvement,
     standardization, and networking.  
     
     Information Services:  The National Hearing Dog Project
     has produced a number of publications of interest to
     people who are hearing impaired and the general public. 
     Materials available include a directory of hearing dog
     training centers, a legal rights handbook for
     hearing-impaired individuals and their dog guides, and
     legal access information.  There is a charge for some
     publications.  
     
     In 1989, the American Humane Association and the Delta
     Society joined forces to establish and operate a resource
     center on hearing dog information at Delta's Seattle-area
     office.  For more information on hearing dog materials,
     please call (800) 869-6898 (Voice/TDD) or write the
     AHA/Delta Hearing Dog Resource Center, 321 Burnett Avenue
     South, Suite 303, Renton, WA 98055-2569.
     
     
     American Kidney Fund, Inc.
6110 Executive Boulevard
Suite 1010
Rockville, MD  20852
(301) 881-3052
(800) 638-8299
     
     Disabilities Served:   Kidney patients.
     
     Users Served:   Kidney patients, nephrology health
     professionals.
     
     The Organization:   The American Kidney Fund is a national
     voluntary health organization providing direct financial
     assistance, comprehensive educational programs, research
     grants, and community service projects for the benefit of
     kidney patients.
     
     Information Services:   The American Kidney Fund has an
     ongoing commitment to public and professional education. 
     The goal of this program is to provide the general public
     with information on the prevention, symptoms, and
     treatment of kidney disease.  In addition, the fund serves
     as an information resource for patients suffering from
     kidney disease, as well as for health care professionals. 
     These goals are accomplished by distributing public
     education brochures, newsletters, and audiovisual
     materials.
     
     
     American Kinesiotherapy Association
259-08 148 Road
Rosedale, NY  11422
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Kinesiotherapists.
     
     The Organization:  American Kinesiotherapy Association
     recommends standards for certification of professionals
     and for training facilities.  It offers a limited number
     of scholarships to students and funds professional
     research.  Kinesiotherapy is the applied science of
     medically prescribed therapeutic exercise, education, and
     adapted physical activities to improve the quality of life
     and health of adults and children, by developing physical
     fitness, increasing functional mobility and independence,
     and improving psychosocial behavior.  The kinesiotherapist
     evaluates, develops, implements, and modifies adapted
     exercise programs for disease, injury, congenital defects,
     and other functional disabilities.
     
     Information Services:  The association is a source of
     information about education and training of
     kinesiotherapists.  A publication list, available on
     request, includes titles of reprints, handbooks, and
     manuals on standards and practice in the field.  These
     publications are available at a minimal charge.  American
     Kinesiotherapy Association publishes a professional
     journal, which is clinical and research-oriented.
     
     American Leprosy Foundation
Leonard Wood Memorial
11600 Nebel Street
Suite 210
Rockville, MD  20852
(301) 984-1336
     
     Disabilities Served:   Hansen's disease (Leprosy).
     
     Users Served:   Individuals with leprosy, health care
     professionals, general public.
     
     The Organization:   The Leonard Wood Memorial for the
     Eradication of Leprosy was founded in 1928.   So named
     because of great strides made by a dedicated physician and
     then Governor-General of the Philippines, Leonard Wood.
     
     The purpose of this nonprofit, nongovernmental, and
     nonsectarian organization, is the eradication of leprosy
     through research.  Secondarily, a great deal of training
     is done at the Leprosy Research Center in Cebu,
     Philippines.
     
     Information Services:   The American Leprosy Foundation
     distributes general information about the disease,
     scientific research, and training programs.  Additionally,
     inquiries for information regarding diagnosis and
     treatment are referred to the proper channels.
     
     
     American Leprosy Missions International (ALM
International)
1 Alm Way
Greenville, SC  29601
(800) 543-3131
(803) 271-7040
     
     Disabilities Served:   Disabilities arising from leprosy
     and other causes.
     
     Users Served:   Private and public leprosy treatment
     centers and control programs in 23 nations; private and
     public associations of persons with disabilities.
     
     The Organization:   American Leprosy Missions
     International (ALM International) is a nonprofit,
     nondenominational organization established in 1906 that
     assists in the support of antileprosy efforts around the
     world.  ALM provides funds to public and private programs
     for diagnostic, medical, reconstructive surgical,
     rehabilitation, and occupational therapy services and for
     the struggle against stigma attaching to leprosy.  It also
     provides training in administration of multidrug therapy
     and in rehabilitative procedures to health care
     professionals active in fighting leprosy in Third World
     nations.  ALM's work with disabilities arising from
     leprosy has led it in recent years to provide services to
     people with disabilities arising from causes other than
     leprosy.  The organization sponsors some research and
     disseminates technical and nontechnical information on its
     fields of operation.  ALM is a member of the International
     Federation of Anti-Leprosy Organizations (ILEP) and
     participates in the work of Rehabilitation International. 
     Government is by a 24-member board of directors.  
     
     Information Services:   For lay readers, ALM provides free
     brochures on leprosy and disabilities' services.  A
     quarterly newsletter, Word and Deed, is available free of
     charge, and television films for general audiences are
     available.  For overseas professionals, ALM provides
     training manuals and visual aids to diagnosis and
     corrective measures for dropped foot, clawed hand, and
     other disabilities of hands, feet, and eyes, plus outlines
     for injury prevention to insensitive areas.
      
     
     American Library Association (ALA)
Association of Specialized and Cooperative
 Library Agencies (ASCLA)
50 East Huron Street
Chicago, IL  60611
(312) 944-6780
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Librarians.
     
     The Organization:  The Association of Specialized and
     Cooperative Library Agencies (ASCLA), a division of the
     American Library Association (ALA), is a professional
     organization for librarians serving communities and
     special populations such as blind, physically handicapped,
     deaf, and impaired elderly persons.  ASCLA serves in an
     advisory capacity, helping its members to develop and
     evaluate policies and activities.  ASCLA also sponsors
     programs at the ALA Annual Conference.
     
     Information Services:  Standards and guidelines for
     libraries developing services for the blind and mentally
     retarded are available in print form.  Special issues of
     the ASCLA journal that relate to library services to the
     handicapped are Bibliotherapy, Information Needs of
     Hearing Impaired People, and Library Services for the
     Blind and Physically Handicapped.  Other publications are
     available from ALA and ASCLA.  The ASCLA publications list
     gives sources on library service to disabled persons and
     design of a barrier-free environment.  Cassettes of some
     of ASCLA's conference programs are available.  There is a
     charge for publications and cassettes.  ASCLA publishes a
     quarterly newsletter, Interface, which includes articles,
     book reviews, news items, product evaluations, and news of
     conferences.
     
     
     The American Liver Foundation
1425 Pompton Avenue
Cedar Grove, NJ  07009
(201) 256-2550
(800) 223-0179
     
     Disabilities Served:   Liver disease.
     
     Users Served:   Disabled persons, physicians, general
     public.
     
     The Organization:   The American Liver Foundation is a
     national voluntary health organization dedicated to
     finding cures to liver diseases with research, while
     sponsoring public and professional education programs and
     providing support groups for liver patients and their
     families.  The foundation is committed to teaching people
     about the importance of their liver to their life.  The
     American Liver Foundation has also developed substance
     abuse prevention programs for children and for corporate
     executives.  There are chapters of the American Liver
     Foundation in 17 different States.  The foundation
     provides research awards each year to encourage young
     physicians to continue their work in the field of liver
     research.
     
     Information Services:   Printed materials, videotapes,
     reference materials, and physician referrals on liver
     disease are available to lay and medical persons.  The
     American Liver Foundation publishes a quarterly newsletter
     for members of the foundation, and publishes a
     professional newsletter sent to primary care physicians
     three times a year.  The American Liver Foundation also
     serves as custodian for liver transplant funds.  For more
     information contact the American Liver Foundation at the
     above address.
     
     American Lung Association (ALA)
1740 Broadway
New York, NY  10019
(212) 315-8700
     
     Disabilities Served:   Lung diseases.
     
     Users Served:   Disabled persons, physicians, health care
     professionals.
     
     The Organization:   The American Lung Association
     (ALA)--The Christmas Seal People--is the oldest nationwide
     voluntary health agency in the United States.  Originally
     founded in 1904 to combat tuberculosis, today the
     association, its affiliated Lung Associations throughout
     the country, and its medical section, the American
     Thoracic Society, are dedicated to the conquest of lung
     disease and the promotion of lung health.  It develops
     materials on smoking, air pollution, and occupational lung
     hazards.  ALA's public health education and research
     programs are supported by donations to Christmas Seals and
     by other voluntary contributions.  The American Thoracic
     Society, the medical section of the ALA, is a professional
     society of 10,000 physicians and scientists who specialize
     in pulmonary medicine and lung research.  ALA provides
     seed grants for research and research training.
     
     Information Services:   Printed materials, films and
     resource materials on emphysema, chronic bronchitis, air
     pollution, smoking and health, tuberculosis, chronic
     obstructive pulmonary disease, and other lung diseases are
     available free to lay and medical persons from local Lung
     Associations.  Several pamphlets are available in Spanish. 
     The American Thoracic Society publishes two monthly
     scientific journals on lung biology and disease, holds an
     annual scientific conference, and develops standards and
     guidelines for the diagnosis and management of lung
     diseases.  Local and constituent Lung Associations
     maintain local directories of facilities and direct care
     providers and act as lung information and referral
     centers.  For information contact the ALA at the above
     address or a local Lung Association listed in the
     telephone book.
     
     
     The American Narcolepsy Association (ANA)
P.O. Box 1187
San Carlos, CA  94070
(415) 591-7979
     
     Disabilities Served:   Narcolepsy and other chronic sleep
     disorders.
     
     Users Served:  Disabled persons, health care
     professionals, general public.
     
     The Organization:   The American Narcolepsy Association
     (ANA) was established as a nonprofit organization in 1975
     to help solve the many problems associated with narcolepsy
     and other chronic sleep disorders.  Incorrect diagnosis
     and inappropriate and sometimes even dangerous treatment
     are common for this disorder.  Narcolepsy exerts a
     crippling effect on learning, memory, attention, and
     motivation.  The cause of narcolepsy is not clearly
     understood; it can strike anyone at any age and is
     estimated to afflict more than 250,000 persons, many
     undiagnosed.  Members of ANA form self-help groups and
     hold meetings for mutual support.
     
     Information Services:   ANA distributes information about
     narcolepsy to members, the medical profession, and the
     general public.
     
     
     The American Occupational Therapy Association (AOTA)
1383 Piccard Drive
P.O. Box 1725
Rockville, MD  20849
(301) 948-9626
     
     Disabilities Served:   All disabilities, and problems
     associated with aging.
     
     Users Served:   Occupational therapists.
     
     The Organization:   The American Occupational Therapy
     Association, Inc. (AOTA) promotes quality occupational
     therapy (OT) services by providing accreditation of
     educational programs, certification of practitioners,
     professional development, public education, and advocacy
     on programs related to national health care issues.
     
     Information Services:   Information is available to the
     general public about OT as a career and schools that offer
     professional programs in OT.  A variety of print and
     audiovisual materials for the OT practitioner are
     published and sold by the organization.  AOTA has
     professional information packets on 31 subject areas
     including adapted clothing and equipment, alcoholism,
     arthritis, cancer, substance abuse, older adults services,
     handicapped homemakers, mental health, and spinal cord
     injuries.  These packets contain the names of OT resource
     persons who specialize in the particular field, special
     facilities, bibliographies of printed materials, and
     selected reprints.  The association sponsors regional
     workshops on topics such as the elderly, vocational
     readiness, quality assurance, prosthetics, orthotics, OT
     and pediatrics, neurophysiological approaches to
     treatment, and reality orientation for the elderly.  AOTA
     publishes a monthly professional journal, the American
     Journal of Occupational Therapy, a weekly, O.T. Week, and
     a Federal Report, available by subscription.  Also
     available by subscription are quarterly newsletters
     published by AOTA's seven special interest sections: 
     Administration and Management, Developmental Disabilities,
     Gerontology, Mental Health, Physical Disabilities, Sensory
     Integration, and Work Programs.  The organization's State
     associations provide inquirers with referrals to local OT
     practitioners and facilities.
     
     
     The American Orthopaedic Association
222 South Prospect Avenue
Park Ridge, IL  60068
(708) 698-1640
     
     Disabilities Served:  Orthopaedic disabilities.
     
     Users Served:   Medical and other health care
     professionals.
     
     The Organization:  The American Orthopaedic Association
     was founded in 1887.  Its purpose is to furnish leadership
     and to foster advances in orthopaedic sciences and art. 
     The goals and objectives of the organization are to
     provide a forum for the exchange of knowledge pertaining
     to the musculoskeletal system and the science of
     orthopaedics; promote continuing education by all
     available means including the annual meeting, conferences,
     workshops, and symposia sponsored by the association;
     support traveling fellowships; and encourage participation
     of its members in other educational programs.  The
     organization also seeks to stimulate research,
     investigation, and teaching in the methods of preventing,
     correcting, and treating diseases of the musculoskeletal
     system that arise from congenital, developmental,
     inflammatory, neoplastic, degenerative, metabolic,
     traumatic, or other causes.
     
     Membership in The American Orthopaedic Association is
     achieved by those who have made significant contribution
     to education research and the practice of orthopaedic
     surgery.
     
     Information Services:   In addition to the annual meeting,
     The American Orthopaedic Association supports varied
     educational programs.  The ABC Exchange Fellowship began
     in 1948 and now is an established program in six
     English-speaking countries.  In 1953, the association
     initiated the survey that resulted in the organization of
     the Orthopaedic Research and Education Foundation.  The
     first Orthopaedic Residents' Conference was held in 1968
     under the sponsorship of the association.  The North
     American Traveling Fellowship program for the United
     States and Canada began in 1970.  In addition, The
     American Orthopaedic Association sponsors an International
     Visiting Professorship and the Hatcher Fellowship in
     Orthopaedic Pathology.  The Bristol-Myers Squibb/Zimmer
     Annual Award for distinguished achievement in Orthopaedic
     Research has been an annual award at the association
     meeting since 1988 and is based on an orthopaedic research
     grant program begun in 1983.  In addition, there is an
     annual American Orthopaedic Association/Zimmer Resident
     Travel Award to the Annual Meeting.  International
     communications are enhanced further by combined and joint
     meetings between the orthopaedic associations of various
     countries and The American Orthopaedic Association.
     
     
     American Orthotic and Prosthetic Association (AOPA)
717 Pendleton Street
Alexandria, VA  22314
(703) 836-7116
     
     Disabilities Served:  Musculoskeletal and orthopaedic
     conditions.
     
     Users Served:  Manufacturers of orthotic and prosthetic
     devices and facilities that render orthotic and prosthetic
     patient care services.
     
     The Organization:  The American Orthotic and Prosthetic
     Association (AOPA) represents the interests of
     manufacturers of orthotic and prosthetic devices and
     facilities that render orthotic and prosthetic patient
     care services by interacting with government agencies and
     assisting in the preparation of Federal and State
     legislation.  National and regional meetings are held to
     keep members of the profession abreast of technological
     advances and to discuss facility management. 
     
     Information Services:  A list of educational institutions
     that offer a curriculum in orthotics and/or prosthetics
     for students interested in entering the profession is
     available from the association.  AOPA publishes a
     quarterly journal and a monthly news magazine, which
     emphasize professional, technical, and business topics.  A
     listing of members is compiled annually.  AOPA has
     published a Medicare Manual.  Publications are free to
     members and available to nonmembers for purchase.
     
     American Pain Society (APS)
5700 Old Orchard Road
First Floor
Skokie, IL  60077
(708) 966-5595
     
     Disabilities Served:   Chronic pain syndrome.
     
     Users Served:   Clinicians and researchers specializing in
     education, treatment, and professional practice of pain
     medicine.
     
     The Organization:   The American Pain Society (APS), a
     national chapter of the International Association for the
     Study of Pain, is a multidisciplinary not-for-profit
     educational and scientific organization comprising
     clinicians and researchers.  It's mission is to serve
     people in pain by advancing research, education,
     treatment, and professional practice.  APS believes this
     goal can best be accomplished as a joint and interactive
     effort among basic scientists and health care
     professionals.  Founded in 1979, APS has worldwide
     membership of more than 2,000 clinicians and researchers. 
     It holds an annual scientific meeting featuring plenary
     sessions, workshops, symposia, posters and exhibits.  Pain
     Update programs held in conjunction with the annual
     scientific meeting offer a series of in-depth half-day
     clinical sessions dealing with the latest in pain research
     and professional practice.  Educational programs offer
     continuing education credits.
     
     Information Services:   APS publishes a bimonthly
     newsletter featuring articles, organization news, and a
     calendar of events.  Publications:  The Directory of Pain
     Management Facilities  provides a current listing of all
     pain facilities in the United States.  Principles of
     Analgesic Use in the Treatment of Acute Pain and Chronic
     Cancer Pain:  A Concise Guide to Medical Practice, 2nd
     Edition  is a pocket-sized reference guide on drug
     selection, variations in dosage among patients, treatment
     of breakthrough pain, and minimization of side effects.
     
     
     American Paralysis Association (APA)
500 Morris Avenue
Springfield, NJ  07081
(800) 225-0292
(201) 379-2690 (in New Jersey)
     
     Disabilities Served:  Paralysis due to spinal cord injury
     and other central nervous system disorders.
     
     Users Served:  Disabled individuals, their families and
     friends; physicians, physiatrists, and other professionals
     working in the field; researchers.
     
     The Organization:  The American Paralysis Association
     (APA) is a chapter-based nonprofit agency, which
     encourages and supports research to find a cure for
     paralysis caused by spinal cord injury and other central
     nervous system disorders.  Since its inception in 1982,
     APA has invested just over $5.3 million in 122 annual
     research awards, 3 center grants, and 24 travel awards to
     116 researchers in 72 institutions in 26 States and 6
     foreign countries.
     
     In addition, the association maintains the APA Spinal Cord
     Injury HOTLINE, a 24-hour toll-free information and
     referral service to the spinal cord injury community.  It
     provides information, support, and resources by directing
     callers to volunteers or participating spinal cord injury
     agencies and professionals.
     
     Information Services:  APA publishes two newsletters:
     
         Walking Tomorrow reports on association and chapter
     activities,
          news of interest from the field (about advocacy
     issues, other
          organizations and individuals who impact the field of
     paralysis, etc.),
          and the latest updates on research.
     
         Progress in Research reports in-depth on APA-funded
     research,
          including new awards and progress and final reports
     on research in
          progress.  It also covers news from the field and
     issues such as      Federal funding of biomedical
     research, the use of animals in    research, and many
     other pertinent topics of concern.
     
     In addition, the association has available an annual
     review (published biennially), and various other types of
     materials on paralysis cure research and the APA HOTLINE. 
     
     
     American Parkinson Disease Association (APDA)
60 Bay Street
New York, NY  10301
(718) 981-8001
(800) 223-2732
     
     Disabilities Served:   Parkinson's disease.
     
     Users Served:   Disabled persons and their families,
     health care professionals, and researchers.
     
     The Organization:   The American Parkinson Disease
     Association (APDA) was founded for the purpose of
     providing information about the various services available
     to patients with Parkinson's disease and for making funds
     available for research.  It subsidizes Parkinson's Disease
     Information and Referral Centers in 41 locations
     throughout the United States, which provide local referral
     services.  The APDA awards research grants to scientists. 
     In addition, each year $50,000 Research Fellowships are
     awarded to outstanding medical researchers for a 3-year
     period, to aid in finding a cure for Parkinson's disease.
     
     Information Services:   APDA publishes seven pamphlets and
     a quarterly newsletter for Parkinson patients and their
     families.  The seven pamphlets are (1) Basic Information
     About Parkinson's Disease, 4-page brochure (English); (2)
     Parkinson's Disease Handbook, 40-page booklet (English,
     Spanish, Italian); (3) Coping With Parkinson's Disease,
     88-page booklet (English); (4) Home Exercises for Patients
     with Parkinson's Disease, 16-page booklet (English,
     Italian); (5) Equipment and Suggestions, 19-page booklet
     (English); (6) Speech Problems and Swallowing Problems in
     Parkinson's Disease, 17-page booklet (English); (7) How To
     Start a Parkinson's Disease Community Support Group,
     42-page booklet (English).
     
     The newsletter provides up-to-date information about new
     treatments, medications, and research.  The national APDA
     keeps updated lists of treatment centers and self-help
     groups across the country.  For patients throughout the
     United States, the national APDA office and its
     information and referral centers can refer to local
     neurologists, equipment sources, home health care
     services, and social services.
     
     
     American Physical Therapy Association (APTA)
1111 North Fairfax Street
Alexandria, VA  22314
(703) 684-2782 
     
     Disabilities Served:   Physical disabilities and
     developmental disabilities.
     
     Users Served:   Physical therapists, physical therapist
     assistants, students, and the public.
     
     The Organization:   The American Physical Therapy
     Association (APTA) fosters the development and improvement
     of physical therapy services and education by (1)
     accrediting academic programs in physical therapy, 
     (2) assisting in composing State certification
     examinations, and (3) offering continuing education
     courses and workshops in specialty areas (e.g., arthritis,
     central nervous system disorders, burn treatment, sports
     medicine, etc.) at the national and State levels.  For its
     members, APTA provides research fellowships, insurance
     assistance, scholarships, and legislative support.  APTA
     has 52 State chapters.
     
     Information Services:   Free information is available
     about physical therapy as a career, accredited
     professional training programs, sources of financial
     assistance for students, and employment statistics.
     
     Pamphlets are available on subjects such as improving
     movement, good posture, and fitness.  APTA publishes a
     newsletter, a monthly research journal, a bimonthly
     magazine on patient care, and booklets related to practice
     in the field.  A publication list is available.  APTA
     provides free bibliographies on such topics as geriatric
     exercises, handicapped children, holistic health, and
     stroke.  Educational resource guides on such subjects as
     back care, burn care, stroke, diabetes, decubitus ulcer,
     Parkinson's disease, and cancer are available at a small
     charge.   Further information may be obtained by
     contacting Information Services.
     
     
     American Printing House for the Blind (APH)
1839 Frankfort Avenue
P.O. Box 6085
Louisville, KY  40206
(502) 895-2405
     
     Disabilities Served:   Blindness and visual impairments.
     
     Users Served:   Disabled persons, parents, and teachers.
     
     The Organization:   Chartered in 1858, the American
     Printing House for the Blind (APH) is the oldest and
     largest publishing house for blind people in the world. 
     Since 1879, congressional appropriations have supported
     publication of textbooks in braille, large print, or
     recorded format for all blind students under college age. 
     In cooperation with the National Library Service for the
     Blind and Physically Handicapped, Library of Congress, the
     Printing House produces braille recreational reading
     material and records, "Talking Books."  APH also contracts
     with private agencies or individuals to publish books and
     periodicals for study or recreational reading by people
     who are blind.  Other instructional materials produced
     include more than 300 special educational aids and tools.
     
     A research department conducts basic studies relevant to
     the education of  blind people and applies this
     information to the design of new educational materials. 
     The Printing House has established an electronic data base
     of volunteer-produced books, which coordinates the
     services of volunteers who produce a large number of
     special materials, to make interchange of these materials
     possible and avoid duplication.  Requests for information
     about volunteer and commercially produced materials should
     be directed to APH - CARL (Central Automated Resource
     List).
     
     Information Services:   Catalogs include braille
     publications, braille music, large type (textbooks, high
     interest/low vocabulary textbooks, cookbooks), educational
     aids, lists of print books for parents and professionals
     working with blind people; and brochures describing the
     Printing House.  Many of these advertising materials are
     available in braille and on cassette.  These materials are
     free of charge.
     
     APH offers two free newsletters.  The APH Slate, available
     in large type and braille, is a general newsletter about
     APH people, products, and processes.  The Micro Materials
     Update, available in large type and on cassette, features
     special computer products, both from APH and other
     vendors.
     
     
     American Psychiatric Association (APA)
Division of Public Affairs
1400 K Street, NW
Washington, DC  20005
(202) 682-6220
     
     Disabilities Served:   Mental illnesses/substance abuse.
     
     Users Served:  Teachers, general public and mental health
     practitioners.
     
     The Organization:   The American Psychiatric Association
     (APA) is a medical specialty society representing more
     than 37,000 psychiatrists nationwide.  Its members share a
     common interest in the continuing study of psychiatry and
     the search for more effective ways to combat mental
     illnesses.  As physicians, psychiatrists are concerned
     with the medical diagnosis and treatment of mental
     disorders.  The practice of psychiatry is based on strong
     programs of basic and applied research, which are gaining
     worldwide recognition and honor for their scientific
     excellence.  The association's objectives include
     promoting the best interests of patients and those
     actually or potentially making use of mental health
     services; making psychiatric knowledge available to other
     practitioners of medicine, scientists, and the public;
     fostering the cooperation of all who are concerned with
     the various aspects of mental health and illness;
     improving the treatment, rehabilitation, and care of
     people who are emotionally disturbed and mentally
     retarded; promoting research, prevention of psychiatric
     disabilities, and professional education in psychiatry and
     allied fields.
     
     Information Services:   The American Psychiatric
     Association has a set of 14 informational pamphlets
     entitled the Let's Talk Facts About... series which are
     written for the layperson.  Twelve of the pamphlets
     discuss individual disorders, one is an overview of mental
     illness, and one is about choosing a psychiatrist.  The
     APA has a library that contains a vast array of
     information about psychiatry.  The library conducts
     literature searches for a fee.  Additionally, the APA has
     resource packets geared toward specialty audiences.  One
     is for educators and another for the clergy.  Finally, the
     APA also has films on panic disorders, anxiety disorders,
     and depression.  Each of the films is part of an
     educational kit, which is designed for the general public. 
     For a catalogue of available materials, please contact the
     Division of Public Affairs.  For local APA District
     Branches, check the phone book or call (202) 682-6220.
     
     
     American Red Cross
National Headquarters
17th & D Streets, NW
Washington, DC  20006
(202) 737-8309
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Disabled persons, parents, teachers,
     professionals.
     
     The Organization:  The American Red Cross was established
     in 1881 by Clara Barton.  Some of its areas of service are
     disaster services, military and social services, and
     health and safety services.  Handicapped persons are given
     priority transportation, shelter, food, clothing, and
     medical assistance in case of disaster.  Through slightly
     less than 3,000 local chapters, and depending on the needs
     of the local community, volunteers offer transportation
     services, hot meal programs, and assistance at community
     rehabilitation and recreation centers for handicapped
     persons.  In addition to programs initiated at the local
     level, the national headquarters has designed programs for
     handicapped persons which are implemented by some
     chapters.
     
     An adapted aquatics program is available through many Red
     Cross chapters.  The Red Cross trains swimming instructors
     to teach handicapped persons.
     
     Information Services:  Books, manuals, and audiovisuals on
     adapted aquatics are available from chapters. 
     Publications are available from local chapters, and some
     chapters publish their own materials.  Charges are
     nominal, primarily to cover the cost of materials.
     
     A number of Red Cross publications have been translated
     into braille, large type, or tape editions through various
     national organizations and some local chapters.  Some
     information is available in Spanish.  
     
     Users should seek help and information from their local
     Red Cross chapters.
     
     
     American Rehabilitation Counseling Association
(ARCA)
5999 Stevenson Avenue
Alexandria, VA  22304
(703) 823-9800
     
     Disabilities Served:  All disabilities.
     
     Users Served:   Rehabilitation counselors, researchers,
     administrators, and educators.
     
     The Organization:   The American Rehabilitation Counseling
     Association (ARCA) is an organization of professional
     rehabilitation counselors who work in educational, health
     care, residential, private practice, community agency,
     government, and business/industry settings.  The mission
     of the American Rehabilitation Counseling Association is
     to enhance the development of persons with disabilities
     throughout the life span and to promote excellence in the
     rehabilitation counseling profession.  ARCA goals are (1)
     to promote the professionalism of rehabilitation
     counseling; (2) to promote the personal and professional
     development of rehabilitation counseling professionals;
     (3) to promote a developmental approach to rehabilitation
     counseling which will facilitate positive change and
     optimize human potential among the members' clientele; (4)
     to promote programs which proactively address human
     rights, societal trends, and social issues most relevant
     to the profession and react to the barriers that interfere
     with human rights and rehabilitation; (5) to promote
     public awareness of and support for the rehabilitation
     counseling profession; 
     (6) to promote the advancement and dissemination of
     research and knowledge in rehabilitation counseling; (7)
     to promote and support public policy and legislation which
     enhances rehabilitation; (8) to promote, respect, and
     recognize the global interdependence among individuals,
     organizations, and societies; (9) to provide the
     organizational structure, membership, management, staff,
     facilities, and resources necessary to fulfill our
     mission.  Much of ARCA's work is performed through
     nationwide committees.  During 1990-1991, 11 task groups
     are examining ways in which the rehabilitation counseling
     profession can better serve persons with disabilities in
     specific topical areas.
     
     The American Association for Counseling and Development
     (AACD) is ARCA's parent organization.  ARCA conducts
     workshops related to rehabilitation counseling at AACD's
     annual conference.  ARCA supports and participates in AACD
     certification, licensure, and accreditation activities and
     is a member organization of other national groups with
     accreditation responsibilities in the rehabilitation
     field.
     
     Information Services:   A brochure describing ARCA
     membership benefits is available upon request.  A brochure
     describing rehabilitation counseling will also be
     available.  A newsletter, the ARCA News, is published four
     times per year.  It contains timely information on
     legislation, organization activities, professional
     developments, and items relevant to the rehabilitation of
     persons with disabilities.  ARCA's journal, The
     Rehabilitation Counseling Bulletin, is also published four
     times per year and contains major professional articles
     relevant to the rehabilitation of persons with
     disabilities.  Special issues devoted to single topics are
     sometimes published.  Recent topics include Implementing
     Computers in the Rehabilitation Process and Career and
     Life Transition.  Both the journal and newsletter are
     received by members as a membership benefit.  In 1986, a
     special monograph was published through the AACD press,
     containing the findings of ARCA's task groups on such
     current areas as independent living, consumer involvement,
     supported employment, transition, sensory impairments, and
     others.  A bibliography of doctoral dissertations in
     rehabilitation is also available.
     
     ARCA provides technical assistance to any organization
     concerned with the rehabilitation of persons with
     disabilities.  The extent of such assistance depends on
     the specific request and ARCA's abilities in that area.
     
     
     American Society for Deaf Children (ASDC)
814 Thayer Avenue
Silver Spring, MD  20910
(301) 585-5400 (Voice)
(301) 585-5401 (TDD)
     
     Disabilities Served:   Deafness and hearing impairments.
     
     Users Served:   Parents and professionals.
     
     The Organization:   The American Society for Deaf Children
     (ASDC) is a membership organization.  It acts as a
     clearinghouse for the exchange of information among
     parents of deaf children and between parents of children
     who are deaf and professionals.  A "Key Network" of
     parents across the country contact and motivate others
     when action must be taken on important issues such as
     legislation.  ASDC has approximately 100 affiliated groups
     in the United States, Canada, and other countries.
     
     Information Services:   ASDC provides general information
     about deafness and raising deaf children to all inquirers. 
     It refers new inquirers to other parents of deaf children
     in their own geographical areas, so that they can share
     their concerns and experiences.  ASDC provides speakers to
     its affiliated groups for workshops and seminars.  The
     organization also publishes a newsletter, available to
     members, which includes information about developments in
     education, legislation, and aids for deaf children.
     
     
     American Society of Handicapped Physicians (ASHP)
105 Morris Drive
Bastrop, LA  71220
(318) 281-4436
      
     Disabilities Served:  All handicaps.
     
     Users Served:  Physicians and allied health professionals.
     
     The Organization:  The American Society of Handicapped
     Physicians (ASHP) was established by Spencer B. Lewis, MD,
     a blind physician, to assist the estimated 18,000 disabled
     physicians in the United States.  Its goals include
     promoting unity, understanding, and camaraderie among
     handicapped physicians and their families; advocating for
     political and legislative action in medicine, government,
     and education; providing education and supportive services
     during the rehabilitation process of the disabled
     physician; and educating society through media exposure
     regarding the capabilities of handicapped persons in the
     medical field.
     
     Membership in this organization has grown rapidly since it
     came into being in 1982 and includes physicians in 46
     States and a number of foreign countries.  All age groups,
     medical specialties, and disabilities are represented.
     
     Information Services:  ASHP publishes a quarterly
     newsletter, Synapse, and holds annual national
     conferences.  Eventually this organization hopes to serve
     as a national clearinghouse for information on the varied
     needs and concerns of handicapped medical professionals. 
     ASHP makes referrals in the areas of employment, medical
     education, residency programs, and hospital staff
     positions.  Some information offered by the society is
     available on tape.
     

American Society of Plastic and Reconstructive
Surgeons (ASPRS)
444 East Algonquin Road
Arlington Heights, IL  60005
(708) 228-9900
(800) 635-0635 (Plastic Surgeons Referral Service)
     
     Disabilities Served:   Deformities caused by birth defect,
     disease, or trauma.
     
     Users Served:   The public, plastic surgery patients, and
     plastic surgeons certified by the American Board of
     Plastic Surgery.
     
     The Organization:   Founded in 1931, the American Society
     of Plastic and Reconstructive Surgeons (ASPRS) is made up
     of about 4,500 plastic surgeons certified by the American
     Board of Plastic Surgery.  ASPRS seeks to educate the
     public on the specialty of plastic surgery, and to assist
     individuals in selecting a properly trained physician. 
     The society promotes high professional standards of care
     through scientific education and research coordinated by
     its Plastic Surgery Educational Foundation (PSEF).  It
     also assists board-certified plastic surgeons in
     fulfilling their professional needs by acting as an
     advocate with the government and insurance industry,
     offering practice-management services and coordinating
     similar activities.
     
     Information Services:   ASPRS offers a toll-free, 24-hour
     referral service 
     (1-800-635-0635) to assist prospective patients in
     selecting a qualified plastic surgeon and to verify that a
     physician is certified in plastic surgery.  The service
     also offers detailed educational brochures on various
     plastic surgery procedures.  In conjunction with the
     Plastic Surgery Educational Foundation, ASPRS publishes a
     monthly scientific journal, Plastic and Reconstructive
     Surgery, and a monthly socioeconomic newspaper for
     members, Plastic Surgery News.  For general information,
     contact ASPRS at the above address or phone the
     Communications Department at 
     (708) 228-9900, ext. 349.
     
     American Speech-Language-Hearing Association (ASHA)
10801 Rockville Pike
Rockville, MD  20852
(301) 897-5700 (Voice/TDD)
(800) 638-8255 
     
     Disabilities Served:  Speech, language, and hearing
     disorders.
     
     Users Served:  Consumers, speech-language pathologists,
     audiologists.
     
     The Organization:  The American Speech-Language-Hearing
     Association (ASHA) is a certifying body for professionals
     providing speech, language, and hearing services to the
     public, and it is an accrediting agency for college and
     university graduate school programs in speech-language
     pathology and audiology and for clinic and hospital
     programs that offer such services.  The association
     conducts research in communication disorders and studies
     of community needs for direct services.
     
     Information Services:  Public information brochures about
     communication disorders and roles of speech-language
     pathologists and audiologists are available from ASHA. 
     ASHA has extensive career information in the areas of
     possible employment, university training programs, and
     certification requirements.  Its publications include the
     Journal of Speech and Hearing Research; Journal of Speech
     and Hearing Disorders; Language, Speech and Hearing
     Services in the Schools; Guide to Professional Services in
     Speech-Language Pathology and Audiology; and an ASHA
     Directory of Membership.  A monthly magazine, ASHA,
     features organizational news, announcements of meetings,
     job openings, and research reports.  Some publications are
     free to members, but all may be subscribed to or purchased
     by interested persons.  Fifty State affiliates provide
     information about clinical services at the local level,
     and some publish their own newsletters.  ASHA sponsors
     conferences, short courses, institutes, and workshops as
     part of its professional education program.  An
     information and referral service for consumers is
     accessible via a toll-free HELPLINE 
     (1-800-638-8255).
     
     
     American Spinal Injury Association (ASIA)
250 East Superior Street
Room 619
Chicago, IL 60611
(312) 908-3425 
     
     Disabilities Served:  Spinal cord injury.
     
     Users Served:  Physicians, paraprofessionals.
     
     The Organization:  The American Spinal Injury Association
     (ASIA) is a corporation organized for the following
     purposes:  to augment and encourage knowledge and
     investigation of the causes, cure, and prevention of the
     spinal injury management; promote and exchange ideas
     between professionals in the field of spinal injury
     management; to support, coordinate, and encourage basic
     research in the field of management of spinal injury and
     related trauma; to develop teaching and educational
     material and provide specialized training for physicians
     and allied health personnel in the management of spinal
     injury; and to support and develop education of the
     profession and the laity in the prevention and proper
     management of spinal injury.
     
     The association sponsors an annual scientific/clinical
     meeting for physicians and other health care professionals
     involved in spinal cord injury and its management.
     
     Information Services:  ASIA publishes the ASIA BULLETIN, 
     three times annually.  ASIA members automatically receive
     a subscription with dues.  Other publications include
     Standards for Neurological Classification of SCI, Task
     Force Report on Spinal Cord Administration, Task Force
     Report on Training Guidelines for SCI Physicians,
     Guidelines for Facility Categorization and Standards of
     Care:  SCI, Spinal Cord Injury Nursing Education -
     Suggested Content,  and The Abstracts Digest from ASIA
     meeting proceedings.  Ordering information and a price
     list can be obtained from ASIA.  Taped proceedings (i.e.,
     instructional courses) from the clinical meetings are
     available.
     
     
American Tinnitus Association (ATA)
P.O. Box 5
Portland, OR  97207
(503) 248-9985
     
     Disabilities Served:   Tinnitus.
     
     Users Served:   People with tinnitus, health care
     professionals.
     
     The Organization:   The American Tinnitus Association
     (ATA) was founded to conduct and support research and
     educational activities relating to the cure of tinnitus
     and other defects or diseases of the ear.  Tinnitus is the
     subjective experience of hearing a sound, a ringing, or a
     noise when no such external physical sound is present. 
     The ATA provides information and referral and counseling
     services to persons affected with tinnitus.  Additionally,
     information and research support is provided for
     professionals in the field of tinnitus.  While the ATA has
     no official chapters, it offers information and assistance
     to about 140 tinnitus self-help groups, across the
     country.
     
     Information Services:   The ATA has available several
     brochures about tinnitus and the association.  Tinnitus
     Today, a quarterly publication, includes timely articles
     and research reports about tinnitus.  The ATA can provide
     a bibliography on tinnitus and statistical data on
     tinnitus patient characteristics, as well as public
     service announcements about this condition.  Some material
     is available in Spanish.  A $15 minimum annual donation is
     requested to receive the journal and stay current on the
     mailing list.
     
     Referrals for patients seeking help for tinnitus can be
     made to about 700 professionals in the United States and
     Canada.  The ATA also sponsors workshop courses for
     hearing professionals.
     
     
     American Trauma Society (ATS)
1400 Mercantile Lane
Suite 188
Landover, MD  20785
(301) 925-8811
(800) 556-7890
     
     Disabilities Served:   Persons disabled through injury.
     
     Users Served:   Persons disabled through injury,
     physicians, nurses, health care professionals,
     institutions, general public.
     
     The Organization:   The American Trauma Society (ATS) is a
     voluntary, nonprofit health organization dedicated to the
     prevention of trauma and the improvement of trauma care. 
     As a prevention awareness/education association, it (1)
     strives to increase public awareness of the term "trauma"
     so that it becomes a household word, (2) initiates and
     coordinates national prevention programs aimed at reducing
     the incidence and severity of trauma, (3) promotes the use
     of trauma systems throughout the nation, and (4) develops
     and provides emergency medical training programs for the
     general public and health education professionals.  ATS
     yearly conducts a national campaign on trauma awareness
     and assists its State divisions, institutional members,
     and other health groups throughout the Nation to hold
     community campaigns and to spread prevention/awareness
     messages.
     
     Information Services:   ATS offers a catalog of trauma
     educational materials on safety and prevention topics.  It
     produces a newsletter on association and trauma-related
     activities, distributes information on several national
     prevention campaigns besides its own, and acts as a
     referral for trauma information.
     
     
     American Veterans of World War II, Korea, and
 Vietnam (AMVETS)
4647 Forbes Boulevard
Lanham, MD  20706
(301) 459-9600
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Veterans with all types of disabilities.
     
     The Organization:  The American Veterans of World War II,
     Korea, and Vietnam (AMVETS) is a service organization for
     veterans, including disabled veterans.  The organization
     operates at national, State, and local levels with 1,500
     local posts across the country.  Its main concerns for
     disabled veterans are veterans benefits--education,
     rehabilitation and employment, and legislation affecting
     the handicapped.  A legislative staff in Washington keeps
     abreast of all new legislation affecting veterans and the
     handicapped and maintains a close liaison with Congress. 
     Individual advocacy is provided nationwide through a
     network of service offices located at regional offices of
     the Department of Veterans Affairs (VA).
     
     Information Services:  Although AMVETS is a membership
     organization, information and direct services are
     available to any veteran, dependents, or survivors of
     veterans.  AMVETS' primary effort is at the State and
     local levels, through service officers and accredited
     representatives.  The officers and representatives offer
     counsel, information, and referrals in the areas of
     education, rehabilitation, and employment.  They act as
     the veteran's initial contact in obtaining these benefits,
     and they refer him or her to the appropriate government
     agency.  They will appeal individual cases before an
     agency such as the VA if a veteran fails to get his or her
     rightful benefits.  At the post level, AMVETS members
     visit hospitalized veterans to provide whatever lay
     assistance they can for the patient's rehabilitation. 
     Professional referrals and information about aids,
     equipment, and prosthetic devices can be obtained from
     most service officers and post representatives, but the
     emphasis of each local service varies.  The AMVETS
     magazine includes reports on newly enacted and pending
     relevant legislation.  For information, contact AMVETS at
     the above address or an AMVETS service office at a
     regional VA office.
     Amputee Shoe and Glove Exchange
P.O. Box 27067
Houston, TX  77227
      
     Disabilities Served:  Amputation.
     
     Users Served:  Disabled persons.
     
     The Organization:  The Amputee Shoe and Glove Exchange
     provides a free service to facilitate the exchange of
     unneeded shoes and gloves among amputees.
     
     Information Services:  The exchange maintains a list of
     amputees with information on their age, size, style
     preferences, and size needed.  This information is sent to
     an amputee with similar tastes and the opposite side
     amputated.  All mailings of shoes or gloves are between
     the amputees themselves.
     
     
The Amyotrophic Lateral Sclerosis Association
 (ALSA)
21021 Ventura Boulevard
Suite 321
Woodland Hills, CA  91364
(818) 340-7500
(800) 782-4747 (Patient Hotline)
     
     Disabilities Served:   Amyotrophic lateral sclerosis
     (ALS), Lou Gehrig's disease.
     
     Users Served:   Disabled persons, physicians, physical
     therapists, speech therapists, neurological specialists.
     
     The Organization:   The Amyotrophic Lateral Sclerosis
     Association (ALSA) was established in 1985 through the
     merger of the former National ALS Foundation and the ALS
     Society of America.  ALSA was formed to help people with
     ALS live with the disease more effectively, to educate the
     public about the nature of ALS, and to foster medical
     research on its cause and cure.  ALS is a progressive
     fatal disorder that attacks the body's nerves and muscles. 
     ALSA carries on an extensive public information program
     nationwide to locate ALS patients and provide helpful
     information.  Chapters nationwide support the
     psychological needs of families through peer counseling
     and make referrals to medical facilities for treatment and
     therapy for ALS patients.  There are seven certified ALSA
     centers throughout the country providing a
     multidisciplinary team approach to provide a continuum of
     care as well as appropriate diagnostic capabilities.  ALSA
     has funded millions in ALS research.  In addition, the
     organization is actively involved in advocacy, working
     with other organizations concerned with neurological
     disorders to increase government-sponsored research.
     
     Information Services:   Publications include Home Care for
     ALS Patients.  A wide range of pamphlets includes
     information on patient-family services, health insurance
     plans, breathing exercises, communication systems and
     devices, emergency treatment and support systems, as well
     as reports and evaluations of current research.  A
     quarterly publication, LINK, reports on current research
     developments, patient news, and activities of ALSA and its
     chapters.  Professionals in the field, as well as patients
     and their families, are encouraged to use ALSA as a
     clearinghouse of information on the management of ALS. 
     There is no charge for information.
     
     
Apple Computer, Inc.
Worldwide Disability Solutions Group
Mail Stop 36SE
20525 Mariani Avenue
Cupertino, CA  95014
(408) 974-7910
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Teachers and professionals in special
     education and rehabilitation,  parents of individuals who
     are disabled, individuals with disability.
     
     The Organization:   Apple's Worldwide Disability Solutions
     Group has developed a wide variety of materials--in print,
     video and electronic form--that describe how personal
     computers can constructively influence the experience of
     being disabled.  At Apple, energies are directed toward
     ensuring that the power and the promise of the
     microcomputer are as available to individuals with
     disability as to everyone else.  Toward that end, the
     Worldwide Disability Solutions Group focuses on several
     broad goals:  increasing awareness, providing access to
     information, creating a national network of partnerships,
     and developing accessible personal computers.
     
     Information Services:   The information resources
     available include the SOLUTIONS DATABASE, Apple Computer
     Resources in Special Education and Rehabilitation,
     Independence Day , and SpecialNet.   The SOLUTIONS
     DATABASE  is a comprehensive data base that describes more
     than a thousand adaptive devices, software programs, and
     disability-related organizations, publications, and
     networks.  The data base is available on AppleLink and
     SpecialNet.  Apple Computer Resources in Special Education
     and Rehabilitation is a 400-page volume published
     annually.  It represents a guide to Apple-compatible
     hardware and software products for individuals with
     disability.  Independence Day was written primarily for
     individuals with a disability and for professionals in the
     fields of special education and rehabilitation.  Through
     case studies and descriptions of selected adaptive
     products, Independence Day  describes strategies and
     solutions for tailoring personal computers to meet
     individual needs and objectives.  SpecialNet  is the
     Nation's largest telecommunications service devoted to
     serving the needs of professionals in special education
     and rehabilitation.  The Worldwide Disability Solutions
     Group maintains a bulletin board on SpecialNet.  This
     bulletin board provides a convenient way to communicate
     directly with Apple's Worldwide Disability Solutions
     Group.
     
     
     Architectural and Transportation Barriers Compliance
Board (ATBCB)
1111 18th Street, NW 
Suite 501
Washington, DC 20036
(202) 653-7834
     
     Disabilities Served:  All handicaps.
     
     Users Served:   Disabled persons; Federal and State
     governments; building, construction, and design
     industries; and the general public.
     
     The Organization:  The Architectural and Transportation
     Barriers Compliance Board (ATBCB) was created by Section
     502 of the Rehabilitation Act of 1973 to enforce the
     Architectural Barriers Act of 1968 (P.L. 90-480), which
     requires that most buildings and facilities designed,
     constructed, or altered with the use of Federal funds
     since 1969 be accessible to handicapped persons.  As the
     Federal agency established to monitor P.L. 90-480, the
     Board is responsible for ensuring that all waivers and
     modifications are consistent with the act and for ensuring
     that standards issued by other Federal agencies comply
     with the Board's minimum guidelines and requirements.  The
     Board handles complaints about inaccessible facilities
     through its Executive Director.  Only written complaints
     are accepted.  The complainant's name is not disclosed
     without written consent.  The Board may conduct
     investigations, hold public hearings, and issue orders to
     comply with the act.  Among the Board's responsibilities
     is the planning for accessible transportation and housing
     for handicapped persons; this involves cooperation with
     other agencies, organizations, and individuals also
     working toward such goals.  The Board is also responsible
     for exploring communication barriers and for making
     administrative and legislative recommendations.  Under the
     Americans With Disabilities Act, the ATBCB has been given
     the responsibility for developing the minimum guidelines
     for accessible design of buildings and facilities and
     transportation vehicles.
     
     Information Services:  Publications, available free of
     charge include Access America:  The Architectural Barriers
     Act and You.  The Board answers technical information
     questions through its technical services number (202)
     653-7848 (Voice and TDD).
     
     
Arthritis Foundation 
1314 Spring Street, NW
Atlanta, GA  30309
(404) 872-7100
     
     Disabilities Served:  Arthritis, rheumatic diseases.
     
     Users Served:  Persons with arthritis and rheumatic
     diseases and their families, health care professionals.
     
     The Organization:  The Arthritis Foundation is a national
     voluntary health association committed to supporting
     research to find the cure for and prevention of arthritis
     and to improve the quality of life for those affected by
     arthritis.  Programs include support for scientific
     research, training specialists, public information and
     education, and help within the community for people who
     have rheumatic diseases.  The 71 local chapters and
     divisions of the foundation provide basic information as
     well as assistance in locating treatment specialists,
     clinics, and other agencies to help with physical,
     financial, and emotional problems caused by arthritis. 
     The chapters support a variety of local services,
     including information and education programs, support
     groups, exercise classes, arthritis clinics, home care
     programs, and rehabilitation services.
     
     Information Services:  The foundation disseminates
     information about arthritis care to its chapters and to
     professionals in the arthritis treatment field.  A variety
     of pamphlets are available from the foundation's local
     chapters, including information on specific forms of
     arthritis, various treatments, and solutions to physical
     and emotional problems associated with arthritis.  Some
     materials are available in Spanish.  Chapters maintain
     lists of medical and community services and make referrals
     upon request.  The foundation holds national and regional
     scientific meetings and continuing community education
     programs to advise local physicians of the latest clinical
     advances.
     
     
     Artificial Language Laboratory (ALL)
405 Computer Center
Michigan State University
East Lansing, MI  48824
(517) 353-5399
      
     Disabilities Served:  Physical disabilities, learning
     disabilities, speech and language disorders, visual
     impairment, hearing impairment.
     
     Users Served:  Disabled persons, parents, educators,
     speech pathologists, physical therapists, manufacturers.
     
     The Organization:  The Artificial Language Laboratory
     (ALL) is a multidisciplinary teaching and research center
     involved in basic and applied research in computer
     processing of formal linguistic structures.  ALL's focus
     is on the development and application of technology for
     persons with severe communication limitations.  Applied
     research includes customization of voice output
     communication systems.  ALL also develops multilingual
     speech synthesis systems.  The lab is a research and
     teaching facility located at and affiliated with Michigan
     State University.
     
     Information Services:  The Artificial Language Laboratory
     publishes Communication Outlook, a quarterly magazine
     available through subscription.  It contains information
     on communication aids, organizations, conferences, and
     first-person accounts by communication aid users.  ALL
     also distributes reports that describe and explain
     technical developments, including switches, hardware, and
     software developed by the lab.  Video cassette films
     describing ALL-built equipment and applications are
     available for rental.  Technical assistance is provided to
     individuals who require specially built voice output
     communication aids.  There is a charge for evaluations.
     
     
     Associated Services for the Blind (ASB)
919 Walnut Street
Philadelphia, PA  19107
(215) 627-0600
     
     Disabilities Served:  Blindness, visual impairment,
     deaf-blindness.
     
     Users Served:  Disabled persons, professional training
     schools, health care professionals.
     
     The Organization:  Associated Services for the Blind (ASB)
     strives to support independence and self-determination of
     visually impaired people by providing needed equipment,
     materials, training, support, and education of the public. 
     ASB provides braille, large type, and recordings of a
     variety of reading material to blind and partially sighted
     persons and transcribes printed materials on request from
     blind individuals.  ASB also transcribes materials for
     government agencies, including the Library of Congress. 
     Each fall, ASB offers a braille transcriber training
     program free to those who wish to do volunteer
     transcribing.  Persons who successfully complete the
     course are certified by the Library of Congress, National
     Library Service for the Blind and Physically Handicapped. 
     ASB also provides training and consultation in the use of
     other advanced electronic aids and has available a limited
     subsidy program.
     
     The organization provides instruction for blind or
     visually impaired persons preparing to enter or re-enter
     the work force, for older persons with failing vision
     seeking to retain independence, and for blind persons
     desiring to update their skills.  In addition, ASB teaches
     adaptive skills to newly blind individuals.  ASB also
     provides counseling for visually impaired persons and
     their families and supportive services such as escort
     services, reader's services, volunteer visitors, and
     telephone companions.  To improve public understanding of
     blindness, ASB provides educational and training programs
     to community organizations, agencies, professional
     students in social work and health care, and elementary
     and secondary school students.  ASB also offers eye safety
     programs for the local community with an emphasis on
     Industrial Safety Programs. 
     
     Information Services:  More than 200 volunteers across the
     country transcribe textbooks, professional materials,
     music, and recreational materials.  ASB regularly records
     certain magazines and journals and will fill individual
     requests for periodicals not available from other sources. 
     Transcription Services has a minimal charge for materials. 
     A list of recorded periodicals is available; periodicals
     must be subscribed to and are on a loan basis.  ASB
     operates a retail store, Sense-Sations, which sells a
     variety of specialized items for blind and visually
     impaired persons.  Purchases can be made in the store or
     by mail order.  A catalog is available on request.  ASB
     also operates a radio station, which broadcasts news and
     information to visually impaired persons in the
     Philadelphia area via special radio receivers.
     
     Association for Education and Rehabilitation of the
Blind
 and Visually Impaired (AER)
206 North Washington Street
Suite 320
Alexandria, VA  22314
(703) 548-1884
      
     Disabilities Served:  Blindness, visual impairments, and
     deaf-blindness.
     
     Users Served:  Teachers and rehabilitation professionals.
     
     The Organization:  The Association for Education and
     Rehabilitation of the Blind and Visually Impaired (AER) is
     a membership organization of teachers and rehabilitators
     who work with blind and visually impaired children and
     adults.  AER establishes professional standards and
     certifies professionals working in the field.  Special
     interest groups of AER include teachers of the
     multihandicapped and deaf-blind children, orientation and
     mobility instructors, rehabilitation teachers, and 16
     others.  AER meets biennially and also holds regional
     meetings to conduct educational workshops in the
     specialized fields.
     
     Information Services:  AER publishes a quarterly journal,
     a bimonthly newsletter, and a monthly job exchange
     newsletter.
     
     
     Association for Macular Diseases, Inc. (AMD)
210 East 64th Street
New York, NY  10021
(212) 605-3719
     
     Disabilities Served:   Macular disease impairment to
     central vision, severely limiting eyesight.
     
     Users Served:   Those suffering from macular degeneration,
     their families, and health care professionals working with
     them.
     
     The Organization:   Association for Macular Diseases,
     Inc., (AMD) was established in 1978 as a not-for-profit
     organization to meet the needs of those suffering from
     this disabling eye condition about which little was known. 
     They are a national support group for individuals, their
     relatives, and spouses who must adjust to the restrictions
     and changes brought about by macular disease.  They
     maintain a members' hotline to disseminate information and
     to provide emotional support and practical suggestions
     when needed.  The long-range goal is to establish an eye
     bank devoted exclusively to research on macular problems.
     
     Information Services:   AMD publishes a quarterly
     newsletter to provide counsel, issue updates on medical
     advances as they occur, and keep the membership advised on
     newest developments in low vision aids.  Procedural
     guidelines are available on forming local support groups,
     and informative booklets on macular degeneration are made
     available to members whenever they are published.
     
     
     Association for Persons in Supported Employment
(APSE)
5001 West Broad Street
Suite 34
Richmond, VA  23230
(804) 282-3655
     
     Disabilities Served:    Individuals with severe
     disabilities covering all handicapping conditions.
     
     Users Served:    Implementors and recipients of supported
     employment (SE).
     
     The Organization:   The Association for Persons in
     Supported Employment (APSE) is a nonprofit membership
     driven association formed to improve and expand integrated
     employment opportunities and services for persons with
     severe disabilities.  To accomplish this mission, APSE
     will provide advocacy and information to the implementors
     and recipients of supported employment.  The organization
     will address the issues and barriers that impede the
     growth and implementation of integrated employment
     services.  APSE's goal is to promote national, State, and
     local policy development to improve supported employment
     practice and to educate the general public and the
     business community on the value of including people with
     severe disabilities as fully participating community
     members.
     
     Information Services:   The Association for Persons in
     Supported Employment (APSE) disseminates a quarterly
     newsletter, The Advance.  Topics discussed in The Advance
     include empowerment of SE workers, SE personnel
     competencies and training, ethics and quality service
     provision, transition from school to work and a myriad of
     other issues.  APSE members will receive notices of policy
     updates as well as an opportunity to be involved with a
     national network of individuals involved in the
     development and implementation of supported employment. 
     APSE sponsors an annual national conference to provide a
     forum for sharing and collectively improving SE practice
     and opportunities for persons with severe disabilities.
      
     
     The Association for Persons With Severe Handicaps
(TASH)
7010 Roosevelt Way, NE
Seattle, WA  98115
(206) 523-8446 (Voice)
(206) 524-6198 (TTD)
     
     Disabilities Served:   Severe and profound disabilities.
     
     Users Served:   Parents, teachers, medical personnel,
     researchers, speech pathologists, occupational, physical
     therapists, other professionals and paraprofessionals.
     
     The Organization:  The Association for Persons With Severe
     Handicaps (TASH) was founded in 1974 and has grown to an
     international membership of over 9,000 including parents
     and professionals.  TASH advocates comprehensive, high
     quality, integrated education and habilitative services;
     disseminates research findings and practical applications
     for education and habilitation; encourages effective use
     and sharing of experience and expertise; and supports
     those actively making the promise of quality education and
     services a reality.
     
     TASH chapters are being chartered at local levels to
     facilitate increased involvement in local concerns.  TASH
     has chartered or is developing chapters in over 40 States. 
     TASH chapters are also located in several Canadian
     provinces.  New TASH chapters are continually being
     formed.  A membership fee is charged.
     
     Information Services:   TASH publishes a monthly
     newsletter and a quarterly journal  containing articles on
     new research trends and practices in services to
     individuals experiencing severe and profound handicapping
     conditions.  Books, papers, and reprints from past issues
     of the Journal  and bibliographies are available on
     subjects such as vocational training, curricula, and
     working with families.  A bibliography of special interest
     to parents of children with severe handicaps is available
     from TASH and includes reference materials on advocacy,
     recreation, and self-help skills development.  
     
     Ongoing surveys include those on integrated public schools
     and parent needs.  TASH has a parent-to-parent network of
     communication.  By maintaining lists of parents whose
     children experience severe and profound handicaps and who
     are involved in local parental support and advocacy
     groups, TASH is able to put inquirers in touch with
     parents with similar concerns.  TASH also maintains a
     register of professional contact people who are available
     for assistance on specific problems of education, training
     of personnel, etc.  Referrals to direct service providers,
     including schools, clinics, and vocational rehabilitation
     services, are made by letter or phone.  TASH also holds an
     annual conference.
     
     
     Association for Retarded Citizens of the United
States (ARC)
2501 Avenue J
Arlington, TX  76006
(817) 640-0204
     
     Disabilities Served:   Mental retardation and related
     disease.
     
     Users Served:  Parents, professionals, people with
     disabilities, general public.
     
     The Organization:   The Association for Retarded Citizens
     of the United States (ARC) is a volunteer organization
     solely devoted to improving the welfare of all children
     and adults with mental retardation and their families. 
     The association also provides services to parents and
     other individuals, organizations, and communities for
     jointly meeting the needs of people with mental
     retardation.
     
     The ARC is essentially a grassroots organization formed in
     1950 by a small group of parents and other concerned
     individuals.  Today there are 160,000 members and 1,300
     State and local chapters across the Nation.
     
     The ARC works to provide more than 6 million Americans who
     are mentally retarded and who may have other disabilities
     with services, including employment, training, education,
     independent living, and the opportunity to reach their
     greatest level of personal fulfillment and potential.  The
     ARC also exists because people with mental retardation
     need help to ensure that their rights as citizens of this
     country are protected.
     
     Information Services:   The ARC answers lay and
     professional inquiries about mental retardation.  It
     publishes fact sheets, bibliographies, pamphlets,
     handbooks, and other materials on a variety of topics
     related to mental retardation, which can be obtained by
     writing for a publications list.  The association also
     publishes six issues of The Arc newspaper annually and a
     bimonthly Government Report, both available by
     subscription.
     
     
     Association for the Care of Children's Health (ACCH)
7910 Woodmont Avenue
Suite 300
Bethesda, MD 20814
(301) 654-6549
     
     Disabilities Served:  Children with disabilities or
     chronic illnesses and hospitalization of children.
     
     Users Served:  Health professionals and students, parents,
     teachers.
     
     The Organization:  The Association for the Care of
     Children's Health (ACCH) is a multidisciplinary
     organization dedicated to the psychosocial well-being of
     children and families in health care settings.  Membership
     includes health professionals and students in all
     disciplines as well as parents and teachers.
     
     Information Services:   ACCH publications, for which there
     is a charge, include titles on chronic illness and
     hospitalized children.  A newsletter, ACCH Network,
     reports on new developments and activities of national and
     local organizations related to family-centered care for
     children with special needs.  ACCH also publishes a
     quarterly peer review journal, Children's Health Care. 
     ACCH also holds an annual Parent Network Meeting for
     parents of children with disabilities and chronic
     illnesses as well as a general annual conference.
     
     
     Association of Birth Defect Children, Inc. (ABDC)
5400 Diplomat Circle
Suite 270
Orlando, FL  32810
(407) 629-1466
      
     Disabilities Served:  Birth defects of all kinds,
     especially those caused by environmental agents.
     
     Users Served:  Disabled persons, parents, teachers, and
     health care professionals.
     
     The Organization:  The Association of Birth Defect
     Children (ABDC), formerly the Association of Bendectin
     Children, was established in 1980 to provide information
     and support to families of children with birth defects of
     a nongenetic nature, caused by the mother's exposure to
     drugs, chemicals, radiation, and other environmental
     agents.  Families of children with genetically caused
     birth defects are also included in the membership.  ABDC
     is developing a birth defects registry, which contains
     demographic and medical history data from member families
     throughout the United States and Canada.
     
     Information Services:  ABDC's inquiry response service is
     geared primarily to parents and people in the medical and
     health-related professions.  It makes referrals to
     organizations working with specific birth defects.  The
     association also publishes a quarterly newsletter.
     
     
     Association of Late-Deafened Adults (ALDA)
1027 Oakton
Evanston, IL  60202
(312) 604-4192 (TDD)
(312) 644-5510 (Voice)
     
     Disabilities Served:   Late deafness.
     
     Users Served:   People who share the experience of having
     become deaf rather than having been born deaf.
     
     The Organization:   The Association of Late-Deafened
     Adults (ALDA) is an organization committed to advocate
     for, support, educate, and represent people who grew up as
     hearing individuals and became deaf as adults.  ALDA is a
     membership organization, self-help support group, as well
     as a resource and information center for late-deafened
     people.  Advocacy, self-help, support groups, social
     activities, outreach, newsletter, consultation, and
     communication are among the topics of primary focus and
     concern.
     
     Information Services:  ALDA News is the newsletter of the
     Association of Late-Deafened Adults and is provided free
     to paid members of ALDA.  Articles and submittals about
     late deafness are welcome.
     
     ALDA's third national convention will be held in Chicago,
     Oct. 23-27, this year, 1991; in Boston in 1992; and in
     Washington, DC, in 1993.  "ALDA and the FAMILY" is the
     theme for this year.
     
     
     Association of Medical Rehabilitation Administrators
(AMRA)
1733 Forest Hills Drive
Vienna, WV  26105
(304) 485-5842
      
     Disabilities Served:  All handicaps.
     
     Users Served:  Physicians involved in the broad problems
     of rehabilitation of the physically or mentally disabled;
     administrative officers of a service center, hospital, or
     agency treating or working with the physically, mentally,
     or emotionally disabled (may have such titles as director,
     administrator, coordinator, executive assistant, etc.); or
     educators responsible for the training and education of
     rehabilitation personnel, patients, or clients.
     
     The Organization:  AMRA is a professional organization of
     administrators, physicians, department directors, and
     educators associated with rehabilitation facilities,
     programs, or agencies.  Members are responsible for
     planning, organizing, and coordinating various
     comprehensive rehabilitation programs or may be involved
     in counseling, education, or direct care programs.
     
     AMRA was founded in 1953 to foster the concept of total
     rehabilitation for all disabled persons through unified
     and coordinated methods and to provide a means for
     professional training, growth, and advancement of
     directors, coordinators, and others in the field of
     rehabilitation.
     
     The Association of Medical Rehabilitation Administrators
     is the only national association that accredits
     individuals as Certified Rehabilitation Administrators,
     allowing them to use the initials, C.R.A., following their
     signatures.  The organization provides its members linkage
     to a panel of experts for advice on daily professional
     concerns.  It offers the opportunity to network with other
     professionals who are administratively responsible for
     medical rehabilitation programs.  AMRA provides access to
     continuing education programs delivered via telephone to
     the worksite.  Eight regional divisions have been
     established to provide representation of the membership
     within the executive board.
     
     Information Services:  AMRA publishes an annual membership
     directory; a quarterly Newsletter, which covers
     association activities, reviews publications relevant to
     the field, etc.; and The Journal of Medical Rehabilitation
     Administrators, which showcases scholarly publications by
     members and others and deals with general management
     topics, editorials, interviews, facility information, etc.
     
     Association of Mental Health Administrators (AMHA)
60 Revere Drive
Suite 500
Northbrook, IL  60062
(708) 480-9626
     
     Disabilities Served:  Mental health, mental retardation,
     developmental disabilities and addiction.
     
     Users Served:  Administrators, health services.
     
     The Organization:  The Association of Mental Health
     Administrators (AMHA) is a professional association for
     administrators of agencies and programs serving mentally
     ill, mentally retarded, developmentally disabled
     individuals as well as those with problems of alcohol and
     substance abuse.  The major goals of AMHA are to promote
     excellence in administrative practices, to foster the
     professional growth of its members, and to provide
     recognition for noteworthy individual service in the field
     of mental health administration.  The association confers
     the Certificate of Certified Mental Health Administrator
     to qualified active members.  The certification process
     includes a written and oral review and covers various
     components including competency based assessments,
     continuing education, and professional development.
     
     Information Services:  A 3-day annual meeting and
     educational conference is held every fall.  Registration
     is open to members and nonmembers.  The AMHA Bimonthly
     Newsletter reports on relevant legislative developments,
     new information sources and publications, organizational
     issues, personal notes about accomplishments of
     association members, and employment information.  The
     Journal of Mental Health Administration, issued three
     times a year, publishes articles on new developments,
     innovations, and trends in the field of mental health
     management.  Brochures about the association and
     certification are available.  There is a charge for
     services and publications.
     
     
     Association of Radio Reading Services (ARRS)
University of South Florida, WRB 209
Tampa, FL  33620
(813) 974-4193
     
     Disabilities Served:  Visual and physical handicaps,
     problems associated with aging.
     
     Users Served:   Disabled persons.
     
     The Organization:   The Association of Radio Reading
     Services (ARRS) was established in 1977 to promote the
     growth of such services throughout the country and to
     provide for the development and sharing of advanced
     technology and for a unified effort towards legislation
     supportive of Radio Reading Services.
     
     Radio Reading Services are independently operated
     broadcasts of news and information for visually and
     physically handicapped persons who cannot read printed
     materials for themselves.  Broadcasts are presented by
     trained volunteers and include readings of newspapers,
     magazines, and books.  Now on the air in more than 110
     communities throughout the country, these services operate
     on a closed channel basis (an FM station simultaneously
     broadcasts the service along with its regular programming
     to designated listeners via special receivers) or on an
     open channel basis (local stations interrupt their regular
     programming for the service and no special receiver
     equipment is required).
     
     Information Services:   ARRS publishes brochures on Radio
     Reading Services and how to establish them.  Memos on
     issues affecting the broadcasts of special programs, such
     as regulations of the Federal Communications Commission or
     the Office of Telecommunications, are periodically
     distributed to member services.  Information is available
     about possible funding sources and broadcast and receiver
     equipment.  ARRS will provide onsite consultation or
     referrals to other consultants.  A newsletter, Hearsay, is
     published quarterly.  A Directory of Radio Reading
     Services in braille and large print is free of charge to
     ARRS members.
     
     
Association of Rehabilitation Nurses (ARN)
5700 Old Orchard Road
First Floor
Skokie, IL  60077
(708) 966-3433
     
     Disabilities Served:  Physical disabilities.
     
     Users Served:  Rehabilitation nurses.
     
     The Organization:  The Association of Rehabilitation
     Nurses (ARN) is an international organization of 7,500
     professional rehabilitation nurses.  Rehabilitation nurses
     provide comfort and therapy, promote health-conducive
     adjustments, support adaptive capabilities, and promote
     achievable independence for persons with potential or
     actual disability.  ARN offers a wide range of
     professional activities that help develop the professional
     skills of rehabilitation nurses.  We hold our annual
     educational conference in the fall; offer seminars on case
     management, nursing administration, and leadership; and
     several times each year conduct Rehabilitation Nursing: 
     Directions for Practice, our basic rehabilitation nursing
     course.  The Rehabilitation Nursing Foundation of ARN
     develops educational opportunities for rehabilitation
     nurses and promotes scientific research in the field.  ARN
     publishes a bimonthly member newsletter, ARN News, and in
     alternating months publishes a professional journal,
     Rehabilitation Nursing, which has a circulation of 9,000. 
     
     Information Services:  ARN offers Rehabilitation Nurses
     Make a Difference, a career brochure on rehabilitation
     nursing.
     
     
     Association of Rehabilitation Programs in Data
Processing
 (ARPDP)
P.O. Box 2404
Gaithersburg, MD  20879
     
     Disabilities Served:   Severe physical disabilities.
     
     Users Served:   Disabled persons.
     
     The Organization:   The Association of Rehabilitation
     Programs in Data Processing (ARPDP) represents 31 programs
     across the country that train severely handicapped
     individuals as computer programmers.  Graduates of these
     programs are placed in competitive employment.  As of
     December 1984, 1,265 out of 1,500 students were
     successfully placed.
     
     Information Services:   The association responds to
     inquiries concerning the specific needs of disabled
     programmers.  Persons desiring detailed information are
     referred to the training program nearest them.  The
     association publishes a quarterly newsletter, Viewpoint.
     
     Association of Sudden Infant Death Syndrome 
 Program Professionals (ASPP)
c/o Massachusetts Center for SIDS
Boston City Hospital
818 Harrison Avenue
Boston, MA  02118
(617) 534-SIDS
     
     Disabilities Served:  Sudden Infant Death Syndrome (SIDS).
     
     Users Served:  Families and others affected by Sudden
     Infant Death Syndrome.
     
     The Organization:   The Association of SIDS Program
     Professionals (ASPP) is dedicated to representing
     professional SIDS counseling services at the State,
     national, and international levels.  It advocates for
     continued development and expansion of SIDS and
     bereavement services; organizes activities that promote
     professional growth, develops practice standards, and
     links together practitioners working with SIDS families. 
     Its membership includes persons or agencies engaged in the
     provision of professional SIDS information and counseling
     services.
     
     Information Services:   ASPP developed and copyrighted
     Standards of Care to ensure that those affected by SIDS
     receive immediate, sensitive, humane care and accurate
     information.
     
     
     Association on Handicapped Student Service Programs
 in Post-Secondary Education (AHSSPPE)
P.O. Box 2192
Columbus, OH  43221
(614) 488-4972
      
     Disabilities Served:  All handicaps.
     
     Users Served:  Post-secondary education personnel.
     
     The Organization:  The Association on Handicapped Student
     Service Programs in Post-Secondary Education (AHSSPPE)
     provides a vehicle to strengthen the professionalism,
     expertise, and competence of personnel working with
     post-secondary handicapped students. 
     
     AHSSPPE has members throughout the United States and
     Canada representing residential and nonresidential
     campuses, 2- and 4-year institutions.  The association
     sponsors a national conference each year. 
     
     Information Services:  AHSSPPE publishes a newsletter, the
     Alert, an annotated bibliography.  Proceedings from its
     national conferences and quarterly bulletin, AHSSPPE, are
     also included in the Alert.  Furthermore, an Employee
     Exchange is available to members.  Telephone inquiries
     should be directed to Dr. Jane Jarrow, Executive Director. 
     In addition to the above-mentioned newsletter, we also
     have publications for sale.
     
     
     Asthma and Allergy Foundation of America (AAFA)
1717 Massachusetts Avenue, NW
Suite 305
Washington, DC  20036
(202) 265-0265
(800) 7-ASTHMA
     
     Disabilities Served:    Asthma and allergic diseases.
     
     Users Served:   Patients, parents, teachers, allergists,
     primary care physicians, nurses, respiratory therapists,
     auxiliary health personnel.
     
     The Organization:    Over 50 million Americans suffer from
     asthma and allergies, which are serious, costly, and may
     be life-threatening.  The mission of the Asthma and
     Allergy Foundation of America (AAFA) is twofold:  (1)
     support research for improved treatments and, ultimately,
     a cure for asthma and allergic diseases, and (2) promote
     patient and public awareness of those diseases and how to
     control them.
     
     Information Services:    AAFA sponsors a variety of
     research and educational programs in support of these
     goals.
     
      AAFA funds postgraduate study of the cause of asthma and
     allergies, including the annual Developing Investigator
     Award.
     
     AAFA sponsors a variety of patient-family education
     courses and conferences, publications, and audiovisual
     aids.  Asthma Care Training for Kids (ACT), a
     self-management education course for children 7 to 11 and
     their parents, is offered nationwide.  Pamphlets are
     available on allergy triggers and treatments and adult and
     childhood asthma management.  AAFA publishes monthly
     patient newsletters and distributes videos, books, and
     self-help materials at discounted prices.  Individual
     membership is $25 and entitles the member to additional
     discounts and an annual subscription to the newsletters.
     
     AAFA national office offers a toll-free telephone
     information line and responds to mail inquiries for
     general advice and resource and physician referrals. 
     Health fairs, newsletters, community forums, and outreach
     programs are educational activities of the 10 chapters and
     11 affiliate support groups of AAFA.
     
     AAFA works with government leaders and the media to inform
     the public of the needs of asthma and allergy patients and
     to promote policies to insure better health choices and an
     allergy-free environment for everyone.
     
     
     AT&T National Special Needs Center
2001 Route 46 
Suite 310
Parsippany, NJ  07054
(800) 233-1222 (Voice)
(800) 833-3232 (TDD)
     
     Disabilities Served:   Hearing, speech, vision, and motion
     impairments.
     
     Users Served:   Consumers, health professionals,
     educators, and businesses.
     
     The Organization:   Formed in 1984, AT&T's National
     Special Needs Center has specially trained customer
     representatives who can recommend appropriate solutions to
     many communications needs.  These range from specialized
     equipment such a TDD or artificial larynx to a
     speakerphone or cordless telephone for those with less
     severe hearing impairment or mobility limitations. 
     Portable amplifiers, signaling devices, television
     decoders, and large button phones are examples of other
     products available.
     
     Service representatives also provide assistance with AT&T
     long-distance offerings ranging from billing inquiries to
     information about calling cards, long-distance gift
     certificates, and long-distance discounts for certified
     TDD users.
     
     AT&T also runs a special Operator Services for the Deaf
     center in Washington, DC to provide TDD assistance in
     making AT&T card calls, third-number billed calls, collect
     calls, person-to-person calls, or calls from hotels. 
     These operators can be reached 24-hours-a-day,
     seven-days-a-week at 1-800-855-1155.
     
     AT&T also has contracts with 10 States (as of March 1991)
     to provide Dual Party Relay Service for TDD users.
     
     
     Autism Society of America (ASA)
8601 Georgia Avenue 
Suite 503
Silver Spring, MD  20910
(301) 565-0433 
     
     Disabilities Served:  Autism.
     
     Users Served:  Parents, teachers, professionals.
     
     The Organization:  The Autism Society of America (ASA) is
     a charitable organization with the mission of providing as
     much information as possible about autism and about the
     various options, approaches, methods, and systems
     available to parents of autistic children, family members,
     and those professionals who work with them.  ASA also
     advocates for the rights and needs of autistic individuals
     and their families.  Members of ASA are affiliated with
     160 local chapters in almost every State.  The ASA
     national office receives written requests for specific
     information and referrals, which are answered by referral
     to appropriate ASA board members, ASA committee chairs,
     and our professional advisory board.  Requests must be
     limited to brief descriptions of problems or information
     desired.
     
     Information Services:  In addition, ASA sponsors an annual
     national conference and publishes a quarterly membership
     newsletter, The Advocate.  Membership information and an
     application are enclosed.  Also enclosed is a list of
     publications available through a mail-order bookstore
     operated by the Michigan Society for Autistic Citizens
     (ASA affiliate).
     
     
Barrier Free Environments (BFE)
P.O. Box 30634
Water Garden
Highway 70 West
Raleigh, NC  27622
(919) 782-7823 (Voice/TDD)
      
     Disabilities Served:  All disabilities.
     
     Users Served:  Disabled persons, architects, builders,
     manufacturers, service providers.
     
     The Organization:  Barrier Free Environments (BFE) is a
     design firm specializing exclusively in the design of
     products and buildings to be used by elderly and  disabled
     people.  Product designers, architects, interior
     designers, and housing designers in the organization
     practice "universal design," BFE's term for designing and
     consulting services to individuals, families,
     corporations, small business, and institutions on the
     following:  home and building modifications for
     accessibility; design or redesign of consumer products and
     equipment for use by disabled and  elderly people;
     appropriate selection of products and equipment for use by
     disabled and elderly people; market research, advertising
     literature design, content and media placement; training
     programs and seminars on access design, home
     modifications, products, and equipment for accessibility;
     and training assistance on issues relating to design for
     disabled and elderly people.  
     
     Information Services:  BFE has available publications on
     accessible housing design, accessible arts programming,
     barrier-free meetings, accessible designs, and product
     information.  In addition, BFE offers onsite technical
     advice or design services on any aspect of making
     buildings and products to be used by people who are
     disabled and people who are elderly without increasing
     costs.  Charges for services and products are available
     and negotiable.
     
     
     Better Hearing Institute (BHI)
5021B Backlick Road
Annandale, VA  22003
(703) 642-0580
(800) EAR-WELL
     
     Disabilities Served:   Hearing loss and deafness.
     
     Users Served:   Americans with hearing problems, providers
     of medical help (ear doctors, audiologists, hearing
     instrument suppliers, etc.), and broadcast and print media
     that provide information to consumers.
     
     The Organization:   Better Hearing Institute (BHI) is a
     nonprofit educational organization that implements
     national public information programs on hearing loss and
     available medical, surgical, hearing aid, and
     rehabilitation assistance for millions of American's with
     uncorrected hearing problems.  Its award-winning series of
     television, radio, and print media public service messages
     include many celebrities who overcame hearing loss.
     
     Information Services:   BHI maintains a toll-free "Hearing
     HelpLine" telephone service that provides information on
     hearing loss and hearing help to callers from anywhere in
     the United States.  The institute also publishes a
     newsletter and brochures about specific types of hearing
     problems and available help; single complimentary copies
     are available on request by calling 1-800-EAR-WELL or
     writing BHI at P.O. Box 1840, Washington, DC  20013.
     
     
     Blind Children's Center (BCC)
4120 Marathon Street
P.O. Box 29159
Los Angeles, CA  90029
(213) 664-2153
(800) 222-3566 (Outside California)
(800) 222-3567 (California Only)
     
     Disabilities Served:  Visually impaired (birth through 5
     years).
     
     Users Served:  Disabled children, parents, education,
     health care professionals.
     
     The Organization:  The Blind Children's Center (BCC)
     offers a diversified program of educational and support
     services to meet the special needs of blind and partially
     sighted children (aged birth through 5 years), their
     parents, and siblings.  Services include Infant
     Stimulation Program,  Educational Preschool Program,
     Family Support Services, Interdisciplinary Assessment
     Service, Toll-free National Phone Line, Correspondence
     Program, and Publication and Research Program.
     
     Information Services:  The center serves as a national
     information/referral service for professionals and parents
     of children who are blind or visually impaired.  The BCC
     has published and distributes several booklets on topics
     of particular importance to parents/professionals working
     with visually impaired infants and preschoolers. 
     Available are Heart to Heart, Learning to Play, Talk to
     Me, Talk to Me II, Move with Me, and Dancing Cheek to
     Cheek:  Nurturing Beginning Play and Language.
     
          Blind Children's Fund
230 Central Street
Auburndale, MA  02166 
(617) 332-4014

     Disabilities Served:   Visual handicaps of preschool
     children.
     
     Users Served:    Disabled children and their families,
     teachers, students.
     
     The Organization:    The Blind Children's Fund, which was
     established in 1978, is a clearinghouse and information
     center for teachers, parents, and others concerned with
     the early development and education of visually
     handicapped preschool children and with the education of
     their families.  As part of its efforts to increase
     worldwide awareness of the need for early services for
     preschool visually impaired children, the institute
     sponsored, with the Israeli Institute for Rehabilitation
     of the Disabled, the International Symposium on Visually
     Handicapped Infants and Young Children:  Birth to 7, in
     Tel Aviv in June 1981.  The Second International Symposium
     was held May 1983 in Aruba (South America).  A Third
     International Symposium was held August 8, 1988, in
     Scotland under the auspices of ICEUH. 
     
     Information  Services:    The institute makes available a
     variety of materials for parents and teachers.  The parent
     packet includes bibliographies of books for children and
     parents and ideas for early home education.  Teachers may
     obtain references to books on curriculum development and
     sources of information on visual impairments.  The
     institute also provides referrals to teachers and parents
     on services, when available, and on professionals able to
     give assistance.  In addition, students interested in the
     field of early intervention with visually handicapped
     children receive information on appropriate training
     centers.  A newsletter and publications are available for
     a charge. 
     
     
     Blinded Veterans Association (BVA)
477 H Street, NW
Washington, DC 20001 
(202) 371-8880
(800) 669-7079
     
     Disabilities Served:  Blindness.
     
     Users Served:  Blinded veterans, their spouses, and
     children; health care professionals.
     
     The Organization:  The Blinded Veterans Association (BVA)
     is a membership organization for veterans blinded during
     or after their military service.  Advocacy, assistance and
     fellowship are the goals of the organization.  Direct
     services are based on the one-to-one principle that a
     blind veteran can most effectively motivate another blind
     veteran.  BVA's Field Service Program is carried out by
     field representatives, themselves blind, who visit blind
     veterans who have not been rehabilitated.  They recommend
     rehabilitation centers, offer counseling in the areas of
     compensation, pensions, schooling, and the use of
     prosthetic aids and equipment, and counsel the veteran's
     family.  The Field Service Representatives try to convince
     employers, through public service advertising and direct
     contact, to give job opportunities to the blind veteran. 
     BVA representatives assist the blind veteran by contacting
     prospective employers and helping him to prepare resume
     and job applications.  They also offer counseling in job
     discrimination cases.  BVA has 41 State groups, whose
     volunteer members help to provide the organization's
     direct service.
     
     Information Services:  BVA publishes a bimonthly
     newsletter, the BVA BULLETIN, which is sent free to all
     blinded veterans for whom current addresses are available,
     whether or not they are BVA members.  It is also sent to
     many professionals in the field of blindness.  A tape
     cassette version of the BULLETIN is sent to all members
     and associate members.  The newsletter contains news of
     association activities, legislative developments, human
     interest stories about blind veterans, and information
     about new aids and appliances.  A brochure describing the
     BVA and its principal programs is available at no cost.
     
     
     Boy Scouts of America (BSA)
Scouting for the Handicapped Service
1325 Walnut Hill Lane
Irving, TX  75038
(214) 580-2000
     
     Disabilities Served:   All disabilities.
     
     Users Served:   Disabled persons, parents, teachers,
     schools, service clubs and community organizations.
     
     The Organization:  In 1970 the Boy Scouts of America (BSA)
     established a handicapped service in its Relationships
     Division.  A National Advisory Committee on Scouting for
     the Handicapped (NACOSH) was formed in 1974.  In addition,
     more than 150 of the 413 local Scouting councils have
     established their own advisory committees on Scouting for
     the Handicapped.  Scouting for the Handicapped is designed
     to include young handicapped people in regular units or in
     groups at schools and homes for handicapped youth, when
     inclusion in ongoing scouting activities is not possible. 
     National voluntary organizations with expertise in
     specific handicapping conditions assist Scouting for the
     Handicapped in devising special programs and materials.
     
     Information Services:   Audiovisual and print publications
     for scout leaders contain specific activities for disabled
     scouts and ways to involve disabled persons in regular
     scouting activities.  Scouting manuals are available on
     persons who are mentally retarded, physically handicapped,
     deaf, emotionally disturbed, or visually impaired.  For
     visually impaired scouts, a list of braille scouting books
     and their suppliers is available from the service.  A
     general bibliography of reading for mentally retarded boys
     is also available.  In addition, curriculum materials have
     been developed to supplement reading, writing, and math
     skills taught by classroom teachers.  Scouting and the
     Learning Disabled - A Manual for Adult Leaders is also
     available for Scout Leaders.  Some information is
     available in Spanish.  Most information is provided free
     of charge, while for some there is a fee.
     
     
     Breaking New Ground Resource Center
Purdue University
1146 Agricultural Engineering Building
West Lafayette, IN 47907
(317) 494-5088
     
     Disabilities Served:   Physical disabilities.
     
     Users Served:  Disabled farmers and ranchers, their
     families, professionals, rural educators.
     
     The Organization:   The Breaking New Ground project has
     been established to assist agricultural producers who are
     physically disabled and wish to remain active in their
     operations.  The project conducts research on assistive
     technology that is appropriate for agricultural workplaces
     including hand controls, manlifts, and other modifications
     to agricultural equipment.  Ever aware of the potential
     for accidents, the project is also involved in the
     evaluation of existing lifts, controls, and other modified
     farm equipment and buildings to determine effectiveness
     and insure safety.  Other activities include development
     of a comprehensive resource center and assembly of a
     product information file.  The project provides assistance
     with designing, organizing, and conducting State and
     regional workshops on rural assistive technology for
     producers and rehabilitation professionals.
     
     Information Services:  Breaking New Ground, a quarterly
     newsletter, offers ideas on agricultural equipment
     modification for producers with physical handicaps and
     contains articles on disabled farmers who are continuing
     farming.  Other publications include a bibliography
     concerning rural rehabilitation for agricultural producers
     and a manual on equipment, tools, machinery, and buildings
     adapted for ranchers and farmers with physical
     disabilities.  Audiovisual programs on rehabilitation
     technology for agricultural producers are available. 
     Charges for materials and services vary.
     
     The project provides information and referral services in
     response to specific requests from producers.  Technical
     assistance on agricultural worksite modifications is also
     offered.
     
     
     BRS Information Technologies
A Division of Maxwell Online, Inc.
800 Westpark Drive
McLean, VA  22102
(703) 442-0900
(800) 955-0906
     
     BRS Search Service delivers a complete library of
     approximately 150 data bases covering virtually every
     major discipline:  health, medicine, pharmacology, the
     biosciences, science and technology, education, business
     and finance, the social sciences, and the humanities. 
     Data bases include current and historical information from
     journal articles, books, dissertations, and government
     reports.  Many data bases serve as comprehensive indexes
     to available literature while others include abstracts and
     complete text.
     
     BRS Search Service offers the flexibility of several
     access plans.  Subscribers who have used online services
     before or know how much they expect to spend can enjoy
     substantial discounts with an Annual Commitment Plan.  For
     those with little online experience or who cannot predict
     how much they will spend, the Open Access Plan provides
     the freedom to "pay as you go."
     
     Complete documentation is available on the use of the
     Search Service as is extensive documentation on each data
     base.  In addition, BRS trains subscribers in major cities
     throughout the United States for all levels and types of
     searches and has a professional customer service staff
     available via toll-free telephone.
     
     
Bulimia Anorexia Self Help/Behavior Adaptation
 Support and Healing (BASH)
P.O. Box 39903
St. Louis, MO  63139
(800) 762-3334
(800) 227-4785
     
     Disabilities Served:   Eating disorders, anorexia nervosa,
     bulimia, overweight, mood disorders, depression, mood
     swings, panic/anxiety, chemical imbalance, conduct
     disorders.
     
     Users Served:   Individuals with eating or mood disorders,
     family members, schools, general public.
     
     The Organization:   Bulimia Anorexia Self Help/Behavior
     Adaptation Support and Healing (BASH) is an organization
     that since its beginning in April 1981 has offered
     education and support, initially to those struggling with
     an eating disorder and their families.  In 1985 BASH
     expanded to include mood disorders, which often accompany
     eating disorders.  Today those struggling with the many
     issues involved with eating and/or mood disorders can find
     help through BASH.  BASH also works to make information
     available to the general public to heighten awareness and
     understanding to these illnesses.
     
     Information Services:   The organization offers BASH
     magazine, a monthly journal of eating and mood disorders;
     printed information (individual pieces as well as
     brochures and books); 30-minute docudrama Fight for Life
     (on 1/2-inch videotape); and phone assessment on request. 
     
     
     The Candlelighters Childhood Cancer Foundation
(CCCF)
1312 18th Street, NW
Suite 200
Washington, DC  20036
(202) 659-5136
(800) 366-2223
      
     Disabilities Served:  Childhood/adolescent cancer.
     
     Users Served:  Parents, teachers, medical and social
     service professionals who treat children/adolescents with
     cancer, long-term survivors, siblings, childhood cancer
     patients.
     
     The Organization:  The Candlelighters Childhood Cancer
     Foundation (CCCF) is an international organization of
     groups of parents who have or have had children with
     cancer.  Believing that "it is better to light one candle
     than to curse the darkness," the organization works
     through its more than 400 chapters throughout the world to
     provide a variety of support services to families with a
     child cancer patient, including crisis lines, a
     parent-to-parent buddy system, and self-help groups. 
     Individual chapters offer other services, which vary from
     group to group.  The foundation helps new chapters form,
     links existing chapters, and provides information. 
     Membership in Candlelighters is open to anyone interested
     in the control and cure of childhood cancer and in meeting
     the needs of families of children who have cancer,
     including professionals in medical and social service
     fields.
     
     The metropolitan Washington, DC chapter is a registered
     lobbyist.  
     
     Information Services:  CCCF offers referrals to local
     groups in 49 States; referrals to other resources; a
     quarterly newsletter for adults and a youth newsletter
     (both free); a bibliography and resources guide on all
     aspects of the disease (includes section on handicaps); an
     information clearinghouse, where searches of literature
     and electronic data bases are performed; an off-treatment
     survivors network for teens and older; and other services. 
     CCCF also sponsors conferences and publishes proceedings. 
     CCCF is a nonprofit, tax-exempt organization.  It receives
     a grant from the American Cancer Society, Inc.
     
     
     The Caption Center
125 Western Avenue
Boston, MA  02134
(617) 492-9225 (Voice/TDD)
     
     Disabilities Served:   Deaf and hard-of-hearing citizens.
     
     Users Served:   Deaf and hard-of-hearing consumers,
     teachers, children and adult students learning to read,
     students learning English as a second language, older
     citizens, and organizations interested in captioning
     programs. 
     
     The Organization:   The Caption Center, a nonprofit
     service of the WGBH Educational Foundation, pioneered
     captions and first provided access to television for deaf
     and hard-of-hearing people in the early seventies.  Today,
     The Caption Center provides captions for every segment of
     the entertainment industry including network, PBS, and
     cable programming, as well as home videos and music
     videos.  The Caption Center also enjoys a long-held
     reputation of technical excellence and expertise in
     innovative software programs such as CC Jr., a software
     package that allows other captioning agencies, schools,
     and social service agencies to caption their own programs. 
     Recent legislation that The Caption Center helped draft
     will bring caption technology into nearly every home. 
     With a built-in decoder chip mandated in all televisions
     13" or larger by July of 1993, there is great potential
     for the use of captioning as a learning tool to improve
     literacy and aid those struggling to learn English as a
     second language.
     
     Information Services:  The Caption Center publishes
     various informational brochures on topics as varied as how
     to request more captioned television and home videos,
     guidance about getting local news captioned in your town,
     different captioning methods for meetings, and
     problem-solving tips to make the reception of captions
     trouble-free.  The Caption Center also publishes a
     bimonthly newsletter, Caption Center News providing
     information about captioned shows, important events, and
     trends in the caption industry.
     
     
     Captioned Films/Video for the Deaf Program
Modern Talking Picture Service, Inc.
5000 Park Street North
St. Petersburg, FL  33709
(800) 237-6213 (Voice/TDD)
(813) 541-7571 (Voice/TDD)
      
     Disabilities Served:  Deafness and hearing impairment. 
     
     Users Served:  Deaf and hearing-impaired persons and
     persons involved in the education of deaf and
     hearing-impaired persons.
     
     The Organization:  The Captioned Films/Video for the Deaf
     Program provides captioned educational and entertainment
     films to deaf and hearing-impaired persons on a free loan
     basis.  The program is operated by Modern Talking Picture
     Service, Inc., under a contract with the Office of Special
     Education Programs, U.S. Department of Education.  The
     educational captioned films collection numbers over 1,600
     titles and covers a wide variety of topics, e.g., science,
     math, and computers.  These films are used at residential
     and day schools for deaf and hearing-impaired students and
     in mainstreamed programs at all educational levels.  The
     entertainment collection numbers about 1,800 titles and
     ranges from adult education and short subjects to
     feature-length films.  These films are used throughout the
     deaf and hearing-impaired communities.
     
     Information Services:  The services of the Captioned
     Films/Video for the Deaf Program are available only to
     approved, authorized users.  Persons wishing to borrow
     films must apply to the program to open an account. 
     Anyone involved in the education of deaf/hearing-impaired
     persons is eligible for an account to borrow educational
     films.  Groups of three or more deaf individuals are
     eligible for an account to borrow entertainment films. 
     Once an application is approved, the account holder
     receives information and catalogs and other distribution
     information.  The program has 58 distribution depositories
     around the country.
     
     There is no charge to account holders for the processing
     of applications or for catalogs.  The only cost involved
     in the service is the cost of return postage for films
     that have been borrowed.  Postage for return of videos is
     prepaid.
     
     
     Care for Life (CFL)
P.O. Box 14612
Chicago, IL  60614
(312) 880-4630
(312) 883-1018
     
     Disabilities Served:   Disabilities requiring prolonged
     use of life-sustaining technologies.
     
     Users Served:   Persons with disabilities that include
     long-term respiratory insufficiency requiring mechanical
     support.
     
     The Organization:   Care for Life (CFL) was founded in
     1980 by concerned professionals and users of
     life-sustaining technologies to increase awareness about
     the issues facing persons with long-term requirements for
     medical technological support.  The organization serves as
     a national resource and international networking
     organization to promote choice of options for persons who
     want to live in the community despite their need for
     medical technology.   The focus of activities are
     documentation, education, and demonstration.  The
     organization works in collaboration with others in an
     effort to improve the caring possibilities for
     life-supported individuals and their families.
     
     Information Services:   CFL monitors the international,
     national, and regional experiences with community-based
     care for life-supported individuals.  It conducts and
     disseminates information to all interested, in forms
     useful for their purpose.  It provides access to resources
     and networks according to need.
     
     
     Carroll Center for the Blind
770 Centre Street
Newton, MA  02158-2597
(617) 969-6200
     
     Disabilities Served:  Blindness and visual impairments.
     
     Users Served:  Disabled persons, professionals.
     
     The Organization:  The Carroll Center for the Blind is a
     residential and commuter rehabilitation center for
     visually disabled persons.  The center offers instruction
     in mobility, handwriting, braille, grooming and other
     activities of daily living, woodworking, and home
     mechanics and operates a low vision clinic where aids are
     prescribed and clients are instructed in their usage. 
     Orientation and mobility specialists offer instruction in
     mobility to visually handicapped persons in local
     communities throughout Massachusetts.  An Outdoor
     Enrichment Program expands recreational opportunities. 
     New programs offered include CABLE, computer access
     training for adults, and BYTE, a summer computer camp for
     teenagers.
     
     Information Services:  The center has developed some free
     materials, which it distributes nationally on request. 
     Materials include general information for newly blinded
     persons, elderly blind and blind children; Sighted Guide,
     a manual on ways the sighted person can help blind people;
     and tips for restaurant employees on serving blind people.
     
     
     Center for Rehabilitation Technology (CRT)
Georgia Institute of Technology
490 Tenth Street, NE
Atlanta, GA  30332
(404) 894-4960
(800) 726-9119
     
     Disabilities Served:   All disabilities.
     
     Users Served:   Consumers and professionals in all areas.
     
     The Organization:   Georgia Tech's Center for
     Rehabilitation Technology (CRT) is a nonprofit research
     and development center with a focus on providing
     technology-related services to persons with disabilities. 
     Services are divided into several areas, including
     Rehabilitation Engineering and Product Development,
     Computer Applications, Information Resources, Instruction,
     and Service Provision.  State funding provides that
     Georgia residents receive priority consideration, though
     out-of-state services can be arranged.  CRT's service
     providers include professionals in architecture,
     biomechanical engineering, computers, counseling,
     electrical engineering, industrial design, machine work,
     mechanical engineering, occupational therapy, and robotics
     engineering, with the ability to pull in other Georgia
     Tech engineers and scientists as needed for individual
     projects.
     
     Information Services:   CRT's TechKnowledge service is a
     clearinghouse for information pertaining to disability and
     technology.  In addition to answering individual requests,
     CRT distributes packets of material in varying areas of
     current interest.  A monthly newsletter reports on
     projects, research, and activities of the center and
     related programs in Georgia.  The newsletter is available
     at no charge to interested parties.
     
     
     Center for Residential and Community Services 
University of Minnesota 
207 Pattee Hall
150 Pillsbury Drive, SE
Minneapolis, MN  55455
(612) 624-6328
     
     Disabilities Served:   Services for persons with
     developmental disabilities.
     
     Users Served:   Professionals, Federal and State agency
     personnel.
     
     The Organization:   The Center for Residential and
     Community Services is a survey and policy research center
     located in the Institute on Community Integration, of the
     University of Minnesota.  Since 1976 the center has
     collected and disseminated national data on residential
     and related services for persons with developmental
     disabilities.  The center has conducted many diverse
     studies, ranging from interview studies of large samples
     of individuals in residential settings to annual surveys
     of State agencies to maintain basic, up-to-date statistics
     on trends in the utilization of residential services in
     the United States.  Frequently the center conducts policy
     surveys of State, local and private agencies regarding
     their utilization of and experience with specific Federal
     programs.  In addition, the center has conducted a number
     of secondary analyses of data gathered in major Federal
     statistical programs with specific attention to sample
     members with developmental disabilities.  The center
     operates primarily with funding from the U.S. Department
     of Health and Human Services, especially the
     Administration on Developmental Disabilities, the Health
     Care Financing Administration, and the Office of the
     Assistant Secretary for Planning and Evaluation.  Project
     funding has also been obtained from the Office of Special
     Education Programs and the National Institute on
     Disability and Rehabilitation Research, both of the U.S.
     Department of Education.
     
     Information Services:   Dissemination of information is
     primarily done through project reports, professional
     publications and direct response to requests for
     information.  A complete listing of publications and
     prices is available upon request.
     
     
Center for Special Education Technology
The Council for Exceptional Children
1920 Association Drive
Reston, VA 22091
(800) 873-8255
(703) 620-3660
SpecialNET ID:  TECH.CENTER
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Education agencies, associations,
     universities, researchers, developers and trainers.
     
     The Organization:  The Center for Special Education
     Technology at The Council for Exceptional Children is a
     national information center funded by the U.S. Department
     of Education, Office of Special Education Programs.  The
     Center's goals are to influence the quality and
     availability of the technology used in special education,
     and to promote the appropriate use of technology in the
     education of children with disabilities.  To meet these
     goals, the Center serves as a proactive information
     resource that collects, synthesizes, and distributes the
     latest information on trends, resources, practices, and
     research efforts in the technology, disabilities, and
     education fields.  The Center also serves to facilitate
     the exchange of information between the various key
     audiences in these fields, such as education agencies,
     associations, universities, researchers, developers and
     software publishers.
     
     Information Services:  The Center's general information
     services emphasize trends and practices in the use of
     technology in special education as well as the growing
     number of resources available to technology users. 
     Current information activities include:
     
         Tech Use Guides, which are two- to six- page
     summaries of        important areas in the use of
     technology in special education.
     
         Resource Inventories, which list technology resources
     on a           State or national basis.
     
         The Marketplace, which is geared toward publishers
     and            provides information on vital marketing
     issues affecting              special education technology
     products.
     
         A toll-free number (800) 873-8255, which is answered
     by an          education specialist from 8:30 a.m. - 4:30
     p.m., Eastern time,           and by a message machine at
     all other times including               weekends.
     
     Because the field of special education technology is a
     broad and rapidly changing one, the Center has chosen
     specific areas on which to focus some of its efforts.  By
     narrowing the focus, the Center can provide in-depth
     coverage of these "themes."  Current theme activities
     include assistive technology, funding of technology
     products and services, technology training, technology
     integration, and technology for moderately handicapped
     students.
     
     Activities vary within each theme, but all activities are
     geared to filling information gaps and linking the latest
     research, practice, and products with appropriate
     audiences.
     
     
     Center on Human Policy
200 Huntington Hall
Syracuse, NY  13244
(315) 443-3851
     
     Disabilities Served:   All disabilities, with an emphasis
     on developmental disabilities.
     
     Users Served:   Parents, people with disabilities, service
     providers, policymakers, state and national organizations
     serving people with disabilities.
     
     The Organization:   Since its establishment in 1971, the
     Center on Human Policy has been involved in research,
     consultation and training, the preparation and
     dissemination of information, and advocacy designed to
     promote the full participation of people with disabilities
     in society.  The center's major externally funded
     activities include qualitative research studies of people
     with developmental disabilities and their families in the
     community; policy and organizational research, training,
     technical assistance and consultation in community
     integration for people with developmental disabilities;
     and information dissemination.
     
     Information Services:   Over the years, center staff
     members and associates have written hundreds of articles
     and papers, dozens of book chapters, and many books
     emphasizing school and community integration, advocacy,
     and social relationships.  The center maintains a current
     listing of publications by staff members and associates,
     which includes books, chapters, and articles published
     through the Research and Training Center on Community
     Integration.  The center makes available a wide variety of
     informational resource packages, site visit reports,
     policy bulletins, training/media packages, papers and
     articles dealing with specific issues, evaluation studies,
     and advocacy reports.
     
     The Human Policy Press, another dissemination outlet, is
     an independent press started by the Center on Human Policy
     in 1974 to promote positive attitudes toward people with
     disabilities.  The primary goal of the press is to improve
     society's literacy about disabilities by demonstrating
     that the greatest obstacles faced by people with
     disabilities are societally imposed.  The press
     distributes posters, slides, videotapes, and books
     nationally and internationally.
     
     Center staff and associates are available to respond to
     individual requests for information and for consultation
     on community integration and related topics.  These
     requests come from parents, people with disabilities,
     professionals, and policymakers.
     
     
     Charcot-Marie-Tooth International (CMT)
1 Springbank Drive
St. Catharines, Ontario, Canada  L2S 2K1
(416) 687-3630
     
     Disabilities Served:   Charcot-Marie-Tooth (CMT) disease,
     also known as hereditary motor and sensory neuropathy, and
     peroneal muscular atrophy.
     
     Users Served:   Disabled persons and their families,
     health care professionals, researchers.
     
     The Organization:   Charcot-Marie-Tooth Disease/Peroneal
     Muscular Atrophy International Association, Inc. (CMT
     International) was founded for the purpose of helping
     those with Charcot-Marie-Tooth disease better cope on a
     day-to-day basis with this inherited, progressively
     debilitating, neuromuscular disorder.  CMT International
     provides information about the disease, usually in the
     form of a bimonthly newsletter.  Special pamphlets are
     also made up from time to time, and a CMT International
     brochure is also available.  When possible, funds are made
     available for research on Charcot-Marie-Tooth disease, and
     primary research is often done through questionnaires in
     the CMT newsletter.  The questionnaires go out to more
     than 2,000 members and act as a base for further research
     development, but priority is the person with the disease. 
     Support groups are scattered throughout North America,
     England, New Zealand, and France.  CMT International's
     head office maintains a list of advisors from which
     referrals are given to people desperate to find
     professionals interested in and knowledgeable about CMT. 
     A yearly Sophie Abarbanel CMT Educational Assistance Award
     of $1,000 (Canadian) is awarded to a CMT person in
     financial need who wishes to further his or her secondary
     education.  A biennial convention is held, usually in
     Canada, but in 1992 it will be held in England. 
     Miniconferences organized by the head office are held
     periodically throughout the United States and Canada.
     
     Information Services:   CMT International publishes an
     information brochure that goes out to professional offices
     and support groups as well as the CMT Newsletter, a six
     times yearly publication for persons with CMT, their
     families, and professionals.  Pamphlets and booklets
     available are: 
     (1) From the Knees Down, a 36-page booklet listing sources
     to find special shoes, slippers, orthotics, custom
     shoemakers, etc., for those who have problems finding
     proper foot coverings; (2) Charcot-Marie-Tooth Disease as
     a Disabling Disorder, a reprint of a journal article by
     CMT International Executive Director, Linda Crabtree, from
     the Canadian Family Physician; 
     (3) Bracing Available for the CMT Foot and Ankle, a
     12-page compilation of past articles from the CMT
     Newsletter on orthotics for people with CMT; (4) The CMT
     Traveller, a pamphlet listing travel aid sources for
     people with disabling disorders.  The organization also
     has a yearly index for the newsletter as well as all the
     CMT Newsletter back issues (more than 30).  Copies of
     journal articles referring to Charcot-Marie-Tooth disease
     are also offered.
     
     The newsletter provides up-to-date information about
     possible treatment, possible medications, genetic and
     medical research.  It also gives experimental reports of
     how members of CMT International cope from day to day with
     their disability.  The newsletter also stresses new
     orthotic implementation for legs, feet, arms, and hands as
     well as work that is being done on CMT breathing and
     anesthetics.  Questions from people with CMT are answered
     by doctors serving as advisors with CMT International, and
     there is also a column for teenagers with
     Charcot-Marie-Tooth disease.  The executive director of
     CMT International has CMT and is also a rehabilitation
     counselor.  She is available by phone, Monday through
     Thursday from 10:00 a.m. till 4:00 p.m.
     
     
     Child Welfare League of America (CWLA)
440 First Street, NW
Suite 310
Washington, DC 20001
(202) 638-2952
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Child welfare professionals.
     
     The Organization:  The Child Welfare League of America
     (CWLA) is a federation of more than 630 public and private
     social service agencies in Canada and the United States. 
     The member agencies provide a variety of child welfare
     services to children and their families.  The agencies'
     services include, but are not limited to, foster care,
     counseling, day care, adoption, and services for unmarried
     parents.  The league offers consultation to agencies on
     day-to-day and long-range problems in policy, program, and
     practice.  It establishes standards, conducts research,
     holds research workshops and training conferences for
     professionals, and acts as an advocate for child welfare
     issues.
     
     Information Services:  The league's Informational Resource
     Service provides information about child welfare services
     and related subjects.
     
     A publication catalog includes titles of more than 120
     books on a variety of child welfare topics.  Final reports
     on league studies are also available.  CWLA publishes a
     professional journal, Child Welfare, as well as
     newsletters covering administrative, legislative, and
     parenting topics.  
     Fees are charged for all publications.
     
     The Children's Campaign, founded in 1985, is made up of
     45,000 individuals who advocate for children.
     
Children's Brain Diseases Foundation
350 Parnassus Avenue 
Suite 900
San Francisco, CA  94117
(415) 566-5402
     
     Disabilities Served:   Neuronal Ceroid Lipofuscinoses
     (Batten Disease).
     
     The Organization:   The Children's Brain Diseases
     Foundation is a nonprofit organization.  The foundation
     provides, upon evaluation of the proposal, funds to
     investigators to be used for direct research on Batten
     disease, a neurological, genetic, and fatal disease
     affecting children.  The foundation also assists in
     sponsoring conferences throughout the world having to do
     with Batten disease.
     
     Information Services:   Although the foundation does not
     have a regular publication, it does provide parents with
     information regarding Batten disease.
     
     
Children's Hospice International (CHI)
700 Princess Street 
Suite 3
Alexandria, VA  22314
(703) 684-0330
(800) 2-4-CHILD
     
     Disabilities Served:   Children with life-threatening and
     chronic conditions.
     
     Users Served:   Provides referrals and information to
     children with life-threatening conditions and their
     families.  Provides education and training and technical
     assistance (conferences, etc.) to health care
     professionals and others involved in the provision of care
     to children with life-threatening conditions and their
     families.
     
     The Organization:    Children's Hospice International
     (CHI) was founded in 1983 as a nonprofit organization to
     promote hospice support through pediatric care facilities;
     encourage the inclusion of children in existing and
     developing hospices and home care programs; and include
     the hospice  perspectives in all areas of pediatric care,
     education, and the public arena.
     
     Information Services:   CHI provides a support system and
     resource bank sharing expertise and information with
     health care professionals, families, and the network of
     organizations within the communities that offer hospice
     care to children with life-threatening conditions. 
     Information includes referrals and publications.
     
     
Choice Magazine Listening (CML)
85 Channel Drive
P.O. Box 10
Port Washington, NY  11050
(516) 883-8280
     
     Disabilities Served:   Visually impaired, disabled persons
     unable to read regular print.
     
     Users Served:   Anyone unable to read regular print
     because of visual or physical handicap.
     
     The Organization:   Choice Magazine Listening (CML), which
     has been in existence for over 25 years, provides a free,
     8-hour bimonthly recorded anthology on 4-track cassettes
     containing unabridged articles, fiction, and poetry
     selected from over 100 leading print magazines.  CML is
     the only project of the nonprofit Lucerna Fund.
     
     Information Services:  CML provides a free 8-hour audio
     anthology bimonthly to eligible persons, as described
     above.  CML provides on request free descriptive brochures
     and full CML information packets containing details on how
     to obtain the necessary 4-track cassette player from the
     Library of Congress Regional Library for the Blind and
     Physically Handicapped serving the geographical area in
     which the potential subscriber resides.
     
     
     Clearinghouse on Child Abuse and Neglect
  Information 
P.O. Box 1182
Washington, DC  20013
(703) 821-2086
     
     Disabilities Served:   Children who have been abused or
     neglected.
     
     Users Served:  Professionals in the field of child
     maltreatment and the general public.
     
     The Organization:   The Clearinghouse on Child Abuse and
     Neglect functions as the information component for the
     National Center on Child Abuse and Neglect (NCCAN).  Its
     goal is to provide information on child maltreatment
     issues to professionals and the general public.
     
     Information Services:   The Clearinghouse disseminates
     information on all aspects of child abuse and neglect. 
     The Clearinghouse has available statistical reports,
     bibliographies, NCCAN grant information, and public
     awareness materials.  The Clearinghouse also maintains a
     data base of child abuse documents, audiovisual materials,
     national organizations, public awareness materials, and
     program directories.  The Clearinghouse will provide a
     free catalog describing its products and services to
     requesters.
     
     
Clearinghouse on Disability Information 
Office of Special Education and Rehabilitative
Services
U.S. Department of Education
Room 3132 
Switzer Building
Washington, DC  20202
(202) 732-1241 
(202) 732-1723
     
     Disabilities Served:   All handicaps.
     
     Users Served:   All interested persons.
     
     The Organization:  Created by the Rehabilitation Act of
     1973, the Clearinghouse responds to inquiries and
     researches and documents information operations serving
     the handicapped field on the national, State and local
     levels.
     
     Information Services:  The Clearinghouse responds to
     inquiries on a wide range of topics.  Information is
     especially strong in the areas of Federal funding for
     programs serving disabled people, Federal legislation
     affecting the handicapped community, and Federal programs
     benefiting people with handicapping conditions.  The
     Clearinghouse is knowledgeable about who has information
     and refers inquirers to appropriate sources.
     
     The following publications are available free from the
     Clearinghouse:  OSERS News in Print, a newsletter which
     focuses on Federal activities affecting people with
     disabilities and new developments in the information
     field; A Summary of Existing Legislation Affecting Persons
     With Disabilities, a history and description of all
     relevant laws; Educating Students with Learning Problems: 
     A Shared Responsibility, a report by Assistant Secretary
     Madeleine Will describing what an OSERS Task Force
     perceived to be weaknesses in current approaches to the
     education of students with learning problems and
     strategies for correcting these weaknesses; Pocket Guide
     to Federal Help for Individuals With Disabilities, a
     summary of benefits and services available to qualified
     individuals.
     
     
Cleft Palate Foundation
1218 Grandview Avenue
Pittsburgh, PA  15211
(412) 481-1376
(800) 24-CLEFT
      
     Disabilities Served:  Cleft lip/cleft palate and other
     craniofacial anomalies.
     
     Users Served:  Parents and health care professionals.
     
     The Organization:  Cleft Palate Foundation is the
     educational arm of the American Cleft Palate-Craniofacial
     Association.
     
     Information Services:  The foundation provides information
     and referral to individuals with cleft lip and palate or
     other craniofacial anomalies.  Referrals are made to local
     cleft palate/craniofacial teams for treatment and to
     parent support groups.  Free information on various
     aspects of clefting is available.  The foundation
     publishes a newsletter for $5.00/year.  The toll-free
     number for individuals requesting information and referral
     is 
     1-800-24-CLEFT.
     

The Clovernook Center - Opportunities for the Blind
7000 Hamilton Avenue
Cincinnati, OH  45231
(513) 522-3860
     
     Disabilities Served:   Blindness, visual impairments,
     multihandicapped blindness.
     
     Users Served:   Disabled persons, parents, teachers,
     counselors.
     
     The Organization:  The Clovernook Center - Opportunities
     for the Blind provides rehabilitation, residential, and
     employment services for blind and visually handicapped
     persons aged 18 to 55.  The work center provides
     employment in the Clovernook Printing House, where braille
     transcriptions of books, magazines, and other publications
     are produced.  The work center also employs blind men and
     women in the manufacture of file folders under government
     contracts.
     
     Information Services:   Information about the programs of
     the Clovernook Center is provided free to all inquirers. 
     A fee schedule for services and products is available upon
     request from potential clients or referral sources.  A
     list of braille publications produced by the Printing
     House includes information about where to obtain free
     braille subscriptions to magazines such as Better Homes
     and Gardens, Ladies' Home Journal, Seventeen, and a
     variety of other publications.  Braille calendars, writing
     paper, and a cookbook are available at nominal costs.  The
     Clovernook Center publishes a newsletter, The Clovernook
     Perspective, which provides general information about the
     organization, describes its programs of service, and
     functions as an education tool.  It is available in
     braille.  The Printing House publishes TACTIC, a braille
     publication for blind people interested in computer
     technology.
     
     
     Commission on Accreditation of Rehabilitation
  Facilities (CARF)
101 North Wilmot Road
Suite 500
Tucson, AZ  85711
(602) 748-1212
     
     Disabilities Served:   All disabilities.
     
     Users Served:    Medical, vocational and employment,
     developmental disabilities, mental health and alcohol and
     other drug treatment professionals; persons with
     disabilities; parents; teachers.
     
     The Organization:   The Commission on Accreditation of
     Rehabilitation Facilities (CARF) is the recognized
     accreditation authority for organizations serving people
     with physical, developmental, and mental disabilities. 
     The commission has established standards for and accredits
     organizations that provide the following programs: 
     comprehensive inpatient rehabilitation, spinal cord injury
     programs, chronic pain management programs, brain injury
     programs, outpatient medical rehabilitation, work
     hardening programs, infant and early childhood
     developmental programs, vocational evaluation, work
     adjustment, occupational skill training, job placement,
     work services, supported employment, industry-based
     programs, personal and social adjustment services,
     community living programs, respite programs, community
     mental health organizations, psychosocial rehabilitation
     programs, and alcoholism and other drug dependency
     rehabilitation programs.
     
     Information Services:    Basic information about standards
     affecting all aspects of an organization's operation may
     be obtained from CARF's Standards Manual for Organizations
     Serving People with Disabilities.  The Commission
     publishes separate pamphlets and booklets on program
     evaluation for a variety of specific programs.  A list of
     accredited organizations is available upon request.
     
     
Conference of Educational Administrators Serving
  the Deaf (CEASD)
P.O. Box 5545
Tucson, AZ  84703
(602) 628-5261
     
     Disabilities Served:   Deafness, hearing impairments, and
     deaf-blindness.
     
     Users Served:    Educational administrators serving deaf
     persons.
     
     The Organization:  The Conference of Educational
     Administrators Serving the Deaf (CEASD) was founded to
     promote effective management of schools, programs, and
     agencies providing services to deaf people.  Its standing
     committees have developed position papers on topics
     related to the administration of elementary, secondary,
     postsecondary, and residential schools for people who are
     deaf.  Administrative workshops are held throughout the
     year on these topics.  CEASD evaluated and accredits
     elementary and secondary school programs and certifies
     individuals who work in residential settings.
     
     Information Services:  The CEASD selects, reviews, and
     evaluates captioned educational films.  Actual
     distribution of captioned educational films and captioned
     general entertainment films is handled through Modern
     Talking Picture Service.
     
     The Conference and the Convention of American Instructors
     of the Deaf jointly publish the American Annals of the
     Deaf, which includes a variety of articles relevant to
     deaf people and to professionals working with deaf people. 
     Each April issue of the Annals is a Directory of Programs
     and Services for the Deaf in the United States, listing
     local education and rehabilitative services for deaf
     people, including deaf-blind people, in the United States
     and Canada.  CEASD publishes the proceedings of its annual
     conference and copies of its administrative position
     papers.  Members receive a newsletter.  An extensive
     materials list of pamphlets and reprints from the Annals
     is available from the conference.
     
          Congress of Organizations of the Physically
 Handicapped (COPH)
16630 Beverly Avenue
Tinley Park, IL  60477
(708) 532-3566
     
     Disabilities Served:   All physical disabilities.
     
     Users Served:   Organizations of the physically disabled.
     
     The Organization:   The Congress of Organizations of the
     Physically Handicapped (COPH) is an umbrella organization
     for about 50 organizations and associations of the
     physically handicapped.  It serves these organizations by
     coordinating the joint activities of member organizations
     and by representing the legislative objectives of member
     organizations at the national and State levels.  COPH does
     not provide any direct services to handicapped individuals
     nor does it have information on scholarships and other
     concerns.
     
     Information Services:   COPH publishes a newspaper, the
     COPH Bulletin, with information on developments in
     rehabilitation research and on State and local legislation
     affecting physically disabled people.
     
     
     Convention of American Instructors of the Deaf, Inc.
(CAID)
Office of the President
P.O. Box 2025
Austin, TX  78768
(512) 441-2225
     
     Disabilities Served:  Deafness, hearing impairments, and
     deaf-blindness.
     
     Users Served:  Professionals working with deaf persons.
     
     The Organization:  Members of the Convention of American
     Instructors of the Deaf (CAID) include teachers and
     support personnel working in a variety of educational
     settings.  Through biennial conferences and regional
     workshops, CAID promotes the exchange of information among
     professionals.  Topics for workshops range from diagnostic
     tools to sex education to psycholinguistics.  Through its
     membership in the Council of Education of the Deaf, CAID
     helps to formulate standards of professional certification
     and accreditation of educational programs.  
     
     Information Services:  CAID and the Conference of
     Educational Administrators Serving the Deaf jointly
     publish the American Annals of the Deaf, which include a
     variety of articles relevant to deaf people and to
     professionals working with deaf people.  Each April issue
     of the Annals is a Directory of Programs and Services for
     the Deaf in the United States, listing local educational
     and rehabilitative services for deaf people, including
     deaf-blind people, in the United States and Canada. 
     Reprints from the Annals and a materials list containing
     pamphlets of interest to teachers, students, and parents
     are available from CAID.  The organization publishes a
     newsletter for members, The Advocate for Education of the
     Deaf, and proceedings from its conferences.
     
     
     Cooley's Anemia Foundation, Inc.
105 East 22nd Street 
Suite 911
New York, NY 10010
(212) 598-0911
(800) 221-3571
(800) 522-7222 (New York Only)
     
     Disabilities Served:  Victims of Cooley's anemia
     (Thalassemia). 
     
     Users Served:  All interested persons.
     
     The Organization:  The Cooley's Anemia Foundation, Inc.,
     is a national, nonprofit health organization dedicated to
     enhancing the quality of life of Cooley's anemia
     (Thalassemia) patients, advancing the treatment and cure
     for this fatal blood disease, and educating the medical
     profession and the public about Cooley's anemia.
     
     Information Services:   The Cooley's Anemia Foundation
     conducts national programs that provide patient services,
     research and fellowships, legislative advocacy, and public
     awareness and education.  In addition, it utilizes a
     national chapter network dedicated to decreasing the
     impact of the disease on patients and families.
     
     Cornelia deLange Syndrome Foundation (CdLS
Foundation)
60 Dyer Avenue
Collinsville, CT  06022
(203) 693-0159
(800) 753-2357
      
     Disabilities Served:  Cornelia deLange syndrome (CdLS). 
     
     Users Served:  Persons with the syndrome, parents,
     teachers, anyone interested in CdLS.
     
     The Organization:  Established in 1977, the Cornelia
     deLange Syndrome Foundation's purpose is to increase
     awareness about CdLS, to encourage accurate and early
     diagnosis, and to enable families and professionals to
     make responsible decisions about planning for present and
     future care of affected children.  CdLS is a collection of
     specific medical signs and symptoms of unknown cause
     resulting in mental retardation, distinctive physical
     characteristics, delayed psychomotor development, and
     feeding and behavior problems.  The foundation serves as a
     support system for children affected by CdLS and their
     families.  Support for research on CdLS is a continuing
     focus of the foundation.
     
     Information Services:  The foundation publishes a
     directory of parents and interested persons and a pamphlet
     Facts About CdLS.  Reaching Out, a bimonthly newsletter
     for families and friends of people with CdLS, reports on
     foundation activities, members' research developments, and
     treatment programs.  A Spanish translation of the fact
     sheet is available.
     
     
     The Council for Exceptional Children (CEC)
1920 Association Drive
Reston, VA 22091
(703) 620-3660
     
     Disabilities Served:  All handicaps and gifted children.
     
     Users Served:  Teachers, other professionals, and parents.
     
     The Organization:  The Council for Exceptional Children
     (CEC), a private, nonprofit membership organization, was
     established in 1922 to advance the education of
     exceptional children and youth, both handicapped and
     gifted.  CEC Information Services acts as an information
     broker for teachers, administrators, students, parents,
     and others, serving as a comprehensive literature
     depository for English language materials.  The ERIC
     Clearinghouse on Handicapped and Gifted Children, housed
     at CEC, catalogs, indexes, and abstracts journal articles
     and research reports for inclusion in the ERIC data base.
     
     CEC has an in-house data base, Exceptional Child Education
     Resources (ECER), which began in 1969 as an abstract
     journal.  This file contains documents entered into ERIC
     by the Clearinghouse on Handicapped and Gifted Children
     (approximately 50 percent of ECER records) and special
     education materials not appropriate to the ERIC system,
     such as textbooks and doctoral dissertations in special
     education.  ECER, which contains bibliographic data and
     abstracts on approximately 70,000 documents, has been
     searchable on-line since 1971.
     
     The CEC Department of Governmental Relations monitors and
     analyzes policies concerning exceptional children,
     conducts policy research in this area, and works to
     encourage policies favorable to the development of
     exceptional persons.
     
     The CEC Department of Professional Development sponsors an
     annual convention and numerous topical conferences,
     academies, symposia, and other training activities.
     
     In addition, CEC's 17 divisions, which focus on particular
     aspects of special education, are autonomous in developing
     professional programs and publications geared to meet the
     needs of division members.  These divisions are
     (periodicals available to nonmembers by subscription are
     listed in parentheses):  Council of Administrators of
     Special Education; Council for Children with Behavioral
     Disorders (Behavioral Disorders);  Division on Mental
     Retardation (Education and Training in Mental
     Retardation); Council for Educational Diagnostic Services
     (Diagnostique); Division on Career Development (Career
     Development for Exceptional Individuals*); Division for
     Children with Communication Disorders (Journal of
     Childhood Communication Disorders); Division for Early
     Childhood (Journal of Early Intervention); Division on the
     Physically Handicapped; Division for the Visually
     Handicapped; the Association for the Gifted (Journal for
     the Education of the Gifted); Teacher Education Division
     (Teacher Education and Special Education); Division for
     Learning Disabilities (Learning Disabilities Research and
     Practice); Technology and Media Division (Journal of
     Special Education Technology); Division for Research
     (Exceptionality); CEC Pioneers Division; Division for
     Culturally and Linguistically Diverse Exceptional
     Learners; Division of International Special Education and
     Services.  An asterisk (*) indicates that subscriptions
     are available only to libraries.
     
     Information Services:  Custom computer searches of the
     ECER, ERIC, and other education-oriented data bases are
     available from CEC for a charge.  Reprints of previous
     searches on selected popular topics may also be ordered.
     
     CEC produces numerous publications on special education,
     awareness of handicapped people, child abuse,
     parent-professional cooperation, career and vocational
     education, severely handicapped children, and public
     policy.  Bibliographies on topics of current interest are
     also available.  In addition, subscriptions to the ECER
     journal, which appears quarterly, may be ordered.
     
     Original documents or microfiche copies of most ECER
     documents are retained in CEC's library, which also houses
     over 250 periodicals, the complete ERIC microfiche
     collection, and many reference materials.  The library is
     open to the public Monday through Friday.
     
     CEC responds to thousands of requests each year from
     professionals, students, parents, and others.  When
     appropriate, inquiries are referred to other
     organizations.  Users are asked not to direct inquiries to
     both CEC and the ERIC Clearinghouse on Handicapped and
     Gifted Children, since the two organizations share staff
     and resources in responding to requests.
     
     The ECER data base may be accessed directly through BRS
     Information Technologies and DIALOG.
     
     
     Council of Citizens with Low Vision International
(CCLVI)
1400 North Drake Road 
Suite 218
Kalamazoo, MI  49007
(616) 381-9566
     
     Disabilities Served:   Visual impairments.
     
     Users Served:   Disabled persons, parents.
     
     The Organization:   The Council of Citizens with Low
     Vision International (CCLVI) was founded in 1978 to meet
     the particular needs of partially sighted persons.  The
     basic purpose of the organization is to help partially
     sighted persons to be more independent and thus less
     dependent on costly public and private services.  Toward
     that goal, the objectives of CCLVI include (1)
     establishing the right of partially sighted persons to
     fully utilize remaining eyesight through aids, services,
     and technology; (2) providing a mechanism for individual
     expression of needs, preferences, and interests of
     partially sighted persons; (3) educating the public,
     professionals, and persons with low vision themselves as
     to their capabilities and special needs; (4) establishing
     outreach programs to ensure accessibility to services; (5)
     promoting research in various fields aimed at improving
     the lives of persons with usable residual vision; (6)
     supporting the development of pre-service professional
     training programs to establish and expand low vision
     services.  The five State chapters and one local chapter
     of CCLVI conduct local programs based on specific needs in
     their respective areas.  In addition to its annual
     conference with educational programs, CCLVI actively
     promotes relevant legislation, statewide and nationally,
     and advocates for adequate signs on public facilities. 
     The council also provides scholarships for professionals
     who work in the field of low vision.  CCLVI is an
     affiliate of the American Council of the Blind.
     
     Information Services:   CCLVI offers several pamphlets
     describing the organization and its mission and a
     bibliography, Understanding Low Vision.  A quarterly
     newsletters reports on resources, new developments,
     research, chapter news, and conferences.  Materials are
     available in large print.  A nominal membership fee is
     charged, which includes the newsletter subscription and a
     free subscription to the American Council of the Blind's
     magazine, The Braille Forum.  CCLVI makes referrals to low
     vision services in local areas.
     
     
     Council of State Administrators of Vocational
 Rehabilitation (CSAVR)
1055 Thomas Jefferson Street, NW
P.O. Box 3776
Suite 401
Washington, DC  20007
(202) 638-4634
     
     Disabilities Served:  All handicaps.   
     
     Users Served:  State rehabilitation agency directors.   
     
     The Organization:  The Council of State Administrators of
     Vocational Rehabilitation (CSAVR) is composed of the chief
     administrators of rehabilitation agencies in the States,
     the District of Columbia, and the United States
     territories.  These agencies serve physically and mentally
     handicapped persons and are the State partners in the
     Federal-State program of vocational rehabilitation
     services provided under the Rehabilitation Act of 1973. 
     In addition to providing a forum for discussion on
     relevant issues to its member administrators, the council
     serves as an advisory body to the Rehabilitation Services
     Administration and the National Rehabilitation
     Association. 
     
     Information Services:  CSAVR provides information to
     member agencies and to Federal agencies in coordinating
     rehabilitation services.  It publishes a newsletter, CSAVR
     MEMORANDUM, which is issued on an as-needed basis.  CSAVR
     also provides technical assistance to its members through
     its 12 standing committees.  Information can be provided
     in braille, when needed.
       
     
     Council on Rehabilitation Education, Inc (CORE)
P.O. Box 1680
Champaign, IL 61824
(217) 333-6688
     
     Disabilities Served:   All disabilities.
     
     Users Served:  Disabled persons, parents, teachers, health
     care professionals, educators, postsecondary institutional
     officers.
     
     The Organization:  The Council on Rehabilitation Education
     (CORE) seeks to provide effective delivery of
     rehabilitation services to individuals with disabilities
     by stimulating and fostering continuing review and
     improvement of master's degree-level programs.  CORE's
     accreditation process promotes self-improvement rather
     than outside censure.  A further purpose of the
     accreditation is to meet the personnel needs of both
     private and public rehabilitation agencies by providing
     graduates who have been equipped with the skills and
     knowledge necessary to help decrease dependence among
     persons with disabilities.  CORE is involved in the
     development of standards for Rehabilitation Counselor
     Education (RCE) programs, the evaluation of compliance
     with established methods for RCE programs, and
     consultation for program development.
     
     CORE's membership is composed of persons appointed from
     five organizations.  They are the American Rehabilitation
     Counseling Association (ARCA), National Rehabilitation
     Counseling Association (NRCA), National Association of
     Rehabilitation Facilities (NARF), National Council on
     Rehabilitation Education (NCRE), and the Council of State
     Administrators of Vocational Rehabilitation (CSAVR).
     
     Information Services:   Annual publications include a
     brochure listing the recognized master's degree programs
     in rehabilitation counselor education and a fact sheet
     that includes current membership and planned activities
     for the current year.  Also available is the Accreditation
     Manual for Rehabilitation Counselor Education Programs
     (1979 and 1983 editions).  CORE offers limited
     distribution of bibliographies on information related to
     accreditation and/or rehabilitation counselor education
     program development.  Statistical data based on responses
     to individual questionnaires from all RCE programs since
     1979 are available.  The questionnaire respondent groups
     include faculty/students, graduates, and
     employers/supervisors.  Distribution of statistical data
     must be authorized by the CORE research committee.
     
     There is a nominal charge for materials to cover
     reproduction costs.
     

Courage Center
3915 Golden Valley Road
Golden Valley, MN  55422
(612) 588-0811
(612) 520-0520 (Information Only)
     
     Disabilities Served:   People with physical disabilities,
     including speech, hearing and vision impairments, and head
     injuries.
     
     Users Served:   Parents, health professionals, and
     students.
     
     The Organization:   Courage Center is a nonprofit
     organization providing rehabilitation and independent
     living services to people with physical disabilities and
     speech, hearing, and vision impairments.  Some of the
     center's approximately 70 programs are offered locally and
     regionally; others are available nationally.  The courage
     HANDI-HAM System, providing training, information, and
     radio equipment to disabled people interested in amateur
     radio, operates on an international level.  Courage
     Residence, a transitional rehabilitation program, prepares
     disabled young adults for community living.  The center
     also offers comprehensive medical services, physical
     restoration, speech and hearing services, counseling, and
     rehabilitation technology services.  Courage Center's
     recreation program includes Camp Courage, a residential
     camp program for ages 8 and up, other camping experiences,
     and various competitive and recreational sports and
     physical education and wellness programs.  The center's
     services are available based on a person's ability to pay. 
     The center also offers a cost share program.
     
     Information Services:   Brochures describing the Courage
     Center's programs are available at no charge.  Requestors
     may also borrow a film, It Takes Courage, which documents
     the progress made by disabled people with the help of the
     center's services.  The center publishes several
     newsletters, including the Courage News, published
     quarterly, and the quarterly Meeting Ground.  General
     information may be requested by either writing or calling
     Courage Center's Information Center at 
     (612) 520-0520.
     
Crippled Children's Service
Division of Maternal and Child Health
Bureau of Health Care Delivery Assistance
U.S. Department of Health and Human Services
5600 Fishers Lane
Room 7-22
Rockville, MD  20857
(301) 443-2350
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Disabled persons and their families, and
     health care professionals.
     
     The Organization:   The Office for Maternal and Child
     Health provides block grants to States for direct medical
     and related services to children with handicapping
     conditions.  Other funding activities include project
     grants for training, research grants for applied research
     programs, special project grants for projects of regional
     or national significance, hemophilia diagnostic and
     treatment centers, and genetic diseases testing and
     counseling services.
     
     Information Services:   Since each State has its own plan
     for service tailored to constituents' needs, information
     about direct services can best be obtained from each State
     health agency.
     
     
     CRISP
Information Services Branch
Division of Research Grants
National Institutes of Health
U.S. Department of Health and Human Services
Bethesda, MD  20892
(301) 496-7543
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Health care professionals, researchers,
     general public.
     
     The Organization:   The mission of the Information
     Services Branch in the Division of Research Grants at the
     National Institutes of Health (NIH) includes the operation
     of a large computer-based information system,  Computer
     Retrieval of Information on Scientific Projects (CRISP). 
     CRISP was developed to facilitate the rapid dissemination
     of current scientific information on research projects
     supported through the various research grants and
     contracts programs of the Public Health Service or
     conducted intramurally by NIH and the National Institute
     of Mental Health.  On the basis of applications or
     progress reports for extramural research and annual
     reports or project narratives for intramural research,
     awarded projects are indexed by NIH staff scientists.  The
     file contains approximately 500,000 items, many of which
     report on research on disabling diseases and conditions,
     including the following:  cerebral palsy, mental
     retardation, spina bifida and other congenital
     abnormalities, blindness, deafness, metabolic disorders,
     multiple sclerosis and other diseases of the nervous
     system, spinal cord injuries, amputation, mental illness,
     and all other major handicapping conditions.
     
     Information Services:   CRISP will perform searches of the
     data base on single specific topics (e.g., sickle cell
     disease) or generic data (e.g., all research support on
     cancer).  The computer printout includes information on
     the research area, disease, materials, and methods.  For
     routine searches, there is no charge to government
     agencies, public interest groups, other nonprofit
     organizations, and individuals; profit-making
     organizations must pay for searches.
     
     
     Cystic Fibrosis Foundation (CFF)
6931 Arlington Road
Bethesda, MD  20814
(301) 951-4422
(800) 344-4823
     
     Disabilities Served:   Cystic fibrosis (CF), chronic
     disease affecting pulmonary and digestive systems.
     
     Users Served:   Persons with CF, general public,
     professionals, caregivers.
     
     The Organization:   The Cystic Fibrosis Foundation (CFF)
     is a voluntary non-profit organization dedicated to
     finding a cure and control for cystic fibrosis  and to
     improving the quality of life for the 30,000 people with
     this disease.  Cystic fibrosis is the most common genetic
     killer of children and young adults in the United
     States--as of yet there is no cure.  It causes the body to
     produce thick, sticky mucus which clogs the lungs and
     interferes with digestion.  Respiratory complication and
     infection caused by the mucus are the leading cause of
     death.  
     
     Research supported by the foundation over the years has
     helped increase the life expectancy of children and young
     adults with CF.  The Cystic Fibrosis Foundation actively
     supports the advancement of medical science by finding a
     national network of research centers.  The foundation's
     120 CF care centers provide the latest in specialized care
     and state-of-the-art treatment and services for people
     with CF.
     
     Information Services:   CFF publishes a newspaper,
     Commitment, twice yearly.  In addition to the Annual
     Report, the following publications are also available: 
     Alex:  The Life of a Child, CFF Pharmacy (information on
     CFF discount pharmacy), Energy, Growth and CF Nutrition,
     Guide to CF for Parents and Children, Is an HMO Right for
     You, and factsheets.
     
     
     Deafness and Communicative Disorders Branch
Rehabilitation Services Administration
U.S. Department of Education
330 "C" Street, SW 
Switzer Building
Washington, DC  20202
(202) 732-1401 (Voice) 
(202) 732-1330 (TDD)
     
     Disabilities Served:   Deafness, hearing loss,
     deaf-blindness, speech and language disorders.
     
     Users Served:  Professionals in rehabilitation and related
     fields and disabled individuals.
     
     The Organization:   The goal of the Deafness and
     Communicative Disorders Branch is the promotion of
     improved and expanded rehabilitation services for persons
     who are deaf, hard of hearing, deaf-blind, speech
     impaired, and language disordered.  A number of activities
     are involved in working toward this goal:  leadership and
     liaison to national organizations, agencies and
     institutions concerned with deafness and communicative
     disorders; the development of policies and standards that
     improve State rehabilitation agencies' work with clients
     who are communicatively impaired; the review of services
     to persons who are deaf, hard of hearing, and who have
     other communicative impairments by the State
     rehabilitation agencies; the provision of technical
     assistance to Rehabilitation Services Administration staff
     in both central and regional offices.  The purpose of this
     assistance is to assure that the concerns and needs of
     individuals who are deaf are considered in all
     rehabilitation programs.
     
     Under the direction of the Office of Program Operations,
     the Branch manages the grant program for the training of
     sign language and oral interpreters for deaf, hard of
     hearing, and deaf-blind individuals and a grant program to
     enhance service delivery to severely disabled persons who
     are deaf.  Dissemination of information is viewed as an
     integral part of the overall mission of the Branch.
     
     Information Services:  The Branch responds to inquiries
     from State and private agencies, national organizations,
     and from the general public.
     
     
     The Deafness Research Foundation
9 East 38th Street
New York, NY  10016
(212) 684-6556
(212) 684-6559 (TTY)
(800) 535-DEAF
      
     Disabilities Served:  Deafness and hearing impairments.
     
     Users Served:  Researchers in the area of deafness.
     
     The Organization:  The Deafness Research Foundation (DRF)
     was founded in 1958 to find support for new research into
     the causes, treatment, and prevention of deafness.  DRF
     provides seed grants for ear research projects at
     hospitals, research laboratories, and universities in the
     United States and Canada.  The Centurions of the DRF, an
     organization of physicians, audiologists, and researchers,
     contributes its membership dues to meet the basic
     administrative expenses of the DRF, thus making it
     possible for all public contributions to go directly into
     the funding of ear research.
     
     With the endorsement of the American Academy of
     Otolaryngology and the National Association of the Deaf,
     the DRF sponsors the National Temporal Bone Banks Program
     (NTBB) and seeks individual pledges of temporal bones to
     be used for research and physician training.
     
     Information Services:  DRF publishes The Receiver, which
     reports current research and provides practical tips for
     dealing with specific ear diseases and hearing problems. 
     Information about NTBB may be obtained from DRF or NTBB
     regional centers located in Boston, Minneapolis, Houston,
     and Los Angeles.
     
     Deafpride, Inc.
1350 Potomac Avenue, SE
Washington, DC  20003
(202) 675-6700 (Voice/TTY)
      
     Disabilities Served:  Deafness.
     
     Users Served:  Deaf persons, their families, hospital
     personnel, and any personnel that come into contact with
     deaf persons.
     
     The Organization:  Deafpride, Inc., is a nonprofit
     organization, which works for the human rights of deaf
     people and their families by bringing together deaf and
     hearing persons and providing opportunities for them to
     develop their potential as advocates.  Deafpride assists
     groups to organize and work for change, in the District of
     Columbia and throughout the United States.  Deafpride
     offers activities and programs in leadership/advocacy
     development; family life; bilingual studies/deaf culture;
     health services access; technical assistance, information,
     and referral; and sign language programs.  The
     organization also provides interpreting services and
     conducts workshops and inservice training for health
     services consumers and providers.  Deafpride can design
     programs, conferences, or workshops to meet the specific
     needs of a group or institution and can provide speakers
     and panelists from the deaf community.
     
     Information Services:  Deafpride has produced a brochure
     describing its services and a booklet on access to medical
     services for deaf patients.  The Advocate is Deafpride's
     quarterly newsletter, which covers news of the
     organization's activities and projects, conferences,
     resources, and other items of interest.  Deafpride also
     publishes Perspectives and Options, a collection of
     position papers, as well as other policy/concept papers. 
     There is a membership charge (includes newsletter
     subscription) and fees for training sessions, sign
     language classes, and interpreting services.
     
     
     Department of the Interior
National Park Service
P.O. Box 37127
Washington, DC  20013
(202) 343-4747
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Disabled persons and their families.
     
     The Organization:  The National Park Service administers
     the Nation's national park system, including parks and
     natural, historical, recreational, and cultural areas and
     facilities.  In addition to its central office, the Park
     Service has 10 regional offices.
     
     Information Services:  The Park Service accepts inquiries
     on all of its national park activities and facilities. 
     Information on accessibility of park programs, facilities,
     and services should be acquired directly from the park or
     area you plan to visit.  For general information on park
     areas and activities and a listing of park phone numbers,
     call Public Information on ((202) 343-4747.  All
     information is free.  The Special Programs and Populations
     Branch (202) 343-3674; TTY 343-3679) handles lay and
     professional inquiries on national park facilities for the
     handicapped.  Also, the office offers technical assistance
     to service providers and deals with policies and
     procedures for all special groups.
     
     To obtain the addresses of regional offices, contact the
     National Park Service.
     
     
     Department of Veterans Affairs (VA)
810 Vermont Avenue, NW
Washington, DC  20420
(202) 233-2741
     
     Disabilities Served:   All handicaps.
     
     Users Served:    Disabled veterans and their families.
     
     The Organization:   The Department of Veterans Affairs
     (VA) provides a wide range of benefits to those who have
     served in the Armed Forces, their dependents,
     beneficiaries of deceased veterans, and dependent children
     of seriously disabled veterans.  Two national offices
     administer programs of financial benefits and direct
     health care services for veterans:  the Veterans Benefits
     Administration and the Veterans Health Services and
     Research Administration.
     
     The Veterans Benefits Administration (VBA) conducts an
     integrated program of veterans benefits through 58
     regional offices.  In addition to the benefits afforded
     veterans, such as funds for education, on-the-job
     training, home loans, insurance, and benefits provided by
     other Federal agencies, the service-disabled veteran is
     eligible for  special benefits and services.  These
     include disability compensation for injuries, disease or
     disabilities incurred while on active duty in the Armed
     Forces; dependency allowances for spouses and children of
     service-disabled veterans; medical care, including
     hospitalization, outpatient services, nursing services,
     and prosthetics and sensory aid services; and vocational
     counseling, rehabilitation, and training for certain
     disabled veterans.  After completion of training, the VA
     will assist the veteran to find and hold a suitable job. 
     Severely disabled veterans, including the blind,
     paraplegic, and amputees, may be entitled to specially
     adapted (wheelchair) homes, automobiles, or other means of
     conveyance, and assistance to live more independently in
     their community.  The VA provides technical assistance in
     situations where a worksite or training site modification
     is needed to accommodate the veteran.
     
     The Veterans Health Services & Research Administration
     (VHSRA) provides health care to veterans in 172 medical
     centers, 356 outpatient clinics, 126 nursing homes, and 35
     domiciliaries.  The VA has also opened 195 veterans
     centers to assist Vietnam Era veterans with special
     problems related to that war.  VHSRA offers medical,
     psychological, social, and vocational services to eligible
     veterans.  Rehabilitation services for handicapped persons
     include rehabilitation medicine, blind rehabilitation,
     prosthetic and sensory aids service, spinal cord injury
     service, and audiology and speech pathology service. 
     There are programs especially designed for handicapped
     individuals such as driver training, independent living,
     case management, cardiopulmonary rehabilitation, and
     compensated work therapy.
     
     The Office of Research and Development administers
     intramural projects and programs in medical research.  The
     Rehabilitation Research and Development Service conducts
     additional research on prosthetics, sensory aid devices,
     and other equipment for handicapped individuals.  The
     Office of Academic Affairs conducts an extensive health
     manpower education and training program.
     
     Information Services:    Information concerning benefits
     and services is available from VA field offices located in
     many cities throughout the 50 States.  Each field office
     is staffed with benefits counselors who advise applicants
     and process applications for benefits.  VA field offices
     provides assistance to veterans seeking to appeal claims
     decisions; this assistance is also provided by private
     veterans associations, some located in VA regional
     offices.  Each State has a toll-free telephone service to
     VA regional offices.  This service provides information
     about benefits as well as counseling assistance to
     nonambulatory persons who cannot apply for benefits in
     person.  Information about specific rehabilitation
     programs may be obtained from a local medical center or by
     contacting the Rehabilitation Medicine Service at the
     national office.  Libraries at VA medical centers can
     provide medical reference materials to medical personnel
     and other interested parties.  Applications for medical
     service may be made to VA medical centers or any VA office
     with medical facilities.  The publication Federal Benefits
     for Veterans and Dependents, which describes benefits,
     services, and eligibility requirements, and lists local
     offices and treatment facilities by State, is sold through
     the Superintendent of Documents, U.S. Government Printing
     Office, Washington, DC  20402.
     
     The Office of Technology Transfer (OTT), VA Prosthetics
     R&D Center, located at 103 South Gay Street, Baltimore, MD 
     21202, maintains a reference collection on rehabilitative
     engineering.  Organized more than 30 years ago, the
     collection contains books, periodicals, technical reports,
     reprints, patents, and audiovisuals.  Materials cover a
     wide range of subject areas:  prosthetics, orthotics,
     communication aids, mobility aids, driving aids,
     artificial eye and other cosmetic restorations,
     wheelchairs, mobility and reading aids for the blind and
     partially sighted, hearing aids, and surgical implants. 
     The collection is available for use by all individuals but
     is primarily useful to the medical, allied health, and
     engineering professions.
     
     OTT is a source of information on new devices and
     techniques developed in the VA's rehabilitation
     engineering programs.  Its main vehicle for dissemination
     of new research information is the semiannual Bulletin of
     Prosthetics Research.  The bulletin includes scientific
     papers, progress reports on research projects, and
     abstracts of recent patents and publications.  Bulletins
     may be purchased from the Superintendent of Documents,
     U.S. Government Printing Office, Washington, DC  20402. 
     OTT provides copies of reference materials or
     individualized letters in response to clearly stated and
     specific inquiries for information.
     
     The Office of Information Resources Management is the
     principal data collection office of the VA.  Statistics
     are available on disability compensation and the type and
     extent of disability for veterans with both service- and
     nonservice-connected handicapping conditions.  While most
     of the statistics compiled by this office have not been
     published, data is readily available to requestors.  The
     following information sheets have been published: 
     Selected Compensation and Pension Data by State of
     Residence, Disability Compensation Data, and Disability
     and Death Pension Data.  A special study on the disabled
     veterans of the Vietnam era is also available.  All of the
     above are available from the Management Sciences Service
     (043B), Washington, DC  20420.  The Annual Report of the
     Administrator, which may be obtained from the Analysis and
     Reports Service (202) 233-4239, includes statistical
     tables on the prevalence of disability among veterans.
     
     "Dial A Hearing Screening Test" (DAHST)
Occupational Hearing Services
P.O. Box 1880
Media, PA  19063
(800) 222-EARS
(800) 345 EARS (Pennsylvania Only)
(215) 359-1144  (Canada Only)
     
     Disabilities Served:   Hearing impaired.
     
     Users Served:   Anyone over the age of 10 years old.
     
     The Organization:   "Dial A Hearing Screening Test"
     (DAHST) is a network of hearing health professionals. 
     Local hearing health facilities in hospitals,
     universities, and ear, nose and throat specialists,
     audiologists, and hearing aid specialists provide their
     communities with a free hearing screening test by
     telephone.  The goal of this hearing health awareness
     program is to educate about hearing loss and help people
     seek the help they need and to recognize their hearing
     loss sooner.  There are currently over 200 "DAHST"
     programs operating throughout the United States and
     Canada.
     
     Information Services:   Callers to the 800 Information
     Center will receive their local "DAHST" test number to
     call.  Once the local call is placed, the two minute
     recording presents four tones for each ear, a full set of
     instructions, and a list of medical problems associated
     with hearing loss.  If the caller fails to hear all eight
     tones, the caller is told that he or she fails the test
     and is encouraged to seek further testing.  The local
     sponsor's name and office number is given prior to
     disconnecting the caller.  This call is free.  The 800
     Center operates from 9 a.m. to 5 p.m., EST.
     
     
     Dialog Information Services, Inc. 
3460 Hillview Avenue
Palo Alto, CA  94304
(800) 3-DIALOG
(800) 334-2564
     
     Dialog Information Services allows access to over 390 data
     bases, many of which are available only through DIALOG. 
     The files containing information on various aspects of
     disabling conditions and services to handicapped
     individuals are listed in a table at the end of this
     section.
     
     Prices for data base searches vary and are based on
     computer connect time, use of data communications
     networks, and off-line printing of records.  The DIALOG
     pricing schedule offers discounts based upon the quantity
     of work to be performed and contractual arrangements.
     
     All new subscribers receive a Database Catalog, which
     describes available files; a self-tutorial guide; and
     other materials to assist the beginning searcher. 
     Searching DIALOG:  The Complete Guide is available for
     purchase alone, or as part of a starter package, which
     includes training and up to $100 of free on-line connect
     time.
      
     
     DIRECT LINK for the Disabled, Inc.
P.O. Box 1036
Solvang, CA  93464
(805) 688-1603 (Voice/TDD)
     
     Disabilities Served:   All disabilities.
     
     Users Served:   Individuals with disabilities, their
     families or friends, professionals seeking services for
     their clients, and the general public.
     
     The Organization:   DIRECT LINK for the Disabled, Inc., is
     a public benefit organization that provides information
     and resources for any disability-related question.  Its
     mission is to improve the availability of health and human
     services information to meet the unique needs of disabled
     individuals and their families.
     
     Information Services:   DIRECT LINK provides one-stop
     information and assistance for any disability-related
     question.  It assists organizations working with disabled
     people and their families to find needed resources for
     their clients.  Responses are given over the phone or with
     a printed report.  Special care is taken to find the
     closest local organization that meets the specific need. 
     Additional resources may also be provided, such as
     available national organizations, government offices,
     sources of funding, local referral agencies, and other
     appropriate materials.
     
     The LINKUP data base contains listings of over 11,000
     organizations.  Included are independent living centers,
     employment programs, support groups, device assessment
     centers, financial assistance programs, government
     offices, local affiliates of national organizations,
     community information centers, and agencies offering
     direct services to disabled people and their families.
     
     In addition, information packages about technology for
     disabled people; financial assistance; and notebooks of
     resources on head injury/coma, stroke, spinal cord injury
     or neuromuscular diseases are available at cost.
     
     DIRECT LINK is available by letter or phone. 
     Organizations or individuals may contact DIRECT LINK for
     information or refer their clients directly.  Turn-around
     time is usually one day.  There is no charge to
     individuals; organizations are asked to reimburse for
     direct costs.  Funding comes from donations and grants.
     
     
     Disability Rights Education and Defense Fund (DREDF)
2212 Sixth Street
Berkeley, CA  94710
(415) 644-2555 (Voice/TDD)
(415) 841-8645
      
     Disabilities Served:  All disabilities.
     
     Users Served:  People with disabilities and their
     families, including parents of children with disabilities;
     organizations and advocates concerned with disability
     rights, attorneys, legislators.
     
     The Organization:  The Disability Rights Education and
     Defense Fund (DREDF), founded in 1979, is a national
     nonprofit law and policy center, dedicated to furthering
     the civil rights of people with disabilities.  Managed and
     directed by people with disabilities and parents of
     children with disabilities, DREDF has a home office in
     Berkeley, California, and a governmental affairs office in
     Washington, D.C.  DREDF provides technical assistance,
     information and referral, and training to individuals and
     organizations on disability rights laws and policies;
     provides legal representation directly and as co-counsel
     and amicus in cases of disability-based discrimination;
     educates legislators and policy makers on issues affecting
     the rights of people with disabilities; trains law
     students through the Disability Clinical Legal Education
     Program.  DREDF has worked on every piece of major
     disability civil rights legislation, and most disability
     civil rights cases heard by the U.S. Supreme Court, since
     1979.  DREDF was key to the effort to pass the landmark
     Americans With Disabilities Act and provides expert
     training to individuals, organizations, public entities,
     and businesses nationwide on that law.
     
     Information Services:  DREDF offers concise and up-to-date
     information on disability civil rights to disability
     organizations, attorneys, Federal agencies, legislators,
     and their staffs.  The Disability Rights News, published
     three times a year, is free on request.  The News reports
     on DREDF activities and national legislative and
     regulatory activity affecting disability rights.
     
     
     Disability Statistics Program
1995 University Avenue
Suite 215
Berkeley, CA  94704
(415) 644-9904
     
     Disabilities Served:  All disabilities.
     
     Users Served:   Persons with disabilities, government
     agencies, disability organizations, researchers,
     rehabilitation professionals, health professionals, media,
     manufacturers, service providers, educators, general
     public, all other interested persons.
     
     The Organization:   The Disability Statistics Program is a
     3-year project funded by the National Institute on
     Disability and Rehabilitation Research (NIDRR) to develop
     and disseminate information on disability in the United
     States.  The primary contract is with the Institute for
     Health and Aging, University of California, San Francisco. 
     Collaborating on project planning and dissemination
     activities is the firm InfoUse, Berkeley, California. 
     Through statistical analyses of national survey and
     program data bases, the Disability Statistics Program is
     developing and updating data on major aspects of
     disability in the United States, including demography,
     epidemiology and health status; health care use, costs,
     and coverage; employment and earnings; and social
     services, benefits, and activity.  Research results are
     disseminated through reports, chart books, journal
     articles, the Disability Statistics Bulletin, and the
     Disability Statistics Information Service.
     
     Information Services:   The Disability Statistics Program
     Service provides statistical information on a wide variety
     of topics concerning disability in the United States.  The
     Information Service has the most recently published
     sources of statistical data on disability and can provide
     copies of published data tables.  A newsletter, the
     Disability Statistics Bulletin, presents timely
     statistical information on disability in the United States
     free of charge to over 5,000 readers.  Other publications
     include the Disability Statistics Report, in-depth reports
     of original research on national surveys and other data
     sources, and Disability Abstracts, short summaries of data
     on single disability-related topics.
     
     Disabled American Veterans (DAV)
P.O. Box 14301
Cincinnati, OH  45250
(606) 441-7300
     
     Disabilities Served:   Service-connected disabilities of
     veterans of all wars.
     
     Users Served:   Disabled veterans and their families.
     
     The Organization:   The Disabled American Veterans (DAV)
     was formed following World War I as a self-help group for
     veterans with service-connected disabilities.  The 1.1
     million member nonprofit association exists solely to
     serve disabled veterans and their families.  There are 51
     State departments, 2,607 local chapters, and 1,925
     auxiliary units across the country.  The DAV advocates and
     monitors legislation affecting the entire range of
     benefits for service-connected disabled veterans,
     including disability compensation, health care, pension,
     employment, vocational rehabilitation, death benefits,
     etc.  Expert counseling and claims representation are
     provided to disabled veterans and their families at no
     cost by 290 DAV National Service Officers (NSO's) located
     in 68 offices across the United States and Puerto Rico.
     DAV NSO's act as attorneys-in-fact, representing clients
     before the Veterans Administration, Social Security
     Administration, Labor Department, Health and Human
     Services, and other government agencies.  Since 1973, the
     DAV has sent Field Service Units to rural and suburban
     areas to serve veterans and families living some distance
     from a DAV office.  The DAV has several programs aimed at
     unique problems in specific groups of veterans.  These
     include veterans of the Vietnam era, aging veterans,
     Native Americans, and incarcerated veterans and others. 
     The DAV provides disaster and emergency relief for
     disabled veterans and scholarships for their children.  It
     also advocates local employment programs and removal of
     architectural and other barriers to people who are
     handicapped.
     
     Information Services:   A monthly news magazine covers
     veteran's benefits, including VA health care and veterans'
     legislation.  It is also available on cassette.  General
     inquiries concerning rights and benefits earned by
     disabled veterans should be sent to the above address. 
     Requests for assistance with benefit claims should be sent
     to DAV National Service Department, 807 Maine Avenue, SW,
     Washington, DC  20024.  DAV services are provided at no
     cost to veterans and their families.
     
     Division of Birth Defects and Developmental
Disabilities
Center for Environmental Health and Injury Control
Centers for Disease Control
1600 Clifton Road
Atlanta, GA  30333
     
     Disabilities Served:  Conditions resulting from birth
     defects or developmental disabilities.
     
     Users Served:   Public health professionals.
     
     The Organization:   The Division of Birth Defects and
     Developmental Disabilities is an operating unit within the
     Center for Environmental Health and Injury Control
     (CEHIC), one of the Centers within the Centers for Disease
     Control (CDC).  The CDC is a part of the Public Health
     Service of the U.S. Department of Health and Human
     Services.
     
     Information Services:   The Division (1) conducts and
     disseminates findings of epidemiologic research,
     investigations, demonstrations, and programs directed
     toward determining the environmental, both naturally
     occurring and manmade, causes of selected adverse
     reproductive outcomes and perinatal and childhood
     diseases, including developmental disabilities; (2)
     establishes, and maintains systems of surveillance
     including registries for monitoring, evaluating, and
     disseminating information on these conditions; (3)
     develops and evaluates prevention strategies and provides
     training and technical assistance to States and localities
     in developing their surveillance and prevention programs
     for these conditions; (4) provides training in the
     epidemiology of these conditions for professionals from
     within and outside the United States; (5) works closely
     with international organizations in developing strategies
     and programs for reducing these conditions; (6) provides
     assistance to State and local health departments on
     community exposures to teratogenic, mutagenic,
     embryotoxic, or other environmental agents adversely
     interfering with normal growth and development.
     
     
     Dysautonomia Foundation, Inc.
20 East 46 Street 
Third Floor
New York, NY  10017
(212) 949-6644
     
     Disabilities Served:  Familial dysautonomia. 
     
     Users Served:  Parents, physicians, familial dysautonomia
     patients.
     
     The Organization:  Established in 1951 by parents of
     affected children, the Dysautonomia Foundation now has 16
     chapters in the United States, Canada, Great Britain, and
     Israel, which raise funds for research into dysautonomia
     and provide information on this genetic disorder to the
     medical community and patients' families.  The condition
     affects the autonomic (involuntary) nervous system and to
     a lesser extent the central nervous system, with a variety
     of symptoms.  Confined to children of Eastern European
     Jewish ancestry, familial dysautonomia is a rare and often
     misdiagnosed disease; therefore education of pediatricians
     and parents in early detection and care is a primary
     concern.  The foundation maintains a Dysautonomia
     Treatment and Evaluation Center at New York University
     Medical Center for the benefit of patients and their
     physicians.  A national medical symposium on the disorder
     is held annually for research scientists, clinicians, and
     health professionals.
     
     Information Services:  A variety of printed material is
     available without cost, including handbooks on nursing and
     family care of patients, reprints of articles from both
     professional and lay publications, bibliographies, fact
     sheets and brochures on the disease.  Lists of local
     chapters, schools and camps familiar with the disorder,
     and names of physicians experienced in treating patients
     with the disorder can also be requested.
     
     
     Dystrophic Epidermolysis Bullosa Research
Association of
 America (D.E.B.R.A.)
141 5th Avenue
Suite 7S
New York, NY  10010
(212) 995-2220
      
     Disabilities Served:  All forms of epidermolysis bullosa
     (EB).
     
     Users Served:  Parents, physicians, nurses, social
     workers, geneticists.
     
     The Organization:  D.E.B.R.A. was established in 1979 by a
     small number of parents of children with EB to provide an
     information and support network for patients and their
     families.  One of D.E.B.R.A.'s primary goals is to
     encourage and support research into the causes, treatment,
     and cure of this little understood genetic skin disorder,
     which leads to localized or widespread blistering. 
     Referrals are made to physicians, surgeons, and other
     affected individuals.
     
     Information Services:  The association responds to
     inquiries from patients, their families, and the general
     public, with information packets on the nature of EB,
     research information, and association activities. 
     D.E.B.R.A.'s periodic newsletter (samples are free upon
     request) reports on research findings, local conferences,
     and workshops and gives practical problem-solving advice
     for patients and their family members.  There is a
     suggested membership fee, but any donation is acceptable. 
     Most materials are free.  The association assists families
     in locating local sources of medical, social, and genetic
     counseling.  The organization also sponsors seminars and
     workshops for EB families and health professionals.
     
     
     The EAR Foundation
2000 Church Street
Box 111
Nashville, TN  37236
(615) 329-7807 
(800) 545-HEAR (Voice/TDD)
     
     Disabilities Served:  Hearing and balance impaired.
     
     Users Served:  Hearing and balance impaired persons and
     their families, hearing health professionals, young
     children.
     
     The Organization:  The EAR Foundation is a national,
     nonprofit organization committed to the goal of better
     hearing and balance through public and professional
     education programs, support services, and applied
     research.  The foundation's support programs include the
     nationwide Meniere's Network and the Young EARS Program. 
     The Meniere's Network is a national network of
     patient-organized self-help groups, which allows the
     exchange of experiences and coping strategies associated
     with Meniere's disease.  Young EARS is a program on
     hearing-health preservation designed to educate children,
     parents, and physicians about early detection and
     protecting the precious gift of hearing.  The Minnie Pearl
     Scholarship Fund is a program sponsored by The EAR
     Foundation and Mrs. Henry Cannon, better known as country
     music entertainer Minnie Pearl.  The scholarship is
     awarded annually to hearing-impaired students from all
     across the United States.  The EAR Foundation also
     provides continuing medical education courses to medical
     hearing specialists across the United States, and
     publishes patient-oriented newsletters and various
     brochures and booklets.
     
     Information Services:  The EAR Foundation publishes two
     newsletters--Otoscope and Steady.  Otoscope is The EAR
     Foundation newsletter that covers medical development,
     patient coping strategies, communication methods, and
     information of general interest to the hearing-impaired
     patient.  Steady is the newsletter on Meniere's disease
     that is sent quarterly to members of The Meniere's
     Network.  The newsletter covers strategies for living with
     Meniere's disease, diet, stress, personal patient stories,
     and an update on the network of support groups.
     
     Other booklets include Meniere's Disease:  Coping Skills,
     An Introduction to Meniere's Disease,  A Dietary Guidebook
     for Meniere's Disease, and Four Questions to Ask About
     Your Child's Hearing.  An Introduction to Meniere's
     Disease provides a general overview of the diagnosis,
     natural progression, and widely accepted medical and
     surgical alternatives of Meniere's disease.  Meniere's
     Disease:  Coping Skills covers ways in which families and
     friends, as well as Meniere's patients, can help each
     other cope with this lifestyle altering disease.   A
     Dietary Guidebook for Meniere's Disease includes a
     discussion of sodium, caffeine, nicotine, potassium, and
     alcohol.
     
     
     Educational Resources Information Center (ERIC)
Central ERIC
Office of Educational Research and Improvement
(OERI)
U.S. Department of Education
Washington, DC 20208
(202) 357-6289
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Teachers, administrators, researchers,
     students, general public.
     
     The Organization:  Educational Resources Information
     Center (ERIC) is a decentralized nationwide network,
     sponsored by the U.S. Department of Education and designed
     to collect educational documents and to make them
     available to teachers, administrators, researchers,
     students, and other interested persons.  ERIC is made up
     of 16 Clearinghouses located across the country, each
     specializing in a particular subject area of education. 
     The exact number of Clearinghouses has fluctuated over
     time in response to the shifting needs of the educational
     community.  Central ERIC provides the funding for the
     Clearinghouses and documents processing operations, sets
     policies, and monitors the overall functioning of the
     information system.
     
     The Clearinghouses are responsible for collecting all
     relevant unpublished, non-copyrighted, or
     copyright-released materials of value in their subject
     areas.  These include current research findings, project
     and technical reports, speeches and unpublished
     manuscripts, conference proceedings, and professional
     journal articles.  At the Clearinghouses, these items are
     screened according to ERIC selection criteria, abstracted,
     and indexed.  All of this information is entered in a
     central ERIC computer data base and announced in the ERIC
     reference publications.
     
     Information Services:  All documents entered into the ERIC
     system are listed in the following periodicals:
     
         Resources in Education (RIE), a monthly abstract
     journal   announcing recently completed research reports,
     descriptions of     outstanding programs, and other
     documents of educational      significance, indexed by
     subject, author, and institutional source.   Cumulative
     semiannual indexes are available.  RIE may be ordered  
     from the Superintendent of Documents, U.S. Government
     Printing  Office, Washington, DC 20402.
     
         Current Index to Journals in Education (CIJE), a
     monthly guide to    the periodical literature, with
     coverage of more than 700 major    educational and
     education-related serial publications.  It includes a  
     main entry section with annotations and is indexed by
     subject,  author, and journal title.  Annual cumulative
     indexes are available.   Subscriptions to CIJE are
     available from Oryx Press, 4041 North   Central, Suite
     700, Phoenix, AZ 85012.
     
     The ERIC Document Reproduction Service (EDRS), operated by
     Computer Microfilm International Corporation, 3900 Wheeler
     Avenue, Alexandria, VA 22304, (703) 823-0500, produces
     microfiche and paper copies of most documents announced in
     RIE.  Over 725 institutions and organizations, including
     many libraries, receive complete sets of ERIC documents on
     microfiche.  Sources for items included in RIE, but not
     available from EDRS, are given in the RIE listing.  Copies
     of articles from a majority of the journals regularly
     covered in CIJE are available through the reprint service
     operated by the University Microfilms International.
     
     In addition to searching the ERIC reference publications,
     which are available in many libraries, researchers may
     obtain custom searches of the ERIC data base.  These are
     available from each Clearinghouse.  (See entries for the
     following ERIC Clearinghouses: Adult, Career and
     Vocational Education; Counseling and Personnel Services;
     Elementary and Early Childhood Education; Handicapped and
     Gifted Children; Reading and Communication Skills; and
     Tests, Measurement, and Evaluation.)   Searches may also
     be obtained from one of the libraries, agencies, and other
     organizations that have access to this file.  There are
     advantages in contacting the ERIC Clearinghouse that has
     responsibility for processing documents in the inquirer's
     specific area of interest: (1) the information specialists
     at each Clearinghouse are knowledgeable about the contents
     of the data base in the Clearinghouse's subject area, and
     are therefore able to formulate effective search
     strategies; and (2) each Clearinghouse has a number of
     products in its subject area which it disseminates to its
     users, i.e., short bibliographies, resource lists, and
     newsletters.  
     
     Access points for computerized ERIC searches are listed in
     the Directory of ERIC Information Service Providers,
     available at no charge from the ERIC Processing and
     Reference Facility, 2440 Research Blvd., Suite 400,
     Rockville, MD 20850.  Some of these centers serve only
     specific user groups:  others have no restrictions on
     clientele.  Cost per search and turn-around time vary with
     each center.
     
     Authors of reports, speeches, papers, etc., who would like
     to have their material considered for national
     dissemination through ERIC may forward their contributions
     to the ERIC Processing and Reference Facility.  Documents
     are forwarded to the proper Clearinghouse, screened, and
     if found appropriate, entered in to the ERIC system.
     
     The ERIC data base is available commercially through BRS
     Information Technologies, DIALOG, and Orbit Information
     Services.
     
     
     Educational Testing Service (ETS)
Test Collection
Rosedale Road
Princeton, NJ 08541
(609) 734-5686
     
     Disabilities Served:  Major types of disability.
     
     Users Served:  Teachers, therapists, information
     specialists, graduate students.
     
     The Organization:  The Educational Testing Service (ETS)
     is an educational measurement and research organization
     providing tests and related services for schools,
     colleges, and government agencies.  The ETS Test
     Collection, an extensive library of tests and other
     measurement devices, contains materials on the testing of
     persons with disabilities.
     
     Information Services:   Test Collection bibliographies are
     available, for a charge, in the following areas:  blind
     and visually handicapped, deaf and hearing impaired,
     physically handicapped, brain damaged, mentally retarded,
     identification of learning disabilities, identification of
     emotionally disturbed persons, and vocational measures for
     the handicapped.  In addition, Test Collection staff
     respond to specific inquiries.  A newsletter is published
     quarterly to announce tests recently received, as well as
     to report on new reference sources in testing.  In 1991,
     each issue of the newsletter will be 12 pages.
     
     A data base of 9,000 descriptions of tests is available
     through BRS Information Technologies.  There are charges
     for the newsletter subscription and for computer searches.
     
     
     Educators Publishing Service, Inc.
75 Moulton Street
Cambridge, MA  02238
(617) 547-6706
     
     Disabilities Served:   Learning disabilities.
     
     Users Served:   Teachers, other professionals involved in
     education, parents, and students.
     
     The Organization:   Educators Publishing Service, Inc.,
     specializes in publishing materials for students in grades
     K-12.  It has a particular focus on materials relevant to
     students with learning disabilities.  Most of its
     publications are written by experienced educators.
     
     Information Services:   Educators Publishing Service,
     Inc., publishes materials for classroom as well as for
     individual tutorial use in reading, spelling, vocabulary,
     word attack, listening and study skills, math, grammar,
     compositions, and handwriting and typing.  It also
     publishes professional books about the nature and
     remediation of learning disabilities, as well as
     diagnostic tests and measures.
     
     
     Employment Standards Administration (ESA)
 and Employment and Training Administration (ETA)
Department of Labor (DOL)
200 Constitution Avenue, NW
Washington, DC  20210
(202) 523-6666
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Disabled persons, and general public.
     
     The Organization:   The Department of Labor (DOL) develops
     policy and implements legislation for all workers in the
     Nation.  It is responsible for the enforcement of laws
     that protect the safety, health, job, and pension rights
     of workers.  Each of DOL's 10 regional offices deals with
     issues affecting American handicapped workers and, within
     the Department's units, specialized services are being
     implemented for disabled individuals.
     
     The Employment Standards Administration (ESA) of DOL
     administers programs through the Office of Federal
     Contract Compliance Programs, which processes complaints
     of handicapped individuals in cases of employment
     discrimination by Federal contractors. Complaints can be
     filed personally or by an authorized representative of the
     complaintant, at any of the 10 DOL regional offices.  DOL
     intervenes only when the cases cannot be handled locally. 
     The Wage and Hour Division authorizes subminimum wages
     under the Fair Labor Standards Act to prevent curtailment
     of opportunities for employment for handicapped
     individuals who would not be able to command the minimum
     wage.  The Division of Special Minimum Wages administers
     the regulations governing the employment of handicapped
     clients in sheltered workshops, handicapped workers
     industry, and employment of patient workers based on their
     individual productivity.
     
     The Office of Worker's Compensation Programs administers
     three basic Federal workers' compensation laws, whereby
     Federal employees (if injured on the job) can apply for a
     continued salary and assistance with medical expenses. 
     The Office also administers the Black Lung Act for coal
     mine workers.
     
     The Employment and Training Administration (ETA) of DOL
     includes the U.S. Employment Service (USES) .  USES has
     had a program serving handicapped young people for many
     years.  Agency goals for handicapped workers are equal
     opportunity for employment and equal pay in competition
     with other applicants; employment at the highest skills
     permitted by their occupational qualifications;
     satisfactory adjustment to their chosen occupations and
     work situations; and employment that will not endanger
     others or aggravate their own disabilities.
     
     
     
     Epilepsy Foundation of America (EFA)
4351 Garden City Drive
Suite 406
Landover, MD  20785
(301) 459-3700
(800)-332-1000 (Patient Information & Referral)
(800)-332-4050 (National Epilepsy Library)
     
     Disabilities Served:  Epilepsy and seizure disorders.
     
     Users Served:  Persons with epilepsy and their families,
     teachers, health care professionals.
     
     The Organization:  The Epilepsy Foundation of America
     (EFA) is a national, voluntary organization dedicated to
     the prevention and control of epilepsy and its
     consequences and to helping persons with epilepsy, their
     families, and other concerned individuals overcome the
     problems associated with this condition.  EFA and its 84
     affiliated local groups provide a variety of services and
     programs for the person with epilepsy.  EFA sponsors a
     number of special services such as (1) School Alert,
     designed to improve school environments for children with
     epilepsy by providing materials to help students,
     teachers, and other school personnel understand the
     condition better; (2) National Epilepsy Library, which
     provides information on the medical and psychosocial
     aspects of epilepsy to physicians and other professionals;
     (3)  employment-related services in 50 local affiliates,
     including 13 Training and Placement Service sites; 
     (4) Seed Grant Support and Training, designed to get
     promising research projects started and promising young
     scientists into the field of epilepsy research; (5)
     nationwide toll-free Information and Referral Service to
     patients, families, and interested persons.
     
     Information Services:  EFA provides information on
     epilepsy and its consequences to any person or group
     requesting it.  Areas include (1) information on epilepsy
     for the patient, his or her family, and friends; (2)
     educational material to individuals and groups dealing
     with people with seizure disorders; (3) information on
     employment, including vocational rehabilitation and
     training, rights, hiring and insurance regulations,
     special programs, and the particular needs of some people
     with epilepsy whose seizures are not fully controlled; (4)
     specific information on the rights of persons with
     epilepsy as guaranteed by Federal and State statutes; (5)
     housing information (mostly about discrimination and
     alternative living arrangements, such as group homes); (6)
     transportation information, including Federal and State
     driving regulations; (7) health service information,
     including prevention, diagnosis, treatment,
     rehabilitation, and maintenance; (8) information on
     economic, social, and psychological services, such as
     disability benefits and supplemental security income,
     recreational services, and individual and group counseling
     programs; (9) information on the latest research into the
     causes, treatment, and prevention of seizures; and (10)
     information on Federal and State programs that affect
     people with epilepsy.  Many local affiliates offer similar
     information services.  Some are affiliated with epilepsy
     clinics or work closely with them.  Information on local
     epilepsy clinics is available from EFA.  EFA publishes
     pamphlets, bibliographies, reprints, books, cassettes,
     slides, films, and a newsletter.  The newsletter, National
     Spokesman, is published 10 times a year, covering news and
     developments in research, legal issues, affiliate
     activities, national news, and self-help.  Single copies
     of literature are provided free; there is a charge for
     bulk orders and rentals and sales charges for films and
     audiovisuals.  A limited number of brochures have been
     prepared in braille.  Brochures are available in Spanish;
     some affiliates offer materials in other languages as
     well.
     
     
     ERIC Clearinghouse on Counseling and Personnel
 Services (CAPS)
2108 School of Education Building
University of Michigan
Ann Arbor, MI  48109
(313) 764-9492
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Professionals in counseling and personnel
     services.
     
     The Organization:   The ERIC Clearinghouse for Counseling
     and Personnel Services (CAPS) focuses on resources for the
     professional counselor.  Information relating to the
     continuing education of helping services personnel
     includes the following subject areas:  counselor training,
     development, and evaluation; use of computers in
     counseling; student characteristics and environments;
     family living, divorce and separation; career and life
     planning; self-esteem; eating disorders, sex education;
     suicide, drug education and abuse; and special populations
     such as women, adolescents, older adults, teenage parents,
     minorities, runaways, unemployed youths, juvenile
     delinquents, dropouts, the aged, incarcerated, widowed and
     divorced, and handicapped.  (Information on career
     education for disabled persons is available from the ERIC
     Clearinghouse on Adult, Career, and Vocational Education).
     
     Information Services:   CAPS offers an extensive
     publications brochure for counselors and other helping
     professionals.  CAPS produces a variety of publications
     including monographs such as Comprehensive Guidance
     Programs that Work, Counseling Abused Children, and
     Counseling Young Students at Risk:  Resources for
     Elementary Guidance Counseling.  Digests, practically
     oriented two-page information sheets on numerous topics of
     interest to counselors are also available.  For further
     information call or write the Clearinghouse.  CAPS
     conducts national, State, and local workshops and
     conferences.
     
     CAPS puts out a variety of publications, including
     monographs on specific issues in the helping services, and
     Searchlights Plus, which are computer-produced
     bibliographies on topics of current interest.  Counseling
     The Exceptional:  Handicapped and Gifted,  Searchlight
     32+, contains an article on the state-of-the-art in
     counseling services for the handicapped and gifted persons
     and an annotated listing of over 150 references on the
     subject.  Counseling Exceptional People describes
     practical counseling techniques to use with specific
     disabilities and giftedness.  There is a nominal charge
     for CAPS publications.
     
     CAPS conducts national, State, and local workshops on
     topics of current interest.  These workshops are also
     designed to familiarize participants with ERIC tools and
     materials.  The CAPS Learning Resource Center, open to the
     public, houses the complete ERIC collection, as well as
     professional books, journals, newsletters, and magazines
     on helping services.
     
     The ERIC data base is available commercially through BRS
     Information Technologies, DIALOG, and the System
     Development Corporation.         
     
     
     ERIC Clearinghouse on Elementary and Early Childhood
 Education
College of Education
University of Illinois
805 West Pennsylvania Avenue
Urbana, IL  61801
(217) 333-1386
     
     Disabilities Served:  The Clearinghouse does not focus on
     information relating to handicaps.  Material on
     mainstreaming does, however, fall within the scope of the
     Clearinghouse.
     
     Users Served:  Teachers, researchers and other education
     professionals, childcare providers.
     
     The Organization:  The ERIC Clearinghouse on Elementary
     and Early Childhood Education collects documents about
     child development and behavior from the prenatal period
     through age 12, day care, early childhood education, and
     general aspects of elementary education.  Material on
     mainstreaming falls within the scope of the Clearinghouse. 
     Specific curriculum areas and related fields (such as
     testing, counseling, and administration) are handled by
     other ERIC clearinghouses.
     
     Information Services:  Resource lists, bibliographies,
     papers on topics of current interest, and a newsletter are
     available from the Clearinghouse.  Referrals are made to
     other organizations when appropriate.  There is a charge
     for ERIC searches and some publications.
     
     The ERIC data base is available on-line and CD-ROM through
     BRS Information Technologies, and DIALOG also provides
     ERIC data base on CD-ROM.
     
     
     ERIC Clearinghouse on Handicapped and Gifted
Children (ERIC/EC)
Council for Exceptional Children (CEC)
1920 Association Drive
Reston, VA  22091
(703) 620-3660
     
     Disabilities Served:    All disabilities.
     
     Users Served:  Teachers, other education professionals,
     parents.
     
     The Organization:  Housed at the Council for Exceptional
     Children, the ERIC Clearinghouse on Handicapped and Gifted
     Children processes documents on research, programs,
     evaluation methods, administration, services, teacher
     education, and curricula related to persons with
     disabilities and gifted children and youth.
     
     Information Services:   Searches of the ERIC data base,
     Exceptional Child Education Resources (an in-house data
     base developed at CEC), and other files relevant to
     education may be ordered from the Clearinghouse.  In
     addition, the Clearinghouse produces (1) digests and
     syntheses on topics of current interest and (2) books and
     monographs focusing on emerging trends or research
     analysis.  There is a charge for computer searches and
     publications.  Users are asked not to direct inquiries to
     both CEC and the Clearinghouse, since they would receive
     duplicate responses.  The ERIC data base is available
     commercially through BRS Information Technologies, DIALOG,
     and the System Development Corporation. 
     
     
     ERIC Clearinghouse on Reading and Communication
Skills
150 Smith Research Center
Indiana University
Bloomington, IN  47408
(812) 855-5847
     
     Users Served:   Teachers, specialists in reading and
     communication skills.
     
     The Organization:   The ERIC Clearinghouse on Reading and
     Communication Skills collects, analyzes, and disseminates
     educational information on the language arts and related
     disciplines.  The Clearinghouse is concerned with all
     dimensions of human communication, especially with the
     acquisition of functional competence in reading, writing,
     speaking, and listening at all educational levels and in
     all social contexts.
     
     Information Services:   The Clearinghouse provides
     searches of the ERIC data base on subjects within the
     scope of the Clearinghouse.  There is a charge for
     comprehensive searches and for all publications; sample
     searches, however, are free of charge.  The ERIC data base
     is available commercially through BRS Information
     Technologies, DIALOG, and the System Development
     Corporation.
     
     
     ERIC Clearinghouse on Tests, Measurement, and
 Evaluation
American Institutes for Research
Washington, DC  20007
(202) 342-5060
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Educational professionals.
     
     The Organization:  The ERIC Clearinghouse on Tests,
     Measurement, and Evaluation processes documents in the
     following areas of interest:  (1) tests or other
     measurement devices, (2) measurement or evaluation
     procedures and techniques, (3) research methodology, (4)
     human development (documents concerned only with infancy
     and early childhood are not within the scope of the
     Clearinghouse), and (5) learning theory in general. 
     Documents on subject-referenced learning (i.e.,
     mathematics or language) or learning patterns in specific
     populations (i.e., handicapped or disadvantaged) are
     handled by other ERIC Clearinghouses.  
     
     Information Services:  The Clearinghouse staff assists
     inquirers by providing information on the ERIC system, by
     assisting in the preparation of search strategies, and by
     searching the ERIC data base to prepare customized
     bibliographies.  There is a charge for ERIC searches.  
     
     The Clearinghouse has produced a number of publications on
     testing and evaluation, including measuring attitudes
     toward handicapped people and mainstreaming.  There is a
     charge for bibliographies and for most other Clearinghouse
     publications.
     
     The ERIC data base is available commercially through BRS
     Information Technologies, DIALOG, and the System
     Development Corporation.
     
     
     The Eterna International Foundation
A Division of Medical Educational Social Service
Association (MESSA)
27W560 Warrenville Road
Warrenville, IL  60555
(708) 393-2930
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Disabled persons, parents, teachers,
     professionals.
     
     The Organization:  The Eterna International Foundation is
     a nonprofit corporation that places special emphasis on
     providing services to professionals in the fields of
     medicine and education with an interest in handicapped
     persons, particularly children.  Eterna is a Latin word
     meaning "forever."  The motivating concept behind Eterna
     International is the enduring nature of worthwhile efforts
     directed toward improving the chances for the life,
     health, education, and emotional well-being of children. 
     The foundation's major activities include (1) facilitating
     the collection and dissemination of information helpful to
     those in the service of handicapped children and families
     with special needs, (2) facilitating research aimed at
     benefiting individuals with handicaps and children and
     families with special needs, and (3) encouraging the
     adoption of newborns with handicaps and other medical
     management problems into families willing and able to care
     for them.
     
     Eterna International seeks to promote understanding
     between disciplines through a multidisciplinary approach,
     providing services such as seminars, conferences,
     publications, and media materials.  The foundation
     sponsors annual conferences on pediatric social work and
     on parenting children with handicaps. Eterna International
     assists in the facilitation of clinical studies through
     the production and dissemination of surveys and
     inventories necessary for the research process.
     
     The work of Eterna International is conducted by hundreds
     of volunteer professionals from a wide range of fields
     interested in the welfare, health, and education of
     children with special needs.  Professionals participate
     through editing professional publications, writing
     abstracts and reviews, translating, representing Eterna
     International in other professional organizations, and
     serving as representatives to facilitate collaborative
     studies.
     
     Information Services:  Eterna International publishes
     pamphlets on neural tube defects and the legal rights of
     handicapped newborns.  The organization publishes and
     disseminates numerous periodicals covering a variety of
     topics including spina bifida, pediatric social work,
     literature in medicine and psychology as it relates to
     special education, parenting studies, Down syndrome, the
     institutionalized child, comparative special education,
     international child development, and international
     pediatric chronic illness and disabilities.  Books are
     available on spina bifida, sickle cell anemia, and
     childhood cancer.  In addition, the foundation publishes a
     bibliography and curriculum materials on developmental
     pediatrics.  There is a subscription fee for periodicals
     and a charge for most publications.
     
     
     Eye Bank Association of America, Inc. (EBAA)
1725 Eye Street, NW
Suite 308
Washington, DC  20006
(202) 775-4999
     
     Disabilities Served:   Blindness and visual impairments.
     
     Users Served:   Ophthalmologists, eye researchers, and
     researchers of eye-related problems.
     
     The Organization:   The main purpose of eye banks is to
     procure and distribute eye tissue for corneal
     transplantation and eye research.  The Eye Bank
     Association of America (EBAA) was founded in 1961 by the
     American Academy of Ophthalmology and Otolaryngology (AAO)
     for the purpose of promoting and standardizing eye banks. 
     The EBAA has 98 eye bank members in 46 States, Puerto
     Rico, and Canada.  Members adhere to criteria set by the
     association's medical advisory committee.  This committee
     also certifies technicians working in eye banks.
     
     Information Services:   The EBAA informs its members on
     current issues in the greater transplantation arena and
     proposed Federal policies that may include eye banks under
     its jurisdiction.  The association distributes promotional
     materials to its eye bank members intended to inform the
     public of the needs of eye banks.  The EBAA answers
     inquiries from the public on how to donate eyes for
     corneal surgery and provides national statistics on eye
     banking and tissue supplied for corneal surgery and eye
     research.  The EBAA publishes abstracts of scientific
     papers delivered at the annual meetings of the EBAA and
     the AAO, four eye banking manuals, and Foresight, a
     magazine.  There is a charge for the eye banking manuals.
     
     
     Families of Spinal Muscular Atrophy (SMA)
P.O. Box 1465
Highland Park, IL  60035
(708) 432-5551
     
     Disabilities Served:   Infantile progressive muscular
     atrophy (Werdnig-Hoffmann disease), benign congenital
     hypotonia (Oppenheim's disease), juvenile progressive
     spinal muscular atrophy (Kugalberg-Welander disease),
     adult progressive spinal muscular atrophy (Aran-Duchenne
     type).
     
     Users Served:   Disabled persons and their families,
     physicians, allied health professionals, rehabilitation
     specialists.
     
     The Organization:   Families of SMA is a nonprofit
     organization founded for the purpose of encouraging
     support to those with SMA and their families and raising
     funds to promote research into the causes and cures of
     spinal muscular atrophies.  Funds are specifically
     directed to scientific research projects. newsletters, and
     networking.
     
     Information Services:  Direction, a quarterly newsletter,
     offers information on daily living, education, research,
     and other resources.  A videotape, Living With SMA, is
     also available.
     
     The Family Survival Project (FSP)
425 Bush Street 
Suite 500
San Francisco, CA 94108
(415) 434-3388
(800) 445-8106 (California Only)
     
     Disabilities Served:  Adults with chronic brain disorders.
     
     Users Served:  Cognitively impaired persons, family
     caregivers, teachers, and professionals.
     
     The Organization:  The Family Survival Project (FSP) is a
     nonprofit organization founded to assist families of
     adults who have been stricken with chronic or progressive
     brain disorders (stroke, head injury, Alzheimer's disease,
     etc.).  Its goals include public advocacy for those
     suffering financial and emotional distress, direct
     services of families (mostly in California), and the
     national distribution of information on the care of
     brain-damaged persons.  Through its publications and
     national conferences, the FSP coordinates and provides
     specialized training for professionals, primary care
     givers, and other interested persons to help them
     understand current research activities and treatment
     approaches.
     
     Information Services:  Information for families and
     professionals is available on FSP study results, workshop
     materials, and on adult brain disorders.  Information on
     stroke and Alzheimer's disease is available in Spanish. 
     Available publications include 20 fact sheets on brain
     disorders and caregiving issues, training manuals,
     directories, research reports, annual reports, and more. 
     Please request a publications list.
     
     Information about new training activities, new
     publications, and other services is contained in Update,
     the FSP's quarterly newsletter.  The FSP offers training
     workshops on patient management, diagnosis and treatment,
     long-term care, legal and financial issues, and other
     topics upon request on a fee basis.
     
     The project also maintains a speakers' bureau for media
     interviews, community groups, public hearings, etc. 
     Technical assistance in establishing support groups,
     developing programs, and writing social policy is
     available to groups and organizations on a fee basis.
     
     Fanconi Anemia Research Fund, Inc. (FA)
66 Club Road 
Suite 390
Eugene, OR  97401
(503) 687-4658
     
     Disabilities Served:   Fanconi anemia.
     
     Users Served:   Persons with Fanconi's anemia, their
     families, and medical professionals.
     
     The Organization:  Fanconi Anemia Research Fund, Inc., is
     a nonprofit organization incorporated on February 27,
     1989.  Fanconi anemia is an autosomal recessive genetic
     disorder, which usually results in severe bone marrow
     failure.  This bone marrow failure (acute aplastic anemia)
     typically is diagnosed between the ages of 3 and 12 years
     of age.
     
     The fund offers a variety of personnel support services to
     FA families.  These services include medical referrals,
     family and victim support, and assistance in fundraising
     efforts.  A life-threatening illness can be overwhelming
     and devastating to both patient and family.  The fund
     offers information, services, and emotional support to
     those families.
     
     Information Services:   The FA Family Newsletter is
     published semiannually by Fanconi Anemia Research Fund,
     Inc.  This newsletter reports on recent research efforts,
     reprints letters from FA families, and lists FA families
     who are part of the support network.
     
     
     The Feingold Association of the United States (FAUS)
P.O. Box 6550
Alexandria, VA  22306
(703) 768-FAUS
(800) 321-FAUS
     
     Disabilities Served:  Hyperactivity, ADD, learning
     disabilities, aspirin/salicylate sensitivity, food
     additive sensitivity.
     
     Users Served:  Disabled persons, health care
     professionals, general public.
     
     The Organization:  The Feingold Association of the United
     States (FAUS) was established in 1976 as a nonprofit
     organization for the purpose of helping families of
     children with learning and/or behavior problems and
     chemically sensitive adults.  The association shows
     parents how to determine if their child's disability is
     related to a sensitivity to certain foods or food
     additives.  It is a volunteer organization supporting its
     members in implementing the Feingold Program and
     generating public awareness of the potential role of food
     and synthetic additives in behavior, learning, and health
     problems.
     
     Information Services:  FAUS conducts food research with
     manufacturers to determine which brand name products are
     free of petroleum-based additives (food dyes, the
     preservatives BHA, BHT, TBHQ) and artificial flavorings. 
     This information is published as Foodlist books. 
     Membership materials also include the Feingold Handbook,
     Medication List, Foodlist updates, and a monthly
     newsletter.  Volunteers throughout the country provide
     telephone support and assistance.  A 21-minute videotape
     Impossible Kid?  Possible Answers! describes the program
     and its scientific basis.  Journal abstracts and two
     books--Why Your Child is Hyperactive and The Feingold
     Cookbook --are available through the association. 
     
     
     The 52 Association for the Handicapped, Inc.
350 Fifth Avenue 
Suite 1829
New York, NY  10118
(212) 563-9797
     
     Disabilities Served:   Amputees, paraplegics, blind, and
     other physically handicapped individuals who use
     wheelchairs.
     
     Users Served:   Volunteer and professionals in sports and
     therapeutic rehabilitation.
     
     The Organization:   The 52 Association was founded in 1945
     to offer post-therapeutic recreation and rehabilitation
     for physically injured veterans.  In 1975, the association
     included physically limited civilians into its programs. 
     The association owns and operates a 41-acre sports and
     recreation center in Ossining, New York, where more than
     8,000 amputee, paraplegic, and blinded veterans
     participate in Confidence-through-Sports programs at this
     unique facility.  Winter programs include amputee and
     blind Learn-to-Ski clinics nationwide.  All programs are
     offered free of charge to participants.
     
     Information Services:   The association provides an
     11-minute videotape describing its
     Confidence-through-Sports programs to organizations,
     prostheticists, and therapeutic recreation organizations
     interested in the association's programs.  Brochures and
     annual reports are also available.
     
     
     Foundation for Hospice and Homecare
519 C Street, NE
Stanton Park
Washington, DC  20002
(202) 547-6586
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Home health care professionals,
     paraprofessionals, and consumers.
     
     The Organization:   The Foundation for Hospice and
     Homecare, established in 1978, promotes hospice and home
     care; establishes responsible standards of care; develops
     programs that assure the proper preparation of caregivers;
     conducts research on aging, health, and social policies;
     educates the public; and recognizes the achievements of
     those men and women who have spent their lives attempting
     to better our society.
     
     Information Services:   The foundation, together with
     other national, State, and local health and welfare
     agencies, works to promote a better understanding of the
     benefits of homemaker home health services.  A series of
     conferences and seminars are conducted each year to
     educate caregivers.  Chief among these is the annual
     Leadership and Management Conference.  An extensive
     catalog of educational materials for consumers and
     caregivers is prepared and distributed, including the
     Model Curriculum and Teaching Guide for the Instruction of
     the Homemaker Home Health Aide and free consumer guides,
     such as A Consumer's Guide to Hospice Care and All About
     Home Care.  These provide the public with essential
     answers to basic questions regarding hospice and home
     care.  Research related to AIDS, fact-finding forums, and
     compiling of statistical analyses of the hospice and home
     care industries are conducted on an ongoing basis. 
     Individuals can contact the foundation for assistance in
     locating accredited homemaker home health aide services in
     their area.
     
     
     Foundation for Science and the Handicapped, Inc.
(FSH)
1141 Iroquois Avenue 
Suite 114
Naperville, IL  60563
(708) 357-7908
     
     Disabilities Served:   All handicaps.
     
     
     
     Users Served:  Disabled persons, parents, teachers,
     counselors, rehabilitation professionals.
     
     The Organization:   The Foundation for Science and the
     Handicapped (FSH) was established in 1977 by a group of
     disabled scientists.  The foundation seeks to improve the
     quality and accessibility of the educational system for
     handicapped individuals, especially in the various areas
     of science.  Major goals are to build a network that will
     support handicapped scientists throughout their lives and
     involve foundation members in advisory committees in
     academic institutions, government, and industry.  The
     foundation works closely with the American Association for
     the Advancement of Science.
     
     Information Services:  FSH acts as a clearinghouse for
     information on science, education, technology, and careers
     for handicapped persons.  The foundation publishes a
     newsletter five to six times per year, reporting on varied
     news items of interest to disabled scientists and
     students.  Free to members, it is also available on tape. 
     A book ABLE SCIENTISTS - DISABLED PERSONS:  Biographical
     Sketches by S. Phyllis Stearner, Ph.D., is also available
     through the foundation.  It describes the lives and
     achievements of 27 disabled scientists and students of
     science who are overcoming obstacles imposed by their
     disabilities and are carrying on careers and studies in
     their chosen fields.  The book serves as an inspiration to
     disabled students and their parents, teachers, and
     counselors.  The foundation also maintains the Student
     Grant Program, through which $1,000 grants (three in 1990)
     are awarded to physically disabled students accepted by or
     attending a graduate university or professional school,
     majoring in an area of science, mathematics, medicine, or
     engineering.  Information about membership and services
     can be obtained by writing the foundation at the above
     address.
     
     
     Gallaudet University
800 Florida Avenue, NE
Washington, DC  20002
(202) 651-5000
     
     Disabilities Served:   Hearing and related impairments.
     
     Users Served:   Disabled persons, parents, teachers,
     professionals, and the general public.
     
     The Organization:   Established by an act of Congress,
     signed by President Abraham Lincoln in 1864, Gallaudet
     remains the only accredited liberal arts university for
     the deaf in the world.  The college offers bachelor degree
     programs in 50 subject areas, master's programs in 20, and
     Ph.D. degrees in three areas.  Students with normal
     hearing are admitted as exchange or graduate students
     only.  In addition to the University, a Division of
     Pre-College Programs, a Division of Graduate Studies and
     Research, a Division of College Relations, the National
     Center for Law and the Deaf, and the National Information
     Center on Deafness now offer a wide range of services and
     information in the field of hearing impairments.
     
     
     Gazette International Networking Institute (GINI)
4502 Maryland Avenue
St. Louis, MO  63108
(314) 361-0475
     
     Disabilities Served:   Physical disabilities.
     
     Users Served:   Disabled persons, physicians, physical
     therapists, occupational therapists, respiratory
     therapists, social workers, nurses, rehabilitation
     counselors.
     
     The Organization:   Gazette International Networking
     Institute (GINI) was created in 1983 as an umbrella agency
     to continue the publication of the Rehabilitation Gazette,
     an international journal for people with disabilities. 
     Other objectives of the organization are to reach, inform,
     encourage, and dignify people with disabilities and to
     promote a positive attitude toward disabled individuals. 
     GINI maintains an international clearinghouse for
     dissemination of information to disabled individuals and
     health care professionals, with special emphasis on polio
     survivors, ventilator-assisted living, spinal cord injury,
     and independent living.  GINI also convenes international
     conferences on postpolio problems and independent living
     which bring together physicians and disabled individuals
     on an equal basis.  Membership is also available in the
     International Polio Network through GINI for an annual
     fee.
     
     Information Services:   Annually, GINI publishes the
     Rehabilitation Gazette, a biannual newsletter which is
     written by individuals with physical disabilities and
     focuses on independent living for physically disabled
     persons, especially polio survivors, spinal cord injured,
     ventilator users, and others with neuromuscular diseases
     and disabilities.  The institute also publishes I.V.U.N.
     News for ventilator users, a biannual newsletter, which
     covers GINI activities, polio support groups, and items of
     interest for ventilator users.  Other publications include
     Handbook on the Late Effects of Poliomyelitis for
     Physicians and Survivors, Proceedings, 2nd International
     Post-Polio Conference, 1983, and Proceedings, 3rd
     International Polio Independent Living Conference, 1985. 
     There is a charge for most publications.  Polio Network
     News, a quarterly newsletter containing information on or
     about polio and its late effects, is also available. 
     Referrals are made to individuals with the same
     disability, physicians, hospitals, agencies, independent
     living centers, and libraries.
     
     
     Gesell Institute of Human Development
310 Prospect Street
New Haven, CT  06511
(203) 777-3481
     
     Disabilities Served:   Learning and developmental
     disabilities.  
     
     Users Served:   Teachers, parents, health care
     professionals.  Serves as a referral source to
     professionals outside the institute for visual handicaps,
     allergies and nutritional problems, mental and emotional
     disorders, speech and language problems.
     
     The Organization:   Originally the Gesell Institute of
     Child Development, the institute changed its name in 1979
     to Gesell Institute of Human Development.
     
     The institute advocates Gesell's philosophy of grouping
     schoolchildren according to behavioral maturation instead
     of chronological age.  Workshops are offered around the
     country to train educators in the use of the Gesell
     Developmental Assessments and appropriate curriculum
     programs in the early childhood years.  A clinical service
     for children 2 to 12 years of age is provided for
     developmental, psychological, and educational testing.
     
     Information Services:   Brochures describing the services
     of the institute, application forms for evaluation, and a
     publication list of books written by staff members can be
     requested.  Professionals, parents, handicapped persons
     and their families are welcome to inquire by phone or mail
     about services or to request referrals to local resources. 
     While most information is free of charge, there is a
     nominal cost for publications.  Fees for services vary.
     
     Girl Scouts of the U.S.A.
Services for Girls with Disabilities
830 Third Avenue
New York, NY 10022
(212) 940-7500
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Girls, ages 5 through 17.
     
     The Organization:  Girl Scouting is open to all girls ages
     5 through 17 (or kindergarten through grade 12).  Girl
     Scouts of the U.S.A. does not have a separate program for
     girls with disabilities.  The aim of its services for
     girls with disabilities is to make the troop and camp
     experience of girls with disabilities as much like that of
     other girls as possible.  This is achieved by mainstreamed
     troop situations for girls with disabilities when the
     situation indicates this placement and by flexible
     adaption of program resources based on individual
     strengths of each girl in all situations.  There are no
     "special" or different activities in Girl Scouting for
     girls with disabilities; regular activities such as
     camping, sports and recreation, arts, service, and
     learning skills are adapted to suit the abilities and
     limitations of individual girls.
     
     The Girl Scouts of the U.S.A. is a private, nonprofit
     organization with a national headquarters and 333 Girl
     Scout Councils chartered by the National Board of
     Directors.  Membership includes approximately 3,000,000. 
     The overall aim of GSUSA is to inspire each girl to
     develop her own sense of values and sense of worth as an
     individual.
     
     Information Services:  The Girl Scouts organization
     publishes various literature, including Girl Scout Leader
     Magazine.  A publications and audiovisuals catalog is
     available, as is a new publication, Focus on Ability: 
     Serving Girls with Special Needs. 
     
     
     Goodwill Industries of America, Inc. (GIA)
9200 Wisconsin Avenue
Bethesda, MD  20814
(301) 530-6500
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Disabled persons, vocational and
     rehabilitation specialists, employers.
     
     The Organization:  Goodwill Industries of America, Inc.
     (GIA) is an international, nonprofit organization.  The
     members of GIA are 178 community-based, autonomous
     organizations in the United States and Canada that use the
     Goodwill Industries name.  Additionally, there are 44
     affiliated members in 30 nations outside North America.
     
     Local Goodwill Industries organizations provide vocational
     evaluation, training, employment, and job placement
     services for disabled persons.  Direction for each agency
     is provided by local volunteers, with programs designed by
     professional staff members to meet the needs of both the
     individual client and the community.
     
     Information Services:  Manuals, statistical data, and
     other administrative information, as well as consultation,
     are available from the corporate office to assist local
     organizations or groups interested in establishing new
     Goodwill centers.  Brochures explaining Goodwill services
     to employers and business contractors may be ordered.
     
     
     Greater Detroit Society for the Blind
4-Sights Network
16625 Grand River Avenue
Detroit, MI  48227
(313) 272-3900 (Voice)
(313) 272-7111 (Modem)
     
     Disabilities Served:   Blind and visually impaired
     persons, blind and multiply impaired blind.
     
     Users Served:  Blind and visually impaired persons,
     parents, teachers, rehabilitation counselors and other
     personnel, opthalmologists, optometrists, health
     professionals.
     
     The Organization:   The 4-Sights Network is a national
     computer network for the blind focusing on education,
     rehabilitation, vocational information, and professional
     information.  It is a service of the Greater Detroit
     Society for the Blind, a private nonprofit agency serving
     southeast Michigan, and a national audience via the
     4-Sights Network.
     
     Information Services:   4-Sights focuses on collecting and
     disseminating information of concern to the blind and
     professionals interested in blindness.  The network was
     created in 1985 and offers a 24-hour-a-day,
     seven-days-a-week resource.  4-Sights offers computer
     conferences on technology, low vision conditions,
     education, occupations, multiply handicapped blind
     resources, and others.  It provides occupational
     information including the Occupational Information Library
     for the Blind (OILB), a compendium of 500 jobs
     successfully performed by the blind, and the Michigan
     Occupational Information System, a directory to
     occupations in which people with or without a disability
     are employed.  Access to a technology publication
     otherwise available only in print is provided to serve the
     technology information needs of blind users.  There is no
     online charge to use the system. The only cost at present
     is the phone call to Detroit.
     
     
     Group Health Association of America, Inc. (GHAA)
1129 Twentieth Street, NW
Suite 600
Washington, DC  20036
(202) 778-3200
     
     Disabilities Served:   General disability.
     
     Users Served:   Health care organizations.
     
     The Organization:   Group Health Association of America,
     Inc., (GHAA) has represented the health maintenance
     organization (HMO) industry since 1959.  Membership in
     GHAA is open to all prepaid health care organizations that
     meet the associations' standards for quality assurance,
     financial solvency, and comprehensiveness of benefits. 
     GHAA's member plans represent all HMO models--IPA's, staff
     models, group models, mixed models, and networks.  GHAA
     provides legislative representation, legal council,
     educational programs, research and analysis, library
     services, and publications.
     
     Information Services:   The Group Health Institute, held
     annually for the past 40 years, highlights a yearly
     calendar of 25 educational programs that promote
     professional development in all disciplines in the field. 
     GHAA's publications include a bimonthly magazine and
     biweekly newsletter.  The library houses an extensive
     collection of works on prepaid managed care.
     
     
     Guide Dog Foundation for the Blind, Inc.
371 East Jericho Turnpike
Smithtown, NY  11787
(516) 265-2121
(800) 548-4337
     
     Disabilities Served:   Blindness.
     
     Users Served:  People with all degrees of visual
     impairment from legal to total blindness (age 16 and up).
     
     The Organization:   Established in 1946 as private
     nonprofit organization, the Guide Dog Foundation for the
     Blind, Inc., furnishes guide dogs free of charge to
     qualified people who seek the independence, mobility, and
     companionship a guide dog provides.  There is no charge
     for the dog, the dog's equipment, training, the student's
     training in residence, and comprehensive aftercare for
     graduates.
     
     Information Services:  The Guideway is the official
     publication of the foundation (published quarterly).  A
     variety of pamphlets and flyers are available, describing
     all programs (such as dog sponsorship and puppy walking). 
     Also available are an 18-minute and a 7-minute color video
     cassette about the foundation.  Audio cassettes are
     available for general information and one specifically to
     aid a blind applicant in the application process.
     
     
     Hadley School for the Blind 
700 Elm Street
Winnetka, IL  60093
(708) 446-8111
     
     Disabilities Served:  Blindness and deaf-blindness.
     
     Users Served:  Disabled persons.
     
     The Organization:  The Hadley School, which offers over
     100 correspondence courses free for blind persons of all
     ages, was founded in 1920 by William A. Hadley, a blind
     high school teacher.  Hadley now has offices in South
     America, Europe, India, Africa, and China.  Courses are
     offered according to the locale and in the native
     language.  Both credit and self-improvement courses are
     offered at no charge to blind or deaf-blind students
     through braille or cassettes.  Hadley's school curriculum
     covers six course areas:  academic, personal enrichment,
     compensatory and rehabilitation, technical education,
     vocational, and parent-child.  Begun in 1984, the
     parent-child program helps sighted parents learn how to
     give their visually handicapped child hope and future
     success.  One-to-one tutoring by correspondence or
     telephone supplements the lesson materials.  Hadley
     courses are accredited by the North Central Association of
     Colleges and Schools and the National Home Study Council,
     and it is possible to earn a high school diploma by
     correspondence.
     
     Information Services:  Catalog in large print, braille, or
     on cassette list secondary level and self-improvement
     courses ranging from career planning to classical Greek. 
     
     
     Handicapped Educational Exchange (HEX)
11523 Charlton Drive
Silver Spring, MD   20902 
(301) 593-7033 (TDD & 300)
(301) 593-7357 (300 & 1200)
(301) 681-7372 (Voice)
     
     Disabilities Served:   All disabilities.
     
     Users Served:   Disabled persons and health care
     professionals.
     
     The Organization:   The Handicapped Educational Exchange
     (HEX) computer bulletin board is a clearinghouse for
     information on resources available to aid people who are
     disabled.  It lists sources of hardware and computer
     software, conferences and seminars dealing with handicaps
     and special education, newsletters, user groups, etc. 
     Callers can leave public or private messages to make
     announcements, ask questions, or exchange information.
     
     The HEX is available 24 hours a day at the computer
     numbers listed above.
     
     Information Services:   HEX does not operate by mail;
     there are no publications, no catalogs, and no mailing
     list.  There is also no charge although contributions
     toward operating expenses are welcome.
     
     
     Health Care Financing Administration (HCFA)
East Highrise Building
Room 793
6325 Security Boulevard
Baltimore, MD  21207
(301) 594-9732
     
     Disabilities Served:   All handicaps.
     
     Users Served:  Elderly and disabled persons and those with
     low incomes.
     
     The Organization:   The Health Care Financing
     Administration (HCFA) was created in 1977 to oversee two
     major Federal medical assistance programs, medicare and
     medicaid.  Medicare provides health insurance to persons
     over 65 and to disabled persons under 65 who meet the
     Social Security Disability Insurance (SSDI) requirements
     or who have permanent kidney failure.
     
     Medicaid is a Federal/State program that provides health
     care services to persons with low incomes.  HCFA
     administers the Federal portion of the program.  Disabled
     persons may be eligible for medicaid on the basis of their
     incomes.  Because eligibility is determined by each
     State's program of public assistance (welfare) on the
     basis of broad Federal guidelines, there are geographic
     differences between eligibility requirements and types of
     service covered.  Medicaid services are available in all
     States and in Guam, Puerto Rico, and the Virgin Islands,
     District of Columbia, American Samoa, and the Northern
     Mariana Islands.
     
     Information Services:   HCFA responds to inquiries from
     the general public.  This includes basic information about
     medicare and medicaid.
     
     
     HEALTHSOUTH Rehabilitation Corporation
Two Perimeter Park South
Birmingham, AL  35243
(205) 967-7116
(800) 768-0018
     
     Disabilities Served:  Spinal cord and head injuries,
     musculoskeletal trauma and orthopaedic conditions, sports
     and work-related injuries, stroke, arthritis, neurological
     and neuromuscular disabilities.
     
     Users Served:  Patients with the above listed
     disabilities, including support services for their family
     members.
     
     The Organization:  HEALTHSOUTH Rehabilitation Corporation
     was established in 1984 to build a national rehabilitation
     network of inpatient and outpatient rehabilitation
     facilities that are capable of providing the full spectrum
     of medical rehabilitation services.  All HEALTHSOUTH
     facilities offer comprehensive medical rehabilitation
     services; coordinated, interdisciplinary team approach;
     physician direction and supervision; top quality,
     highly-motivated rehabilitation professionals;
     state-of-the-art technology and techniques; and spacious,
     barrier-free physical environments.
     
     HEALTHSOUTH operates 52 locations in 21 States, with a
     network of 1,400 beds and employee base of 3,500.  Since
     the company's founding, the comprehensive rehabilitation
     network has provided services to more than 100,000
     patients and experienced more than a million outpatient
     visits.
     
     Information Services:  HEALTHSOUTH publishes newsletters
     for medical professionals and is expanding its national,
     regional and local speakers' bureaus, to address
     medical/rehabilitation topics, current treatments, and
     technical innovations. 
     
     
     Hearing Information Center
90 South Newtown Street Road
Suite 14
Newtown Square, PA  19073
(800) 622-EARS
     
     Disabilities Served:   Hearing loss and hearing disorders.
     
     Users Served:   Hearing impaired and friends and family of
     hearing impaired.
     
     The Organization:   The Hearing Information Center is
     sponsored by Sensor Medical Hearing Aids and Hearology
     Associates in an effort to increase hearing health
     awareness on a national level.  All information and
     literature given to callers is generic and does not
     promote a specific product.
     
     Information Services:   The Hearing Information Center
     provides free information and literature about hearing
     loss, hearing aids, hearing tests, and rehabilitation. 
     Free local audiological and medical referral is given to
     those who request further help.  Callers can also be
     directed to other support groups and organizations for
     assistance.  The center keeps abreast of free hearing
     tests being offered in different cities and will direct
     callers when appropriate.
     
     
     Helen Keller International, Inc. (HKI)
15 West 16th Street
New York, NY  10011
(212) 807-5800
     
     Disabilities Served:    Blindness and visual impairment in
     selected third world countries.
     
     Users Served:    Officials, government agencies and
     private voluntary agencies concerned with blindness,
     blindness prevention and sight restoration in developing
     countries.
     
     The Organization:   Helen Keller International (HKI),
     founded in 1915 by Helen Keller and other Americans,
     assists  governments in their efforts to prevent
     blindness; to educate children, with an emphasis on
     mainstreaming; and to rehabilitate blind adults so that
     they can live independently.  HKI concentrates its efforts
     in developing nations with the goal of strengthening the
     ability of each country to establish indigenous programs. 
     HKI is also engaged in operations research and
     intervention projects to control xerophthalmia, an eye
     disease caused by malnutrition and lack of vitamin A, and
     trachoma and other infectious eye diseases.  The agency
     also helps establish surgical services that restore sight
     to people who are cataract-blind.  HKI's blindness
     prevention projects are being integrated into primary
     health care programs wherever feasible.
     
     Information Services:    HKI shares its expertise with
     officials and private voluntary agencies from nations
     everywhere who need information on the prevention of
     blindness, services for blind people, and the education of
     visually handicapped children.  The Insight, published
     periodically, contains articles on HKI activities and
     overseas projects.  Brochures on the organization's
     programs are available free of charge.
     
     
     Helen Keller National Center for Deaf-Blind
 Youths and Adults (HKNC)
111 Middle Neck Road
Sands Point, NY  11050
(516) 944-8900
     
     Disabilities Served:   Deaf-blindness with accompanying
     disabilities.
     
     Users Served:   Disabled persons, parents, teachers,
     social workers, rehabilitation counselors, interpreters,
     and other professionals.
     
     The Organization:   Operated by Helen Keller Services for
     the Blind, formerly the Industrial Home for the Blind,
     under an agreement with the Rehabilitation Services
     Administration of the U.S. Department of Education, the
     Helen Keller National Center for Deaf-Blind Youths and
     Adults (HKNC) was authorized by a 1967 Amendment to the
     Vocational Rehabilitation Act and is funded by annual
     congressional appropriations.  Extensive evaluative and
     rehabilitative services are provided to deaf-blind youths
     and adults, 18 or older.  Individualized prevocational
     training in orientation and mobility, communication and
     life skills, as well as in other areas, is conducted in a
     residential setting for up to 50 clients at a time, for
     periods ranging from several months to several years.  A
     major effort is made to develop and assist in the
     appropriate placement of clients in work settings, when
     training is completed.  Mobility and orientation to both
     work and residential settings are similarly provided.  The
     Center conducts research in personal adjustment,
     education, and rehabilitation techniques and offers
     training in the field and at headquarters to new and
     prospective professionals who plan to work with the
     deaf-blind population.
     
     HKNC operates an extensive nationwide network of field
     services through its 10 regional offices and its many
     affiliated programs.  The regional offices provide
     consultation and technical assistance to deaf-blind
     persons and their families and to public and private
     agencies in their regions.  They locate, assist, and refer
     deaf-blind individuals to the most appropriate program for
     comprehensive services.  The 10 offices, listed in the
     telephone directories, are found under "Helen Keller
     National Center" in Sands Point, New York; Prospect Park,
     Pennsylvania; Atlanta, Georgia; Chicago, Illinois; Dallas,
     Texas; Kansas City, Missouri; Denver, Colorado; Seattle,
     Washington; Boston, Massachusetts; and San Francisco,
     California.
     
     Information Services:   Consultations and referrals may be
     requested from the national or regional offices.  For
     information on direct services, contact the Supervisor,
     Direct Services, at the Sand Point address.  A reference
     library at the Helen Keller National Center may be used by
     appointment.  Rehabilitation activities of the Center are
     described in brochures; a periodical, NAT-CENT NEWS,
     published three times a year; and two captioned films,
     Raising the Curtain and The World at His Fingertips.  The
     Center also publishes the Directory of Agencies Serving
     the Deaf-blind.
     
     Pamphlets, factsheets, bibliographies, indexes, and
     abstracts of articles on deaf-blindness and rehabilitation
     for professionals and laymen are available.  Some
     information is available in braille.  There is a charge
     for some materials.  Application forms for referral to the
     Center may be obtained from the local regional office or
     from the Intake Coordinator, Helen Keller National Center
     at the above address.
     
     
     Hemochromatosis Research Foundation, Inc. (HRF)
P.O. Box 8569
Albany, NY  12208
(518) 489-0972
      
     Disabilities Served:  Hemochromatosis (hereditary and
     acquired).
     
     Users Served:  Patients with hemochromatosis and their
     families, physicians and nurses, blood banks, and genetic
     organizations.
     
     The Organization:  Hereditary hemochromatosis (HH) is a
     genetic disorder in which there is an increased absorption
     of dietary iron above body needs.  Since the body has no
     way of ridding itself of excess iron once absorbed except
     by blood loss, iron accumulates in the liver, heart,
     pancreas and other hormonal glands, and joints causing
     serious complications and, if undiagnosed and untreated,
     sometimes early death.  Acquired hemochromatosis is
     secondary to a primary medical condition, such as chronic
     anemia and chronic liver disease.  The goals of the
     Hemochromatosis Research Foundation, Inc., (HRF) include
     (1) increasing the awareness of the public and medical
     community of HH, its commonality, diagnosis and treatment;
     (2) encouraging routine use of screening tests by
     physicians; (3) promoting research aimed at identifying
     the genetic defect(s) causing the increased iron
     absorption and at understanding the toxic effects of iron;
     and (4) soliciting funds for screening, prevalence
     studies, and research.  HRF refers patients and families
     to clinics, hospitals, and physicians, as necessary. 
     Chapters of HRF are being formed in about 20 States.
     
     Information Services:  HRF has produced booklets and
     videotapes for patients and the public on the nature of
     hemochromatosis, frequency, diagnosis, treatment, etc. and
     booklets for physicians that include additional
     information on treatment monitoring and a bibliography of
     medical journals.  Booklets are available in braille
     through the Library of Congress, and the physician's
     booklet is available in Spanish.  A quarterly newsletter,
     Hemochromatosis Awareness, provides an update on
     hereditary and acquired iron overload, through case
     presentation; articles; news of research developments; and
     a question and answer section.  Information is free, but
     requests for booklets should be accompanied by a
     self-addressed and 52-cent stamped envelope.
     
     
     High Blood Pressure Information Center (HBPIC)
National High Blood Pressure Education Program
120/80 National Institutes of Health
Bethesda, MD  20892
(301) 496-1809
     
     Disabilities Served:   High blood pressure (hypertension),
     high blood cholesterol, asthma, chronic smokers.
     
     Users Served:   Cardiologists, specialists in internal
     medicine, family practice nurses, physicians' assistants,
     health educators, lay public.
     
     The Organization:  The High Blood Pressure Information
     Center (HBPIC) is a service offered by the National Heart,
     Lung, and Blood Institute (NHLBI) of the National
     Institutes of Health.  The Information Center supports
     four major educational efforts:  the National High Blood
     Pressure Education Program, the National Cholesterol
     Education Program, the National Blood Resource Education
     Program, and the NHLBI Smoking Education Program.  As your
     source for the most current information on high blood
     pressure, cholesterol, smoking, and blood resources, the
     Information Center provides services to health
     professionals as well as the general public.   The
     following products and services are available free of
     charge.  Just pick up the telephone, drop the Center a
     card or letter, or pay the Center a visit.
     
     Information Services:   Subject specialists at the HBPIC
     provide information in response to public and professional
     inquiries.  Responses may include publications,
     bibliographies, program descriptions, referrals to other
     agencies or organizations, and specific answers to many
     questions on high blood pressure, cholesterol, and
     smoking, as well as blood resource issues.
     
     
     Higher Education and Adult Training for People with
Handicaps
 (HEATH) Resource Center
National Clearinghouse on Postsecondary Education
 for Individuals with Handicaps 
One Dupont Circle, NW
Suite 800
Washington, DC 20036
(202) 939-9320 (Voice/TDD)
(800) 544-3284 (Outside Washington, DC)
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Disabled persons, parents, teachers, allied
     health specialists, psychologists, psychiatrists,
     counselors, rehabilitation specialists.
     
     The Organization:  The Higher Education and Adult Training
     for People with Handicaps (HEATH) Resource Center, which
     receives funding from Special Education Programs, U.S.
     Department of Education, is a clearinghouse and
     information exchange center for resources on postsecondary
     education programs and handicapped persons.  The HEATH
     Resource Center operates the National Clearinghouse on
     Postsecondary Education for Individuals with Handicaps. 
     Topics covered include educational support services,
     policies, procedures, adaptations, and opportunities on
     American campuses, vocational-technical schools, adult
     education programs, independent living centers, and other
     training entities after high school.  The Center is a
     program of the American Council on Education.  Another
     clearinghouse, National Information Center for Children
     and Youth with Handicaps, handles the concerns of younger
     disabled persons through secondary school.  
     
     Information Services:  The Center disseminates information
     on programs, publications, and persons with expertise in
     many areas of concern about education and training after
     high school for persons with handicaps.  Factsheets and
     research papers are available on a variety of topics
     including access, computers, counseling, employment,
     financial aid, hearing impairment, learning disability,
     severely handicapped, testing in the classroom, and
     vocational rehabilitation.  HEATH publishes a newsletter,
     Information from HEATH, three times a year which includes
     information about laws, regulations, court cases, campus
     highlights, new resources, and issues of general interest. 
     A biannual resource directory contains an annotated
     listing of over 100 national organizations that can
     provide additional information on postsecondary education
     and handicapped individuals.  There is no charge for HEATH
     publications and materials.  All HEATH publications are
     available on cassette from the Regional Libraries of the
     National Library Service for the Blind and Physically
     Handicapped as well as by request to the HEATH Resource
     Center.
     
     
     Highway Research Information Service (HRIS)
Transportation Research Board
2101 Constitution Avenue, NW
Washington, DC  20418
(202) 334-3250
     
     Disabilities Served:  Primarily physical handicaps.
     
     Users Served:  Transportation professionals. 
     
     The Organization:  Developed by the Transportation
     Research Board (TRB) and the National Academy of Sciences,
     with financial support from the State highway and
     transportation departments and the Federal Highway
     Administration, the Highway Research Information Service
     (HRIS) is a computer-based information storage and
     retrieval system.  This file contains bibliographic
     information, including abstracts on articles, books,
     reports, and summaries of ongoing research projects from
     more than 1,000 United States and foreign sources, among
     which are the National Technical Information Service and
     the U.S. Department of Transportation.  There are more
     than 145,000 records in the file on administration,
     planning, design, forecasting, finance, user needs, law,
     safety, vehicles, and other topics.  Materials on the
     transportation of disabled persons includes the design of
     buses and other vehicles that accommodate handicapped
     persons, transportation programs for special populations,
     and street crossing and signal systems.
     
     Information Services:  Inquirers may obtain custom
     searches of the HRIS data base.  Only material entered in
     the file since January 1970 is searched, unless the
     requestor asks that older material be included.  The TRB
     staff also supplies referrals and supplemental material,
     including TRB publications.  HRIS current awareness
     service provides monthly printouts of recent additions to
     the data base in standard subject areas and on
     custom-designed topics.  In addition, HRIS publishes
     Highway Research Abstracts, formerly HRIS Abstracts, a
     quarterly publication containing informative abstracts of
     journal articles, research reports, and technical papers
     and announcements of bibliographies on United States and
     foreign research.  There is a charge for HRIS searches and
     publications.
     
     The HRIS data base and other transportation-related
     material may be accessed through Transportation Research
     Information Services (TRIS), data base number 63,
     available from DIALOG.
     
      
     Housing for Elderly and Handicapped People Division
451 7th Street, SW
Room 6116
Washington, DC  20410
(202) 708-2866
     
     Disabilities Served:   All disabilities.
     
     Users Served:   Disabled persons, special interest groups,
     private nonprofit organizations.
     
     The Organization:   The Housing for Elderly and
     Handicapped People Division administers the Section 811
     Program - Supportive Housing for Persons with
     Disabilities.  This program provides capital advances to
     private, nonprofit organizations for the development of
     housing with supportive services for people who are
     physically disabled, developmentally disabled, or
     chronically mentally ill.  Project rental assistance funds
     are also provided so that residents pay no more than 30
     percent of their  adjusted incomes for rent.  Types of
     housing that may be developed include small group homes
     serving a maximum of 8 people and independent living
     facilities consisting of individual apartment units for no
     more than 20 people per facility.
     
     Information Services:   The Division responds to inquiries
     and provides written information concerning the Section
     811 program as well as other HUD programs that can be used
     by and for disabled people.
     
     
     HUD User
P.O. Box 6091
Rockville, MD  20850
(301) 251-5154
(800) 245-2691
      
     Disabilities Served:  All handicaps.
     
     Users Served:  Disabled persons, housing and community
     development professionals, general public.
     
     The Organization:  Established in 1978, HUD User is an
     information service operated for the Office of the
     Assistant Secretary for Policy Development and Research
     (PD&R), Department of Housing and Urban Development, by
     Aspen Systems.  PD&R is responsible for undertaking
     programs of research, testing, and demonstrations related
     to housing and community development.
     
     The HUD User data base contains bibliographic information,
     including abstracts, on PD&R reports and on studies
     conducted by PD&R contractors.  Among the subject areas
     covered by the file are building technology, community
     development, economic development and public finance, and
     energy and utilities.  Some of the material is on
     barrier-free access and the housing needs of elderly and
     handicapped persons.
     
     Information Services:  Personalized searches of the HUD
     User data base are available; printouts contain
     information on how to obtain copies of documents.  While
     most of the publications announced in the above
     periodicals and contained in the HUD User data base are
     geared to professionals, titles on energy conservation,
     housing needs, and other high interest areas are designed
     for lay persons.  Copies of many documents may be obtained
     from HUD User.  Others must be purchased from the U.S.
     Government Printing Office, Washington, DC  20402 or the
     National Technical Information Service.  There are
     document handling charges and charges for computerized
     literature searches.  Prepayment is required.
     
     
     Human Growth Foundation (HGF)
7777 Leesburg Pike
Suite 202S
Falls Church, Virginia 22043
(703) 883-1773
(800) 451-6434
     
     Disabilities Served:   Growth disorders.
     
     Users Served:  Families, pediatricians, pediatric
     endocrinologists, researchers in the field of growth
     disorders.
     
     The Organization:   The members of the Human Growth
     Foundation (HGF) are parents of children with severe
     physical growth problems and physicians and scientists
     specializing in the field of growth disorders.  The
     foundation supports research in pediatric endocrinology;
     sustains local chapters, which act as a support mechanism
     for families; and provides public education and advocacy
     related to growth disorders in children.  Fifty-six local
     chapters of HGF provide opportunities for parents to share
     problems associated with their short-statured children.
     
     Information Services:   The national and local
     organizations provide parent and public educational
     materials about growth problems.  Pamphlets on specific
     growth disorders, such as Turner's syndrome; growth
     hormone deficiency; intrauterine growth retardation; and
     achondroplasia are available.  Also offered are general
     brochures on problems in parenting a growth-retarded
     child, scientific development, and foundation information. 
     HGF makes referrals to physicians who specialize in growth
     disorders.
     
     
     Human Resources Center
201 I.U. Willets Road West
Albertson, NY  11507
(516) 747-5400
     
     Disabilities Served:   Persons with physical and
     health-related impairments; long-term mental illness;
     persons with neurological impairments, e.g., learning
     disabilities, traumatic brain injury, epilepsy, and
     cerebral palsy; persons with sensory impairments, persons
     with developmental disabilities and other intellectual
     impairments, and rehabilitated substance abusers.
     
     User Served:   Disabled persons, employers, parents,
     teachers, rehabilitation counselors, and administrators.
     
     The Organization:  The Human Resources Center, founded in
     1952 by Dr. Henry Viscardi, Jr., a pioneer in the
     rehabilitation and special education fields, is a private,
     nonprofit organization dedicated to providing educational,
     vocational, social, and recreational opportunities for
     persons with disabilities.  The center's programs
     encompass work demonstration; vocational evaluation, job
     training and placement; academic, career, and adult
     education; and research and information dissemination. 
     The center is composed of three coordinated units:  (1)
     Human Resources School, which offers tuition-free
     education to over 230 severely disabled children; (2) the
     Research and Training Institute, which conducts research
     relating to severely disabled persons, initiates and
     develops demonstration projects in rehabilitation and
     professional training, and disseminates information and
     model programs nationally; and (3) Rehabilitation
     Services, which conducts programs of work evaluation,
     training, job development and career placement for persons
     with disabilities.
     
     In addition, the National Center on Employment of the
     Handicapped was established in 1977 on the campus of the
     Human Resources Center with the objective of enhancing
     employment opportunities for disabled persons through (1)
     conducting research in such areas as career education,
     independent living, job placement, and attitudes toward
     disabled persons; (2) giving seminars and conferences; (3)
     providing technical assistance; and (4) publishing
     monographs, textbooks, and multimedia training modules.
     
     The nucleus of the National Center on Employment of the
     Handicapped is the Industry-Labor Council, an outgrowth of
     the White House Conference on Handicapped Individuals. 
     The Industry-Labor Council unites industry/labor and
     rehabilitation, directing efforts toward developing
     employment opportunities for the handicapped population
     through serving the needs of the employer community.  The
     Council conducts seminars of interest to employers
     concerning awareness, affirmative action, and the medical
     and legal aspects of employing disabled workers. 
     Technical assistance (consultations, literature
     distribution, onsite visits, and specialized training) is
     available to employers.  A newsletter reports on the
     activities of the Council and its members.
     
     Information Services:   Publications and training
     materials available from the center include titles on
     employment, placement, attitudes, driver education, and
     recreational boating.  Recent publications include a
     handbook for professionals on vocational rehabilitation
     for learning disabled adults and a reference manual for
     managers responsible for implementing corporate
     affirmative action and equal employment opportunity
     programs.  For details, write to the Products Manager and
     request the Catalog of Publications.  Any lay or
     professional person may request information from the
     center.  Frequent inquirers include professionals in
     education and vocational rehabilitation, and members of
     business and industry.
     
     
     Huntington's Disease Society of America (HDSA)
140 West 22nd Street
6th Floor
New York, NY 10011
(212) 242-1968
     
     Disabilities Served:  Huntington's disease (HD).
     
     Users Served:  Disabled persons, parents, physicians,
     physical therapists, social workers, and other health care
     professionals.
     
     The Organization:  Organized in 1976 by families,
     professionals, and citizens concerned with Huntington's
     disease, the Huntington's Disease Society of America
     (HDSA) now has 110 chapters, branches, support groups, and
     area contacts.  The society offers postdoctoral
     fellowships in HD.  HDSA offers patients and families
     support services and referrals to local facilities and
     resources for assistance.  Public awareness is another
     important activity of HDSA, which works to remove the
     stigma that has for centuries surrounded victims.  HD
     patients often exhibit symptoms of chorea (dancelike
     muscular spasms) and pronounced personality change.  The
     society also supports medical research by fundraising and
     collection of autopsy brain tissue for scientists who are
     working on HD.
     
     Information Services:   Brochures explaining the
     inheritance and effects of the disease, a manual for
     medical professionals, a manual for social workers and
     psychologists who wish to lead support groups for HD
     family members, a booklet on clinical care (for
     physicians), reprints of articles about HD and the
     society, and a list of local chapters and representatives
     are available on request, along with membership
     information and a quarterly newsletter.  Referrals can
     also be made to local medical and nursing home facilities.
     
          IBM National Support Center for Persons with
Disabilities
P.O. Box 2150
Atlanta, GA  30301
(800) 426-2133 (Voice)
(800) 284-9482 (TDD)
     
     Disabilities Served:   Mobility, learning, hearing,
     speech, and vision disabilities.
     
     Users Served:   Disabled individuals, health care
     professionals, agency directors, employers, educators.
     
     The Organization:   IBM's National Support Center for
     Persons with Disabilities serves to help health care
     leaders, agency directors, policymakers, employers,
     educators, public officials and individuals learn how
     computers can enhance the quality of life for the disabled
     person in the school, home and workplace.
     
     While the center is unable to prescribe an assistive
     device or software, it does provide information on what
     technology is available.  Resource guides on disabilities
     affecting hearing, learning, speech and language,
     mobility, and vision are provided; they list vendor and
     support group names, addresses, and descriptions.  A
     demonstration center is maintained with equipment
     featuring this new technology.
     
     IBM offers a program in conjunction with participating
     community service organizations to make it easier for
     eligible persons with disabilities to purchase selected
     IBM Personal System/2 products at a discount.  This
     program is described in the IBM Offering for Persons with
     Disabilities.
     
     Information Services:   The center participates in
     conferences to promote awareness and to raise the level of
     understanding about disability issues.  Marketing and
     technical support representatives in the center support
     the three IBM Independence Series of products for persons
     with special needs:  IBM's Screen Reader, Phone
     Communicator, and Personal System/2 Speech Viewer.
     
     The center's 800 number, maintained 24 hours a day,
     provides general information and accepts requests for
     information.
     
     Immune Deficiency Foundation (IDF)
P.O. Box 586
Oakland Mills Village Center Office Building
5865 Robert Oliver Place
Suite 212
Columbia, MD  21045
(301) 730-8837
(301) 461-3127
     
     Disabilities Served:  Primary immune deficiencies.
     
     The Organization:  Immune Deficiency Foundation (IDF) is a
     nonprofit, volunteer organization, which supports research
     and education for the primary immune deficiency diseases.
     
     Information Services:   The foundation has various
     publications on these diseases including a newsletter and
     a children's booklet.  IDF periodically supports research
     grants, medical meetings, and physician training.
     
     
     IN TOUCH Networks, Inc.
15 West 65th Street
New York, NY  10023
(212) 769-6270
     
     Disabilities Served:   Print impairment (blindness, visual
     impairments, and other disabilities that make reading
     ordinary printed material impossible).
     
     Users Served:   Print disabled individuals, other radio
     reading services (who provide the program outside of the
     New York metropolitan area).
     
     The Organization:   IN TOUCH Networks is a 24-hour
     satellite-delivered national radio reading service
     broadcasting the text of over 100 newspapers and
     magazines, including six in Spanish.  In the New York City
     area, IN TOUCH is picked up by special closed circuit
     receivers provided to listeners free of charge along with
     a daily program guide in large type.  Applications are
     available on request by phone or mail.  Proof of handicap
     is required.  Elsewhere, IN TOUCH programs reach listeners
     through a nationwide network of affiliates (radio reading
     services, cable systems, and hospitals), who receive the
     service from one of two communication satellites for local
     transmission.
     
     Information Services:   The following audio cassette
     programs designed specifically for people with
     disabilities are available through the mail:  The
          Assertive Consumer,  The Assertive Job Seeker, and
     Habilidades Diarias (daily living skills in Spanish). 
     Each comes with three separate cassettes and costs $15.00.
     
     Besides reading from newspapers and magazines, IN TOUCH
     includes a weekly half-hour of reading from mail order
     catalogs.  A cassette of a current half-hour program can
     be requested for $5; subscriptions are available for 3
     months at $60 or a full year at $200.
     
     Brochures describing IN TOUCH and listing the publications
     included in the reading service are available at no charge
     on request.
     
     
     Independent Living Research Utilization Program
(ILRU)
3400 Bissonnet
Suite 101
Houston, TX  77005
(713) 666-6244 (Voice)
(713) 666-0643 (TDD)
     
     Disabilities Served:   All disabilities.
     
     Users Served:   Independent living centers, State and
     Federal rehabilitation agencies, consumer groups of people
     with disabilities, medical rehabilitation facilities, and
     other organizations in the disability field.
     
     The Organization:   The Independent Living Research
     Utilization Program (ILRU) is a national center for
     information, training, research, and technical assistance
     in independent living.  Its goal is to expand the body of
     knowledge in independent living and to improve the
     utilization of results of research programs and
     demonstration projects in this field.  It is a program of
     The Institute for Rehabilitation and Research, a
     nationally recognized, free-standing rehabilitation
     facility for persons with physical disabilities.
     
     Since ILRU was established in 1977, it has developed a
     variety of strategies for collecting, synthesizing, and
     disseminating information related to the field of
     independent living.  ILRU staff--a majority of whom are
     people with disabilities--serve independent living
     centers, State rehabilitation agencies, Federal and
     regional rehabilitation agencies, consumer organizations,
     rehabilitation service providers, educational
     institutions, medical facilities, and other organizations
     involved in the field, both nationally and
     internationally.
     
     Information Services:   A comprehensive directory of
     independent living centers and numerous publications
     addressing independent living issues are available.  A
     price list may be obtained on request.  Technical
     assistance and information and referral services are
     provided, preferably by mail.
     
     
     InfoUse
Disability Statistics Program Information Service
1995 University Avenue 
Suite 215
Berkeley, CA  94704
(415) 644-9904
     
     Disabilities Served:   All disabilities.
     
     Users Served:  Persons with disabilities, government
     agencies, disability organizations, researchers,
     rehabilitation professionals, health professionals, media,
     manufacturers, service providers, educators, general
     public, all other interested persons.
     
     The Organization:   The Disability Statistics Program is a
     3-year project funded by the National Institute on
     Disability and Rehabilitation Research (NIDRR) to develop
     and disseminate information on disability in the United
     States.  The primary contract is with the Institute for
     Health & Aging, University of California, San Francisco. 
     Collaborating on project planning and dissemination
     activities is the firm InfoUse, Berkeley, California. 
     Through statistical analyses of national survey and
     program data bases, the Disability Statistics Program is
     developing and updating major aspects of disability in the
     United States, including demography, epidemiology, and
     health status; health care use, cost, and coverage;
     employment and earnings; and social services, benefits,
     and activity.  Research results are disseminated through
     reports, chartbooks, journal articles, the Disability
     Statistics Bulletin, and the Disability Statistics
     Abstracts. 
     
     Information Services:   The Disability Statistics Program
     Information Service provides statistical information on a
     wide variety of topics concerning disability in the United
     States.  The information service has the most recently
     published sources of statistical data on disability and
     can provide copies of published data tables.  A
     newsletter, The Disability Statistics Bulletin, presents
     statistical information on disability in the United States
     free of charge to over 5,000 readers.  Other publications
     include The Disability Statistics Report,  in-depth
     reports of original research on national surveys and other
     data sources, and Disability Statistics Abstracts, short
     summaries of data on single disability-related topics.
     
     
     Institute for Child Behavior Research (ICBR)
4182 Adams Avenue
San Diego, CA 92116
(619) 281-7165
     
     Disabilities Served:  Childhood behavior disorders,
     particularly autism.
     
     Users Served:  Parents, teachers, physicians, researchers.
     
     The Organization:  Founded in 1967, the Institute for
     Child Behavior Research (ICBR) conducts research on
     autism.  Ongoing projects include investigation of
     adequate diagnostic methods, the study of biochemical
     defects in autistic children, vitamin B-6 as a treatment
     for autism, and operant conditioning (behavior
     modification) as a method of teaching autistic children.
     
     Information Services:  The institute maintains a data base
     of detailed case studies of over 11,000 children from 37
     countries.  Information from these computerized files is
     available to researchers; a fee is charged for extensive
     searches.  The institute has compiled a comprehensive
     "Diagnostic Check List for Behavior-Disturbed Children." 
     Copies of these forms are free to institutions and private
     practitioners, upon request.
     
     A summary of the reports of 3,000 parents regarding the
     comparative effectiveness of drugs, psychotherapy,
     megavitamins, operant conditioning, and other forms of
     treatment has been published by the institute.  A
     quarterly newsletter, The Autism Research Review
     International, informs researchers, physicians, educators,
     and parents of the latest research findings.  Reprints of
     professional articles on autism and related disorders may
     be ordered from the institute's publications list of over
     100 items.
     
     
     Institute for Scientific Information (ISI)
3501 Market Street
Philadelphia, PA  19104
(215) 386-0100
      
     Disabilities Served:  All handicaps.
     
     Users Served:  Professors, researchers, students,
     clinicians.
     
     The Organization:  The Institute for Scientific
     Information (ISI) produces a full line of information
     services in the sciences, social sciences, and arts and
     humanities.  A major portion of the world's journal
     literature in the physical and social sciences is indexed
     according to (1) citations, based on the concept that an
     author's references to previously published materials
     indicate a subject relationship between the author's paper
     and earlier citations in the bibliography; (2) subject, by
     means of title words (with each significant word in the
     title serving as an index term); (3) source, allowing
     access to articles according to author; and (4) the
     organizational affiliation of the author.
     
     Information Services:  The Index to Social Sciences &
     Human Proceedings (ISSHP), published quarterly and
     cumulated annually, is an index to individual papers
     presented at conferences.  It provides full bibliographic
     information on approximately 20,000 papers each year in
     sociology, psychology, education, and other disciplines.
     
     Current Contents/Social & Behavioral Sciences is a weekly
     alerting service that reproduces the contents pages of
     over 1,300 journals and nearly 800 new, multi-authored
     books in virtually every social sciences discipline.  It
     can be used to locate recently published articles on
     disabilities, rehabilitation, and special education.
     
     Social Sciences Citation Index (SSCI), published
     triannually and cumulated annually, is an index to leading
     international social sciences journals.  It provides full
     bibliographic information from approximately 1,400
     journals in sociology, psychology, education, public
     health, and other disciplines.
     
     
     International Association of Laryngectomees (IAL)
c/o American Cancer Society (ACS)
1599 Clifton Road, NE
Atlanta, GA 30329
(404) 320-3333
     
     Disabilities Served:   Laryngectomy.
     
     Users Served:    Disabled persons and their families,
     professionals. 
     
     The Organization:   The International Association of
     Laryngectomees (IAL) (those whose larynxes have been
     surgically removed) is a coordinating organization of more
     than 300 laryngectomee clubs located in the United States
     and abroad.  It is financially sponsored by the American
     Cancer Society.  IAL club members are laryngectomees,
     spouses, speech pathologists, and speech therapists who
     provide rehabilitation (esophogeal speech training),
     motivation, and moral support to newly laryngectomized
     patients on a volunteer basis.
     
     Information Services:   The IAL publishes brochures and
     fact sheets about speech training; speech devices;
     medical, nursing, and family care of the laryngectomee;
     psychological problems of the laryngectomee; first aid;
     and vocational adjustment problems.  The IAL's major
     publications include (1) Annual Directory,which lists
     member clubs, meeting dates and places, availability of
     speech instruction, and sources of supplies--from stoma
     covers to artificial larynxes to medical, rehabilitation,
     and teaching films; (2) Laryngectomized Speaker's Source
     Book, which includes information on cancer of the larynx,
     problems faced by laryngectomees, speech of the
     laryngectomee, speaking tips, rehabilitation needs, and
     information about the IAL; and (3) Directory of
     Instructors of Alaryngeal Speech.
     
     A newsletter is published three times per year which
     reports on club activities.  Most materials may be
     obtained from ACS national or local offices.  The IAL
     refers inquiries to speech therapists but does not make
     medical referrals.  The IAL holds an annual meeting and a
     speech institute in conjunction with it.
     
     
     International Association of Psychosocial
Rehabilitation
 Services (IAPSRS)
5550 Sterrett Place
Suite 214
Columbia, MD  21044
(301) 730-7190
     
     Disabilities Served:   Psychiatric disabilities.
     
     Users Served:   Facilities and professionals serving
     psychiatrically disabled persons.
     
     The Organization:   This organization was established in
     1975 in response to increasing recognition of the need to
     upgrade community-oriented services for the
     psychiatrically disabled.  As the community mental health
     center movement has gathered increased momentum, the
     importance of insuring adequate psychosocial
     rehabilitation services has assumed greater priority among
     planners, administrators, and service providers.  The
     organization undertakes to establish improved
     communications among all levels of personnel active in
     this field.
     
     International Association of Psychosocial Rehabilitation
     (IAPSRS) assists agencies and practitioners in program
     development, evaluation and follow-up, staff utilization
     and training, management and administration, and in
     promoting an understanding of the special needs of persons
     with psychiatric disabilities.  Membership in IAPSRS is
     open to facilities that offer vocational, residential,
     social/recreational, or educational services to disabled
     adults and to professionals working in this area.
     
     Information Services:   Membership in the IAPSRS includes
     a subscription to its newsletter and to the Psychosocial
     Rehabilitation Journal; current legislative updates;
     reduced rates for attending State and national
     conferences; substantial discounts on furniture, major
     appliances, vans, insurance, and so forth; and
     low-interest capitol funds.  Top-notch training is
     available through the IAPSRS Learning Circuit.
     
     
     The International Center on Deafness (ICD)
Gallaudet University
800 Florida Avenue, NE
Ballard House
Room 201
Washington, DC  20002
(202) 651-5585
     
     Disabilities Served:   Deafness and hearing impairments.
     
     Users Served:   General public, deaf, and hard of hearing.
     
     The Organization:   Gallaudet University has demonstrated
     its position as a world leader in the field of deafness
     and has earned a reputation for excellence.  The
     International Center on Deafness (ICD) is the unit of the
     university that coordinates the international outreach
     efforts of the university.  It is committed to the
     objectives of developing closer bonds among nations and
     drawing upon knowledge and resources of Gallaudet in
     upgrading educational, cultural, social, and vocational
     opportunities for deaf persons, their families, and
     professionals in the field of deafness in nations around
     the world through cooperative research, education,
     training, and outreach.  The ICD also promotes a mutual
     sharing of academic programs at the school and university
     levels.  Within the limits of resources, the ICD responds
     both to international requests and to Gallaudet-initiated
     programs in other countries.
     
     The International Council for Learning Disabilities
(CLD)
National Office
P.O. Box 40303
Overland Park, KS  66204
(913) 492-8755
     
     Disabilities Served:  People with learning disabilities.
     
     Users Served:  Professionals involved in learning
     disabilities and remedial education.
     
     The Organization:  The Council for Learning Disabilities
     (CLD) is a national professional organization dedicated
     solely to professionals working with the learning
     disabled.  Our members include everyone from classroom
     teachers to diagnosticians to the top learning disability
     researchers in the country.
     
     Our purpose is to aid all learning disability
     professionals in the exchange of information.  Other
     national organizations devote only a portion of their time
     and resources to learning disability-specific needs.  At
     CLD, we are 100 percent committed to professionals in the
     field of learning disabilities.
     
     Teachers will find the very latest, most effective
     techniques for learning disabilities instruction. 
     Diagnosticians will find the most up-to-date methods of
     assessing learning disabilities.  Administrators get
     information on programming and laws pertaining to learning
     disabilities.  In addition, researchers receive the
     benefits of the top professional journal in the field.
     
     Information Services:  Annual membership is $35 for
     professionals and $25 for students.  Membership includes:
     
              Subscription to Learning Disability Quarterly
              Subscription to Learning Disability Forum
              International conference on learning
     disabilities
              Numerous monographs, videotapes, and
     informational
               brochures available to members free or at cost.
     
     International Exchange of Experts and Information in
 Rehabilitation (IEEIR)
Room 6 Hood House
University of New Hampshire
Durham, NH  03824
(603) 862-4190
     
     Disabilities Served:   All disabilities.
     
     Users Served:   Rehabilitation specialists, physicians,
     other health care professionals.
     
     The Organization:   Through the International Exchange of
     Experts and Information in Rehabilitation (IEEIR) Project,
     funded by the National Institute on Disability and
     Rehabilitation Research to the World Rehabilitation Fund
     and subcontracted to the University of New Hampshire,
     fellowships are provided for United States' experts to
     study abroad at sites they select whose programs and
     practices meet a priority need for the rehabilitation
     community in the United States.  In addition, foreign
     authors are commissioned to write monographs on topics
     that address United States' rehabilitation priorities. 
     The monographs are distributed in the United States.  Some
     authors are brought to this country to participate in
     meetings and seminars.  The geographic locations for these
     exchanges include Asia and the Pacific, Africa, and the
     Middle East.
     
     Information Services:   IEEIR provides programmatic
     descriptions of the International Exchange of Experts and
     Information in Rehabilitation. Monographs developed by
     foreign authors and fellowship reports are available. 
     Requestors may obtain a list of titles; a fee is charged
     to cover postage, handling, and duplication costs.  Tapes
     of monographs for visually impaired, learning disabled,
     and physically disabled persons can be made available
     through Recordings for the Blind. The newsletter,
     INTERCHANGE, is published three or four times per year,
     covering news on fellowships, monographs, seminars,
     conferences and other topics of interest in the
     rehabilitation field.
     
     International Federation of Physical Medicine and
 Rehabilitation (IFPMR)
600 University Avenue
Suite 1160
Toronto, Ontario  M5G 1X5
(416) 586-5033
     
     Disabilities Served:   All disabilities.
     
     Users Served:   National societies of rehabilitation
     medicine.
     
     The Organization:  The International Federation of
     Physical Medicine and Rehabilitation (IFPMR) was founded
     in 1951 in London, England, and membership is contributed
     by national societies of rehabilitation medicine from all
     countries.  The objective of this organization is to
     promote the prevention, diagnosis, and treatment of
     diseases, impairments, and disabilities with emphasis on
     physical medicine and rehabilitation; to promote an
     enhanced understanding of the implications and impact of
     disability and handicap throughout academic circles,
     health care systems, government agencies, and society as a
     whole; to expand the present concept of illness to also
     include impairments, disabilities; and to ensure that the
     medical practice of physical medicine and rehabilitation
     is a component of the education of undergraduate medical
     and other health students.
     
     Information Services:   IFPMR has an International
     Scientific Conference every 4 years.
     
     
     International Polio Network (IPN)
4502 Maryland Avenue
(314) 361-0475
     
     Disabilities Served:   Polio and the late effects of
     polio.
     
     Users Served:   Survivors of polio, their families, and
     interested health professionals.
     
     The Organization:   The International Polio Network seeks
     to reach and to inform the survivors of polio in the world
     through its network of people and publications.  Because
     International Polio Network is connected to and networks
     with polio organizations and polio knowledgeable
     individuals around the world, questions are welcome. 
     There is a modest fee for the publications.  Gazette
     International Networking Institute (G.I.N.I.), the
     umbrella organization, sponsors periodic international
     polio and independent living conferences.
     
     Information Services:   Polio Network News, published
     quarterly, contains updated information on the late
     effects of polio.  G.I.N.I. also publishes an annual
     Post-Polio Directory which lists over 50 clinics, 100
     health professionals, and 350 support groups.  Also
     available is the Handbook on the Late Effects of
     Poliomyelitis for Physicians and Survivors.
     
     I.V.U.N. News, for ventilator users many of whom are polio
     survivors, is published biannually and contains the latest
     information on home mechanical ventilation.
     
     Rehabilitation Gazette, an international journal written
     by individuals with a disability for individuals with a
     disability, is published biannually and contains articles
     and resources pertinent to disability.
     
     
     International Rehabilitation Medicine Association
(IRMA)
1333 Moursund Avenue
Suite A-221
Houston, TX  77030
(713) 799-5086
     
     Disabilities Served:   General disabilities.
     
     Users Served:    Physicians interested in the field of
     rehabilitation medicine.
     
     The organization:   The International Rehabilitation
     Medicine Association (IRMA) is a society of physicians
     from all the specialities of medicine and surgery
     interested in promoting the art and science of medicine
     and the improvement of health through an understanding and
     utilization of rehabilitation medicine.  
     
     The objectives of IRMA are to stimulate and promote the
     knowledge and use of rehabilitation medicine,
     rehabilitation medicine being defined as the application
     of medical skills to the diagnosis and management of
     disabling disease of whatever cause and affecting any
     system of the body.
     
     Information Services:   IRMA publishes a quarterly
     newsletter, News and Views.  Scientific monographs are
     also published twice a year and are on a variety of topics
     related to the field.  A membership directory is also
     published every 4 years.
     
     
     International Rett Syndrome Association (IRSA)
8511 Rose Marie Drive
Fort Washington, MD  20744
(301) 248-7031
     
     Disabilities Served:   Rett syndrome.
     
     Users Served:   Families of children with Rett syndrome,
     teachers, therapists, physicians, and others interested in
     Rett syndrome.
     
     The Organization:   The International Rett Syndrome
     Association (IRSA) aims to support and encourage efforts
     to determine the cause, treatment, and cure for Rett
     syndrome; to increase public awareness of Rett syndrome;
     and to provide information and emotional support to
     families of children with Rett syndrome.  Rett syndrome is
     a disorder that occurs only in females.  It has been only
     recently recognized since publication of the first English
     language report in late 1983.  Girls with Rett syndrome
     show apparent normal development from 6 to 18 months, then
     appear to arrest in development or regress in previously
     acquired skills.  Cognitive function is in the severe to
     profound range of mental retardation.  Girls lose
     purposeful use of their hands and replace it with
     stereotyped movements.
     
     Extensive laboratory investigations have not revealed a
     cause for Rett syndrome; but there is a suggestion that as
     the syndrome is confined to girls, a genetic basis
     involving one of the X chromosomes may be indicated.
     
     Information Services:   The IRSA publishes a quarterly
     newsletter, which keeps parents and professionals informed
     of current research in the field and gives suggestions for
     care and management.  A family network allows parents to
     make contact with other parents in their area and also
     allows parents to communicate with others whose child is
     at a similar stage of Rett syndrome as their own.  The
     IRSA provides annual conferences and seminars and
     publishes a wide variety of information and care
     materials.
     
     
     International Society for the Study of Multiple
Personality
 and Dissociation (ISSMP&D)
5700 Old Orchard Road
First Floor
Skokie, IL  60077
(708) 966-4322
     
     Disabilities Served:   Multiple personality and
     dissociative states (MPD).
     
     Users Served:   Provides information about MPD to
     professional members and general public.
     
     The Organization:   The International Society for the
     Study of Multiple Personality and Dissociative States
     (ISSMP&D) was formed to provide education about multiple
     personality and dissociative states to both professionals
     and the general public.  ISSMP&D brings together
     professionals dedicated to the search for answers to
     improve the quality of life for all patients with MPD.  
     The organization promotes research and training in the
     identification and treatment of these disorders and
     catalyzes international communication and cooperation
     among clinicians and investigators working in the field.
     
     Information Services:   ISSMP&D holds one conference each
     year.  Members receive a  bimonthly newsletter and gain
     access to a variety of resources on the subject of MPD. 
     Publications include a quarterly journal, Dissociation,
     Progress in the Dissociate Disorders.  An annotated
     bibliography of literature pertaining to multiple
     personality and copies of Richard P. Kluft's Lessons,
     Making the Diagnosis of Multiple Personality Disorder
     (#23) and The Treatment of Multiple Personality Disorder: 
     Current Concepts (#24), which were published in the series
     Directions in Psychiatry, are available through the
     ISSMP&D.
     
     
     Job Accommodation Network (JAN)
809 Allen Hall
West Virginia University
Morgantown, WV  26506
(800) 526-7234 (United States Only)
(800) 526-4698 (West Virginia Only)
(800) 526-2262 (Canada Only)
     
     Disabilities Served:  All disabilities or functional
     limitations.
     
     Users Served:   Persons with disabilities and their
     families, social service and health professionals, and
     employers.
     
     The Organization:   Established in 1983, the Job
     Accommodation Network (JAN), as a service of the
     President's Committee on Employment of People with
     Disabilities, is an information network and consulting
     resource to enable qualified workers with disabilities to
     be hired or retained.  It brings together information from
     many sources about practical ways of making accommodations
     for employees and applicants with disabilities.
     
     Information Services:   Callers can discuss their concerns
     and information needs with JAN's Human Factors Consultants
     and get immediate suggestions on solutions to
     accommodation problems.  JAN offers comprehensive
     information on methods and available equipment that have
     proven effective for a wide range of accommodations. 
     Included will be names and addresses and phone numbers of
     appropriate resources.  You can make personal contacts for
     additional insights.  Information can be provided by phone
     or mail and is available at no cost to the caller.
     
     
     Job Opportunities for the Blind (JOB)
1800 Johnson Street
Baltimore, MD  21230
(800) 638-7518
(301) 659-9314
     
     Disabilities Served:   Blindness, deaf-blindness, low
     vision.
     
     Users Served:   Legally blind job seekers, employers, job
     placement professionals, family and friends assisting job
     seekers.
     
     The Organization:  Job Opportunities for the Blind (JOB)
     is a joint project of the National Federation of the
     Blind, a nationwide self-help group, and the U.S.
     Department of Labor.  JOB services are meant to be used in
     addition to services that exist locally.   Its goal is to
     increase the chances of legally blind individuals to
     obtain a full-time nonsubsidized job.  JOB is well
     informed about the jobs blind people are doing, the
     methods blind people are using, and about positions that
     are open.  Over 100 blind adults per year using JOB
     services have obtained such jobs in a wide variety of
     fields.  A partial list includes administrator,
     electronics assembler, chaplain, broadcaster, childcare
     assistant, computer programmer, cosmetologist, elementary
     school teacher, dog groomer, equal employment officer,
     research analyst, medical transcriptionist, nutrition
     education coordinator, pharmacist, and janitor.
     
     Information Services:   All services are free.  The JOB
     Recorded Bulletin, containing articles and job listings,
     is available eight times per year on cassette.  JOB offers
     over 40 publications, most on cassette, with instruction
     on job hunting and specific information on jobs blind
     people are presently doing.  Through its nationwide
     contacts, JOB will research answers to any question
     concerning blindness and jobs.  Questions are frequently
     received concerning new technology, techniques of
     blindness, reasonable accommodation, training
     opportunities, and recommendations for educating employers
     about the capabilities of blind workers.  As a unique
     service, JOB offers introduction to blind peers throughout
     the United States who are engaged in the same profession
     or a similar profession as the blind JOB applicant. 
     Seminars for applicants and employers occur periodically
     on both the State and national levels.  Employers
     interested in locating qualified blind applicants are
     invited to send job openings to JOB.  Employers with
     questions about blind job applicants or newly blind
     employees are invited to call JOB for information.  A free
     packet of information is available upon request.
     
     
     John Tracy Clinic
806 West Adams Boulevard
Los Angeles, CA  90007
(213) 748-5481
      
     Disabilities Served:  Deafness, hearing impairments, and
     deaf-blindness.
     
     Users Served:  Preschool deaf and deaf-blind children,
     parents, teachers, audiologists, physicians.
     
     The Organization:  The John Tracy Clinic is an educational
     center for hearing-impaired preschool children and their
     parents.  The clinic's prime concerns are the support and
     training of parents of young hearing-impaired children in
     helping their children build listening and language
     skills.  Parents may visit or write the clinic for
     information, encouragement, and training in raising a
     hearing-impaired child and in helping the child acquire
     language, speechreading, and speech skills.  Clinic
     services are available to hearing-impaired children and
     their parents and include  consultation services for the
     audiological and developmental evaluation of deaf
     children; parent classes in child development, parent
     feelings, and communication skills; parent support groups
     for parents; a demonstration nursery school where children
     and parents are enrolled; summer sessions for parents,
     hearing-impaired children, and siblings; graduate teacher
     education program; and referrals for appropriate
     educational needs of preschool hearing-impaired children
     and their parents.
     
     Information Services:  Correspondence courses for parents
     of preschool deaf and deaf-blind children are offered by
     the clinic.  They emphasize parents' feelings,
     communication, child development, and family
     relationships.  They are available in English and Spanish.
     
     The clinic makes available the following educational
     materials:  Bound copies of the correspondence courses
     Vocabulary List;  My Child  helps to explain your child's
     deafness to others; Getting Your Baby Ready To Talk, a
     home study plan for infant language development, designed
          for use with high risk" infants whose language development may be
     inhibited; and Play It By Ear, a compilation of auditory
     training games for parents and teachers of young deaf
     children.  In addition, the clinic publishes a bulletin
     two times a year.
     
     All services of the John Tracy Clinic are given free of
     charge to hearing-impaired children and their parents. 
     Educational materials are available for a charge as a
     convenience to professionals.
     
     
     Joseph Bulova School
40-24 62nd Street
Woodside, NY  11377
(718) 424-2929
     
     Disabilities Served:  All physical and emotional
     disabilities.
     
     Users Served:   All interested persons.
     
     The Organization:   The Joseph Bulova School was founded
     in 1945 to serve returning disabled veterans.  Since 1950,
     the school has accepted disabled civilians and, more
     recently, nondisabled persons, although 80 percent of its
     graduates are disabled.  The school offers watchmaking,
     watch repair, digital electronics, and jewelry repair on
     an individualized basis to students.  In addition to
     vocational training and rehabilitation, some job
     counseling and placement services are offered. 
     Residential students receive health services, counseling,
     and recreation.  Financial aid for tuition and living
     expenses is available to qualifying students.
     
     Information Services:   The Bulova School provides free
     brochures about its services to any interested persons.  A
     film about the school, To Live On, is available on loan.
     
     
     Joseph P. Kennedy, Jr. Foundation
1350 New York Avenue, NW
Suite 500 
Washington, DC  20005
(202) 393-1250
     
     Disabilities Served:   Mental retardation.
     
     Users Served:   Organizations for mentally retarded
     persons, universities, and the general public.
     
     The Organization:   Established in 1946, the Joseph P.
     Kennedy, Jr. Foundation's purpose is to improve the
     quality of life  for mentally retarded persons and to
     raise public awareness of medical ethical problems.   To
     these ends the foundation has funded research and clinical
     treatment centers at nine universities, instituted two
     centers for the study of medical ethics at Georgetown
     University and Harvard, underwritten fellowships in
     medical and nursing education for postgraduate study of
     medical ethics, developed programs in values education for
     teens, and created recreational programs including
     internships, family play programs, and the international
     Special Olympics Program for mentally retarded persons. 
     Proposals for innovative demonstration models from
     agencies or individuals are considered for funding. 
     Extensive public awareness campaigns are carried on
     through the media to improve understanding and acceptance
     of this population.
     
     Information Services:   Brochures describing the Special
     Olympics Program and the Community of Caring Schools
     Program for adolescents are available from the foundation
     office.  Films on the Special Olympics are available for
     TV or group use.  A group of films on medical ethics
     produced for education of health and other professionals
     includes such titles as Who Should Survive, The Right to
     Let Die, Bertha, and Becky:  The Value of a Life.  There
     is a small rental or purchase fee charged for films; other
     information is free.
     
     
     "Just Say No" International
1777 North California Boulevard
Suite 210
Walnut Creek, CA  94596
(800) 258-2766
(415) 939-6666
     
     "Just Say No" International provides direction to the over
     12,000 "Just Say No" registered clubs in the United States
     and seven foreign countries.  "Just Say No" clubs are
     groups of children 7 to 14 years of age who pledge to lead
     tobacco-, alcohol-, and drug-free lives.  Club members
     apply what they learn to peers, family, and the community
     through outreach and service projects.
     
     Services of "Just Say No" International include training,
     technical support, club books and materials, fundsharing,
     and sponsorship of national events like the "Just Say No"
     Back-to-School Month (October) and "Just Say No" Week (2nd
     week in May).  All services and materials are free of
     cost, except club leader training and the Club Book. 
     "Just Say No" International is funded almost entirely
     through individual and corporate contributions.  Hours of
     operation are Monday through Friday 7:00 a.m. to 5:30 p.m.
     Pacific time.
     
     
     Juvenile Diabetes Foundation International (JDF
International)
432 Park Avenue South
New York, NY 10016
(212) 889-7575
     
     Disabilities Served:    Diabetes mellitus.
     
     Users Served:  Persons with diabetes, their parents and
     families, researchers, teachers. 
     
     The Organization:  The primary objective of Juvenile
     Diabetes Foundation International (JDF International) is
     to support and fund research on the treatment and cure of
     diabetes.  JDF International awards grants for specific
     research projects in diabetes and related areas.  It
     underwrites international scientific meetings and medical
     student workshops.  It sponsors national media campaigns
     to inform the public about diabetes and to raise funds for
     research.  Its 138 local chapters provide parent-to-parent
     counseling and self-help groups for newly diagnosed
     diabetics and their families.  JDF International also has
     10 international affiliates.
     
     Information Services:  Countdown magazine with the latest
     information on diabetes research and treatment is
     published quarterly for members.
     
     JDF International publishes pamphlets about diabetes,
     which are available to the public.  Titles include:
     
          JDF and You:  The search for a Cure
          Helping Research Find a Cure
          What You Should Know About Diabetes
          Information About Insulin
          Your Child Has Diabetes
          A Child with Diabetes Is In Your Care
          Monitoring Your Blood Sugar
          Pregnancy and Diabetes
          Dental Care and Diabetes
          Foot Care and Diabetes
          Low Blood Sugar Emergencies
          Diet, Exercise and Diabetes
          Diabetes and Your Heart
          Diabetes and Your Eyes
          Diabetes and Kidney Disease
          Diabetes and Nerve Disease
          Living with Diabetes
          Oral Medications and Type II Diabetes
     
     Local chapters hold public education meetings, maintain
     Speakers Bureau, and provide referral to medical
     specialists and educational programs offered by hospitals
     and health departments.  Some chapters have an information
     hotline.
     
     
     Klippel-Trenaunay Support Group
4610 Wooddale Avenue
Edina, MN  55424
(612) 925-2596
     
     Disabilities Served:   Klippel-Trenaunay syndrome.
     
     Users Served:   Parents, adults, and children with
     Klippel-Trenaunay, and professionals.
     
     The Organization:  The Klippel-Trenaunay Support Group
     exists to act as a support group for patients, parents,
     and families; to act as a clearinghouse for correspondence
     between members; and to maintain a file of current medical
     literature, pertaining to Klippel-Trenaunay, available to
     members and to professionals.
     
     Information Services:  A newsletter is disseminated
     quarterly to facilitate correspondence among group members
     and to update members on new information about
     Klippel-Trenaunay and various treatment modalities, etc. 
     A roster of member families is maintained.  Informational
     pamphlets and literature are available to professionals
     and new members.
     
     
     Learning Disabilities Association of America (LDA)
4156 Library Road
Pittsburgh, PA  15234
(412) 341-1515
(412) 341-8077
     
     Disabilities Served:   All learning disabilities.
     
     Users Served:   Disabled persons, parents, teachers.
     
     The Organization:   The Learning Disabilities Association
     of America (LDA) is a membership organization for
     professionals, adults with learning disabilities, and
     parents of children with learning disabilities.  The
     national LDA office provides general information about
     learning disabilities, while the 800 local chapters
     provide referrals to physicians and treatment centers. 
     One of the prime functions of the national LDA is the
     advocacy of educational and rehabilitative legislation
     affecting learning disabled persons.  The LDA has
     conducted its own research into the link between juvenile
     delinquency and learning disabilities.  With its State
     affiliates, LDA works directly with school systems on
     early identification and diagnosis, as well as remediation
     in resource and special classroom situations.  Direct
     services, such as parent counseling, nursery school, and
     day camps are provided by many of the local chapters; no
     direct services are available at the national level.
     
     Information Services:   Through State and national
     conferences, the LDA distributes information on new
     technology for teaching learning disabled persons.  For
     these meetings, LDA gathers outstanding professionals to
     speak and answer questions concerning the nature of
     learning disabilities and the education available to
     learning disabled persons.  Pamphlets and scientific
     reprints are available at no cost.  National lists of
     colleges, private schools, and summer camps with
     facilities for learning disabled persons are compiled and
     updated by the national organization.  The LDA newsletter
     covers clinical advancements and legislative developments
     affecting learning disabled persons.  A bibliography of
     more than 400 professional and lay publications on
     learning disabilities is available from the national
     office.
     
     
     Learning How, Inc./OpportunityPlus
P.O. Box 35481
Charlotte, NC  28235
(704) 376-4735
     
     Disabilities Served:   Physical disabilities.
     
     Users Served:  Disabled persons 18 years and older.
     
     The Organization:   Learning How, Inc., serves all people
     by sharing educational programs and services.  The
     national headquarters serves as an informational
     clearinghouse for people who are physically disabled in
     their communities to join the work force and to educate
     local employers on how to utilize disabled people.
     
     OpportunityPlus, a newly established employment placement
     agency for people who are disabled, is a pilot program of
     the national headquarters of Learning How.  With its
     successful operation in Charlotte, North Carolina, this
     program will be shared with any community in the United
     States that may be interested in establishing a prototype
     agency for disabled people.
     
     Information Services:   OpportunityPlus, a brochure
     describing the organization, is available upon request. 
     In addition a newsletter, The Mentor, is in the process of
     being developed by this newly formed organization.
     
     
     Leukemia Society of America
733 Third Avenue
New York, NY  10017
(212) 573-8484
     
     Disabilities Served:   Leukemia, the lymphomas, multiple
     myeloma, and Hodgkin's disease.
     
     Users Served:   Disabled persons, parents, physicians,
     nurses, social workers.
     
     The Organization:   The objectives of the Leukemia Society
     of America are to find cures for leukemia, the lymphomas,
     multiple myeloma, and Hodgkin's disease, and to provide
     supplementary financial assistance to persons afflicted
     with those diseases.  Research  funds are provided to
     individuals investigating aspects of leukemia and related
     diseases.  The society's 57 chapters administer patient
     aid programs, whereby outpatients can receive up to $750
     per year for drugs, radiation treatments, transfusions of
     blood and certain blood components with related services,
     and transportation.
     
     A family support group program for patients, their
     families, and friends is available free of charge in many
     chapter areas.
     
     Information Services:   The society publishes pamphlets
     about leukemia, Hodgkin's disease, myelomas, and the
     lymphomas.  Some information is available in Spanish. 
     Audiovisual materials on what leukemia is and how persons
     may be affected by it are available to schools and
     community groups.  Videotapes and audiotapes from symposia
     are available to the professional.  They deal with therapy
     and treatment of leukemia and virology, immunology, and
     differentiation.  For the professional, chapters also
     offer symposia in conjunction with the local medical
     facilities which emphasize new developments in treatment
     and maintenance.
     
     LINC Resources, Inc.
Information Center for Special Education Media and
Materials
4820 Indianola Avenue
Columbus, OH  43214
(800) 772-7372
(614) 885-5599
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Teachers, administrators, librarians,
     publishers, researchers, developers, parents, interested
     citizens.
     
     The Organization:   LINC Resources, Inc., is an
     independent, nonprofit organization whose mission is to
     serve the resource information needs of the education
     community.  To accomplish this broad mandate, LINC 
     (1)  develops data bases on educational media, materials,
     technologies, and related resource information; (2)
     disseminates resource information through print media,
     computer diskettes, and electronic networks; 
     (3) provides publication and marketing assistance to
     educational researchers, product developers, and authors;
     and (4) conducts conferences and workshops on the design,
     development, publication, and use of educational
     resources.  LINC's information, research, consulting, and
     technical assistance services are sponsored by a variety
     of education agencies, organizations, and private
     corporations.
     
     Information Services:   LINC's professional staff responds
     to information requests through the use of mail,
     telephone, and computer-based information networks.  Staff
     are in touch with thousands of educators nationwide
     through computer networks such as SpecialNet, CompuServe,
     Bitnet, and LINC's own bulletin board, which provides
     direct access to LINC's data bases.
     
     Since 1977, LINC has operated a national information
     clearinghouse on special education media and materials
     with funding provided by the U.S. Department of Education,
     Office of Special Education Programs.  The current
     contract provides free data base search services to help
     requestors locate special education materials and
     professional training media; in addition, free marketing
     and legal information is provided to researchers,
     developers, and publishers of new special education
     products.  Meetings are conducted that bring together the
     major audiences served by LINC, and staff prepare and
     disseminate reports summarizing research-based
     instructional methods that are incorporated into
     educational media and materials.
     
     LINC Notes, a monthly newsletter covering new products and
     trends in the education and special education marketplace,
     is disseminated to publishers and educators on a
     subscription basis.
     
     
     Little People of America (LPA)
P.O. Box 9897
Washington, DC  20016
(301) 589-0730
      
     Disabilities Served:  Dwarfism.
     
     Users Served:  Disabled persons, parents, professionals.
     
     The Organization:  Little People of America (LPA) was
     established in 1957.  It is a  nationwide organization for
     dwarfs and their families that provides fellowship, the
     exchange of ideas, solutions to the problems unique to the
     little person, and moral support.  A special membership
     division provides opportunities for information exchange
     and group support to parents of dwarfed children.  Twelve
     district directors coordinate local activities, regional
     and local meetings, and informal gatherings sponsored by
     over 40 local chapters throughout the country.  LPA
     conducts national meetings annually.  LPA works closely
     with adoption agencies throughout the United States, to
     place dwarfed children in the homes of dwarfed parents. 
     In 1968, LPA established a foundation to raise funds for
     vocational training of little people.  Medical and
     scientific research on the causes and possible treatment
     of dwarfism is also provided by the organization.  
     
     Information Services:  LPA publishes a bimonthly
     organizational newsletter, LP Today.  Also, LPA
     distributes printed material on equipment and aids,
     clothing, and social and vocational adjustments.   Some
     brochures are available in Spanish.  My Child Is a Dwarf
     is a pamphlet of special interest to parents.  Materials
     are free to members; there is a mailing charge for
     nonmembers.  LPA's medical board is used as a referral
     network to respond to medically-related inquiries; general
     inquiries are sent to district directors for responses.
     
     
     Lowe's Syndrome Association (LSA)
222 Lincoln Street
West Lafayette, IN  47906
(317) 743-3634
     
     Disabilities Served:  Lowe's syndrome.
     
     Users Served:  Parents and family members, friends,
     physicians, physical, occupational and vision therapists,
     genetic counselors, social service professionals,
     educators.
     
     The Organization:  Established in 1983, the Lowe's
     Syndrome Association (LSA) is an international, voluntary,
     nonprofit organization composed of parents, medical and
     educational professionals, friends, relatives, and others
     interested in Lowe's syndrome.  This rare genetic
     condition affects males and results in multiple handicaps,
     including congenital cataracts, glaucoma, intellectual
     impairment, poor muscle tone, kidney problems, and others.
     
     The goals of the LSA are to foster communication among
     affected families, provide medical and educational
     information, promote a better understanding of this
     condition and the potential of individuals affected by it,
     and encourage and support research.  The LSA sponsors
     international conferences every 2 to 3 years.
     
     Information Services:  The LSA provides pamphlets about
     Lowe's syndrome and the association and a publications
     list to anyone who inquires.  The organization also
     publishes a newsletter, On the Beam, which is sent to all
     members three times per year.  The newsletter contains
     letters from parents and pictures of their children,
     medical and educational articles, recommended resources,
     news of the association, and other items of interest.  A
     membership fee is charged, which includes a subscription
     to the newsletter.  Membership is free for parents who
     cannot afford the fee.
     
     The LSA will refer parents and medical professionals to
     doctors who are experienced with Lowe's syndrome.
     
     
     Lupus Foundation of America, Inc.
4 Research Place
Suite 180
Rockville, MD  20850
(301) 670-9292
(800) 558-0121
     
     Disabilities Served:   Systemic lupus erythematosus.
     
     Users Served:   Disabled persons, parents, teachers,
     professionals.
     
     The Organization:   Incorporated in 1977, the Lupus
     Foundation of America is a federation of 100 local
     chapters and 65 foreign associates.  Chapters vary in size
     and scope of activities; some offer educational programs
     to nursing schools, hospital staffs, and other
     organizations, while others fund fellowships and research
     grants to physicians who specialize in treatment of lupus. 
     Many chapters conduct monthly open meetings with
     physicians, and publish newsletters and articles to alert
     physicians as well as the public to the symptoms of this
     often misdiagnosed disease.
     
     Information Services:   Bibliographies for professionals
     and patients, article reprints, and pamphlets explaining
     the disease are available.  Some information is free; a
     nominal charge is made for selected pamphlets and books. 
     Information is available in Spanish and the book The Sun
     is My Enemy is translated into Chinese.  LUPUS News, a
     national paper, is published quarterly and includes
     information about the disease, research developments, and
     more.  All of the large and most small chapters also
     publish papers six to ten times per year, focusing on
     information of local concern in addition to the broader
     topics of medical and research news.  Many local chapters
     maintain a list of physicians who treat lupus in their
     area.  Information and lists of local chapters may be
     requested from the foundation.
     
     
     Mainstream, Inc.
1030 15th Street, NW
Suite 1010
Washington, DC  20005
(202) 898-1400 (Voice/TDD)
      
     Disabilities Served:  All disabilities.
     
     Users Served:  Employers, disability service providers,
     Federal agencies, persons with disabilities.
     
     The Organization:  Mainstream, Inc., is a private,
     nonprofit organization with a national focus on moving
     greater numbers of persons with disabilities into the
     workplace.  Founded in 1975, Mainstream provides
     information services, training and technical
     assistance--through newsletters and publications, seminars
     and an annual conference, and onsite consultations--to
     employers and Federal agencies as well as other
     organizations providing employment services to individuals
     with disabilities.  Mainstream also operates Project LINK,
     a placement program for job-ready applicants with
     disabilities in Washington, DC, and in Dallas, Texas.
     
     Information Services:  Mainstream produces numerous
     publications, reference guides, and manuals on all aspects
     of employing persons with disabilities.  A bimonthly
     newsletter, In The Mainstream, reports on programs,
     methods, organizations, and resources effective in moving
     people with disabilities into the workplace; it also
     reports on and analyzes important legal issues, such as
     the Americans with Disabilities Act of 1990.  Contact
     Mainstream for its publications list.  The Mainstream
     Information Network also answers individual questions--in
     writing or over the telephone--on the spectrum of
     employment issues affecting persons with disabilities.
     
     
     March of Dimes Birth Defects Foundation (MOD)
1275 Mamaroneck Avenue
White Plains, NY  10605
(914) 428-7100
     
     Disabilities Served:   Congenital defects and genetic
     disorders.
     
     Users Served:   Disabled persons, parents, teachers, and
     physicians.
     
     The Organization:   The mission of the March of Dimes
     Birth Defects Foundation (MOD) is to prevent birth defects
     and infant mortality through programs of community
     services, advocacy, research, and education.
     
     The Campaign for Healthier Babies, announced in late 1989,
     represents the continuing evolution of the foundation's
     efforts to care for mothers and babies.  The campaign is
     rooted in the belief that the best way to prevent birth
     defects now is to use the knowledge gained from research
     to promote healthy pregnancies and healthy births.
     
     March of Dimes Public Health Education materials are
     targeted to students, school personnel, parents, health
     professionals, adults of childbearing age, pregnant women,
     and people in the workplace, to give them information
     about and help them understand birth defects and related
     newborn health problems.  Topics include pre-pregnancy,
     prenatal care, teenage pregnancy, lifestyle behaviors/risk
     factors, genetic and other birth defects. 
     Spanish-language materials are also available.
     
     Information Services:   The March of Dimes funds programs
     through schools, churches, hospitals, and other
     institutions to inform and motivate prospective parents
     and the general public to do all they can to protect
     maternal and newborn health.  Materials include
     educational series, curricula, filmstrips, printed
     materials, films, documentaries for television, and public
     service announcements.
     
     Through its Professional Education Publication Program,
     the March of Dimes transmits the latest scientific
     findings--in original articles and journal reprints--on
     birth defects to schools of medicine and nursing,
     university hospitals, medical centers, physicians, nurses
     and other health professionals.  Also included in the
     publications program are (1) the International Directory
     of Genetic Services, a listing of medical centers that
     provide genetic counseling; (2) the Birth Defects Atlas
     and Compendium, which standardizes names and descriptions
     of 1,005 congenital anomalies, in four languages; and (3)
     Genetics in Practice, a quarterly newsletter for health
     professionals.
     
     The March of Dimes operates the California Birth Defects
     Monitoring Program, which gathers data on the incidence of
     birth defects in the State, through a grant from the
     California Department of Health.
     
     The March of Dimes has 134 chapters geographically placed
     throughout the United States.  Requests for information
     can be directed to your local chapter (consult your local
     telephone directory) or to the March of Dimes Birth
     Defects Foundation at the above address.
     
     
     Materials Development Center (MDC)
Stout Vocational Rehabilitation Institute
School of Education and Human Services
University of Wisconsin-Stout
Menomonie, WI  54751
(715) 232-1342 (Voice/TDD)
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Vocational evaluators, adjustment
     specialists, rehabilitation facility managers,
     administrators, state VR agency personnel, private
     industry rehabilitation personnel, and independent living
     personnel.
     
     The Organization:   The Materials Development Center (MDC)
     is a national central source for the collection,
     development, publication, and dissemination of information
     and materials in the area of vocational evaluation, work
     adjustment, facility management, independent living, and
     job placement.  The Center monitors needs of professionals
     in these areas and publishes materials that meet those
     needs.  MDC publications are listed in the free MDC
     catalog.
     
     Information Services:   The Work Sample Manual
     Clearinghouse Catalog, available upon request, describes
     MDC's work sample manuals, designed to assess the ability
     to perform various types of mechanical and clerical tasks. 
     The approximate cost of assessment tools is given.
     
     
     Maternal and Child Health Bureau
Division of Services for Children With Special
Health Needs
Health Resources and Services Administration
U.S. Department of Health and Human Services
5600 Fishers Lane 
Room 9-48
Rockville, MD  20857
(301) 443-2350
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Children with special health needs and
     their families.
     
     The Organization:   The Maternal and Child Health Bureau
     provides block grants to the States to provide and to
     promote family-centered, community-based, coordinated care
     for children with special health needs, and to facilitate
     the development of community-based systems of services for
     these children and their families.  Other funding
     activities include project grants for training; research
     grants for applied research programs; special project
     grants for projects of regional and national significance;
     hemophilia diagnostic and treatment centers; genetic
     diseases testing and counseling services; and funding for
     Pediatric AIDS Health Care Demonstration Projects, grants
     dealing with national issues affecting women, children,
     and youth and their families who are at risk of HIV
     infection; and funding for one National Pediatric HIV
     Resource Center.
     
     Information Services:   Information concerning one of the
     State block programs may be obtained from the individual
     State health agency.  Information concerning any of the
     project grant programs may be obtained by calling or
     writing the Maternal and Child Health Bureau.
     
     
     Mental Health Law Project (MHLP)
1101 15th Street, NW
Suite 1212
Washington, DC  20005
(202) 467-5730
     
     Disabilities Served:   Mental and emotional disorders and
     developmental disabilities.
     
     Users Served:   Attorneys, disability organizations
     (parent/professional/ client groups).
     
     The Organization:   Formed in 1972 as a nonprofit public
     organization, the Mental Health Law Project (MHLP) is
     dedicated to laws reform advocacy on behalf of people
     labeled mentally or developmentally disabled.  Test case
     litigation is used to define, establish, and implement the
     rights of such persons.  Landmark judicial decisions are
     followed with policy advocacy at the Federal level. 
     Priority issues are preventing neglect and abuse of
     institutionalized mentally disabled people and generating
     adequate health and mental health care, education,
     housing, vocational and supportive services for mentally
     disabled people living in the community.  Mental Health
     Law Project (MHLP) also devotes some resources to
     protecting the civil rights of persons subject to civil
     commitment or procedures (e.g., ECT, psychotropic drugs). 
     Regional training conferences on mental disability law
     have been cosponsored with the Practicing Law Institute. 
     Advice on legal strategies for clients appearing before
     administrative agencies and legislative bodies is
     available; when appropriate, MHLP will represent
     protection and advocacy organizations before Federal
     agencies.
     
     Information Services:   MHLP offers backup assistance to
     attorneys and other advocates representing mentally
     handicapped clients.  These services include model
     pleadings, legal citations and technical references,
     discussion of strategies, and comments on pleadings, draft
     legislation/regulations, assistance in using experts,
     provision of articles, memoranda, bibliographies, etc.  In
     answer to inquiries from professionals and other
     interested persons, MHLP supplies general information
     about legal rights and makes referrals to attorneys. 
     Publications include Legal Rights of Mentally Disabled
     Persons, a three-volume course book which includes
     technical information about mental health and retardation
     issues, case law, and legal analysis; and other books and
     reprints of articles by staff attorneys.  MHLP's Action
     Line is a bimonthly newsletter, which offers a succinct
     overview of Federal legislative, administrative and
     judicial developments affecting mentally disabled people. 
     Action Line is available with a contribution of $25 or
     more per year to MHLP.  MHLP's ALERT is a newsletter
     published occasionally to cover emerging issues that
     affect mentally disabled people, sent to all who request
     inclusion on the mailing list.  Also published biennially
     is the MHLP Summary of Activities, which reports on
     current litigation and issues of concern.  A nominal fee
     for duplication and mailing costs is charged for legal
     papers, bibliographies, and other information.
     
     Mental Health Materials Center
P.O. Box 304
Bronxville, NY  10708
(914) 337-6596
     
     Users Served:   National professional associations, State
     agencies at the governmental and nonprofit levels as well
     as the National Institutes of Mental Health, Drug Abuse
     and Alcohol and Alcoholism and the U.S. Department of
     Education, University Presses, etc.
     
     The Organization:   Since its founding in 1953, one of the
     primary purposes of the Mental Health Materials Center has
     been to provide services to agencies in the fields of
     health and mental health that will facilitate the maximum
     outreach of their publishing activities.  In carrying out
     these responsibilities, it offers expertise in developing
     and marketing such publications.
     
     Information Services:   Further information on the Mental
     Health Materials Center is available upon request.
     
     
     Mobility International USA (MIUSA)
P.O. Box 3551
Eugene, OR 97403
(503) 343-1284 (Voice/TDD)
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Disabled persons, parents, teachers,
     recreation therapists, travel agents.
     
     The Organization:  Mobility International USA (MIUSA), a
     nonprofit membership organization for disabled people and
     other interested persons, is affiliated with Mobility
     International, an organization founded in London to help
     integrate disabled persons into international educational
     exchange programs and travel.  MIUSA works to expand
     opportunities for disabled people in these areas through
     advocacy, international conferences, international work
     camps, workshops, and development and distribution of new
     publications, in addition to conducting international
     educational exchange programs.
     
     Information Services:  MIUSA members receive information
     and referral services in the areas of travel and placement
     in international work camps and educational exchange
     programs.  A quarterly newsletter, Over the Rainbow, is
     available to members.  MIUSA also publishes A World of
     Options for the 1990's:  A Guide to International
     Educational Exchange, Community Service and Travel for
     Persons with Disabilities, A New Manual for Integrating
     Persons With Disabilities into International Educational
     Exchange Programs, and  You Want to Go Where?  A Guide to
     China, For Travelers with Disabilities and Anyone
     Interested in Disability Issues.  Videotapes available are 
     Looking Back, Looking Forward,  interviews with exchange
     participants, and  Mi Case es Su Casa,  videotape of the
     Costa Rican exchange.  The newsletter and books can be
     obtained on cassette; there is limited information
     available in Spanish.  Specific information on program
     opportunities is limited to members only, but
     publications, the audiovisuals, and workshops are
     available to the public.  MIUSA offers a variety of
     international exchange experiences each year.  Contact
     MIUSA for more information.
     
     
     Muscular Dystrophy Association (MDA)
3561 East Sunrise Drive
Tucson, AZ  85718
(602) 529-2000
     
     Disabilities Served:  Muscular dystrophy and related
     neuromuscular disorders.
     
     Users Served:  Individuals with neuromuscular diseases and
     their families.
     
     The Organization:  The Muscular Dystrophy Association
     (MDA) supports research into 40 neuromuscular disorders. 
     It also provides medical care and other direct services to
     people with neuromuscular disorders through 230 clinics
     and some 160 local chapters.  MDA clinics provide
     diagnosis, physical therapy, medical care, and counseling. 
     Upon prescription, MDA chapters provide payment for
     services including physical, occupational, and respiratory
     therapies selected; durable medical equipment;
     transportation; and flu shots.  The chapters also sponsor
     recreational activities, such as summer camps, picnics,
     and outings.  Some chapters organize self-help groups for
     people with neuromuscular diseases.
     
     Information Services:  MDA publishes brochures and
     audiovisual materials about neuromuscular diseases.  Its
     quarterly magazine covers progress in research,
     legislation, and various MDA-supported programs. 
     Publications are free and available from MDA's national
     office or its chapters, many of which publish additional
     informative materials.  Local chapters hold patient
     seminars, which focus on available community, financial,
     educational, and psychological programs.  They also hold
     professional seminars on diagnosis, clinical management,
     and research.
     
     
     Myasthenia Gravis Foundation (MGF)
53 West Jackson
Suite 1352
Chicago, IL  60604
(312)427-6252
(800) 541-5454
     
     Disabilities Served:  Myasthenia gravis.
     
     Users Served:   Myasthenia gravis patients, their families
     and friends, medical professionals, and the public.
     
     The Organization:   The Myasthenia Gravis Foundation (MGF)
     is a nonprofit organization concerned with improving the
     lives of all people affected by myasthenia gravis.  The
     foundation achieves its mission through programs of
     research, education, information, patient services, and
     fundraising.
     
     Information Services:  The foundation issues publications
     for patients and medical professionals treating patients
     (Physician's Manual, A Manual for the Nurse).  Literature
     is sent to patients.  Over 50 chapters and branches
     provide support group meetings and counseling, seminars,
     patient literature, and assistance.  Annual scientific
     sessions presenting current research and an international
     symposium are sponsored every 5 years.  Public service
     television and radio spots are also produced and
     distributed.  Most chapters publish newsletters for
     patients and families.  The Foundation has a Medical
     Advisory Board and a Nurses Advisory Board.  Publications
     include Physician's Manual, Practical Guide to Myasthenia
     Gravis, A Manual for the Nurse, Myasthenia Gravis
     Foundation.
     
     
     Narcotics Anonymous (NA)
P.O. Box 9999
Van Nuys, CA  91409
(818) 780-3951
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Anyone with the desire to stop using
     drugs.
     
     The Organization:   Narcotics Anonymous (NA) is an
     international organization of recovering drug addicts who
     meet with one another regularly to help each other recover
     from the effects of addiction on their lives.  By
     providing mutual support and practicing the principles of
     Narcotics Anonymous' program of recovery, NA members learn
     to live drug-free.  Currently there are in excess of
     20,000 weekly meetings internationally.  There are no dues
     or fees required for services and NA declines all outside
     contributions. 
     
     Information Services:   Narcotics Anonymous World Service
     Office publishes a catalog that includes a variety of NA
     copyrighted recovery literature written in several
     languages, in braille, and on audio tape.  Other
     publications include a fellowship periodical called The NA
     Way, an international meeting in print; a Narcotics
     Anonymous Directory, which provides contact information
     for local NA communities; the Meeting by Mail, a
     newsletter for addicts seeking recovery who are isolated
     from NA; and Reaching Out, a newsletter for addicts
     seeking recovery while in hospitals or other institutions.
     
     
     National Accreditation Council for Agencies Serving
the
 Blind and Visually Handicapped (NAC)
232 Madison Avenue
Suite 907
New York, NY  10016
(212) 779-8080
      
     Disabilities Served:  Blindness and visual impairments.
     
     Users Served:  Facilities and agencies that serve blind
     individuals.
     
     The Organization:  The National Accreditation Council for
     Agencies Serving the Blind and Visually Handicapped (NAC)
     establishes and maintains accreditation standards for
     agencies and schools that specialize in serving blind
     children and adults.  The council accredits organizations
     that meet its standards and reviews services and
     management periodically to assure continued worthiness for
     accredited status.
     
     Information Services:  NAC provides information about its
     standards, which is published in the form of self-study
     and evaluation guides.  They encompass the following
     subjects:  governing structure and function, personnel
     administration and volunteer service, accounting, physical
     facilities, public relations and fund raising, orientation
     and mobility, social work and recreation, rehabilitation
     centers, vocational services, workshops, production of
     reading materials, low vision services and education
     services of schools for the blind.  Print copies may be
     purchased from NAC; braille and recorded copies are
     available from the Library of Congress.  Free periodicals
     are The Standard-Bearer (includes a semiannual list of
     accredited members and an annual list of sponsors and
     supporters) and the Annual Report.  Periodicals are
     available in print and on cassette.
     
     
     National Addison's Disease Foundation (NADF)
505 Northern Boulevard
Suite 200
Great Neck, NY  11021
(516) 487- 4992
     
     Disabilities Served:   Addison's disease.
     
     Users Served:   Individuals with Addison's disease
     (primary adrenal insufficiency) and their families.
     
     The Organization:   The National Addison's Disease
     Foundation (NADF) was founded in 1985.  The NADF is
     dedicated to serving the needs of Addisonians, and their
     families, especially through education, support groups,
     and ultimately research.
     
     Information Services:   The NADF newsletter is published
     semiannually.  Information is also available upon request
     on the subject of Addison's disease.  The organization
     also coordinates regional meetings on a wide range of
     issues relating to Addison's disease.
     
     
     National Adoption Center
1218 Chestnut Street
Philadelphia, PA 19107
(215) 925-0200
     
     Disabilities Served:  Developmental disabilities and
     social and environmental deprivation.
     
     Users Served:  Disabled children with special needs.
     
     The Organization:  The mission of the National Adoption
     Center is to promote adoption opportunities for children
     with special needs.  These include children with
     emotional, physical, or developmental disabilities or
     groups of siblings who need homes together.  Many of the
     children are older and come from minority cultures.  The
     center does not determine where children will be placed
     but works cooperatively with adoption agencies around the
     country on the children's behalf.  The center operates a
     computer-based exchange that allows it to "match" a child
     from one part of the country with a family from another. 
     The center maintains an information and referral service
     on adoption and related issues, conducts professional
     training, and does extensive recruitment for adoptive
     families.  The Federal Government estimates that there are
     approximately 35,000 "legally free" children in the
     country who wait for permanent families.
     
     Information Services:  The center, partially federally
     funded, welcomes inquiries from people who want to know
     more about adoption, in particular, from families who want
     to explore the possibilities of adopting a special needs
     child.
     
     
     National AIDS Hotline
American Society Health Association
P.O. Box 13827
Research Triangle Park, NC  27709
(800) 342-2437
     
     Disabilities Served:   HIV Infection/AIDS.
     
     Users Served:   People who need information about HIV
     infection or AIDS.
     
     The Organization:  The National AIDS Hotline is a
     toll-free service of the U.S. Department of Health and
     Human Services, Public Health Service, Centers for Disease
     Control (CDC).  The Hotline provides callers with
     confidential information and referrals and can arrange for
     the mailing of free written materials.  Callers to the
     National AIDS Hotline number, 
     1-800-342-AIDS (342-2437), are able to speak with
     information specialists who can answer their questions
     about HIV infection and AIDS and provide appropriate
     referrals to meet their individual needs.  Information
     specialists use a computerized system to access the
     referral data base of approximately 10,000 local and
     national organizations.
     
     All services of the National AIDS Hotline are free and
     confidential.  Callers who want general information about
     HIV infection or AIDS, or who may have very sensitive or
     personal questions, are able to speak with specially
     trained staff who will listen to their concerns and
     provide information and referral services that meet their
     individual needs.
     
     Spanish speaking callers may call 1-800-344-SIDA
     (344-7432) between the hours of 8 a.m. and 2:00 a.m.
     Eastern Time to speak with native Spanish-speaking
     information specialists.  This service is available 7 days
     a week.  
     A recorded message, in Spanish, with basic information
     about HIV infection and prevention is available between 2
     a.m. and 8 a.m. Eastern Time.
     
     Deaf callers who have access to a TTY (teletypewriter)
     machine may dial 
     1-800-AIDS-TTY (243-7889) to reach information specialists
     who are skilled in English and American Sign Language
     (ASL).  The TTY/TDD lines are staffed between 10 a.m. and
     10 p.m. Eastern Time, Monday through Friday.  During the
     weekend, and between the hours of 10 p.m. and 10 a.m.
     weekdays, callers receive a prerecorded message informing
     them about HIV infection, AIDS, and methods to reduce the
     risk of transmission.
     
     Information Services:   Free publications, brochures, and
     posters are available.
     
     
     National AIDS Information Clearinghouse
P.O. Box 6003
Rockville, MD  20850
(800) 458-5231
(800) 243-7012 (TTY/TDD)
     
     Disabilities Served:   Persons with HIV or AIDS, special
     health needs, visual impairments, and hearing impairments.
     
     Users Served:   The National AIDS Information
     Clearinghouse's services are aimed primarily at
     professionals, including public health professionals,
     educators, social service workers, attorneys, employers,
     and human resource managers.  These professionals work in
     a variety of settings, including State AIDS programs,
     community-based organizations, AIDS service organizations,
     businesses, and associations.
     
     The Organization:   The National AIDS Information
     Clearinghouse is the Centers for Disease Control's primary
     reference, referral, and publications distribution service
     for HIV and AIDS information.  The Clearinghouse acquires,
     organizes, reviews, updates, and distributes this
     information.
     
     Information Services:   Through the Clearinghouse you can
     identify organizations, clinics, hospitals, extended-care
     facilities, public health departments, commercial
     enterprises, and religious groups that offer HIV- and
     AIDS-related services; locate hard-to-find educational
     materials, brochures, pamphlets, State reports, posters,
     and audiovisuals and learn how to obtain copies; order
     multiple or single copies of key publications on HIV
     infection and AIDS; locate sources of funding for both
     community-based and HIV and other AIDS service
     organizations; and receive personalized assistance from
     bilingual health specialists who speak English, Spanish,
     French, and Korean.
     
     
     National Alliance for the Mentally Ill (NAMI)
2101 Wilson Boulevard
Suite 302
Arlington, VA  22201
(703) 524-7600
(800) 950-NAMI
     
     Disabilities Served:   Mental illness.
     
     Users Served:  Disabled persons and their families.
     
     The Organization:   The National Alliance for the Mentally
     Ill (NAMI) was founded in 1979 by independent self-help
     organizations concerned with seriously mentally ill
     individuals in institutions and in the community.  The
     organization promotes public education on mental illness;
     consumer advocacy at the local, State, and national
     levels; legislation and funding to improve services for
     chronically ill people; and research into causes, better
     treatments, and possible cures of serious mental illness. 
     NAMI promotes quality treatment, rehabilitation, and
     support services, and encourages mental health
     professionals to be more responsive to seriously mentally
     ill persons and their families.  Its affiliates offer
     emotional support, practical guidance, and information on
     mental illness and local services.  Some affiliates
     maintain libraries. 
     
     Information Services:  The national office coordinates and
     disseminates information and materials to affiliates. 
     Membership applications are available from NAMI or local
     affiliates.  A bimonthly newsletter is published.
     
     A toll-free number for nonmembers seeking information on
     mental illness and local support groups is available: 
     1-800-950-NAMI.
     
     
     National Alliance of Blind Students 
1155 15th Street NW
Suite 720
Washington, DC  20005
(202) 467-5081
(800) 424-8666
     
     Disabilities Served:   Visual impairment. 
     
     Users Served:   Primarily college students in any field of
     study; also includes recent college graduates, high school
     students, parents, teachers, and rehabilitation
     professionals.
     
     The Organization:   The National Alliance of Blind Student
     (NABS) is a national organization of blind students who
     have a vested interest in education and integration of
     blind and visually impaired students on college campuses. 
     NABS is involved in legislation and policymaking related
     to rehabilitation programs, financial aid, equal access to
     classes, provision of alternative textbooks and new
     technologies.  NABS has a scholarship fund which was set
     aside in 1990.  As an affiliate member of the American
     Council of the Blind, NABS members are entitled to
     services at the national level including national
     legislative lobbyist, free legal advise in issues related
     to blindness, and information about the civil rights of
     blind students.
     
     Information Services:  The Student Advocate is the
     newsletter produced quarterly by the National Alliance of
     Blind Students.  The Student Advocate serves as a link for
     college students across the United States.  Brochures are
     available by writing the above address.  NABS members meet
     on an annual basis to exchange information at their
     national meeting in conjunction with the national meeting
     of the American Council of the Blind.  As an affiliate
     member of the American Council of the Blind, members
     receive the bimonthly newsletter, The Braille Forum and
     access to the toll-free telephone service.
     
     
     National Amputation Foundation (NAF)
12-45 150th Street
Whitestone, NY  11357
(718) 767-0596
     
     Disabilities Served:  Amputation.
     
     Users Served:  Amputees.
     
     The Organization:  The National Amputation Foundation
     (NAF) was established to help the amputee adjust to his or
     her handicap by encouraging integration into the general
     community.  To this end, NAF offers volunteer assistance
     to new amputees in hospitals; monthly social meetings
     focusing on topics of concern to the amputee, such as
     legal rights, benefits, and employment; and training in
     the use of prosthetics.
     
     Information Services:  NAF provides information on
     veterans' benefits and refers the amputee to possible
     sources of financial aid, legal assistance, and employment
     services.  The foundation has a reference library on
     amputation and materials are available for loan to any
     interested person.  A monthly newsletter, The AMP, covers
     the highlights of NAF meetings.
     
     
     National Anorexic Aid Society (NAAS)
1925 East Dublin Granville Road
Columbus, OH  43229
(614) 431-1112
     
     Disabilities Served:   Psychological dysfunctions focusing
     on eating disorders.
     
     Users Served:  Disabled persons, physicians, health care
     professionals, general public.
     
     The Organization:   The National Anorexic Aid Society
     (NAAS) provides information, education, and referral
     services to professional treatment providers, individuals
     with eating disorders as well as their families, and
     friends.  NAAS is a nonprofit organization established in
     1977 for the purpose of education and prevention of eating
     disorders.  It is affiliated with the Center for the
     Treatment of Eating Disorders, a Harding outpatient
     service that offers specialized treatment for persons with
     eating disorders.  In addition, NAAS conducts and promotes
     applied research in the area of eating disorders.  NAAS
     sponsors four support groups in the Columbus, Ohio, area
     for individuals with eating disorders and for family
     members and friends.
     
     Information Services:   NAAS sponsors an annual National
     Conference on Eating Disorders in the Columbus, Ohio,
     area.  It offers an international treatment referral
     directory and support group registry.  In addition, NAAS
     has a Speakers Bureau that provides professional seminars
     throughout the United States, as well as, presentations to
     community organizations, schools, and universities.  NAAS
     offers support group information packets and eating
     disorder information packets to approximately 150 people
     around the United States each month.  It sends a quarterly
     newsletter for members of NAAS and has published a
     curriculum plan for teachers and professionals called The
     Psychology of Eating Disorders:  A Lesson Plan for Grade 7
     - 12.
     
     National Arthritis and Musculoskeletal and Skin
Diseases
 Information Clearinghouse
Box AMS 
9000 Rockville Pike
Bethesda, MD  20892
(301) 495-4484
     
     Disabilities Served:   Rheumatoid arthritis,
     osteoarthritis, gout, systemic lupus erythematosus,
     scoliosis, scleroderma, sports injuries, and approximately
     600 other rheumatic, musculoskeletal, and skin diseases.
     
     Users Served:   Physicians, nurses, occupational and
     physical therapists, librarians, researchers, educators,
     members of the media, patients and their families.
     
     The Organization:   The National Arthritis and
     Musculoskeletal and Skin Diseases Information
     Clearinghouse is a service of the National Institute of
     Arthritis and Musculoskeletal and Skin Diseases, a
     division of the National Institutes of Health. 
     Established in 1978, the Clearinghouse is a national
     resource center for information about professional,
     patient, and public education materials; community
     demonstration programs; and Federal programs related to
     rheumatic, musculoskeletal, and skin diseases.
     
     Information Services:    The Clearinghouse maintains the
     Combined Health Information Database (CHID), an online
     computerized data base available to the public via BRS
     Information Technologies.  Bibliographies, catalogs,
     directories, and factsheets, as well as a biannual
     newsletter, are compiled and distributed.
     
     
     The National Assembly of National Voluntary
 Health and Social Welfare Organizations, Inc.
1319 F Street
Suite 601
Washington, DC  20004
(202) 347-2080
     
     Disabilities Served:  Interested in provision of human
     services to individuals having all handicaps.
     
     Users Served:  National voluntary health and human service
     organizations.
     
     The Organization:  The National Assembly of National
     Voluntary Health and Social Welfare Organizations, Inc.,
     is an association of national voluntary human service
     organizations that work together to advance the mission of
     each agency and the human service sector as a whole.
     
     Information Services:  The National Assembly has numerous
     professional development groups serving executives,
     boards, and staffs of nonprofit health and human service
     organizations.  The Assembly issues numerous publications,
     including A Study in Excellence:  Management in the
     Nonprofit Human Services and A Community Collaboration
     Manual.  The assembly also puts on a number of
     conferences, including in April of 1991 on compliance and
     implementation of the Americans with Disabilities Act.
     
     
     National Association for Children of Alcoholics
(NACoA)
31582 Coast Highway
Suite B
South Laguna, CA  92677
(714) 499-3889
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Educators, public health professionals,
     therapists, preventionists, addiction specialists,
     recovering children of alcoholics.
     
     The Organization:  The National Association for Children
     of Alcoholics (NACoA) is a growing nonprofit association
     concerned with prevention and reduction of the incidence
     of alcoholism and drug abuse related problems in children
     of alcoholics and other drug abusers. 
     
     Information Services:  NACoA offers a school package
     targeting elementary schoolchildren, It's Elementary.  
     Included in this package are a resource folder, a Marvel
     comic book, six different Marvel character posters, Its
     Elementary..., and Children of Alcoholics:  Meeting the
     Needs.  NACoA also offers two (2) guides, COA's Meeting
     the Needs of the Young COA in the School Setting by
     Morehouse/Scola and It's Elementary, Meeting the Needs of
     High Risk Youth in the School Setting.  The association
     publishes a quarterly newsletter, NACoA Network,  and
     sponsors an annual convention.  It also offers training
     seminars for school systems--professional and
     nonprofessional.
     
     National Association for Hearing and Speech
 Action (NAHSA)
10801 Rockville Pike
Rockville, MD  20852
(301) 897-8682 (Voice and TDD)
(800) 638-8255 (Voice and TDD)
      
     Disabilities Served:  Speech, language, and hearing
     impairments.
     
     Users Served:  Disabled persons, parents, teachers,
     physicians.
     
     The Organization:  The National Association for Hearing
     and Speech Action (NAHSA) is committed to encouraging
     quality services for persons with special hearing, speech,
     and language needs; increasing public understanding of
     communication problems; and stimulating consumer advocacy. 
     NAHSA is the consumer affiliate of the American
     Speech-Language-Hearing Association (ASHA).
     
     Information Services:  NAHSA contributes financially to
     the programs of ASHA's Consumer Affairs Division.  These
     programs include informational brochures and packets on a
     broad range of speech, language and hearing disorders; a
     toll-free telephone number (800-638-8255) for consumer
     assistance and referral; and, a consumer newsletter, Let's
     Talk, published eight times a year.
     
     
     National Association for Home Care (NAHC)
519 C Street, NE
Stanton Park
Washington, DC  20002
(202) 547-7424
     
     Disabilities Served:   Anyone in need of home care and
     hospice services.
     
     Users Served:   Home care and hospice providers, health
     care professionals, general public.
     
     The Organization:   The National Association for Home Care
     (NAHC) is the trade association that represents the
     Nation's home health agencies, hospices, and homemaker
     home health aide organizations.  Its members are primarily
     corporations or other organizational entities.  These
     organizations provide health care and supportive services
     to needy and infirm people in their own homes.  NAHC also
     accommodates individual memberships.  In addition to
     serving as the voice of the home care community before
     Congress, the regulatory agencies, and the media, NAHC
     provides the following services to its members: 
     educational opportunities; meetings; insurance benefits;
     information services; and legislative, regulatory, and
     legal assistance.
     
     Information Services:   NAHC produces several publications
     relating to home care and hospice, including a monthly
     magazine called Caring; a quarterly magazine, Caring
     People; a monthly newspaper, Homecare News; a weekly "hot
     sheet" of regulatory and legislative issues, NAHC Report;
     and a bi-monthly hospice newsletter, Hospice Forum.  NAHC
     also publishes research, regulatory, and legislative
     papers.
     
     
     National Association for Music Therapy (NAMT)
505 Eleventh Street, SE
Washington, DC  20003
(202) 543-6864
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Music therapists, students, health
     professionals, personnel at facilities.
     
     The Organization:  The National Association for Music
     Therapy (NAMT) promotes the development of music as
     therapy by (1) approving university curricula for music
     therapy programs, (2) approving clinical facilities for
     training music therapists, (3) registering professional
     music therapists, and (4) providing technical assistance
     in the field of music therapy.  The association has eight
     regional chapters.
     
     Information Services:  Free publications of NAMT include
     brochures about music therapy as a career.  Other
     publications of the association, such as  Effectiveness of
     Music Therapy Procedures, Handbook of Music Psychology,
     Job Listings, Grants Resource Guide, and Music Therapy
     Perspectives, are sold.  A quarterly journal that contains
     reports of original investigations and theoretical papers
     pertaining to music therapy is free to members;
     subscriptions are sold to nonmembers.  A bimonthly
     newsletter contains information on conferences, government
     relations news, basic music therapy information, and other
     items of interest.  Additional membership materials may
     also be purchased by nonmembers.  Interested consumers are
     referred to music therapists or to facilities that employ
     music therapists.  Referral services for job placements,
     internship sites, and colleges and universities are
     available to members and students. 
      
     National Association for Parents of the Visually
Impaired (NAPVI)
2180 Linway Drive
Beloit, WI  53511
(800) 562-6265
     
     Disabilities Served:   Blindness, visual impairment,
     blindness or visual impairment with multisensory and/or
     multihandicapping conditions.
     
     Users Served:   Parents of blind or visually handicapped
     children, associates, professionals, groups, and agencies.
     
     The Organization:   The National Association for Parents
     of the Visually Impaired (NAPVI) promotes and provides
     information through workshops and publications that help
     parents meet the unique needs of their visually impaired
     child.  Other goals include promoting the development of
     State and local organizations of, by, and for parents of
     visually impaired children; increase public awareness
     about visually impaired people so they are accepted by
     society; and foster communication and coordination of
     services among Federal, State, and local agencies and
     organizations involved with visually impaired people.
     
     Information Services:   NAPVI offers a quarterly
     newsletter, printed materials, books, audiotapes, video
     tapes, parent networking, eye conditions information,
     information about groups and agencies.
     
     
     National Association for Sickle Cell Disease, Inc.
(NASCD)
3345 Wilshire Boulevard
Suite 1106
Los Angeles, CA 90010
(213) 736-5455
(800) 421-8453 
     
     Disabilities Served:  Sickle cell disease (including
     sickle cell anemia, hemoglobin C, and thalassemia).
     
     Users Served:  Disabled persons, parents, teachers,
     physicians, nurses, social workers, students, general
     public.
     
     The Organization:  The National Association for Sickle
     Cell Disease (NASCD) is an organization of 80 community
     sickle cell programs located throughout the United States. 
     The national office has an extensive public and
     professional education program about sickle cell disease,
     its variants, and sickle cell trait.  The organization
     provides leadership on a national level to create
     awareness in all circles of the negative impact of sickle
     cell anemia on the health, economic, social, and
     educational well-being of the individual and his/her
     family and to create awareness of the requirements for
     resolution of the problem.  The national office provides
     support for research, conducts an apprenticeship program,
     and provides scholarships for high school seniors.
     
     NASCD provides technical assistance to its affiliates and
     to groups interested in setting up community sickle cell
     programs.  Affiliates conduct a variety of services,
     depending on the particular needs of the communities they
     serve.  Services may include sickle cell screening,
     counseling to parents who possess the sickle cell trait
     and to patients with sickle cell disease, blood banks,
     tutoring, vocational rehabilitation, transportation
     services, babysitting, etc.  The national office and its
     affiliates provide training to genetic counselors in how
     to counsel persons with sickle cell trait.
     
     Information Services:  NASCD's information is directed to
     lay persons, physicians and other professionals, and
     sickle cell program administrators and volunteers.  Lay
     materials include factsheets, audiovisuals, color prints,
     and brochures about sickle cell trait and anemia,
     thalassemia, and hemoglobin C.  A Home Study Kit for
     Families includes printed materials, cassettes, games, and
     other learning devices to help parents and other family
     members cope with the problems of the child or the family
     members.  Professional materials include reprints of
     articles for pediatricians and genetic counselors and a
     variety of manuals on the establishment of sickle cell
     programs, laboratory procedures for detection of the
     disease, and guidelines for legislation.  NASCD's
     scientific advisory board contributes news on the latest
     research developments in sickle cell disease to the
     organization's newsletter, Sickle Cell News, published
     quarterly.  Materials are available to all persons for a
     nominal fee and/or free of charge.
     
     
     The National Association for the Craniofacially
Handicapped
P.O.  Box 11082
Chattanooga, TN  37401
(615) 266-1632
     
     Disabilities Served:   Craniofacial handicaps.
     
     Users Served:    Children and adults throughout the United
     States who have severe craniofacial disfigurement as a
     result of birth, accident, or disease.
     
     The Organization:    FACES is a voluntary, nonprofit
     organization that furnishes travel expenses for a client
     and one family member, as they travel from their home to a
     comprehensive medical center for reconstructive facial
     surgery.  Travel expenses include food, travel, lodging,
     parking, and tolls.  Clients are accepted on the basis of
     medical and financial need.  Surgical reconstructive
     procedures often span a number of years, and FACES
     attempts to continue assistance for as long as is
     necessary to rebuild the face.  FACES acts as advocate for
     people who are craniofacially disfigured in the social,
     medical, and political communities.  The association
     provides networking and support systems among families who
     share craniofacial problems.
     
     Information Services:   FACES publishes a newsletter
     several times a year that describes craniofacial syndromes
     and problems, medical treatments for them, and the many
     activities of the association.  FACES furnishes
     information about craniofacial centers and other resources
     and publishes a brochure that further details the scope of
     the organization.  All materials are furnished free of
     charge.
     
     
     National Association for the Dually Diagnosed (NADD)
110 Prince Street
Kingston, NY  12401
(914) 331-4336
(800) 331-5362
     
     Disabilities Served:   Mental illness and mental
     retardation.
     
     Users Served:   Professionals and parents.
     
     The Organization:   The National Association for the
     Dually Diagnosed (NADD) is a national organization
     designed to educate the professional community, support
     parents, and advocate for resources for persons who have
     psychiatric disorders and mental retardation.
     
     Information Services:   NADD publishes a newsletter, has
     available audio cassettes and bibliographies, distributes
     brochures, sponsors regional and national conferences, and
     offers referral services.
     
     National Association for Visually Handicapped (NAVH)
22 West 21st Street
New York, NY 10010
(212) 889-3141
     
     Disabilities Served:  Partial visioned.
     
     Users Served:  Disabled persons, parents, teachers,
     professionals, and businesses.
     
     The Organization:  The National Association for Visually
     Handicapped (NAVH) provides information, referral, and
     direct services.  Direct services include (1) offering a
     free loan library of large print books by mail; (2) 
     offering a wide variety of visual aids in visual aids
     rooms in New York and San Francisco; (3) serving as
     advocate for the partially seeing population to Federal,
     State, and local government agencies; (4) offering adult
     and senior self-help groups in New York and San Francisco;
     (5) offering counsel and guidance to adults with partial
     vision and their families, to families and children with
     partial vision, and to all professionals and
     paraprofessionals who work with people with partial
     vision.
     
     Information Services:  NAVH acts as a clearinghouse of
     information for all services available to partially seeing
     persons from Federal, State, and local government agencies
     and from private sources.  NAVH publishes materials not
     available elsewhere, concerning the problems encountered
     by people with partial vision.  The organization publishes
     two newsletters in large print, one for children and one
     for adults.  The national office provides information and
     referral services worldwide to any inquirer outside of the
     13 Western States (includes Alaska and Hawaii).  Those 13
     States are served by NAVH, 3201 Balboa Street, San
     Francisco, CA  94121, (415) 221-3201.  Information on
     commercially available large print reading material and
     various visual aids is also disseminated.  Most
     information is provided in large print.  Most printed
     material is free of charge, although a nominal
     contribution is requested for some items.  
     
     
     National Association of Activity Therapy and
  Rehabilitation Programs (NAATRP)
Carlyle Center for Mental Health
6902 Chicago Road
Warren, MI  48092
(313) 264-8875
      
     Disabilities Served:  Primarily mental illness.
     
     Users Served:  Therapists (occupational, recreational,
     music, dance, etc.), rehabilitation and education
     specialists.
     
     The Organization:  The National Association of Activity
     Therapy and Rehabilitation Programs (NAATRP) is an
     organization for professionals involved in occupational,
     recreational, music, dance, and similar therapies, and
     rehabilitation, educational and related fields.  The
     association holds an annual meeting.  Its regional
     divisions offer other meetings and activities.
     
     Information Services:  The association publishes an
     informal newsletter for members 10 times a year as a forum
     for the exchange of ideas.
     
     
     National Association of Anorexia Nervosa and
Associated Disorders                  
  (ANAD)
P.O. Box 7
Highland Park, IL 60035
(708) 831-3438 
     
     Disabilities Served:   Eating disorders, anorexia nervosa,
     and bulimia nervosa.
     
     Users Served:   Anyone suffering or interested in eating
     disorders, primarily anorexia nervosa and bulimia nervosa,
     health professionals, and educators.
     
     The Organization:   The National Association of Anorexia
     Nervosa and Associated Disorders (ANAD) is an educational
     and self-help organization dedicated to alleviating the
     problems of anorexia nervosa and bulimia nervosa.  It was
     started in response to the isolation and desperation of
     anorexics and their families.  The group has reached
     national/international status through the success of its
     programs and has provided important aid to tens of
     thousands of victims and their families.
     
     ANAD seeks to serve the entire eating disorders field. 
     Services include a national hotline; help and information
     for thousands of eating disordered victims, families,
     schools, and health professionals each year; a referral
     list to anorexics/bulimics of 2,000 therapists, hospitals,
     and clinics treating eating disorders; training seminars
     and conferences for health professionals; early detection,
     education, and prevention; self-help support groups
     serving hundreds of communities nationwide and in 10
     foreign countries; a national newsletter; research;
     fighting job and insurance discrimination; a
     clearinghouse; and consumer advocacy.  All ANAD services
     are free.
     
     Information Services:   ANAD provides informational
     packets upon request.  A newsletter is also published on a
     quarterly basis.  This newsletter provides encouragement
     and stories of those in recovery as well as articles from
     health professionals.
     
     
     National Association of Private Psychiatric
Hospitals (NAPPH)
1319 F Street, NW
Suite 1000
Washington, DC  20004
(202) 393-6700
     
     Disabilities Served:   Member hospitals serve all
     handicaps.
     
     Users Served:   Providers of hospital and hospital-based
     services.
     
     The Organization:   The National Association of Private
     Psychiatric Hospitals (NAPPH) was formed in 1933 as a
     voluntary organization designed to work as an advocate for
     the advancement of interests of the Nation's
     non-governmental hospitals and the patients they serve, to
     promote high quality care and treatment for mentally ill
     people, and to promote cost-effective and efficient
     operation of the hospitals that provide those services. 
     NAPPH's member hospitals are located throughout the United
     States.  All populations--child, adolescent, young adult,
     adult, and geriatric--and all mental illnesses are treated
     in NAPPH facilities.  All members are accredited by the
     Joint Commission on Accreditation of Healthcare
     Organizations (JCAHO), are licensed by their States, have
     medical direction under a psychiatrist, and are active
     treatment hospitals.
     
     Information Services:   NAPPH publishes a quarterly
     clinical journal, The Psychiatric Hospital, which reports
     on clinical and administrative issues in hospital care. 
     In addition, the association provides other publications,
     workshops, and materials designed for clinicians,
     employers, insurers, and consumers.  A free Resource
     Catalog is available.  In addition to hospital
     memberships, there is a category of individual memberships
     available to those not affiliated with members or
     potential members.
     
     National Association of Private Residential
Resources (NAPRR)
4200 Evergreen Lane
Suite 315
Annandale, VA  22003
(703) 642-6614
      
     Disabilities Served:  Members of NAPRR provide residential
     services to people with mental retardation, cerebral
     palsy, autism, epilepsy, and other developmental
     disabilities.
     
     Users Served:  Providers of private residential services,
     parents, professionals, advocates.
     
     The Organization:  The National Association of Private
     Residential Resources (NAPRR) was founded in 1970 to
     improve the quality of life for people with developmental
     disabilities and their families by coordinating the
     efforts of providers of private residential services. 
     Active membership is open to any State or locally
     approved/licensed agency serving primarily people with
     developmental disabilities.  Associate membership is
     available to any interested person, organization, or
     facility not qualifying for full membership.
     
     The association offers group directors and officers
     insurance protection for eligible member agencies.
     
     Information Services:  NAPRR conducts conferences,
     workshops, and studies and issues bulletins and a monthly
     newsletter, LINKS, to keep its members informed of current
     legislation and regulations, safety and access standards,
     funding sources, Social Security benefits, the rights of
     people with disabilities and their parents, staff
     development techniques, and topics of current interest. 
     The newsletter is free to members; subscriptions are
     available for a charge to those not eligible for
     membership.  NAPRR News & Notes is a monthly in-house
     communication, which informs members of resources
     available to them, changes in applicable rules, and more. 
     The Executives' Notebook provides board members with
     ongoing information about association activities. 
     
     National Association of Private Schools for
 Exceptional Children (NAPSEC)
1522 K Street, NW
Suite 1032
Washington, DC  20005
(202) 408-3338
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Administrators of private special education
     schools, parents,
     professionals.
     
     The Organization:  The National Association of Private
     Schools for Exceptional Children (NAPSEC) was founded in
     1971 by a group of private special educators.  It provides
     a national voice for private facilities regarding policies
     and programs affecting exceptional students and is
     dedicated to encouraging cooperation among educational
     facilities serving exceptional students.  NAPSEC makes
     known to parents and to public and private referral
     sources the services of each of its member schools, so
     that all may work toward the best match of students and
     programs.
     
     Membership in NAPSEC is divided into two categories,
     regular and affiliate.  Regular membership is open to
     private facilities serving exceptional children in an
     educational/therapeutic setting; affiliation is open to
     organizations, agencies, or individuals concerned with
     private special education but not eligible for regular
     membership.
     
     Information Services:  NAPSEC provides a free referral
     service to member schools serving all categories of
     exceptionality and located throughout the country.  A
     Directory of Membership includes type of school, services
     offered, and population served.  THE NAPSEC NEWS is a
     newsletter published four times per year which includes
     information on national issues and updates on NAPSEC
     activities.  The National Issues Service provides
     up-to-the minute briefings on major legislative issues
     affecting the private special education community.
     
          National Association of Protection and Advocacy 
 Systems, Inc. (NAPAS)
900 Second Street, NE
Suite 211
Washington, DC  20002
(202) 408-9514 (Voice/TDD)

     Disabilities Served:   Developmental disabilities, mental
     illness, disabilities of clients or applicants of programs
     funded under the Rehabilitation Act.
     
     Users Served:   Protection and advocacy programs in every
     State of the United States and territory; other national
     disability organizations and associations; and individuals
     for information and referral.
     
     The Organization:   The National Association of Protection
     and Advocacy Systems, Inc., (NAPAS) is a nonprofit
     association of protection and advocacy programs: 
     Protection and Advocacy for Persons with Developmental
     Disabilities (PADD), Protection and Advocacy for Persons
     with Mental Illness Residing in Institutions (PAMII), and
     the Client Assistance Program (CAP) which serves clients
     or nonclients of vocational rehabilitation services.  P&A
     and CAP activities include (1) investigating, negotiating,
     or mediating solutions to problems expressed by persons
     with developmental disabilities, persons with mental
     illness or applicants/clients of programs funded under the
     Rehabilitation Act, their families or agency
     representatives; (2) providing technical assistance to
     attorneys, government agencies, and service providers; (3)
     providing legal counsel and litigation services to persons
     in this population and groups who are unable to attain
     adequate or appropriate legal services in their
     communities; and (4) training advocates, consumers,
     volunteers, professionals, and others.  NAPAS provides
     members with support in these and other areas via
     technical assistance and training activities.
     
     Information Services:   NAPAS has issued numerous
     publications on topics such as advocacy, coalition
     building, fair housing, HIV education, liability, and
     legal advocacy, developmental disabilities, individual
     rights, the Client Assistance Program, and vocational
     rehabilitation.  Publication list and order form
     available.
     
     The newsletter, The Update, reports on activities of
     members, court decisions, and legislation.  It is
     published three times a year and is available to
     nonmembers who express an interest in receiving it. 
     Nonmembers pay an annual fee.
     
     The annual NAPAS conference includes numerous sessions and
     in-depth workshops on topics dealing with rights, special
     education, litigation, social security, nursing home
     reform, community services, access, vocational
     rehabilitation, minority and cultural issues and new
     developments from court decisions, technology, recent
     legislation and subsequent regulations, implementation,
     and enforcement.
     
     
     National Association of Rehabilitation Agencies
(NARA)
1600 Wilson Boulevard
Suite 905
Arlington, VA  22209
(703) 525-1191
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Physical therapists, occupational
     therapists, speech-language-hearing therapists,
     rehabilitation professionals.
     
     The Organization:  The National Association of
     Rehabilitation Agencies (NARA) was founded in 1978.  The
     purpose of NARA is to foster interest in and provide for
     the growth of medicare certified rehabilitation agencies
     and to educate and support those agencies in their efforts
     to provide the highest possible level of patient care,
     service, and business success, while meeting the
     rehabilitation needs of the public.
     
     Information Services:  NARA News is the association's
     official publication, and Legislative Alerts are also
     issued with timely legislative and regulatory information. 
     A spring convention in Washington, DC, focuses on
     legislative and regulatory issues while a fall convention
     focuses on management issues and business practices for
     agency owners and administrators.
     
     
     National Association of Rehabilitation Facilities
(NARF)
P.O. Box 17675
Washington, DC  20041
(703) 648-9300
     
     Disabilities Served:  All.
     
     Users Served:  Rehabilitation facilities, professionals
     and providers.
     
     The Organization:   The membership of the National
     Association of Rehabilitation Facilities (NARF) is made up
     of institutions that offer rehabilitation services.  The
     purpose of the association is to strengthen rehabilitation
     services to persons who are disabled by representing the
     interests of these providers' services to the Federal
     Government and by providing field services and technical
     assistance to members.  State chapters work with NARF to
     improve facilities at the State and local levels, through
     various representative committees (e.g., vocational,
     medical and residential).
     
     Information Services:  NARF has information about Federal
     legislation affecting rehabilitation facilities and
     persons with disabilities.  NARF holds meetings and
     training seminars in various locations throughout the year
     on subjects related to the management, operation, and
     issues of rehabilitation facilities.   NARF publishes
     periodicals, bulletins, and newsletters for rehabilitation
     service administrators, including funding information for
     rehabilitation programs and the Rehabilitation Review, a
     weekly analysis of issues for rehabilitation facility
     professionals.  Sample copies are provided free of charge.
     
     
     National Association of Rehabilitation Instructors
Department of Rehabilitation Services
Woodrow Wilson Rehabilitation Center
Fishersville, VA  22939
(703) 332-7700
     
     Disabilities Served:   All disabilities.
     
     Users Served:  Physical therapists, occupational speech
     and visual therapists, special education instructors,
     vocational rehabilitation instructors, home health nurses.
     
     The Organization:   The National Association of
     Rehabilitation Instructors works to increase the
     understanding of instructors' roles in the total
     rehabilitation process.  Members not only advocate but
     they teach their students to advocate for persons with
     disabilities.  Membership services include national
     representation/advocacy, an annual national convention,
     State and regional conferences, division seminars,
     publications, professional divisions, etc.
     
     Information Services:   The association publishes The
     Bulletin.
     
          National Association of Rehabilitation Secretaries
(NARS)
633 South Washington Street
Alexandria, VA  22310
(703) 836-0850
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Persons engaged in secretarial, clerical,
     and support professions related in any way to the
     rehabilitation of persons with disabilities.
     
     The Organization:   The National Association of
     Rehabilitation Secretaries (NARS) is a division of the
     National Rehabilitation Association.  NARS is an
     association of secretarial support staff with the majority
     of the members employed in direct support of vocational
     rehabilitation supervisors, vocational rehabilitation
     counselors, and other staff whose main purpose is to
     promote the awareness of persons with disabilities and the
     vocational rehabilitation of these persons.  NARS
     Newsletter, published approximately three times a year,
     includes articles on rehabilitation and information of
     interest to the secretarial support staff.  NARS is a
     national organization with divisions in almost every
     State.  NARS is willing to assist in developing divisions
     in the States that do not have one.  In order to become a
     member of NARS, a person must first be a member of the
     National Rehabilitation Association.  Persons outside the
     field of rehabilitation who wish to promote awareness of
     persons with disabilities are invited to become members. 
     NARS meets in conjunction with the annual NRA conference,
     and State divisions meet annually in conjunction with the
     State meetings.  Training programs are included at
     national and State meetings.  NARS promotes other
     activities of concern to persons with disabilities.
     
     
     National Association of State Directors of Special
Education 
 (NASDSE)
1800 Diagonal Road
Suite 320
Alexandria, VA  22314
(703) 519-3800
     
     Disabilities Served:   All disabilities.
     
     Users served:   SEA and LEA personnel and parents.
     
     The Organization:   The National Association of State
     Directors of Special Education (NASDSE) is a nonprofit
     corporation founded and operating for the purpose of
     ensuring the effective provision of educational and
     support services necessary to maximize each exceptional
     child's educational development as well as economic and
     social opportunities.  Its membership is comprised of
     State educational agency personnel who have statewide
     responsibility for the education of exceptional children. 
     NASDSE believes that through the strengthening of SEA
     special education units, a major contribution can be made
     to the accomplishment of the association mission.  NASDSE
     is dedicated to ensuring the direct and active
     participation of its members in the association's
     operations.
     
     Information Services:   Information services include: 
     SpecialNet, Counterpoint, and Liaison Bulletin.
     
     
     National Association of State Mental Retardation 
 Program Directors, Inc. (NASMRPD)
113 Oronoco Street
Alexandria, VA  22314
(703) 683-4202
     
     Disabilities Served:   Mental retardation and
     developmental disabilities.
     
     Users Served:   Service providers, state mental
     retardation/developmental disabilities (MR/DD) directors
     and staffs, legislators and staffs.
     
     The Organization:   The membership of the National
     Association of State Mental Retardation Program Directors,
     Inc. (NASMRPD) consists of 53 State/territorial mental
     retardation (MR) program directors.  NASMRPD facilitates
     the exchange of information among members on effective
     methods of providing care and treatment for people who are
     mentally retarded, and it represents the views of its
     members before Congress and Federal agencies.
     
     Information Services:   NASMRPD collects information about
     available services and model service programs for mentally
     retarded and developmentally disabled (DD) persons in each
     State.  Areas of information include but are not limited
     to education, employment programs, public and private
     residential and day programs, foster care, early diagnosis
     and screening programs, recreation, and staff training
     programs.  NASMRPD has Federal and State legislative
     information in all areas affecting the MR field, including
     health, education, welfare, Social Security, housing,
     employment, and transportation issues.  Anyone may request
     information, but because of staff limitations, priority is
     given to members' requests.  The Association publishes two
     monthly newsletters, one focusing on innovative programs
     throughout the country, New Directions; the other on
     Federal legislative and administrative developments
     affecting the mentally retarded, Capitol Capsule.  It also
     publishes special reports analyzing legislation and other
     issues related to the MR/DD population.  In addition,
     NASMRPD publishes a periodic series of reports called the
     Federal Funding Inquiry on Federal legislative,
     administrative and judicial issues and activities of
     interest to State MR/DD officials, and service providers. 
     National and regional meetings, featuring seminars on
     specific service-need categories, are held primarily for
     directors and staff of State MR programs, but anyone may
     attend.  The association operates an electronic
     communication network (currently for members only) which
     carries announcements of interest to MR/DD directors and
     staffs.
     
     
     National Association of the Deaf (NAD)
814 Thayer Avenue
Silver Spring, MD  20910
(301) 587-1788 (Voice)
(301) 587-1789 (TDD)
     
     Disabilities Served:   Deafness, hearing loss.
     
     Users Served:   Disabled persons, teachers, health
     professionals.
     
     The Organization:   The National Association of the Deaf
     (NAD) is a consumer-oriented organization for
     professionals and lay persons.  It recommends and promotes
     legislation on behalf of deaf people in areas of
     education, rehabilitation, legal rights for the provision
     of interpreters, and captioned television.  NAD screens
     and evaluates general entertainment motion pictures, and
     recommends films to be captioned.
     
     Information Services:   NAD has information on where to
     find programs and services for the deaf, including
     schools, camps, interpreters, homes for the aged deaf,
     devices to assist deaf persons, hearing-ear dogs, and
     individual professional providers from medical specialists
     to speech therapists.  Information regarding legislation
     and legal rights of the deaf is also available.
     
     The organization offers a series of workshops (held at its
     biennial conference), for professionals and lay persons on
     such topics as legal concerns of the deaf, orientation to
     deafness, leadership training for deaf persons, and the
     need for and implementation of mental health services for
     the deaf.  A wide variety of books, audiovisual materials,
     and merchandise relating to deafness and sign language is
     available for sale from the NAD Publishing Division.  NAD
     publishes periodicals for general audiences:  The Deaf
     American, a magazine highlighting the achievements of deaf
     individuals; The Broadcaster, a newspaper covering
     legislative and legal issues.  General information is
     available free from the organization.
     
     
     National Ataxia Foundation (NAF)
600 Twelve Oaks Center
15500 Wayzata Boulevard
Wayzata, MN  55391
(612) 473-7666
     
     Disabilities Served:  Hereditary ataxia and related
     conditions.
     
     Users Served:  Disabled persons, parents, health care
     professionals.
     
     The Organization:  The National Ataxia Foundation (NAF)
     was established in 1957 to serve patients, identify
     persons at risk, educate the public and the medical
     community, and stimulate research.  Eleven chapters
     throughout the country offer genetic counseling and moral
     support to affected families, make referrals to medical
     and other direct service providers, and raise funds for
     research grants.  Clinics are offered in Minneapolis and
     elsewhere in the country where diagnosis and other
     information services are available from professionals
     experienced in work with this neurological disorder.
     
     Information Services:  Free booklets, brochures, and
     factsheets are available on hereditary ataxia, spastic
     paraplegia, Charcot-Marie-Tooth disease, hereditary
     tremor, and Friedreich's ataxia.  A quarterly newsletter,
     Generations, contains reports on NAF activities, chapters,
     research, advice for patients, and information on
     additional resources.  It is free to members.  Membership
     information may also be requested.
     
     
     National Audiovisual Center
8700 Edgeworth Drive
Capitol Heights, MD  20743
(301) 763-1896
(800) 638-1300
      
     Disabilities Served:  All handicaps.
     
     Users Served:   Public.
     
     The Organization:  The National Audiovisual Center is the
     central information and distribution source for more than
     8,000 videos, slide sets, and films produced by the U.S.
     Government.  Subjects in the collection span a variety of
     subjects.  Disability-related programs include
     "Implementing the American with Disabilities Act,"
     produced by the Equal Employment Opportunity Commission. 
     The National Audiovisual Center assures that you will have
     easy access to all the materials available in its
     collections at the lowest price possible.  The center
     operates on a self-sustaining basis, not at taxpayer
     expense.
     
     Information Services:  The National Audiovisual Center
     publishes numerous catalogs and sales brochures in various
     subject areas that are available on request.  The Customer
     Services Staff has online data base capability to respond
     to telephone and written inquiries about U.S. Government
     audiovisuals, and can be reached between 8:00 a.m. and 
     4:30 p.m. eastern time, Monday through Friday.
     
     
     National Autism Hotline
Prichard Building
605 9th Street
P.O. Box 507
Huntington, WV  25710
(304) 525-8014
      
     Disabilities Served:  Autism, mental retardation,
     developmental disabilities.
     
     Users Served:  Parents, teachers, speech therapists,
     doctors, directors of special education, advocacy
     agencies, students.
     
     The Organization:  The National Autism Hotline, which was
     established in 1979, is a project of the Autism Services
     Center, a nonprofit organization that provides
     consultation, training, and advocacy services to parents
     and professionals in the field of autism.  There is a
     charge for the center's direct service contracts; however,
     the telephone services are free.
     
     Information Services:  The hotline offers comprehensive
     information services on autism to parents and
     professionals.  In response to both telephone and letter
     inquiries, the project gives out information on autism;
     makes referrals for medical, residential, and educational
     services; assists parents and professionals in their
     advocacy activities; and gives technical assistance on
     autism to protection and advocacy systems and other
     agencies.  Copies of articles are sent to requestors in
     areas such as education, rights, the language of autistic
     children, and research.
     
     National Braille Association, Inc. (NBA)
1290 University Avenue
Rochester, NY  14607
(716) 473-0900
     
     Disabilities Served:  Blindness and visual impairment.
     
     Users Served:  Volunteers and professionals who prepare
     reading matter for the blind; print-handicapped readers.
     
     The Organization:  The National Braille Association, Inc.,
     (NBA) was formed to unite volunteers and professional
     workers for visually impaired people in one national
     organization to develop, provide, and coordinate volunteer
     services in the production and distribution of reading
     materials in braille and large print and on tape.  NBA is
     unique in that it is an international organization with no
     local units.  Its thousands of members work through
     philanthropic, religious, and service groups in their own
     communities.
     
     NBA provides continuing education for members and
     nonmembers through its national conferences, regional
     meetings and continuing education seminars conducted by
     NBA skills specialists.  NBA publications are used by
     volunteers and agencies throughout the country to train
     transcribers in advanced braille codes.  NBA also serves
     as a clearinghouse for the exchange of ideas and
     suggestions for improvement of transcription techniques.
     
     NBA's Braille Materials Production Center is a central
     source for braille readers.  Over 1,800 book titles
     (including music scores) supply college students,
     professionals, and other adults with technical and
     nontechnical materials for school, work, and recreation. 
     The collection is continuously updated with book titles
     transcribed by certified braillists.  Personal items of
     general interest that are helpful in work, recreation, and
     daily living are also transcribed by certified braillists. 
     NBA's Disk Output Service enables transcribers and braille
     readers to send 5 1/4- inch disks, compatible with its
     personal computer systems, to NBA for output in braille
     form.  This service is not restricted to NBA-assigned
     materials.
     
     Information Services:  The NBA Bulletin is published four
     times a year in print and braille and on cassette tape. 
     It contains skills columns and articles about new
     materials and equipment, braille code changes, and
     activities of outstanding individuals and groups.  A
     subscription to the Bulletin is included in the cost of
     membership.  NBA also publishes manuals and guidelines for
     transcribing procedures, format, and uniform standards,
     which are available free or at reduced prices to members. 
     Catalogs of the braille collection of textbook titles,
     music, general interest, and standard technical tables are
     available upon request.
     
     
     National Burn Victim Foundation (NBVF)
308 Main Street
Orange, NJ 07050
(201) 731-3112
     
     Disabilities Served:   Burn injury survivors.
     
     Users Served:   Medical professionals, criminal justice
     personnel, child welfare workers, social workers.
     
     The Organization:   The National Burn Victim Foundation
     (NBVF) is a nonprofit agency providing advocacy and
     services to burn victims and their families free of
     charge.  On a national basis the NBVF is a resource for
     burn-related information and referrals.  Programs include
     a support system for disaster response, evaluation service
     for child burns suspected of being the result of
     abuse/neglect, community burn prevention education, and
     commitment to finding new methods of burn treatment. 
     Professional seminars on child abuse evaluation are
     conducted several times a year.
     
     Information Services:   The NBVF issues a quarterly
     newsletter, Update, which reports on the activities and
     programs of the National Burn Victim Foundation and on new
     methods of treating burn victims.  It is available free of
     charge to those requesting to be on the mailing list. 
     Membership in the NBVF is available at various levels. 
     Contact our NBVF for further information.  The NBVF offers
     brochures and pamphlets on its programs and services and
     on burn prevention on request.  A fee is required for
     large numbers of the brochures to cover costs.
     
     
     National Captioning Institute, Inc. (NCI)
5203 Leesburg Pike
Suite 1500
Falls Church, VA  22041
(703) 998-2400 (Voice or TDD)
      
     Disabilities Served:  Deafness and hearing impairments.
     
     Users Served:  Disabled persons, parents, teachers.
     
     The Organization:  The National Captioning Institute (NCI)
     is a nonprofit organization, which captions television
     programs for the Public Broadcasting Service (PBS), ABC,
     CBS, NBC, Fox, cable stations, commercial advertisers,
     home video distributors, syndicators, and independent
     producers.  ABC and PBS played major roles in developing
     the captioning system.  The institute's primary goal is to
     increase the number of captioned programs available and to
     expand the audience benefiting from the service.
     
     Closed captioning converts the television program dialogue
     into subtitles that are shown on the viewer's television
     screen.  The captions are encoded and transmitted by the
     broadcaster on a part of the television signal that does
     not ordinarily carry picture information.  Unlike "open
     captions," which are seen by all viewers, "closed
     captions" are seen only on television sets equipped with a
     special device.  The equipment needed to receive closed
     captions is sold in over 1,000 retail outlets and in 5
     major catalogs:  Sears, Roebuck and Company, J.C. Penney,
     Service Merchandise, Best Products, and the AT & T special
     needs catalog.  As of fall 1990, there are over 400 hours
     of closed captioned programming on network, syndicated,
     pay, and basic cable broadcast per week.  In addition
     there are 2,000 home video titles available.  Further
     increases in the number of captioned programs will depend
     largely on the demand by television viewers for the
     special equipment.  Over 300,000 units are already in use.
     
     Information Services:  NCI's Public Relations Department
     provides information on the history of the captioning
     project and the institute's activities.  NCI has two
     publications:  CAPTION, a newsletter for viewers, and the
     NCI MARKETING MEMO, an update sheet for producers and
     sponsors.
     
     
     National Center for Education in Maternal and
 Child Health (NCEMCH)
38th and R Streets, NW
Washington, DC  20057
(202) 625-8400
     
     Disabilities Served:  Maternal and child health, including
     genetic disorders.
     
     Users Served:  Health professionals, educators, general
     public.
     
     The Organization:  The National Center for Education in
     Maternal and Child Health (NCEMCH) was established in
     1982.  The center is a major link between sources of
     information/services and professionals in areas of
     maternal and child health, including genetics.  The NCEMCH
     network includes nurses; social workers; pediatricians;
     obstetricians; geneticists; genetic counselors; health
     administrators; educators; volunteer organizations;
     Federal, State, and local agencies; professional
     societies; and public and private foundations.
     
     Information Services:  In addition to its resource
     network, NCEMCH provides a variety of services aimed
     toward facilitating the development and exchange of
     maternal and child health information.  The center
     provides assistance in the development and evaluation of
     new materials and educational programs and collects and
     disseminates information about available materials,
     programs, and research.  The center also offers conference
     assistance, including planning, support services and
     editing of conference materials for publication.
     
     NCEMCH maintains a resource center of books, journals,
     articles, teaching manuals, brochures, factsheets, and
     educational materials.  Organized by subject area, the
     resource center contains publications, audiovisual
     descriptions and information geared to the
     consumer/patient, professionals, and
     associations/organizations.
     
     Examples of NCEMCH publications include bibliographies on
     prenatal care and the social and psychological aspects of
     genetic disorders; newsletters targeted to specific
     professional groups; and directories of resources and
     services covering Federal resources in maternal and child
     health, voluntary organizations, clinical genetics service
     centers, and others.
     
     
     National Center for Health Statistics (NCHS)
Centers for Disease Control
Public Health Service
U.S. Department of Health and Human Services
6525 Belcrest Road
Hyattsville, MD  20782
(301) 436-8500
     
     Disabilities Served:   All handicapping conditions.
     
     Users Served:   All interested persons.
     
     The Organization:   The National Center for Health
     Statistics (NCHS) is the only Federal agency established
     specifically to collect and disseminate data on health in
     the United States.  The Center designs and maintains
     national data collection systems, conducts research in
     statistical and survey methodology, and cooperates with
     other agencies in the United States and in foreign
     countries to increase the availability and usefulness of
     health data.
     
     Through its survey and inventories, the Center produces
     and disseminates data on illness and disability, including
     prevalence and impact.  Data has been collected on a
     number of handicapping conditions; data on the prevalence
     of most conditions includes some indicators of severity
     and impact.  Also collected is data on the supply and use
     of health services.
     
     Information Services:   The primary information service of
     NCHS is distribution of its statistical data through
     published reports, which include the following:
     
     The Vital and Health Statistics Series  contains data on
     program and collection procedures, evaluation and methods
     research, and analytical studies.  This series includes
     publications on (1) the Health Interview Survey, which
     gives statistics on illness, disability, accidental
     injuries, and the use of hospital, medical, dental, and
     other services; and (2) the Health and Nutrition
     Examination Survey, which provides data from direct
     examination, testing, and measurement of national samples
     which is used to calculate distributions of the population
     with respect to physical, physiological, and psychological
     characteristics.
     
     Reports in the above series contain data on disability
     statistics on impairments involving vision, hearing,
     speech, paralysis, absence of extremities, and orthopedic
     conditions.
     
     Advance Data from Vital and Health Statistics  is a
     publication series begun in 1976 as the means for early
     release of selected findings from the health and
     demographic surveys of NCHS.  Most of these releases are
     followed by detailed reports in the Vital and Health
     Statistics Series.
     
     The Catalog of Publications of the National Center for
     Health Statistics  is an index to the Vital and Health
     Statistics Series  and Advance Data from Vital and Health
     Statistics  according to demographic and socioeconomic
     variables.  
     
     Single copies of Advance Data  releases and the Catalog of
     Publications  are available free of charge from the
     Center.  Information on the availability of reports from
     The Vital and Health Statistics Series  may be obtained by
     telephoning NCHS at (301) 436-8500.
          National Center for Law and the Deaf (NCLD)
800 Florida Avenue, NE
Washington, DC  20002
(202) 651-5373 (Voice/TDD)
     
     Disabilities Served:   Deafness/hearing impairment.
     
     Users Served:   People who are deaf, hearing impaired,
     people interested in law, and deaf people.
     
     The Organization:   The National Center for Law and the
     Deaf (NCLD) was established to develop and provide a
     variety of legal services to the deaf community, including
     representation, counseling, information, and education. 
     NCLD is working to end injustices and discrimination
     against deaf people nationwide and to establish and
     enforce the legal rights.  On request, the NCLD will
     assist groups who are concerned with national and local
     legislation.  Examples are interpreter laws and mental
     health legislation.  The NCLD also works with
     administrative agencies.  Examples are making television
     accessible and reducing TDD rates.
     
     Information Services:   Publications from NCLD cover a
     wide variety of subject areas including education, TDD's,
     P.L. 94-142, interpreters, hospital care, employment,
     clinic reports, model policies, law enforcement,
     Rehabilitation Act of 1973, court decisions, etc. 
     Educational workshops for deaf consumers, lawyers, and
     service providers are also available.  For an updated list
     of publications contact NCLD.
     
     
     National Center for Learning Disabilities (NCLD)
99 Park Avenue
New York, NY  10016
(212) 687-7211
     
     Disabilities Served:   Learning disabilities.
     
     Users Served:   Disabled persons, parents, teachers,
     pediatricians, therapists, and psychologists.
     
     The Organization:   Between 10 to 15 percent of the United
     States population is learning disabled (LD).  The National
     Center for Learning Disabilities (NCLD), a voluntary
     not-for-profit organization, helps those affected with
     this "hidden handicap" to live self-sufficient, productive
     and fulfilling lives.  Many of those in need are children. 
     NCLD provides resources and national referrals to parents
     and to a wide range of volunteers and professionals who
     touch the lives of learning disabled persons.
     
     NCLD's publications and promotional efforts, seminars, and
     legislative advocacy increase public awareness and
     understanding of learning disabilities in this country and
     abroad.  Since 1978 NCLD has been the primary national,
     private source of funding for programs assisting people
     who are learning disabled.  Innovative grant-related
     activity has helped develop community programs for LD
     persons all over the United States.  Model projects have
     been replicated by State Education Departments, the
     juvenile justice system, and over 200 public library
     systems.  NCLD resources are also provided for American
     families overseas in the military and Foreign Service,
     through the Family Liaison office, U.S. Department of
     State.
     
     Information Services:   For further information call or
     write to the National Center for Learning Disabilities.
     
     
     National Center for Research in Vocational Education

 (NCRVE)
1995 University Avenue 
Suite 375
Berkeley, CA  94704
(800) 762-4093
(415) 642-4004
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Vocational students, educators,
     researchers, employers, and policymakers.
     
     The Organization:   The National Center for Research in
     Vocational Education (NCRVE) was established by the Carl
     D. Perkins Vocational Education Act to conduct applied
     research and development in vocational education.  The
     Center's mission is to invigorate vocational education so
     it can give citizens of all ages the skills they need for
     successful long-term employment.  The Center believes that
     its clients--all students and all educators, employers,
     policymakers, and researchers--are better served by a
     vision which integrates theory and practice, the
     "academic" and the "vocational."  The Center views
     vocational education as work-related education that takes
     place in classrooms and in the workplace, accessible to
     both teenagers and mature workers.  The Center's goal is
     to make this new vision of work-related education a
     reality.  The Center, located at the University of
     California at Berkeley, functions with the assistance of
     five subcontractors:  Columbia University, the RAND
     Corporation, the University of Illinois, the University of
     Minnesota, and Virginia Tech.  Of particular interest to
     handicapped clients is the Technical Assistance for
     Special Populations Program (TASPP) at the University of
     Illinois 
     (217/333-0807), whose goal is to provide professionals and
     policymakers with an array of services to improve
     vocational education programs for special needs youth and
     adults.
     
     Information Services:   NCRVE provides research reports
     and other publications (for a free publications catalog,
     call the Center's Materials Distribution Service at
     800/637-7652); CenterWork, a bimonthly newsletter;
     ADVOCNET, an electronic communications network; Resources
     in Vocational Education (RIVE), a bibliographic data base
     of vocational education program improvement projects;
     Vocational Education Curriculum Materials (VECM), a
     bibliographic data base of vocational education curriculum
     materials; Data Update, a quarterly bulletin providing
     information about the Center's data library; national
     forums on leadership development (University of
     Minnesota); inservice activities for vocational educators
     (Virginia Tech); TASPP Bulletin and TASPP Briefs,
     publications of TASPP (University of Illinois), providing
     resource and referral services to persons involved in
     vocational education with special needs populations.
     
     
     National Center for Stuttering (NCS)
200 East 33rd Street
New York, NY  10017
(800) 221-2483
     
     Disabilities Served:   Stuttering.
     
     Users Served:   Persons who stutter, parents of young
     stutterers, speech professionals.
     
     The Organization:   The National Center for Stuttering
     (NCS) was established in 1975 to provide help to people
     who stutter, utilizing a new method of treatment that
     addresses the physical cause of stuttering.  Up to that
     time, treatment had always been focused on the symptoms of
     the problem, as opposed to the basic physical cause.  Dr.
     Martin F. Schwartz, the originator of this method, called
     the air-flow technique, discovered the physical cause of
     this disorder during his research in the field of cleft
     palate.  He subsequently developed the air-flow technique
     which is designed to subtract tension from the vocal
     cords.  In anticipation of speaking, stutterers focus
     their tension on the vocal cords causing them to go into
     spasm (laryngeal spasms).  The learned behaviors that
     stutterers use to extricate themselves from this spasm are
     what we call "stuttering."  The center now trains
     professionals in this method and also has a one-year
     treatment program for people who stutter.
     
     Information Services:   Brochures are available to the
     public and books on the air-flow technique can be
     purchased through the center.  Parents of children just
     beginning to stutter may call for suggestions on how to
     handle the problem and maximize the possibility of
     outgrowth.  Professionals may receive information on the
     center's 6-month training programs.
     
     
     National Center for Youth with Disability (NCYD)
Box 721 - UMHC
Harvard Street at East River Road
Minneapolis, MN  55455
(612) 626-2825
(800) 333-6293
(612) 624-3939 (TDD)
     
     Disabilities Served:   Chronic illness and developmental
     disability.
     
     Users Served:   Adolescents and young adults, parents,
     social service providers, health professionals, and
     educators.
     
     The Organization:   The National Center for Youth with
     Disability (NCYD) is an information and resource center
     focusing on adolescents with chronic illnesses or
     disabilities and the issues that surround their transition
     to adult life.  NCYD's mission is to raise awareness of
     the needs of youth with disabilities; foster coordination
     and collaboration among agencies, professionals, parents
     and youth in the planning and provision of services; and
     promote awareness of and responsiveness to the health and
     social needs of youth with disabilities.  A collaborative
     project of the Society for Adolescent Medicine and the
     University of Minnesota's Adolescent Health Program NCYD
     is supported by a grant from the Maternal and Child Health
     Bureau, Divisions of Services for Children with Special
     Health Needs, Department of Health and Human Services.
     
     Information Services:   An information specialist is
     available to answer questions, provide referrals to other
     resources, and/or search the National Resource Library, a
     computerized data base.  The library contains abstracts of
     current literature relating to adolescents and disability
     or chronic illness, information on model programs from
     throughout the country, training and education resources,
     and a file of technical consultants with expertise in the
     area of youth with chronic illness or disabilities.  NCYD
     publications include Connections, a quarterly newsletter
     that is distributed without charge or subscription fee,
     and CYDLINE Review's, a series of annotated bibliographies
     on special topics for professionals, educators, parents
     and youth.  Current topics include an introductory guide
     for youth and parents, an introduction for professionals,
     decision-making skills (health, education and vocational
     choices), issues for school personnel, transition from
     pediatric to adult health care, substance use by youth
     with disabilities, international issues, and sexual
     issues.  Additional topics are added periodically.
     
     
     National Chronic Pain Outreach Association, Inc.
(NCPOA)
7979 Old Georgetown Road
Suite 100
Bethesda, MD  20814
(301) 652-4948
     
     Disabilities Served:  Chronic pain.
     
     Users Served:  People with chronic pain, their family
     members, and health care professionals who treat people
     with chronic pain.
     
     The Organization:  The National Chronic Pain Outreach
     Association, Inc. (NCPOA) is a nonprofit tax-exempt
     organization dedicated to lessening the suffering caused
     by chronic pain by educating pain sufferers, family
     members, and health care professionals about chronic pain
     and its management.
     
     Information Services:  NCPOA offers an extensive list of
     publications, books, cassette tapes, and videotapes on
     chronic pain topics at low cost.  It publishes a quarterly 
     newsletter, Lifeline, which is available at no charge to
     members.  It also publishes a guide for people wishing to
     start chronic pain support groups for a nominal fee.
          The National Clearinghouse for Alcohol and Drug
Information
 (NCADI)
Office for Substance Abuse Prevention (OSAP)
Alcohol, Drug Abuse, and Mental Health
Administration
U.S. Department of Health and Human Services
P.O. Box 2345
Rockville, MD  20852
(800) SAY-NO-TO 
(800) 729-6686 (Voice)
(800) 487-4889 (TDD)
     
     Disabilities Served:   A public information service
     available to all Americans.
     
     Users Served:   Parents, educators, students, librarians,
     health professionals, businessmen, community leaders,
     government agencies, researchers, deaf and disabled
     people, Spanish speakers.
     
     The Organization:   The National Clearinghouse for Alcohol
     and Drug Information (NCADI) was established as the
     information component for OSAP in 1986, according to
     congressional mandate set forth in the 1986 Anti-Drug
     Abuse Act, Public Law 100-690.  NCADI is the hub of the
     Federal Government's effort to collect and disseminate
     information about prevention programs and research
     involving alcohol and other drug use.
     Information Services:   NCADI handles nearly 20,000
     requests for information about alcohol and other drugs
     every month.  In response, NCADI Information Specialists
     fill orders for publications and videos from an inventory
     of over 900 free materials developed by Federal agencies. 
     Callers may also be referred to appropriate resources or
     provided with statistical information.  The NCADI staff
     routinely searches for research information in the
     in-house Information About Drug Abuse (IDA) data base,
     which has more than 15,000 references.  Publications,
     information, and assistance are also available in Spanish. 
     Prevention Pipeline, NCADI's bimonthly information
     publication, contains the latest information in the field
     and is available at a low yearly subscription rate   The
     Clearinghouse also coordinates the Regional Alcohol and
     Drug Awareness Resource (RADAR) Network consisting of
     prevention information centers in every State and
     providing support for local efforts.
     
     There is no charge for most of NCADI's services or
     publications.
          National Clearinghouse for Professions in Special
Education
National Association of State Directors of Special
Education (NASDSE)
King Street Station I
1800 Diagonal Road
Suite 320
Alexandria, VA  22314
(703) 519-3800

Information Center 
c/o Council for Exceptional Children
1920 Association Drive
Reston, VA  22091
(703) 264-9474
     
     Disabilities Served:   All disabilities.   (The
     Clearinghouse is designed to disseminate information on
     needs for special education and related services personnel
     and to increase awareness of careers in special
     education.)
     
     Users Served:   The information and services of the
     Clearinghouse are useful for all persons who are concerned
     with recruiting and retaining more qualified men and women
     into education especially into special education and
     related services.  Information is disseminated on a
     national basis to, for example, potential personnel;
     faculty and staff at institutions of higher education;
     administrators at local, State, and national levels;
     related services personnel; parents; and students.
     
     The Organization:   The National Clearinghouse for
     Professions in Special Education is jointly operated by
     the National Association of State Directors of Special
     Education (NASDSE) and the Council for Exceptional
     Children (CEC) and is supported through a Cooperative
     Agreement with the U.S. Department of Education, Office of
     Special Education Programs (OSEP).  We are one of three
     Clearinghouses mandated by Congress to provide specialized
     information about education for children, youth, and
     adults with disabilities.
     
     Information Services:   The Clearinghouse collects and
     distributes a wide variety of materials, including
     factsheets, bibliographies and reading lists, studies and
     survey reports, on such topics as analysis of supply and
     demand and the variables that influence them (such as
     attrition, certification, local district practices);
     career opportunities in special education and related
     services, location of training programs, and sources of
     financial aid; successful programs used by districts,
     States, and higher education institutions to recruit
     students to special education and to retain them after
     they start to practice; techniques for attracting students
     to special education careers; personnel preparation
     programs for special education and related services;
     networking and collaboration techniques used among local
     and State education agencies; and profiles of
     accreditation and certification standards in special
     education and related services professions.  Contact the
     Clearinghouse Information Center at the CEC address for a
     complete listing of available products.
     
     
     National Clearing House of Rehabilitation Training
 Materials (NCHRTM)
Oklahoma State University
816 West 6th Street
Stillwater, OK  74078
(405) 624-7650
      
     Disabilities Served:  All handicaps.
     
     Users Served:  Rehabilitation personnel, educators of
     rehabilitation counselors, and professionals in related
     fields.
     
     The Organization:  The National Clearing House of
     Rehabilitation Training Materials (NCHRTM), located at
     Oklahoma State University, is funded by the Rehabilitation
     Services Administration, U.S. Department of Education, to
     disseminate information on rehabilitation with primary
     concentration on training materials for use by educators
     of rehabilitation counselors.  Personnel working in the
     areas of staff development, inservice training, and
     continuing education are also served by the NCHRTM.
     
     NCHRTM houses a collection of "fugitive" materials and
     information not generally found in traditional libraries. 
     The reference collection contains about 3,000 titles in
     hard copy or microfiche format, back issues of major
     journals in the rehabilitation field, and various types of
     audiovisuals.
     
     Information Services:  NCHRTM has a collection of 8,500
     documents and audiovisual resources to distribute to
     requestors in the rehabilitation field.  Microfiche or
     copies of other publications in the collection can be made
     for a cost recovery fee.  An annotated bibliographic
     newsletter, NCHRTM Memorandum, on publications available
     from the NCHRTM and other sources is published quarterly.
     
     NCHRTM helps inquirers identify publications relevant to
     their information needs.  Services are available primarily
     to professionals who have training interests in
     rehabilitation and related fields.
     
     National Cleft Palate Association
1218 Grandview Avenue
Pittsburgh, PA  15211
(412) 481-1376
(800) 24-CLEFT
     
     Disabilities Served:   Cleft lip and palate and other
     craniofacial anomalies.
     
     Users Served:  Parents of children with clefts and other
     craniofacial anomalies and patients with same.
     
     The Organization:   The National Cleft Palate Association
     is a national organization of parents of children with
     clefts and other craniofacial anomalies and patients. 
     They convene an annual parent patient conference with
     workshops and general sessions on such subjects as
     insurance coverage, self-esteem, preparing your child for
     hospital stay, etc.  The association provides consultation
     on starting and maintaining a support group.
     
     Information Services:  See Cleft Palate Foundation for
     information and brochures.
     
     
     National Consumers League (NCL)
815 15th Street, NW
Suite 516
Washington, DC  20005
(202) 639-8140
     
     Disabilities Served:  Diseases that require long-term
     care, AIDS, visual impairment.
     
     Users Served:  All consumers.
     
     The Organization:  The National Consumers League (NCL) is
     America's pioneer consumer group.  NCL was founded in 1899
     to organize consumer pressure to fight economic injustice. 
     In its 92nd year, the league continues to serve consumers
     as a nonprofit, membership advocacy organization.  Its
     three-pronged approach of research, education, and
     advocacy has made NCL an effective representative and
     source of information for consumers and workers.
     
     Information Services:  NCL publishes a consumer
     newsletter, The NCL Bulletin, six times a year.  This
     provides consumer information on a wide range of issues,
     from health and safety, food, and drugs to privacy,
     telecommunications, and consumer fraud.  The league also
     publishes consumer guides on home health care, hospice
     care, life care communities, and HMO's.  Other
     publications include:  The Garbage Problem:  Effective
     Solutions for Consumers and The Earth's Future Is In Your
     Grocery Cart, brochures offering tips on recycling and
     waste reduction; Swindlers Are Calling, offering advice on
     how to avoid becoming the victim of a scam; When
     Medications Don't Mix:  Preventing Drug Interactions, Food
     and Drug Interactions, and A Guide to Warning Labels on
     Nonprescription Medications, brochures to help people who
     are on medication reduce the risk of problems; and Whose
     Business Is It Anyway?, a report on privacy in the
     workplace.  Publications for women include AIDS:  Women at
     Risk and Pap Test:  Assuring Your Good Health.
     
     Calling or writing the NCL office is a way for consumers
     to learn to resolve consumer problems and receive valuable
     information.
     
     
     National Council on Alcoholism and Drug Dependence,
Inc. (NCADD)
12 West 21st Street
New York, NY  10010
(212) 206-6770
     
     Disabilities Served:   Alcoholism, and drug addictions.
     
     Users Served:   Disabled persons, parents, teachers,
     physicians, law enforcement personnel, television and
     radio researchers.
     
     The Organization:   The National Council on Alcoholism and
     Drug Dependence, Inc. (NCADD) is a national nonprofit
     organization combating alcoholism, other drug addictions,
     and related problems through its national office, 200
     State and local affiliates, and thousands of volunteers in
     communities throughout America.  Founded in 1944, NCADD
     focuses on education to prevention and treatment of
     affected individuals and their families.
     
     NCADD provides education about alcoholism and other drug
     addictions as treatable diseases; offers prevention
     programs for schools, organizations, and communities;
     dispenses medical/scientific information; answers
     questions from the public, legislative bodies and the
     media; and distributes a variety of publications.  NCADD
     also offers information and referral services to children,
     teenagers, and adults seeking treatment for alcoholism,
     other drug dependencies, and related problems.
     
     Information Services:   The council publishes periodicals,
     brochures, and factsheets related to alcoholism and other
     drug dependencies.  A publication list, which includes the
     prices for those materials, is available upon request.
     
     
     National Council on Communicative Disorders (NCCD)
10801 Rockville Pike
Rockville, MD  20852
(301) 897-5700
     
     Disabilities Served:   Deafness and hearing impairments,
     speech and language disorders.
     
     Users Served:   Speech-language pathologists and
     audiologists.
     
     The Organization:   The National Council on Communicative
     Disorders (NCCD) is a council of 28 national organizations
     representing persons with communication disorders and
     professionals who provide services to them.  The council
     provides information to Congress, government agencies, and
     the public on issues relating to communicative disorders
     and seeks to encourage research in speech, language, and
     hearing.  One of the goals of the organization is to
     foster closer liaison with the private sector by
     recognizing individuals and/or corporations whose efforts
     benefit persons.  To this end, the NCCD sponsors an annual
     awards presentation with communication disorders.
     
     
     National Council on Disability 
800 Independence Avenue, SW
Suite 814
Washington, DC  20591
(202) 267-3846 (Voice)
(202) 267-3232 (TDD)
     
     Disabilities Served:   All disabilities.
     
     Users Served:   People with disabilities and their
     families, Federal and State governments, researchers,
     professionals, and the general public.
     
     The Organization:   The National Council on Disability
     (NCD) is an independent Federal agency comprised of 15
     members appointed by the President and confirmed by the
     U.S. Senate.  The NCD was initially established in 1978 as
     an advisory board within the Department of Education (P.L.
     95-602) and transformed into an independent Federal agency
     by the Rehabilitation Act Amendments of 1984 (P.L.
     98-221).
     
     The NCD originated and developed the first draft of the
     Americans with Disabilities Act (P.L. 101-336), which was
     signed into law by President Bush on July 26, 1990.
     
     The NCD is the only Federal agency charged with
     addressing, analyzing, and making recommendations to the
     President and Congress on issues of public policy that
     affect people with disabilities regardless of age,
     disability type, perceived employment potential, economic
     need, specific functional ability, status as a veteran, or
     other individual circumstance.
     
     Information Services:   Publications available free of
     charge include annual reports; a quarterly newsletter,
     FOCUS; three special reports--Toward Independence:  An
     Assessment of Federal Laws and Programs Affecting Persons
     with Disabilities -- With Legislative Recommendations,
     1986; On the Threshold of Independence, 1988, which
     outlined the specifics of the Americans with Disabilities
     Act; and The Education of Students with Disabilities: 
     Where Do We Stand?, 1989.
     
     
     National Council on Family Relations (NCFR)
3989 Central Avenue NE
Suite 550
Minneapolis, MN  55421
(612) 781-9331
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Family-related teachers, and family
     professionals, including families of disabled persons and
     minorities.
     
     The Organization:   The National Council on Family
     Relations (NCFR) is an international nonprofit educational
     and resource organization dedicated to the strengthening
     of the family.  The goal of the council is to assist
     professionals by providing research and information and in
     developing professional standards in the family field. 
     The membership of the council is comprised of researchers,
     teachers, clinical practitioners in family therapy, and
     professionals in related disciplines.
     
     Information Services:   The main information component of
     the council are two scholarly journals, Journal of
     Marriage and the Family (JMF)  and Family Relations (FR),
     and a Family Resources Database (FRD), which is available
     for online searching through BRS Information Technologies,
     DIALOG, and ETSI, a service of Bureau of National Affairs
     as the Human Resources Information Network.  The data base
     contains approximately 120,000 citations of books, journal
     articles, government documents, resource organizations,
     instructional materials, audiovisual materials, and a
     listing of community services concerned with marriage and
     family issues.  NCFR has a published book on families and
     handicapped members.
     
     The data base comprises numerous citations of materials
     concerned with various disabling conditions as they relate
     to family interaction.  A search of the data base yields
     the following:  families with handicapped persons
     (physical handicaps), 1369 citations; families with mental
     retardation, 844 citations; families with learning
     disabled members, 421 citations; families with emotionally
     disturbed members, 779; and families with schizophrenics,
     60 citations.
     
     Besides the bibliographic files, the data base contains a
     Human Resource Bank, which contains the vitae of hundreds
     of specialists working in the field who have expressed a
     willingness to provide consultation to lay and
     professional individuals when appropriate.  In addition, a
     Work in Progress File lists ongoing research and
     demonstration projects.  Both government- and
     private-sector-funded projects are included.
     
     Nonsubscribers to BRS, DIALOG, or ETSI who wish to search
     the data base should contact local and university
     libraries, many of which provide searching assistance; if
     local search facilities cannot be found, FRD staff will
     conduct custom searches on a cost-reimbursement basis.
     
     For other information, contact NCFR at the phone number
     above.
     
     
     The National Council on Independent Living (NCIL)
2539 Telegraph Avenue
Berkeley, CA  94704
(415) 849-1243 (Voice)
(415) 848-3101 (TDD)
     
     The National Council on Independent Living (NCIL) is a
     national membership organization representing the 43
     million individuals with disabilities.  In just over 7
     years, NCIL has established itself as the national voice
     of independent living centers as well as individuals.
     
     NCIL was organized to support independent living centers
     by conducting and coordinating the national advocacy
     efforts of the Independent Living Movement.  NCIL was
     instrumental in the passage of the Americans with
     Disabilities Act and is taking a leading role in the
     Reauthorization of the Rehabilitation Act of 1973.
     
     NCIL provides information and referral, a speakers bureau,
     and technical assistance.  Every May, NCIL hosts an Annual
     Meeting in Washington, DC, where the leaders of the
     independent living movement unite and discuss topics for
     the future.
     
     If you would like to become a member of NCIL, please
     contact the Berkeley office at the above address.
     
     
     National Council on Rehabilitation Education (NCRE)
NCRE Administrative Office
Emporia State University
1200 Commercial - VH 334
Emporia, KS  66801
(316) 343-5220
     
     Disabilities Served:   Professionals.
     
     Users Served:   Rehabilitation educators and trainers.
     
     The Organization:   The National Council on Rehabilitation
     Education (NCRE) is a membership organization, which has
     as its purpose promoting the improvement of rehabilitation
     services available to people with disabilities through
     quality education and rehabilitation research.  The
     organization is composed of educators, researchers, human
     resource development specialists, and doctoral students. 
     NCRE fosters educational and learning opportunities for
     rehabilitation educators and works to promote the
     effective preparation of new personnel in the field of
     rehabilitation.
     
     Information Services:   NCRE publishes pamphlets on
     various careers in rehabilitation; a quarterly newsletter;
     a quarterly journal, Rehabilitation Education; and an
     annual Membership Directory, which contains the names,
     addresses, and specialties of member programs that offer
     education and training in various rehabilitation
     disciplines (e.g., rehabilitation counseling, vocational
     evaluation, rehabilitation administration, undergraduate
     and doctoral programs in rehabilitation, and programs
     directed at specific populations, such as people with
     mental illness, hearing impairments, blindness).
          National Council on Stuttering (NCOS)
P.O. Box 8171
Grand Rapids, MI  49508
(616) 241-2372
     
     Disabilities Served:    Stuttering.
     
     Users Served:    Disabled persons.
     
     The Organization:   The National Council on Stuttering
     (NCOS) was established to help form local stuttering
     councils nationwide.  There are 10 local member councils
     in the United States, self-help groups that offer
     stutterers opportunities to share and learn in an
     atmosphere of understanding and fellowship.
     
     Information Services:    NCOS provides materials and
     suggestions to any group of stutterers interested in
     starting a local council.  It refers stutterers to local
     self-help groups and to local accredited therapy services. 
     NCOS, in conjunction with the Speech Foundation of
     America, has produced a number of films on stuttering,
     self-help, and prevention of stuttering in children. 
     These films are available on a loan or rental basis from
     the distributor, Seven Oaks Productions, 9145 Sligo Creek
     Parkway, Silver Spring, MD  20901, (301) 587-0330.  NCOS
     publishes a quarterly journal covering local council news,
     information, and articles of interest on stuttering.
     
     
     The National Council on the Aging, Inc. (NCOA)
409 3rd Street, SW
Washington, DC  20024
(202) 479-1200
     
     Disabilities Served:   All handicaps.
     
     Users Served:   Professionals and volunteers working in
     direct service settings (such as adult day care centers,
     senior centers, home health care, etc.) or in health and
     rehabilitation planning (such as area agencies on aging,
     post-hospital long-term care planning, care management,
     etc.).
     
     The Organization:   The National Council on the Aging,
     Inc. (NCOA) is a private, nonprofit organization, founded
     in 1950, serving a membership of professionals,
     volunteers, and organizations in aging and related fields. 
     NCOA provides members with findings and action models from
     research and demonstration grants.  It provides training
     and technical assistance, develops program standards, and
     disseminates information.
     
     Information Services:   NCOA's bimonthly magazine,
     Perspective on Aging, often offers articles directly
     related to disability and rehabilitation, including
     reports on public policy.  NCOA's bimonthly newspaper,
     NCOA Networks, provides a page of news for each of NCOA's
     eight constituent member units, each of which deals with
     concerns related to disability.  Those units that have the
     most direct concerns are The National Institute on Adult
     Daycare, The National Institute for Community-based
     Long-term Care, and The Health Promotion Institute. 
     NCOA's affiliated National Voluntary Organizations for
     Independent Living for the Aging (NVOILA) has a membership
     of more than 200 national groups and has maintained a
     direct interest in disability since its founding in 1971. 
     The annual NCOA conference offers an opportunity for
     members of the constituent units and other members to
     exchange information and engage in joint activities.
     
     
     National Cued Speech Association (NCSA)
P.O. Box 31345
Raleigh, NC  27622
(919) 828-1218
     
     Disabilities Served:  Deafness and hearing loss.
     
     Users Served:   Hearing-impaired people of all ages, their
     families and supporters, and professionals.
     
     The Organization:   The National Cued Speech Association
     (NCSA) is a nonprofit membership organization formed in
     1982 to provide services and information about cued
     speech.  This system helps hearing-impaired people lip
     read.  Unlike sign language, this communication system is
     based on the pronunciation of spoken words.  When
     consistently used, cued speech leads to normal or
     near-normal levels of literacy in prelingually deaf
     children.  It can also help restore understanding of the
     spoken word to post-lingually deafened adults.  The NCSA
     provides direct support at regional and national levels in
     areas of instruction, guidance, education, professional
     training, publications, and referral.  Its board of
     directors meets three times a year in different localities
     nationwide.
     
     Information Services:  The NCSA distributes information
     about cued speech to members, professionals in the field
     of hearing loss and other communication disorders, parents
     of deaf children, hearing-impaired adults, and the general
     public.  It publishes the Cued Speech Journal, largely
     devoted to research, and a newsletter of general interest,
     On Cue.  A membership directory is available to members. 
     The Cued Speech National Center, located at the above
     address, provides printed materials, videotapes, articles,
     and other resource materials about cued speech.  Classes
     in cued speech are held here monthly, and information is
     available on classes and workshops being held in other
     parts of the country.
     
     
     National Data Bank for Disabled Student Services
Room 0126
Shoemaker Building
University of Maryland
College Park, MD  20742
(301) 314-7682 (Voice)
(301) 314-7683 (TDD)
     
     Disabilities Served:  All disabilities.
     
     Users Served:  Directors and coordinators of disabled
     student services programs, disabled persons.
     
     The Organization:  The National Data Bank for Disabled
     Student Services, located at the University of Maryland,
     provides the means for accessing statistics related to
     services, staff, budget and other components of disabled
     student services programs across the country.  The data
     bank cycle begins each summer when survey participants are
     recruited.  The previous year's survey is updated and
     items are added so that roughly half of the questions are
     new each year, reflecting current concerns of
     participants.  Examples of data included are size and type
     of institution, date program was started, funding, staff
     (including education, experience, salary), number of
     disabled students, services provided, fees, and new ideas. 
     The surveys are mailed in October or November and returned
     for processing by January.  In early spring, the data are
     returned to participants in coded form to preserve the
     confidentiality of institutions.
     
     Information Services:  As in financial banking, data may
     be withdrawn from the Data Bank only by those who have an
     "account" with a reserve of data of their own.  Each
     participant is charged a modest fee.  Directors and
     coordinators of campus programs can use the data to
     support program ideas, justify staff positions, or compare
     service provision.  Comparisons can be made based on such
     factors as size of institutions, sizes of disabled student
     population, size of staff, amount of budget, etc.  In
     times of budget or personnel crises or in long-range
     planning, such supportive data can be invaluable.
     
     
     National Diabetes Information Clearinghouse (NDIC)
P.O. Box NDIC9000 Rockville Pike
Bethesda, MD  20892
(301) 498-2162
     
     Disabilities Served:   Diabetes.
     
     Users Served:   Disabled individuals, their families,
     physicians and other health care professionals.
     
     The Organization:   The National Diabetes Information
     Clearinghouse (NDIC) was established in 1978 to increase
     knowledge and understanding about diabetes among patients,
     health professionals, and the public.  To carry out this
     mission, NDIC works closely with the diabetes community,
     forming a network that identifies and responds to
     informational needs about diabetes and its care.
     
     Included in the NDIC network are the Diabetes Research and
     Training Centers; the Centers for Disease Control and its
     Diabetes Control Programs; other Federal agencies;
     voluntary organizations on the national, regional, and
     local levels; professional groups; and State departments
     of health.  NDIC, guided by an advisory committee of
     representatives from these groups, provides a forum for
     stimulating the development and exchange of diabetes
     information.
     
     NDIC responds to requests for information about diabetes
     and its complications and distributes information
     appropriate to health professionals, people with diabetes
     and their families, and the general public.  Responses
     span a wide range of topics, from information about
     available patient education materials to statistical data
     from the National Diabetes Data Group about clinical and
     epidemiological characteristics of diabetes.
     
     Information Services:  NDIC offers a wide range of
     publications including topical bibliographies; Diabetes
     Dateline, a bimonthly current awareness newsletter; The
     Diabetes Dictionary; and other publications including
     conference proceedings, monographs, reprints, and
     materials developed by the National Institutes of Health
     about various aspects of diabetes research and care.
     
     NDIC also maintains an automated file of brochures,
     audiovisual materials, books, articles, teaching manuals,
     factsheets and other educational materials.  People in the
     diabetes community have online access to this file through
     BRS Information Technologies.
     
     National Diffusion Network (NDN)
U.S. Department of Education
555 New Jersey Avenue, NW
Washington, DC  20208-5645
(202) 219-2134
      
     Disabilities Served:  All handicaps.
     
     Users Served:  Classroom teachers, principals, and other
     educational personnel.
     
     The Organization:  The National Diffusion Network (NDN) is
     a nationwide system established in 1974 to improve
     educational programs in public and private schools through
     the adoption or adaptation of effective, validated
     programs.  NDN links local educators to programs that have
     been rigorously evaluated and found to be effective.
     
     The more than 40 special education projects that
     participate in NDN cover the majority of developmental and
     disorder areas.  Some programs receive dissemination funds
     through the Department of Education's National Diffusion
     Network.  Others receive dissemination funding from the
     Handicapped Children Early Education Outreach Program of
     Special Education Programs; these models focus on the
     identification of preschool handicapped children and
     teaching techniques to aid in their development.
     
     Information Services:  NDN State facilitators help schools
     identify and adopt the program most suitable for them. 
     Adopting schools are then given implementation help,
     including training.  A list of facilitators may be
     obtained from the above address.  The catalog Educational
     Programs That Work provides an overview of all NDN
     programs and lists a contact person for each program. 
     This publication may be purchased from Sopris West, Inc.,
     1140 Boston Avenue, Longmont, CO  80501, (303) 651-2829.
     
     
     National Digestive Diseases Information
Clearinghouse (NDDIC)
9000 Rockville Pike
P.O. Box NDDIC
Bethesda, MD  20892
(301) 468-6344
     
     Disabilities Served:   Digestive diseases.
     
     Users Served:   Persons with digestive diseases, their
     families, physicians and other health care providers.
     
     The Organization:   The National Digestive Diseases
     Information Clearinghouse (NDDIC) is a congressionally
     mandated service of the National Institute of Diabetes and
     Digestive and Kidney Diseases, of the National Institutes
     of Health.  Since 1980, the Clearinghouse has provided
     information about digestive diseases to educate the
     public, patients and their families, as well as physicians
     and other health care providers.  Working closely with
     more than 20 lay and professional organizations, the
     Digestive Diseases Clearinghouse promotes a wider
     understanding of digestive health and disease.
     
     Information Services:   NDDIC provides the following
     information products and sources:  factsheets about
     specific digestive diseases, an inquiry and referral
     service that responds to professional and public requests,
     information about research development and organizational
     and governmental activities related to digestive diseases.
     
     The Clearinghouse also maintains a subfile of the Combined
     Health Information Database (CHID).  The subfile contains
     references to literature, products, and services for
     digestive diseases patient and professional education. 
     Health professionals and librarians can research CHID
     through Bibliography Retrieval Services.
     
     
     National Down Syndrome Congress (NDSC)
1800 Dempster Street
Park Ridge, IL 60068
(800) 232-6372 
(708) 823-7550
     
     Disabilities Served:  Down syndrome.
     
     Users Served:  Persons with Down syndrome, their parents,
     and interested professionals.
     
     The Organization:  Formed in 1973, the National Down
     Syndrome Congress (NDSC) has member organizations and
     individuals throughout the United States, and through its
     Parents Group Network is able to put parents in touch with
     local parent groups and Down syndrome organizations in
     their community.  The NDSC holds an annual, national
     conference which moves regionally across the United
     States, bringing together parents and professionals to
     address in plenary sessions and smaller workshop settings
     a variety of issues and concerns relating to Down
     syndrome.  The NDSC is governed by a 21-member board of
     directors with a wide geographic representation and is
     composed of parents and professionals.
     
     Information Services:  The NDSC maintains a comprehensive
     clearinghouse, providing information and referral services
     on a range of topics relating to Down syndrome. 
     Publications include a parent-oriented pamphlet entitled,
     Down Syndrome, available in English and Spanish; a
     comprehensive, annotated bibliography; position papers on
     issues impacting on persons with Down syndrome and their
     families; education guidelines for preschool and
     elementary school; product fliers; and membership
     brochures.  The NDSC charges an annual membership fee of
     $15, which entitles members to 10 issues a year of our
     journal, the Down Syndrome News.  This publication
     contains articles and a variety of items reflecting the
     spectrum of interests as well as the common concerns of
     our membership.
     
     
     National Down Syndrome Society (NDSS)
666 Broadway
New York, NY  10012
(212) 460-9330
(800) 221-4602
     
     Disabilities Served:   Down syndrome.
     
     Users Served:   Parents, teachers, physicians, nurses,
     related health care professionals, researchers, and
     concerned individuals.
     
     The Organization:   The National Down Syndrome Society
     (NDSS) was established in 1979 to promote better
     understanding of Down syndrome and the potential of the
     individual with Down syndrome.  Major goals are to promote
     basic and applied research in fields related to Down
     syndrome; to provide information and services to families,
     professionals, and interested persons; and to develop
     model programs which can be replicated across the country.
     
     Information Services:   NDSS concentrates on disseminating
     information to parents of people with Down syndrome and
     the professionals who work with them.  NDSS has produced a
     free public information packet including a booklet
     entitled This Baby Needs You Even More, a bibliography of
     current reading materials and factsheets.  The booklet is
     available in Spanish.  A list of parent groups and early
     intervention programs in each State is also available.  In
     addition, a 25-minute video cassette about the Down
     syndrome child age 0 to 6, entitled Gifts of Love, is
     offered on a 10-day loan basis.  A newsletter, NDSS
     Update, is published twice a year.  The Directory of
     Programs and Services for Children with Down Syndrome Ages
     0-6, is free to individuals and contains listings of
     programs, services, and age groups served by State.  Other
     materials include a series of health care booklets, a
     computer information manual, a respite manual, and a
     monograph on education mainstreaming.  Also available are
     the proceedings of each of the Annual Science Symposia.  A
     materials fee is charged for these orders.  A 24-hour 800
     hotline is available to answer questions and provide
     referrals to resources.
     
     
     National Easter Seal Society (NESS)
70 East Lake Street
Chicago, IL 60601
(312) 726-6200 (Voice)
(312) 726-4258 (TDD)
     
     Disabilities Served:  The needs of the individuals who
     have disabilities vary greatly.  Services provided by
     Easter Seal Societies to meet those needs include
     physical, occupational, and speech language therapies,
     vocational evaluation, training and placement, camping and
     recreation, and psychological counseling.  Prevention of
     and screening for potentially disabling conditions are
     also encouraged and sponsored by Easter Seals.
     
     Users Served:  Disabled persons, general public.
     
     The Organization:  The National Easter Seal Society (NESS)
     is a nonprofit, community-based health agency dedicated to
     increasing the independence of people with disabilities. 
     Easter Seals makes a difference in the lives of disabled
     adults, children, and their families by offering a wide
     range of quality services, research, and programs.  Easter
     Seals is in the forefront of advocacy efforts on behalf of
     people with disabilities.  Through a nationwide network of
     170 affiliates, more than a million people receive Easter
     Seal services each year.
     
     Information Services:  Printed materials are available.
     
          National Education Association (NEA)
1201 16th Street, NW
Washington, DC 20036
(202) 833-4000
     
     Disabilities Served:  The NEA does not focus only on
     information relating to handicaps.  However, general
     information on Federal laws, including P.L. 94-142 and
     P.L. 99-457, is available.
     
     Users Served:  Teachers and other education employees.
     
     The Organization:  The National Education Association
     (NEA) is a professional organization of elementary and
     secondary school teachers, higher education faculty, and
     education support personnel.
     
     Information Services:  NEA lobbies Congress and the
     Department of Education about the content of Federal laws,
     including P.L. 94-142 and P.L. 99-457; informs members
     about implications for them and their students; and
     gathers teacher testimony about the effects of the law. 
     Members may obtain information about the law and
     regulations and information on training programs to help
     regular education teachers integrate handicapped students
     with nonhandicapped students.
     
     
     National Eye Care Project
P.O. Box 6988
San Francisco, CA  94101
(800) 222-3937
     
     The Organization:   The National Eye Care Project provides
     referrals for U.S. citizens or legal residents, age 65 or
     older, who do not have access to an ophthalmologist they
     have seen in the past.  Callers who meet the eligibility
     requirements are mailed the name of an ophthalmologist
     participating near their home.  Participating doctors
     provide medical eye exams and treatment for conditions or
     diseases; qualified callers will receive treatment at no
     out-of-pocket expense for the doctor's services. 
     Eyeglasses, prescriptions, hospital services and other
     medical services are not covered under the program. 
     Doctors accept insurance assignment as payment in full. 
     Callers who do not have insurance are not turned away.
     
     National Eye Institute (NEI)
National Institutes of Health
U.S. Department of Health and Human Services
Building 31
Room 6A32
Bethesda, MD  20892
(301) 496-5248
      
     Disabilities Served:  Blindness and visual impairments.
     
     Users Served:  General public, disabled persons, their
     family and friends.
     
     The Organization:  The National Eye Institute (NEI) has
     primary responsibility within the National Institutes of
     Health and the Federal Government for supporting and
     conducting research aimed at improving prevention,
     diagnosis, and treatment of visual disorders.  In
     addition, NEI encourages the application of research
     findings to clinical practice, heightens public awareness
     of vision problems, and cooperates with voluntary
     organizations that engage in related activities.
     
     Information Services:  Printed material on the following
     eye conditions is available upon request:  cataract,
     glaucoma, macular degeneration, diabetic retinopathy. 
     Also available are statistics on eye disease and visual
     impairment and information on NEI-supported research.
     
     
     National Eye Research Foundation (NERF)
910 Skokie Boulevard
Suite 207
Northbrook, IL  60062
(708) 564-4652
     
     Disabilities Served:   Blindness and visual impairments.
     
     Users Served:  Low-vision disabled persons,
     ophthalmologists, opticians, optometrists, and other eye
     care professionals, general public.
     
     The Organization:   The National Eye Research Foundation
     (NERF) is a membership organization for ophthalmologists,
     opticians, optometrists, and other professional and lay
     people interested in the eye care field.  With the
     objective of improving eye care for the general public, it
     sponsors research projects in the field of optometry and
     disseminates research information on practical innovations
     and techniques to professionals.  Dissemination is through
     international, national, and regional meetings and through
     public service announcements.  The foundation also
     operates a low-vision clinic.
     
     Information Services:  For lay inquiries, NERF provides
     free brochures defining specialists within the eye care
     profession and defining certain eye disorders, such as
     glaucoma, hyperopia, and myopia.  The organization makes
     referrals to local eye specialists.  NERF's bimonthly
     research journal on contact lenses, Contacto, is available
     to members only.
     
     
     National Federation of the Blind (NFB)
1800 Johnson Street
Baltimore, MD  21230
(301) 659-9314
     
     Disabilities Served:  Blindness.
     
     Users Served:  Disabled persons, parents, teachers,
     professionals.
     
     The Organization:  The National Federation of the Blind
     (NFB) is a membership organization with 51 State and 400
     local chapters.  NFB keeps up with Federal and State
     legislation affecting blind people and State services for
     blind people.  It acts as a legislative resource for its
     chapters and represents the needs of blind people through
     advocacy and representation in discrimination cases.  It
     attempts to arouse public awareness of the potential and
     accomplishments of people who are blind through public
     service messages.  State and local chapters are active in
     developing local projects to improve conditions for blind
     people in areas such as mass transit, employment, and
     library services.  Members contact newly blinded persons
     to help them with problems of adjustment.
     
     Information Services:  NFB conducts seminars on services
     available to blind people and what the law provides for in
     each State.  Its National Blindness Information Center
     will attempt to answer any questions about blindness and
     the rights of  blind people by phone or mail.  More than
     50 publications are available from NFB; some are free. 
     NFB publishes a monthly magazine, The Braille Monitor
     (available in print, disc, cassette, and braille), which
     reports on problems, progress, activities, and new
     technologies related to blindness.  State and local
     chapters refer inquiries to appropriate direct service
     providers. 
     National Foundation for Ectodermal Dysplasias
219 East Main Street
P.O. Box 114
Mascoutah, IL  62258
(618) 566-2020
      
     Disabilities Served:  The ectodermal dysplasia syndromes.
     
     Users Served:  Parents, professionals, patients.
     
     The Organization:  Ectodermal dysplasias (ED) are genetic
     birth defects, the best known of which is
     Christ-Siemens-Touraine's syndrome or hypohydrotic
     ectodermal dysplasia.  All of these conditions involve at
     least two abnormalities of derivatives of the skin. 
     Symptoms may include lack of sweat glands, skin oils,
     hair, tears, and mucous membranes.  There are often severe
     dental problems.  There is no known test to determine the
     genetic carriers of these conditions.  The National
     Foundation for Ectodermal Dysplasias was formed to locate
     families encountering difficulties with an ED patient and
     to provide them with whatever support and information may
     be required.  Educational materials and programs are
     provided to the medical community, and consultant services
     are available.  Research programs for carrier
     identification and syndrome identification are currently
     being conducted in conjunction with major research
     facilities.  Annual family conferences provide
     information, support, and social interaction.  A treatment
     fund has been organized to provide financial assistance.
     Information Services:  The foundation presently responds
     to all inquiries from families of persons with ED or their
     dentists or doctors.  A variety of publications are
     available from the foundation including a monthly
     newsletter, A Family Guide to Ectodermal Dysplasias, and
     Charley:  The Story of a Child, a family's diary of
     experience with their son who has ED.  Most publications
     are free or available for a nominal charge.  Audiovisual
     aids are also available for purchase.
     
     
     National Foundation for Facial Reconstruction (NFFR)
317 East 34th Street
New York, NY  10016
(212) 340-6656
(800) 422-FACE
     
     Disabilities Served:   Facial disfigurement as a result of
     birth defects, accidents, and illness.
     
     Users Served:   Parents and families of facially
     disfigured individuals.
     
     The Organization:   The National Foundation for Facial
     Reconstruction (NFFR) is a nonprofit, voluntary
     organization chartered in New York State in 1951 to aid
     the rehabilitation of individuals suffering from facial
     disfigurement.
     
     Its major purposes are (a) to provide facilities for the
     treatment and assistance of individuals who are unable to
     afford private reconstructive surgical care; (b) to assist
     in the training and education of personnel engaged in
     reconstructive plastic surgery; (c) to initiate,
     stimulate, and encourage research in this field; and (d)
     to carry on a public education program to make more people
     aware of the problems of facial disfigurement and the
     treatment methods currently available.
     
     The major program of the NFFR has been sponsorship of the
     Institute of Reconstructive Plastic Surgery of the New
     York University Medical Center.  Through this program, it
     helps to support plastic surgery clinics in University
     Hospital, Bellevue Hospital, New York Veterans
     Administration Hospital, and Manhattan Eye, Ear and Throat
     Hospital.  Treatment services of these clinics include
     reconstruction of congenital malformations of the face,
     crash injuries, and burns; correction of cleft lip and
     cleft palate deformities; microsurgery and replantation;
     reconstruction of the hand and upper extremities; the
     reconstruction of facial defects resulting from radical
     surgery for eradication of cancer; and plastic surgery
     around the eye and its adnexa.
     
     The National Foundation for Facial Reconstruction is
     funded completely by public contributions and each year
     must raise substantial sums to help support the clinic
     services described above.
     
     Information Services:   Semiannual newsletter.
     
     
     The National Foundation for Ileitis and Colitis
(NFIC)
444 Park Avenue South
New York, NY  10016
(212) 685-3440
(800) 343-3637
     
     Disabilities Served:   Ileitis (Crohn's disease) and
     ulcerative colitis (inflammatory bowel disease).
     
     Users Served:   Disabled persons, their families,
     physicians, and the general public.
     
     The Organization:   The National Foundation for Ileitis
     and Colitis (NFIC) (soon to be known as The Crohn's and
     Colitis Foundation of America) is a nonprofit,
     research-oriented, voluntary health organization dedicated
     to improving the quality of life for persons with Ileitis
     (Crohn's disease) and ulcerative colitis (known
     collectively as inflammatory bowel disease or IBD). 
     Founded in 1967, NFIC is committed to establishing and
     maintaining a coordinated national program of biomedical
     research, professional and public education, and patient
     support groups.  
     
     The primary goal of NFIC is to raise funds for research to
     find the cause and cure of these chronic illnesses, which
     affect an estimated 2 million Americans.  Thirty thousand
     new cases are diagnosed annually.
     
     Information Services:   NFIC provides educational programs
     for patients, physicians, and the public; mutual support
     groups; chapter newsletters; a national magazine;
     informational brochures and books; professional and
     medical forums; and research publications.
     
     
     The National Foundation of Dentistry for the
Handicapped
 (NFDH)
1600 Stout 
Suite 1420
Denver, CO  80202
(303) 573-0264
     
     Disabilities Served:   Disabled and elderly.
     
     Users Served:   Disabled and elderly persons with an
     emphasis on those who are indigent.
     
     The Organization:   The National Foundation of Dentistry
     for the Handicapped (NFDH) is a nonprofit organization
     which promotes access to, and the delivery of, needed
     dental health care to physically or mentally handicapped
     persons.  To accomplish this mission, which is national in
     scope, the foundation provides leadership in designing and
     coordinating innovative approaches and programs, utilizing
     existing delivery systems, at State and/or local levels. 
     The foundation mobilizes participation in and support of
     these programs by individual dentists, organized
     dentistry, advocacy groups, philanthropic organizations,
     appropriate government agencies at all levels, and the
     general public including individuals, civic organizations,
     and businesses.
     
     Information Services:   A brochure about choosing a
     dentist for a handicapped person and other materials about
     the NFDH programs are available.  In States where DDS
     programs operate, the foundation will match qualified
     low-income disabled and elderly people with volunteer
     dentists.
     
     
     National Fraternal Society of the Deaf (NFSD)
1300 West Northwest Highway
Mt. Prospect, IL  60056
(708) 392-9282 (Voice)
(708) 392-1409 (TDD)
     
     Disabilities Served:  Deafness and hearing impairments.
     
     Users Served:  Hearing-impaired persons, parents.
     
     The Organization:  Organized and administered by deaf
     people, the National Fraternal Society of the Deaf (NFSD)
     was originally founded to provide life insurance coverage
     for deaf people who were denied coverage by established
     companies.  Membership, which entails purchase of
     insurance, is open to all hearing-impaired persons, their
     relatives, and others involved in the field of
     deafness--between the ages of 0 and 70.  NFSD advocates
     the rights of deaf people to drive and obtain auto
     insurance and works to eliminate discrimination in
     employment, education, and legal proceedings.  The
     organization also awards scholastic and athletic
     achievement and sponsors local and national social
     activities.
     
     Information Services:  A field force of trained
     representatives exists to offer detailed information and
     explanation of a variety of insurance investments and
     estate planning to deaf and hearing-impaired persons. 
     Information is provided in sign language.  Consumer
     education is also conducted through chapters in 36 States
     and Canada and 98 local divisions and through the
     bimonthly magazine, The Frat, which carries news of the
     society's insurance, social, and advocacy activities.  The
     national office maintains an extensive library collection
     of monographs and pamphlets relating to deafness, which is
     available to any person or group for reference or
     research.
          National Gaucher Foundation (NGF)
1424 K Street, NW
Washington, DC  20005
(202) 393-2777
     
     Disabilities Served:  Gaucher's disease (all types).
     
     Users Served:  Disabled persons, parents, physicians,
     geneticists.
     
     The Organization:  The National Gaucher Foundation, Inc.
     (NGF) is an organization dedicated to finding a treatment
     or cure for Gaucher's disease.  The foundation supports
     research on Gaucher's; provides support to patients and
     disseminates information about this genetic disorder,
     which causes enlargement of the liver and spleen and
     deterioration of the bones.
     
     Information Services:  NGF is a clearinghouse of
     information on research, symptoms, and day-to-day
     management of the disease.  A bimonthly newsletter is sent
     to all interested persons.  NGF can make referrals to
     physicians and genetics clinics.
     
     
     National Genetics Foundation, Inc. (NGF)
555 West 57th Street
New York, NY  10019
     
     Disabilities Served:   All genetic disorders.
     
     Users Served:   Physicians and the public.
     
     The Organization:   The National Genetics Foundation (NGF)
     is a nonprofit health agency dedicated to reducing the
     burden of genetic disease among Americans.  NGF was cited
     by the National Academy of Sciences in 1975 as a model for
     health delivery.
     
     Information Services:   NGF's primary objective is the
     advancement of medical genetics into health delivery
     systems of the United States.  As a service to the public,
     the National Genetics Foundation provides a computerized
     analysis of an individual's personal family health history
     through a Family Health Profile questionnaire.  The
     purpose is to pinpoint health problems important to the
     person completing the questionnaire as well as his or her
     children.  The report of the analysis is sent to the
     individual's physician, whose name and address must be
     listed on the form.  There is a charge for each form and
     analysis to help defray the cost of service, handling, and
     mailing.
     
     The foundation operates a nationwide network clearinghouse
     staffed by genetic counselors who provide referral to
     university-based genetic centers for individuals and
     families who have, or suspect they may have, an inherited
     disorder.
     
     
     National Handicap Housing Institute, Inc. (NHHI)
4556 Lake Drive
Robbinsdale, MN  55422
(612) 535-9771
     
     Disabilities Served:   All physical disabilities.
     
     Users Served:  Physically disabled persons, architects,
     builders, government and industry.
     
     The Organization:  The National Handicap Housing
     Institute, Inc. (NHHI) was incorporated in 1975 as a
     tax-exempt charitable organization providing services
     related to the development of barrier-free housing for
     physically disabled young adults.  NHHI has developed,
     codeveloped and consulted on the development of 1,065
     units of barrier-free housing for low income
     mobility-impaired young adults.  In addition, NHHI has
     provided design- related services and/or marketing
     consultation toward the successful development of other
     units.
     
     The institute has conducted research on barrier-free
     housing design and developed architectural and product
     specification standards that are functional and
     affordable.  In this regard, model kitchens and bathrooms
     have been built to test accessibility by disabled people,
     and virtually all brands and models of appliances and
     building hardware typically used in multifamily housing
     construction and specifications have been studied for
     their use by disabled persons.  NHHI has also surveyed the
     housing needs and preferences of handicapped people as
     well as locational preferences to determine what housing
     features are needed to overcome problems resulting from
     specific disabilities.
     
     The institute provides information and referral on the
     availability of barrier-free housing in the
     Minneapolis/St. Paul, Minnesota, area to a major degree
     and to out-state Minnesota to a lesser degree. 
     Information on various housing assistance programs that
     handicapped people may be eligible for, as well as design
     and product information, is also provided.
     
     The institute has developed the design expertise necessary
     to assist architects, builders, and owners with many of
     their problems in creating new buildings and adapting and
     retrofitting older structures to be accessible through
     interpreting the pertinent codes and making
     recommendations that meet and, hopefully, exceed them
     functionally and aesthetically at minimal cost.
     
     The institute has a working knowledge of the requirements
     of 503 and 504 of the Rehabilitation Act of 1973 and can
     assist government and industry in meeting the affirmative
     action and accessibility requirements demanded by this
     important Federal law.  NHHI has shown exemplary
     capabilities in providing imaginative design solutions
     that overcome the problem of architectural barriers for
     the handicapped.
     
     Information Services:  The institute has accumulated
     information on most organizations (nationwide), agencies,
     and individuals actively engaged in serving the housing
     needs of disabled persons, as well as other related
     service needs.  Through the use of public service
     announcements, organizational newsletters, and general
     exposure of our products and services, NHHI has built a
     reputation as experts in the barrier-free, multifamily
     housing field.
     
     
     National Head Injury Foundation, Inc. (N.H.I.F.)
1140 Connecticut Avenue, NW
Suite 812
Washington, DC  20036
(202) 296-6443
(800) 444-NHIF
     
     Disabilities Served:  Traumatic brain injury.
     
     Users Served:  Survivors, family members, councils,
     support groups, professionals and providers of
     rehabilitation, interested persons.  
     
     The Organization:  Founded in 1980, the National Head
     Injury Foundation's (N.H.I.F.) purpose is to improve the
     quality of life for people with a head injury and their
     families and to promote prevention of head injury through
     advocacy and public education.
     
     N.H.I.F. is a membership organization that works through
     its 44 State affiliates.  N.H.I.F is the leading national
     advocacy and support organization for persons with head
     injuries and their families.  N.H.I.F is actively involved
     in legislation at the Federal and State level.
     
     Information Services:  A toll-free family helpline for
     assistance is available, as well as brochures describing
     head injury, prevention programs, a national directory of
     resources for persons with head injury and their families,
     national conferences for rehabilitation professionals and
     trial lawyers, and a catalog of educational materials. 
     There is a national newsletter as well as films and
     videos.  Contact Information and Resources for
     information.
     
     
     National Headache Foundation (NHF)
5252 North Western Avenue
Chicago, IL  60625
(312) 878-7715
(800) 523-8858 (Illinois Only)
(800) 843-2256 (Outside Illinois)
     
     Disabilities Served:   Headaches/head pain.
     
     Users Served:   Headache sufferers, physicians, health
     care professionals.
     
     The Organization:   The National Headache Foundation (NHF)
     is a nonprofit organization established in 1970 to assist
     headache sufferers, their families, and the physicians who
     treat them.  NHF is dedicated to three major goals:   to
     serve as an information source to headache sufferers,
     their families, and the physicians who treat them; to
     promote research into potential headache causes and
     treatments; and to educate the public to the fact that
     headaches are serious disorders and sufferers need
     understanding and continuity of care.
     
     Information Services:   NHF disseminates free information
     on headache causes and treatments, funds research, and
     sponsors public education seminars nationwide.  In
     addition to functioning as a clearinghouse for
     information, NHF also has audiotapes, brochures and other
     helpful materials available for purchase.
     
     Membership dues in NHF are $15 per year and entitle the
     member to receive the following benefits:  four issues of
     the quarterly newsletter, The Headache Handbook, and How
     to Talk to Your Doctor About Headaches; two informative
     brochures; the tyramine-free diet; an article on
     biofeedback, 52 Proven Stress Reducers; Travel Tips for
     the Headache Sufferer and more.
     
          National Hearing Aid Society
20361 Middlebelt Road
Livonia, MI  48152
(313) 478-2610
(800) 521-5247
      
     Disabilities Served:  Hearing impairment.
     
     Users Served:  Disabled persons, hearing health care
     professionals.
     
     The Organization:  The National Hearing Aid Society is a
     professional association of Hearing Instrument
     Specialists.  Its members conduct testing for hearing and
     fit, select, dispense, and maintain hearing instruments
     (hearing aids).  The society conducts programs of
     competency qualification, education, ethics, and training
     and promotes specialty-level accreditation for its
     members.  It offers an independent study course for people
     interested in a career in the hearing instrument
     profession.  For the hearing health professional, the
     society publishes a quarterly educational and research
     journal and a directory of members and has public
     relations/marketing programs.
     
     Information Services:  The National Hearing Aid Society
     sponsors and administers a USA and Canada toll-free
     Hearing Aid Helpline, 
     (800) 521-5247, to answer consumer questions and send free
     literature regarding hearing loss and hearing aids.  The
     helpline also makes referrals to hearing aid specialists,
     support groups for hearing impaired people, other
     information sources, and provides information on a variety
     of hearing-related subjects.
     
     
     The National Hemophilia Foundation (NHF)
The Soho Building
110 Greene Street
Suite 303
New York, NY  10012
(212) 219-8180
     
     Disabilities Served:   Hemophilia, von Willebrand's
     disease, and other clotting factor deficiencies.
     
     Users Served:   Persons with hemophilia and their
     families.
     
     The Organization:   The National Hemophilia Foundation
     (NHF) is a voluntary, nonprofit national health agency. 
     The foundation is dedicated to the treatment and cure of
     hemophilia, related bleeding disorders, and complications
     of those disorders or their treatment, including HIV
     infection, as well as to improving the quality of life of
     all those affected through the promotion and support of
     research, education, and other services.  NHF coordinates
     the activities of 47 local chapters that provide services
     directly to people with hemophilia and their families
     throughout the United States.
     
     Information Services:  The National Hemophilia Foundation
     offers many publications for providers, persons with
     hemophilia, families, and the community.  NHF also
     produces five newsletters; Hemophilia Newsnotes
     (quarterly), Hemophilia Nursing Network News
     (semiannually), Hemophilia Psychosocial News
     (semi-annually), NHF Physical Therapy Newsletter
     (annually), Hemophilia and AIDS/HIV Network for the
     Dissemination of Information (HANDI) (quarterly).  NHF
     also offers programs related to research, education, and
     financing as well as a comprehensive information center. 
     For more information on NHF's programs and information
     services call a HANDI Information Specialist at (212)
     431-8541 or 1-800-42-HANDI.
     
     
     National Hospice Organization (NHO)
1901 North Moore Street
Suite 901
Arlington, VA  22209
(703) 243-5900
(800) 658-8898 (Hospice Referral and Information
Only)

     Disabilities Served:   Terminally ill people and their
     families.
     
     Users Served:   Terminally ill people, hospice and other
     health care professionals, general public.
     
     The Organization:   The National Hospice Organization
     (NHO) is a nonprofit, membership organization founded in
     1978.  NHO is dedicated to the promotion of the hospice
     concept of care and to ensuring the highest quality of
     care.  Its membership includes hospice programs, health
     care professionals, and organizations interested in
     hospice care.  Hospice is a specialized health care
     program emphasizing the management of pain and other
     symptoms associated with terminal illness while providing
     care for the family as well as the patient.  Care is
     provided by physicians, nurses, social workers,
     therapists, clergy, and specially trained volunteers and
     is given in the home whenever possible with inpatient care
     provided when necessary.  The aim of hospice is to improve
     the quality of life remaining for dying patients and
     supporting the family through the bereavement period.
     
     Information Services:   NHO has developed standards of
     care and guidelines for establishing a hospice; conducts
     national symposia, conferences, and workshops; publishes a
     national directory and other education and training
     resources and research materials.  Information to the
     general public and referral to hospice programs in the
     United States is available through the Toll-free Hospice
     Helpline as listed above. 
     
     
     National Industries for the Blind (NIB)
Rehabilitation Services Division
524 Hamburg Turnpike
Wayne, NJ  07470
(201) 595-9200

     Disabilities Served:  Blindness including multiple
     disabilities.
     
     Users Served:  Agencies and industries for the blind.
     
     The Organization:  National Industries for the Blind (NIB)
     was established in 1938 to act as the designated liaison
     between specialized industries for the blind and Federal
     Government procurement representatives.  Approximately 100
     specialized industries employing more than 6,300 blind and
     multidisabled blind persons are associated with NIB, and
     their activities involve producing goods and services for
     government and private industry.  NIB's main functions are
     to allocate government purchase orders among qualified
     industries and to provide training and consultation to
     their boards and personnel in the areas of management,
     mechanical and industrial engineering, quality assurance,
     product research and development, vocational
     rehabilitation services, and subcontract procurement.  NIB
     works with nonassociated agencies, helping them to meet
     the special requirements of both NIB and the Committee for
     Purchase from the Blind and Other Severely Handicapped,
     and with representatives in industry to create employment
     opportunities for blind persons.  There are no fees or
     dues for association with NIB.
     
     Information Services:   Information available through NIB
     relates to the standards and requirements for association
     with NIB as well as assistance in establishing new
     industries for blind and multidisabled blind persons. 
     General information about NIB and a list of associated
     agencies are available to any individual.  A nominal fee
     may be charged for some materials.  A limited number of
     NIB publications are available in braille or large print
     or on tape.
     
     National Industries for the Severely Handicapped
(NISH)
2235 Cedar Lane
Vienna, VA 22182
(703) 560-6800

     Disabilities Served:  All severe disabilities.
     
     Users Served:  Management and staff of (nonprofit) Work
     Centers across the country that employ persons with severe
     handicaps.
     
     The Organization:  National Industries for the Severely
     Handicapped (NISH) is the nonprofit agency that strives to
     actively increase the level of  employment of persons with
     severe disabilities through the execution of  a
     comprehensive program of services to achieve the full
     potential of the Javits-Wagner-O'Day (JWOD) Act, Public
     Law 92-28.
     
     NISH conducts research and development to identify
     commodities and services that are feasible for Work
     Centers to provide to the Federal Government.  NISH
     provides training and technical assistance, such as
     industrial engineering, production planning, quality
     control, cost analysis, and contract administration.  NISH
     also acts as a liaison between Work Centers and the
     Presidentially appointed Committee for Purchase From the
     Blind and Other Severely Handicapped.
     
     Information Services:  Nonprofit agencies that employ
     persons with severe disabilities are encouraged to contact
     NISH to learn how to become affiliated with NISH and
     eligible to participate in the program.  Federal agency
     representatives are also encouraged to contact NISH to
     learn how to procure products and services from Work
     Centers under the JWOD Program.
     
     Publications:  NISH publishes a monthly newsletter and an
     annual report.  It holds national conferences:  April
     21-24, 1991, Las Vegas, Nevada; 
     April 12-15, 1992, Nashville, Tennessee; and May 16-19,
     1993, Phoenix, Arizona.  A regional training seminar
     schedule available upon request.
     
          National Information Center for Children and Youth
with Disabilities
 (NICHCY)
P.O. Box 1492
Washington, DC  20013
(800) 999-5599 (Outside Washington, DC)
(703) 893-6061 (Washington, DC Only)
(703) 893-8614 (TDD)
     
     Disabilities Served:   All disabilities for people aged 22
     and under.
     
     Users Served:   Persons with disabilities, their families
     and teachers, physicians, nurses, therapists, legislators,
     advocates, policymakers, journalists, social workers and
     all others concerned about disability issues.
     
     The Organization:   The National Information Center for
     Children and Youth with Disabilities (NICHCY) is a
     federally funded project, mandated by Section 633 of the
     Individuals with Disabilities Education Act (IDEA) under
     Public Law 101-476.   NICHCY collects and shares
     information and ideas that are helpful to children and
     youth with disabilities and the people who care for and
     about them.  The Center answers questions, links people
     with others who share common concerns, publishes
     newsletters and issue papers, and generally helps the
     information flow between people who have it and people who
     need it.
     
     Information Services:   NICHCY maintains a resource
     collection and a data base of information on the full
     range of options, services, and issues related to children
     and youth with disabilities.  NICHCY's organization data
     base contains information on hundreds of national,
     regional, State and local organizations specifically
     concerned with disability issues.  NICHCY publishes two
     newsletters.  News Digest is published triennially and
     each issue offers an overview of a specific topic. 
     Transition Summary comes out once a year and is a
     compilation of articles on transition from school to the
     adult world.  Also available are a publications list;
     factsheets on specific disabilities; general information
     about disabilities; State resource sheets for each State
     and Territory, which list State agencies, selected
     disability organizations, and parent groups; legal
     information; and a special series for parents, called A
     Parent's Guide.  Single copies of the NICHCY publications
     are available free of charge.  Some publications are
     available in alternative formats and in Spanish.
     
     NICHCY staff members provide consultation and technical
     assistance on topics of information collection and
     dissemination, networking, and assorted other topics on
     request.  Staff are available for conferences and
     workshops.
     
     National Information Center for Orphan Drugs and
Rare
 Diseases (NICODARD)
ODPHP National Health Information Center (ONHIC)
P.O. Box 1133
Washington, DC  20013
(800) 336-4797 (ODPHP Health Information Center)
(800) 456-3505 (NICODARD)

     Disabilities Served:  All handicaps.
     
     Users Served:  Disabled persons, parents, health
     professionals, and general public.
     
     The Organization:  The ODPHP National Health Information
     Center (ONHIC) and the National Information Center for
     Orphan Drugs and Rare Diseases (NICODARD) are projects of
     the Office of Disease Prevention and Health Promotion
     (ODPHP) of the U.S. Department of Health and Human
     Services.  In addition to its clearinghouse function,
     ONHIC has initiated liaison activities in order to
     encourage the exchange of ideas on common concerns and
     goals among health information providers. 
     
     Information Services:  ONHIC and NICODARD operate an
     information and referral center.  The data base of
     resource organizations helps consumers find the health
     information they need by locating the appropriate sources
     of the information.  Resource organizations include
     disease prevention and health promotion programs,
     clearinghouses, professional associations, voluntary
     organizations, and government agencies at the national
     level.  Organizations that provide information on the
     following topics are included:  nutrition, cancer,
     immunization, accident control, infectious diseases,
     acupuncture, fluoridation, teenage pregnancy,
     hypertension, smoking, biofeedback, risk assessment,
     physical fitness, genetic diseases, and many others.  The
     ONHIC data base of referral organizations is accessible to
     the public through the National Library of Medicine data
     base DIRLINE.
     
     ONHIC publishes a series of directories and bibliographies
     on health topics of current interest.  NICODARD produces a
     listing of drugs approved for orphan drug status by the
     Food and Drug Administration.  ONHIC and NICODARD
     information and referral services are available free of
     charge to lay persons and professionals.
     
          National Information Center on Deafness (NICD)
Gallaudet 
800 Florida Avenue, NE
Washington DC  20002
(202) 651-5000 (Voice)
(202) 651-5052 (TDD)

     Disabilities Served:  Deafness and hearing loss.
     
     Users Served:  Deaf and hard-of-hearing persons, parents,
     teachers, professionals, general public.
     
     The Organization:  The National Information Center on
     Deafness (NICD), located on the Gallaudet University
     Campus, is a centralized source of accurate, up-to-date,
     objective information on topics dealing with deafness and
     hearing loss.  NICD responds to questions from the general
     public and hearing-impaired people, their families,
     friends, and professionals who work with them.  Through
     its own efforts and through continued collaboration with
     agencies and organizations serving hearing-impaired
     people, NICD collects, develops, and disseminates
     information on all aspects of hearing loss and programs
     and services offered to people who are deaf and hard of
     hearing across the Nation.
     
     Information Services:  NICD provides either direct
     information, printed materials, and/or when appropriate,
     referrals to other helpful resources.  NICD has developed
     numerous factsheets and resource listings on such areas as
     deafness, TDD's alerting and communication devices,
     hearing ear dogs, financial aid for hearing-impaired
     students, travel resources for hearing-impaired people,
     and short reading lists on the topics in education of deaf
     children.  There is a nominal charge for NICD
     publications. 
     
     
     National Information Clearinghouse for Infants
  with Disabilities and Life-threatening Conditions
Benson Building 
1st Floor
Columbia, SC  29208
(800) 922-9234 
(800) 922-1107 (South Carolina Only)

     Disabilities Served:   All disabilities and severe health
     conditions affecting infants.
     
     Users Served:   Parents having infants with disabilities
     or life-threatening illnesses, family members,
     caseworkers, physicians, nurses and other health care
     providers, NICU social workers, Child Protective Service
     workers, attorneys and advocates.
     
     The Organization:   The National Information Clearinghouse
     for Infants with Disabilities and Life-threatening
     Conditions is a collaborative project of the Association
     for the Care of Children's Health (ACCH) in Bethesda,
     Maryland, and the Center for Developmental Disabilities at
     The University of South Carolina in Columbia, South
     Carolina.  The Clearinghouse is a 5-year project
     (10/90-9/95) funded by the National Center on Child Abuse
     and Neglect, Administration for Children, Youth and
     Families, OHDS/DHHS.  The primary goal of the
     Clearinghouse is to prevent the abuse and neglect of
     infants born with disabilities by providing timely and
     adequate information about available services and support
     to families and providers.
     
     Information Services:   The Clearinghouse provides direct
     information about services and referral to appropriate
     providers of services for families having infants with
     disabilities.  Information specialists at the
     Clearinghouse respond to individual requests and assist
     families to access services such as parent support and
     training resources, advocacy, health care, financial
     assistance, Child Protective Services, and legal and
     educational services.  The Clearinghouse produces and
     disseminates materials including bibliographies,
     factsheets, and articles on Baby Doe issues.  Also
     available will be monographs on strategies to develop
     information resources for persons with disabilities,
     strategies for enhancing systems for the provision of
     information and supportive services for families with
     infants with life-threatening illnesses and disabilities,
     and recommendations for increasing the knowledge and
     skills of professionals in providing information and
     support to families.
     
     
     National Information System
  for Vietnam Veterans and Their Children (NIS)
Center for Developmental Disabilities
Columbia, SC  29208
(800) 922-9234 (Outside South Carolina)
(800) 922-1107 (South Carolina Only)

     Disabilities Served:   All disabilities or special health
     care needs of children of Vietnam veterans.
     
     Users Served:  Vietnam veterans having children with
     disabilities or special health care needs, family members,
     professionals.
     
     The Organization:   The National Information System for
     Vietnam Veterans and Their Children (NIS) is a national
     information and referral system.  Responding to each
     request are information specialists who are trained to
     assist families of Vietnam veterans who have children with
     disabilities to identify, understand, and access services
     available to them.  The NIS is operated by the Center for
     Developmental Disabilities, a university-affiliated
     program, and is funded by the Agent Orange Class
     Assistance Program.
     
     Information Services:  The NIS provides direct information
     and referral to service providers over the telephone. 
     Additionally, the NIS produces and disseminates factsheets
     about disabilities and conditions common to the children
     of Vietnam veterans.
     
     
     National Institute for Burn Medicine (NIBM)
909 East Ann Street
Ann Arbor, MI  48104
(313) 769-9000
      
     Disabilities Served:  Burn injury.
     
     Users Served:  Health care professionals, fire services,
     manufacturers, teachers, students, general public,
     attorneys, and researchers.
     
     The Organization:  The National Institute for Burn
     Medicine (NIBM) works to improve care available for burn
     victims through its research, professional training,
     technical assistance, and information dissemination
     programs.
     
     NIBM conducts research designed to improve patient care
     organization and delivery and to improve rehabilitation
     services.  Specialized training for burn patients care is
     available for physicians, nurses, and technicians. 
     Communities and hospitals may receive help in planning and
     establishing burn facilities.  Emphasis is now on
     prevention programs for communities.
     
     Information Services:  The institute distributes a variety
     of professional and public education materials in print
     and audiovisual formats, including free brochures on burn
     prevention and first aid.
     
     The institute responds to a wide range of requests from
     medical professionals, lawyers, manufacturers, teachers,
     students, and the public.  When staff research time is
     required, there is a fee for services, which is lower for
     community service organizations and other nonprofit
     groups.  Inquirers are asked to send written requests,
     outlining how the information they need will be used.
     
     
     National Institute of Allergy and Infectious
Diseases 
 (NIAID)
National Institutes of Health
U.S. Department of Health and Human Services
Building 31
Room 7A32
Bethesda, MD  20892
(301) 496-5717

     Disabilities Served:   Allergies and infectious diseases
     of all kinds; also transplantation and immune deficiency
     disease.
     
     Users Served:   Health care professionals and the general
     public.
     
     The Organization:   National Institute of Allergy and
     Infectious Diseases (NIAID) supports a multimillion dollar
     research effort across the country at research
     institutions, aimed at a better understanding of the
     causes of allergic, immunologic, and infectious diseases
     and the development of better means of preventing,
     diagnosing, and healing these illnesses.  Some of the
     studies are of infectious agents found in other countries,
     which cause death or severe handicaps for people living in
     the tropics and other areas outside of the United States
     (e.g., malaria and other parasitic diseases, leprosy,
     cholera, and viral diarrheas).
     
     NIAID supports Asthma and Allergic Disease Centers, which
     translate basic concepts in immunology, genetics,
     biochemistry, and pharmacology into clinical research. 
     Comprehensive Immunologic Research and Disease Centers
     study immunologic diseases.
     
     Information Services:   The NIAID Office of Communications
     has numerous publications for the lay person that cover
     the range of infectious diseases and allergies (e.g.,
     asthma, pollen, dust and mold allergy, influenza, lung
     disease).  Booklets are also available on viruses and
     bacteria and on bacterial meningitis, rabies, and sexually
     transmitted diseases.
     
     NIAID does not make referrals to sources of financial
     assistance for medical care, transportation, etc.
     
          National Institute of Art and Disabilities
551 23rd Street
Richmond, CA  94804
(415) 620-0290

     Disabilities Served:   All disabilities.
     
     Users Served:   Disabled persons, parents, teachers,
     artists, art therapists, art educators, counselors.
     
     The Organization:   The National Institute of Art and
     Disabilities is a nonprofit organization, which operates a
     demonstration visual arts program, provides professional
     training and consultations, helps establish art centers
     and art programs for children and adults with
     disabilities, and conducts research.  The institute is
     founded on the belief that artistic expression is a means
     of promoting community involvement and integration for
     disabled individuals, as well as personal expression.  The
     institute offers creative opportunities in painting,
     sculpture and printmaking to adults who are physically
     handicapped, emotionally disturbed, or mentally retarded. 
     Students come to the center from throughout a two-county
     area, as an alternative to sheltered workshops and work
     activity programs.  Training is provided in prevocational
     and vocational skills related to remunerative employment
     in the art field.  Counseling and training in independent
     living skills are also integrated into the program. 
     Opportunities are provided for observation, practice
     teaching, and research for professionals and students at
     the institute.
     
     The institute promotes exhibitions of creative art of
     people with disabilities in art galleries, museums, and
     public places.  The philosophy of the institute is
     disseminated nationwide through publications, conferences,
     public education, and advocacy.
     
     Information Services:   The institute publishes brochures
     on the programs and services it offers, as well as a
     quarterly newsletter.  Publications include Art and
     Disabilities, Disabled Artist at Work - Photography by
     Judy Dater (Exhibition Catalog), Exhibition - Artist With
     Disabilities (Exhibition Catalog), Freedom to Create, The
     Creative Spirit.
     
     The institute consults with individuals and groups in
     establishing and operating art centers and art programs
     for people with disabilities.  It also develops programs
     for children and adults in schools, sheltered workshops,
     convalescent hospitals, and State institutions. 
     Professional training is provided through courses,
     participatory workshops, and conferences for artist,
     teachers, social workers, nurses, museum personnel,
     parents, etc.  To further public education, the institute
     conducts lectures, and conference, radio, television,
     film, and media presentations.
     
     
     National Institute of Child Health and Human
Development
 (NICHD)
National Institutes of Health
U.S. Department of Health and Human Services
Building 31
Room 2A32
Bethesda, MD  20892
(301) 496-5133

     Disabilities Served:   Mental retardation (particularly
     Down syndrome) and learning disabilities (particularly
     dyslexia).  A few genetic and metabolic disorders are
     studied.
     
     Users Served:  Parents, teachers, health care
     professionals.
     
     The Organization:   The National Institute of Child Health
     and Human Development (NICHD) funds a multimillion dollar
     research program at its headquarters and around the
     country, at universities and medical schools.  Research
     and doctoral training are done in the areas of maternal
     and child health, human development, and
     reproduction/population, with the focus on the continuing
     growth and development process (biological and behavioral)
     from the prenatal period to maturity.  The NICHD also
     supports 12 Mental Retardation Research Centers across the
     country, where research, professional education, patient
     care, and counseling are undertaken.
     
     Information Services:   Information is particularly strong
     on research related to Down syndrome, mental retardation,
     speech and language, and speech and reading.  Most
     information describes various conditions and what is
     currently known about them.  Patients may be referred by
     NICHD to the programs of the Mental Retardation Research
     Centers for diagnosis, treatment, and other services. 
     Publications include Developmental Dyslexia and Related
     Reading Disorders and other speech/reading and
     speech/language materials and booklets on Down syndrome,
     smoking during pregnancy, childhood hyperactivity,
     anorexia nervosa, cesarean childbirth, oral
     contraceptives, precocious puberty, low birth weight
     babies, and sudden infant death.  A Parent's Guide to
     Cystinosis provides an explanation of the disease and how
     it is diagnosed and offers advice on day-to-day care of
     the child with the disorder, including a discussion of
     emotional and school-related problems that can arise.  A
     new report, Prenatal and Perinatal Factors Associated with
     Brain Disorders, presents current knowledge about prenatal
     and perinatal causes of neurological dysfunction.
     
     
     National Institute of Dental Research (NIDR)
Building 31
Room 2C35
National Institutes of Health
9000 Rockville Pike
Bethesda, MD  20892
(301) 496-4262
     
     Disabilities Served:   Dental diseases, and disorders.
     
     Users Served:   Dental and medical professionals, and the
     general public.
     
     The Organization:   The National Institute of Dental
     Research (NIDR) is the chief sponsor of dental research
     and research related training in the United States.  NIDR
     studies relate to the cause(s), prevention and methods of
     diagnosis and treatment of dental diseases and conditions.
     
     Information Services:   The NIDR information program
     communicates research advances in the oral health sciences
     to the public and dental professionals through the
     development and distribution of patient and professional
     education materials, publications, and scientific reports.
     
     For the professional, periodic issuances of NIDR Research
     Digest provide reports of current research activities. 
     The Institute also funds state-of-the-art conferences and
     workshops and makes the published proceedings of these
     meetings available.  Exhibits depicting research findings
     and known methods of dental disease prevention are
     developed and shown at dental/medical, scientific, and
     health educator meetings.
     
     For the lay person, pamphlets on general dental health and
     on specific problems of relevance to the Institute are
     distributed to the general public.  Inquiries from the
     public are answered with information from the latest
     research reports and citations to the general dental
     literature.  When appropriate, information is supplied
     regarding grantee institutions where possible service can
     be offered.
     
          National Institute of Diabetes and Digestive 
  and Kidney Diseases (NIDDK)
U.S. Department of Health and Human Services
Building 31
Room 9A04
9000 Rockville Pike
Bethesda, MD  20892
(301) 496-3583

     Disabilities Served:   Diabetes, digestive diseases,
     endocrine and metabolic disorders, kidney disease and
     urinary tract infections.  Specific disorders include such
     diseases as ulcers, colitis, ileitis, cystic fibrosis,
     sickle cell anemia, and others.
     
     Users Served:   General public.
     
     The Organization:   The National Institute of Diabetes and
     Digestive and Kidney Diseases (NIDDK) supports millions of
     dollars of research each year on the causes of and
     improved treatment for diabetes and other metabolic
     disorders, digestive diseases and nutrition, and diseases
     of the kidney and urinary tract.  NIDDK also supports
     Diabetes Research and Training Centers, Digestive Disease
     Centers, Clinical Nutrition Research Units, and the George
     M. O'Brien Kidney and Urological Research Centers.
     
     Information Services:   NIDDK's National Diabetes
     Information Clearinghouse, National Digestive Diseases
     Information Clearinghouse, and National Kidney and
     Urological Diseases Information Clearinghouse work with
     health educators and health professionals and handle
     requests for professional literature.  At the central
     information office of NIDDK (address above), basic
     brochures are available on type I and type II diabetes and
     on several other subjects (cystic fibrosis, urinary tract
     infections, gallstones, peptic ulcer, and benign prostatic
     hyperplasia).  
     
     
     National Institute of Mental Health (NIMH)
Information Resources and Inquiries Branch
5600 Fishers Lane
Rockville, MD  20857
(301) 443-4513
     
     Disabilities Served:   Mental illnesses.
     
     Users Served:   Mentally ill persons and their families,
     physicians, clinicians, general public.
     
     The Organization:   The National Institute of Mental
     Health (NIMH) is the Federal agency that supports research
     nationwide on mental illness and mental health.  It is a
     component of the Alcohol, Drug Abuse, and Mental Health
     Administration (ADAMHA).  NIMH supports basic and clinical
     studies on the causes and new treatments of mental
     illnesses.  It also supports research through its
     extramural and intramural programs on studies in the
     biological, psychological, epidemiological, economic, and
     social science aspects of mental illnesses.
     
     Information Services:   To promote the understanding,
     treatment, and rehabilitation of mentally ill people, NIMH
     disseminates publications to the public on symptoms of
     mental illness and sources of help.  Brochures are
     available on such illnesses as schizophrenia, depression,
     bipolar disorder, anxiety, panic, paranoia, obsessive
     compulsive disorder, Alzheimer's disease, sleep disorders,
     and eating disorders.  Some brochures are available in
     Spanish.  A publications list is available.
     
     
     National Institute of Neurological Disorders and
Stroke (NINDS)
National Institutes of Health
U.S. Department of Health and Human Services
Building 31
Room 8A-06
Bethesda, MD 20892
(301) 496-5751
     
     Disabilities Served:  Neurological disorders in general,
     cerebrovascular disease, metabolic disorders affecting the
     nervous system, head and spinal cord injury.
     
     Users Served:  Disabled persons, parents, teachers, health
     professionals, voluntary health organizations.
     
     The Organization:  NINDS is one of 13 research institutes
     making up the National Institutes of Health.  The
     Institute's mission is to conduct, support, and coordinate
     research in the causes, prevention, diagnosis, and
     treatment of neurological disorders and stroke, and in
     basic sciences relevant to these problems.  Support of
     postdoctoral training for research careers is also a basic
     component of the Institute's mission.
     
     The Institute supports clinical research centers at
     university medical complexes, where patient research is
     conducted on epilepsy, stroke, spinal cord injury,
     multiple sclerosis, neural prostheses, and other
     neurological conditions.  The Institute also collects and
     disseminates information on research in its field.
     
     Information Services:  NINDS maintains an Office of
     Scientific and Health Reports (OSHR), whose services are
     available free to both lay and professional users. 
     Inquiries about the Institute program, neurological and
     communicative disorders, and research progress in these
     fields are answered by phone and mail.  Approximately 60
     publications are kept in stock and sent out in response to
     inquiries.  Publications include a Hope through Research
     series of 17 pamphlets (many covering disabling
     conditions), a factsheet series consisting of 11 titles,
     and 10 miscellaneous pamphlets, reprints, and other
     publications.  Annual special reports on research in the
     major neurological areas are available, as well as
     scientific and technical documents, such as a monograph
     series containing reviews, reports of advisory committees,
     and proceedings of scientific meetings.  A publications
     list and single copies of NINDS publications are available
     free to individuals; organizations may order small
     quantities for their own distribution.  A monthly news
     service, NINDS Notes, is available to journals and
     newspapers.
     
     For further information, call or write the Office of
     Scientific and Health Reports at the above address.
     
     
     National Institute on Deafness and Other
Communication Disorders            
 (NIDCD)
National Information Clearinghouse
Program Planning and Health Reports Branch
Building 31, Room 1B62
9000 Rockville Pike
Bethesda, MD  20892
     
     Disabilities Served:   Diseases and disorders of hearing,
     balance, smell, taste, voice, speech and language.
     
     Users Served:   Disabled persons, physicians, health care
     professionals, general public.
     
     The Organization:   The National Institute on Deafness and
     Other Communication Disorders (NIDCD), one of the 13
     Institutes in the National Institutes of Health
     established by law, conducts and supports research and
     research training on normal mechanisms as well as diseases
     and disorders affecting hearing and other communication
     processes, balance, smell, taste, voice, speech, and
     language.  The legislation that established the Institute
     mandated the formation of a national clearinghouse.
     
     Information Services:   The objectives of the National
     Information Clearinghouse include responses to information
     requests; coordination of the vast amount of information
     that already exists in the field of communication sciences
     and distribution to health professionals, patients,
     industry, and the public; and elimination of duplication
     of information by establishing a central resource center
     that will provide access to current information held by
     other sources.
     
     
     National Institute on Disability and
 Rehabilitation Research (NIDRR)
Office of Special Education & Rehabilitative
Research
U.S. Department of Education
400 Maryland Avenue, SW
Washington, DC  20202
(202) 732-1134
 
     Disabilities Served:  All disabilities. 
     
     Users Served:  Researchers, rehabilitation professionals,
     physicians, professionals, disabled persons, and parents.
     
     The Organization:  Established in November 1978 by Public
     Law 95-602 as the National Institute of Handicapped
     Research and renamed the National Institute on Disability
     and Rehabilitation Research (NIDRR) in 1986, NIDRR
     provides leadership and support for a national and
     international program of comprehensive and coordinated
     research regarding the rehabilitation of disabled
     individuals.  The Institute's mission also encompasses the
     dissemination of information concerning developments in
     rehabilitation procedures and methods and devices that can
     improve the lives of people of all ages with physical and
     mental disabilities, especially those who are severely
     disabled.  One of the most important aspects of research
     supported by the Institute is that it helps to ensure the
     integration of persons with disabilities into independent
     and semi-independent community life.
     
     In fiscal year 1990, the Institute funded 39
     Rehabilitation Research and Training Centers and 16
     Rehabilitation Engineering Centers, as well as research
     and demonstration projects, field-initiated research
     projects, innovation grants, fellowships, utilization
     grants, the Small Business Innovative Research Program,
     the Model Spinal Cord Injury Systems program, assistive
     technology grants, international programs, and interagency
     activities.
     
     Information Services:  Requestors may obtain a listing of
     current NIDRR projects, information on research reports
     generated by NIDRR projects, and information on other
     rehabilitation research, from the National Rehabilitation
     Information Center (NARIC).  In addition, NIDRR publishes
     the Rehab BRIEFs, 4-page digests of current research
     information presented in a format readily usable by
     rehabilitation practitioners.
     
     
     National Jewish Center for Immunology and
Respiratory Medicine
1400 Jackson Street
Denver, CO  80206
(303) 388-4461

     Disabilities Served:  Chronic respiratory and immunologic
     disorders including asthma, chronic bronchitis, emphysema,
     tuberculosis, systemic lupus erythematosus, and juvenile
     rheumatoid arthritis.
     
     Users Served:  Disabled persons, health care
     professionals, researchers.
     
     The Organization:  The National Jewish Center for
     Immunology and Respiratory Medicine (formerly the National
     Jewish Hospital/National Asthma Center) maintains
     treatment and research facilities where patients can be
     referred who need specialized care beyond the means of
     local families.  Treatment facilities include medical care
     and psychological, social, occupational, physical, and
     recreational therapy for patients of all ages, beliefs and
     backgrounds.  An outpatient program and short-term
     treatment for children with less severe illnesses are also
     available.  The National Jewish Center program blends
     patient care and research teaching.  Areas of research
     include basic investigations in molecular and cellular
     biology and basic and applied research in respiratory and
     immunological diseases.  The center is affiliated with the
     University of Colorado Health Services Center.  The center
     also offers postdoctoral training in respiratory diseases,
     immunology and allergies.  Short courses are offered in
     other speciality areas related to respiratory diseases and
     immunology.
     
     Information Services:  The National Jewish Center
     publishes four booklets that discuss in lay language the
     causes, diagnosis, and treatment of specific diseases. 
     Single copies are available free of charge.  The
     publications available are Understanding Asthma, Nocturnal
     Asthma, Understanding Allergy, Understanding Emphysema,
     Understanding Immunology, Healthy Breathing, Management of
     Chronic Respiratory Disease,  Your Child and Asthma,
     Juvenile Rheumatoid Arthritis, and Black Lung.  Also
     available are two quarterly newsletters:  New Directions,
     and Lung Line Letter.
     
     The center provides a toll-free information service called
     LUNG LINE   (800) 222-LUNG.  Registered nurses are
     available to answer questions Monday through Friday from
     8:30 a.m. - 5:00 p.m. Rocky Mountain time.  Off hours and
     weekends an operator will take messages or send
     information.
     
     
     National Kidney and Urologic Diseases Information
Clearinghouse
 (NKUDIC)
P.O. Box NKUDIC
9000 Rockville Pike
Bethesda, MD  20892

     Disabilities Served:   Kidney and urologic-related
     disabilities.
     
     Users Served:   Health professionals, patients, and the
     general public.
     
     The Organization:   The National Kidney and Urologic
     Diseases Information Clearinghouse (NKUDIC) is a resource
     and referral service of the National Institute of Diabetes
     and Digestive and Kidney Diseases, National Institutes of
     Health.  The Clearinghouse is designed to increase the
     knowledge and understanding of patients, health care
     professionals, and the public about kidney and urologic
     diseases.  NKUDIC gathers and disseminates educational
     information produced by many sources and forms a unique
     network among professional, lay, and voluntary
     associations; government agencies; and other organizations
     involved with enhancing patient education concerning
     kidney and urologic diseases.
     
     Information Services:   The Clearinghouse distributes
     various publications prepared by the National Institute of
     Diabetes and Kidney Diseases.  It utilizes a computerized
     data base of educational materials about kidney and
     urologic diseases.  This subfile is available to the
     public on the Combined Health Information Database (CHID),
     with abstracts of materials produced for patients and
     health professionals.  NKUDIC also publishes a bulletin
     for professionals with timely information about new
     materials and services, upcoming events, and results of
     NIH research.  Finally, the Clearinghouse distributes
     annotated bibliographies and topical literature searches
     on selected topics on kidney and urologic diseases.
     
          National Kidney Foundation (NKF)
Two Park Avenue
New York, NY  10016
(212) 889-2210
     
     Disabilities Served:   Genitourinary disorders and chronic
     renal malfunction.
     
     Users Served:   Disabled persons, physicians, nurses,
     technicians, dieticians, social workers.
     
     The Organization:   Since 1950, the National Kidney
     Foundation (NKF) has been seeking the total answer to
     diseases of the kidney and urinary tract-- prevention,
     treatment and cure through research, patient services,
     nationwide organ donor programs, professional education,
     and public information.  The Organ Donor Program works
     through 50 affiliates to gather kidneys and other organs
     for transplant.  Support of blood banks for dialysis
     patients, administration of detection and screening
     programs, and staffing of information and referral offices
     along with advocacy and public information activities are
     among the activities of foundation affiliates and 200
     local chapters.  NKF sponsors symposia, conferences, and
     meetings for medical and allied health professionals. 
     Education of professionals is provided by five councils of
     the foundation:  Clinical Nephrology, Dialysis and
     Transplantation, Nephrology Social Workers, Renal
     Nutrition, Urology and Nephrology Nurses and Technicians.
     
     Information Services:   Affiliates and local chapters
     provide counseling and referrals to local resources for
     patients and their families.  The foundation provides a
     number of brochures for patients and families covering
     general information on kidney and urinary tract disorders,
     specific diseases, treatment options, diet, and
     rehabilitation.  Sample titles are What Everyone Should
     Know About Kidneys and High Blood Pressure and Your
     Urinary Tract Infections.  Some information is available
     in Spanish.  Publications include a quarterly newsletter
     containing up-to-date information on research,
     legislation, programs and services, and learning
     opportunities; The Kidney, a bimonthly scientific report
     on single topics of current research and clinical
     developments in kidney disease; and The American Journal
     of Kidney Diseases, a monthly journal focusing on human
     renal and urogenital function in health and disease
     primarily for physicians and researchers, and Journal on
     Renal Nutrition.  Audiovisuals are available on the
     physiology of the kidney, chronic renal failure,
     treatment, and organ donation.  Materials are free to
     patients; a nominal fee is charged for health care
     professionals.
     
     
     National Library of Medicine (NLM)
National Institutes of Health
U.S. Department of Health and Human Services
8600 Rockville Pike
Bethesda, MD  20894
(301) 496-6095
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Physicians, research scientists,
     clinicians, other health professionals.
     
     The Organization:  The National Library of Medicine is
     part of the National Institutes of Health (NIH), one of
     the five health agencies of the Public Health Service. 
     The Library was established in 1836 as the Library of the
     Army Surgeon General's Office and remained under the armed
     forces until 1956, when it was designated as the National
     Library of Medicine and placed within the Public Health
     Service by an act of Congress.
     
     The world's largest research library in a single
     scientific and professional field, the Library serves as
     the Nation's chief medical information source.  The
     Library, which collects materials exhaustively in
     approximately 40 biomedical areas, has holdings of about 5
     million books, journals, technical reports, theses,
     microfilms, and other materials 
     
     Information Services:  The Library's computer-based
     Medical Literature Analysis and Retrieval System (MEDLARS)
     was established to achieve rapid bibliographic access to
     NLM's source of biomedical information.  It became
     operational in 1964 with the publication of the first
     computer-produced issue of Index Medicus, a comprehensive,
     monthly subject-author index to articles from
     approximately 2,600 of the world's biomedical journals. 
     The principal objective of MEDLARS is to provide
     references to the biomedical literature for research
     scientists, clinicians, and other health professionals. 
     MEDLARS contains over 6 million references dating from
     1964 and covering virtually all handicapping conditions,
     rehabilitation medicine, and rehabilitation engineering. 
     MEDLINE (MEDLARS On-Line), which became operational in
     late 1971, provides the capability in medical libraries
     around the country to query the NLM computer's store of
     journal article references for quick retrieval.  MEDLINE
     contains over 500,000 recent references.
     
     Other computerized data bases developed by NLM include the
     following (numbers of records contained in these files are
     from May 1985):
     
         TOXLINE  (Toxicology Information On-Line) is a
     collection of       1.6 million references from the last 5
     years on published            human and animal toxicity
     studies, effects of environmental       chemicals, and
     adverse drug reactions.
     
         CANCERLIT (Cancer Literature) is sponsored by NIH's              
     National Cancer Institute and contains more than 450,000         
     references on various aspects of cancer.
             
         AVLINE (Audiovisuals On-Line) is a file of about
     14,000              audiovisual teaching packages used in
     health sciences               education at the college
     level and for the continuing            education of
     practitioners.
     
         HEALTH PLANNING & ADMIN (Health Planning and                
     Administration) contains about 310,000 references to
     literature          on health planning, organization,
     financing, management         manpower, and related
     subjects.  (This file may be accessed        through BRS
     Information Technologies and DIALOG).
     
         BIOETHICSLINE, developed at the Center for Bioethics,
                    Kennedy Institute of Ethics, Georgetown
     University, gives        bibliographic information on
     questions of ethics and public          policy arising in
     health care or biomedical research.  It                
     contains about 18,000 records.
     
     Seven Regional Medical Libraries, each responsible for a
     geographic area, coordinate NLM's on-line search services
     in the United States.  In addition to conducting searches
     themselves, they can provide the user with the location of
     the nearest on-line center with access to NLM data bases. 
     (There are over 3,300 of these centers located in
     hospitals, universities, State libraries, organizations,
     and companies throughout the country).  The charge for NLM
     searches varies with each Regional Medical Library and
     local center; in some cases there is no cost to certain
     classes of users.  The Regional Medical Libraries also
     handle requests for health literature not available
     locally, referring the NLM requests they cannot fill. 
     Inquirers may contact NLM for the location of the Regional
     Medical Library serving their area.
     
     NLM publications include Index Medicus (described above),
     Abridged Index Medicus, NLM Current Catalog, NLM
     Audiovisuals Catalog, and published literature searches on
     a variety of topics.  A list of publications with ordering
     information is available upon request.
     
     Direct access to MEDLARS and MEDLINE is also available
     through BRS Information Technologies and DIALOG. 
     

National Library Service for the Blind and
Physically Handicapped (NLS)
Library of Congress
1291 Taylor Street, NW
Washington, DC 20542
(202) 707-5100
     
     Disabilities Served:  Blindness, visual impairment,
     deaf-blindness, reading disabilities resulting from
     organic dysfunction, and other physical limitations that
     prevent the normal use of standard printed material.
     
     Users Served:  Disabled persons, parents, teachers.
     
     The Organization:  The National Library Service for the
     Blind and Physically Handicapped (NLS) collection of
     full-length braille and talking books and magazines
     produced for blind and physically handicapped readers is
     loaned free to individuals who cannot hold, handle, or
     read conventional printed matter.  Books, magazines, and
     playback equipment provided by NLS are distributed through
     a national network to eligible residents of the United
     States and its territories.  NLS has developed a national
     automated bibliographic service that enables cooperating
     network libraries to identify and locate books produced in
     special formats for handicapped readers.
     
     NLS trains and certifies volunteers in braille
     transcribing and in braille proofreading.  Eligible
     readers can request that a local volunteer group braille
     or record materials they cannot locate elsewhere. 
     Volunteers Who Produce Books:  Braille, Tape, Large Type
     is a directory that lists by State the names of volunteer
     groups and individuals who transcribe and record books and
     other reading materials for blind and physically
     handicapped persons.  Voice auditions and informal
     training are given to organized groups of volunteer tape
     narrators.  The Telephone Pioneers of America, senior or
     retired telephone industry workers, maintain and repair
     playback equipment.
     
     Information Services:  Questions on various aspects of 
     blindness and physical handicaps may be sent to NLS or to
     any network library.  Reference circulars, bibliographies,
     directories, and other compilations of information are
     free on request.  The national book collection includes
     more that 55,000 titles of bestsellers, classics, gothic
     and romantic novels, mysteries, science fiction, history,
     biography, religion, poetry, essays, how-to-do-it books,
     foreign language materials, and children's books.  The
     children's collection includes a number of special books
     that combine print with braille, enabling blind and
     sighted children and adults to read together.  Some of
     these print/braille books are illustrated with fragrance
     strips that emit scents when scratched.  Currently
     recorded and brailled books are announced in the bimonthly
     magazines, Talking Books Topics and Braille Book Review. 
     Eligible readers receive these publications in large type,
     recorded, and/or braille versions.
     
     Seventy magazines on flexible disc (records) and in
     braille are offered through the program.  Readers may
     request free subscriptions to Harper's, U.S. News and
     World Report, National Geographic, Sports Illustrated, and
     many other popular magazines.  Current issues are mailed
     to readers at about the same time the printed issues
     appear.
     
     Playback equipment is loaned free to readers for as long
     as library materials are being borrowed.  Talking-book
     machines are designed to play disk recorded books and
     magazines at 8 rpm and 16 rpm; cassette book machines are
     designed for cassettes recorded at 15/16 ips and the
     standard speed of 1 7/8 ips as well as on 2 tracks and 4
     tracks.  An auxiliary amplifier for hearing-impaired
     persons is available from NLS on special request.
     
     
     National Lymphedema Network (NLN)
2211 Post Street
Suite 404
San Francisco, CA  94115
(800) 541-3259
     
     Disabilities Served:   Primary and secondary lymphedema.
     
     Users Served:   Physicians, nurses, physical therapists
     who are involved in the treatment of lymphedema.
     
     The Organization:   The National Lymphedema Network (NLN)
     is a nonprofit organization established in 1988 to
     disseminate information about primary and secondary
     lymphedema to both patients and health care professionals. 
     We recently set up a National Lymphedema Data Bank.  The
     NLN is supported by memberships, donors, and matching
     grants which are tax-deductible.
     
     Information Services:   The NLN has a counseling "hotline"
     program, toll-free number (800) 541-3259; a referral
     service to medical and therapeutic treatment centers
     throughout the United States; information and advice on
     both locating and establishing local support groups;
     information on national and international conferences; a
     newsletter, published quarterly, containing updated
     information.
     
     
     The National Marfan Foundation (NMF)
382 Main Street
Port Washington, NY  11050
(516) 883-8712

     Disabilities Served:  Marfan syndrome.
     
     Users Served:  Disabled persons and their families, health
     care professionals.
     
     The Organization:  The National Marfan Foundation (NMF) is
     an organization founded in 1982 to meet the needs and
     interests of individuals with the Marfan syndrome.  This
     syndrome is a genetic disorder of the connective tissue
     that affects many organ systems, including the skeleton,
     the lungs, the eyes, and the heart and blood vessels. 
     While difficult to diagnose, it is estimated that over
     20,000 people in the United States have the Marfan
     syndrome.
     
     The National Marfan Foundation has a threefold purpose: 
     (1) to provide accurate and timely information about this
     condition to patients, family members, and physicians; (2)
     to provide a means for patients and relatives to share
     experiences, to support one another, and to improve their
     medical care; and (3) to support and foster research.  The
     NMF is working to provide grants to research scientists in
     support of their investigations into the causes and
     treatment of the Marfan syndrome.  Fundraising for
     research and patient education is a major activity.  The
     foundation is composed of over 10 chapters and community
     groups across the country.
     
     Information Services:  NMF publishes a variety of
     materials for patients, the public, and professionals. 
     Single copies of printed materials are available free from
     the national office; there is a charge for bulk orders. 
     Publications include The Marfan Syndrome, which provides a
     comprehensive description of the condition, and How John
     Was Unique, a picture-coloring book for children with the
     condition.  Fact-sheets on the syndrome and NMF are also
     available.  A quarterly newsletter, Connective Issues, is
     free to members.  Audiovisuals from the NMF biennial
     meeting and a television interview show featuring two
     persons affected by the Marfan syndrome are offered for
     loan or purchase.  Additional materials, including
     articles, are available upon request.
     
     National Mental Health Association (NMHA)
1021 Prince Street
Alexandria, VA  22314
(703) 684-7722
(800) 969-NMHA
 
     Disabilities Served:  Mental and emotional disorders.
     
     Users Served:  Consumers of mental health services, their
     families and other concerned individuals and groups.
     
     The Organization:  The National Mental Health Association
     (NMHA) is the Nation's only citizen's volunteer advocacy
     organization concerned with all aspects of mental health
     and mental illnesses.  With over 600 affiliates across the
     country, NMHA works to meet this challenge through
     education, research, services and advocacy in your
     neighborhood, in your State, and in Washington, DC.
     
     Information Services:  The National Mental Health
     Association has established a National Mental Health
     Information Center to meet the needs of the general
     public, consumers of mental health services and their
     families and other concerned individuals and groups.  The
     information center responds to the public's need for
     accurate, helpful information on mental health topics and
     issues by providing written materials on a variety of
     mental health/mental illness subjects; it also provides
     referrals of mental health service organizations that are
     capable of responding to clinical, technical, and specific
     questions and of support groups that are available in
     communities across the country.
     
     
     The National MPS Society, Inc.
17 Kraemer Street
Hicksville, NY  11801
(516) 931-6338
     
     Disabilities Served:   Mucopolysaccharidosis;
     mucolipidosis, and related disorders.
     
     Users Served:   Affected persons and their families,
     professionals, researchers.
     
     The Organization:   The National MPS Society, Inc. was
     founded in 1974 as a parent support group.  That is still
     its main purpose.  The society has a referral service to
     put families that have children with similar disorders in
     touch with each other.  It also has a research fund and
     awards student stipends for qualifying students wishing to
     work in research labs that are doing work on MPS or
     related disorders.
     
     Information Services:   The National MPS Society publishes
     a quarterly newsletter that is sent to its members.  It
     contains information from parents and medical and research
     information.  The society  hosts two conferences a year. 
     These conferences are held in various parts of the
     country.  They are for families and professionals
     interested in MPS.
     
     
     National Multiple Sclerosis Society
205 East 42nd Street
3rd Floor
New York, NY 10017
(212) 986-3240
(800) 624-8236 (Information Resource Center)
     
     Disabilities Served:  Multiple sclerosis and related
     diseases.
     
     Users Served:  Clients with multiple sclerosis and their
     families, health professionals, general public.
     
     The Organization:  The National Multiple Sclerosis Society
     provides funding for research into the cause, prevention,
     treatment, and cure for multiple sclerosis (MS), as well
     as for research into health care and quality of life
     issues.  An office of professional educational programs
     maintains a speakers bureau and supports professional
     education programs in the chapters.  A Washington office
     is active in advocacy for Federal legislation affecting MS
     persons and NIH research funding.  One hundred forty-three
     chapters and branches provide direct services to people
     with multiple sclerosis and their families, including
     information and referral, counseling, equipment loan
     programs, and social, exercise, and recreational support
     activities.  Seventy-three clinical diagnosis and
     treatment centers are supported by local chapters.
     
     Information Services:  A national Information Resource
     Center and Library responds to inquiries from clients, the
     public, and professionals on diagnosis, symptoms, clinic
     and physician referrals, research, available treatments,
     and psychosocial issues.  The center is fully automated
     and will research complex questions related to the field
     of multiple sclerosis using text sources and online
     services.  Evaluating requests, researching esoteric
     inquiries, and supplying information are responsibilities
     of health professionals on staff.  An information data
     base, addressing topics of interest to the constituency,
     contains documents on subjects not handled in standard
     resources.
     
     Publications for clients and the general public include
     such pamphlet titles as What is MS?, What Everyone Should
     Know About Multiple Sclerosis, Living with MS:  A
     Practical Guide, The Challenge of MS,  MS and Your
     Emotions,  and Plaintalk:  A Booklet About Multiple
     Sclerosis For Family Members.  Inside MS, a quarterly
     periodical, is sent to all members.  Some information is
     available in Spanish.  Professionals may request
     publications on treatment, nursing care, group counseling,
     bibliographies on special topics, and selected reprints.
     
     
     National Music Information Center for the
Handicapped
Settlement Music School Program for the Handicapped
3745 Clarendon Avenue
Philadelphia, PA  19114
(215) 637-1502

     Disabilities Served:   All disabilities except for
     severe-profound mental retardation, and mental illness.
      
     Users Served:   Disabled persons, therapists, and
     educators.
     
     The Organization:   The Settlement Music School is a
     community school offering quality music instruction to
     children and adults regardless of race, ethnic background,
     religion, disability, or ability to pay.  Its specialized
     Program for the Handicapped is open to all students with
     disabilities who show musical inclinations and could
     benefit from the school's educational/therapeutic
     approaches and social/recreational activities.  One goal
     of the program is to integrate all disabled students into
     regular classes of the school.
     
     In response to the lack of availability of information for
     professionals on the subject of music for disabled
     persons, the National Music Information Center for the
     Handicapped was conceived.  Goals of the Information
     Center include providing information on replicating a
     program like that of the Settlement Music School and
     assembling all available printed matter (books,
     journal/magazine articles, directories, etc.) on the topic
     "Music for the Disabled" into a collection at one central
     location.  The services of the Information Center are open
     to all therapists and educators, researchers in the field
     of creative therapies and special education, and the
     general public.
     
     Information Services:   Brochures and pamphlets are
     available on issues pertaining to music for disabled
     persons.  The Program for the Handicapped is responsible
     for the 1983 publication of the Guide to the Selection of
     Musical Instruments With Respect to Physical Ability and
     Disability, the first reference book of its kind on the
     subject.
     
     The Information Center has available a collection of large
     print and braille music, textbooks, and supportive
     materials on all areas of teaching music to disabled
     persons.  The use of the center is free and open to the
     public; however, there is a nominal fee for duplication
     and mailing.  The center is gathering a smaller collection
     of videotapes and records which are not for loan outside
     the school.  Computer searches, bibliographies, folders
     containing periodicals, newsletters, conference data, and
     scholarship information are also being assembled.  In
     addition, a manual outlining the philosophy, policies, and
     procedures which govern the use of the Program for the
     Handicapped is available upon request to assist in program
     development elsewhere.  For a nominal fee, Information
     Center staff members offer consultation to institutions in
     developing or improving their services for disabled
     persons.
     
     
     National Myoclonus Foundation
845 Third Avenue
New York, NY  10022
(212) 758-5656
     
     Disabilities Served:   Myoclonus.
     
     Users Served:   People suffering from myoclonus and
     researchers.
     
     The Organization:   The National Myoclonus Foundation
     serves now primarily to direct those who have myoclonus to
     an investigating physician or neurologist.
     
     
     National Network of Learning Disabled Adults (NNLDA)
P.O. Box 716
Bryn Mawr, PA  19010
(215) 275-7211
     
     Disabilities Served:   Learning disabilities (LD).
     
     Users Served:   Disabled persons.
     
     The Organization:   The National Network of Learning
     Disabled Adults (NNLDA) is an organization formed to
     provide support, assistance, and information to learning
     disabled adults and self-help groups for learning disabled
     adults nationwide.  NNLDA encourages advocacy and provides
     an informal communication network among members, which it
     plans to formalize in the future.  In addition, NNLDA
     works to educate the public about learning disabilities
     and about the abilities of those who have LD.  Assistance
     is provided to LD adults in locating appropriate services. 
     NNLDA has three State chapters.
     
     Information Services:   NNLDA publishes a descriptive
     brochure about the organization.  The NNLDA Newsletter,
     published four times a year, reports on educational
     programs and resources, legislation, government policies,
     employment and training opportunities, organizational
     news, and other items of interest.  LAUNCH, a member
     organization, offers a videotape for sale about LD adults. 
     NNLDA provides speakers for organizations and conferences. 
     The network maintains an electronic bulletin board
     entitled LD ADULT on SpecialNet (see National Association
     of State Directors of Special Education, separate entry)
     to disseminate information about issues of concern to LD
     adults.  There is no charge for information or services.
     
     
     National Neurofibromatosis Foundation (NNFF)
141 Fifth Avenue
Suite 7-S
New York, NY  10010
(212) 460-8980
(800) 323-7938
     
     Disabilities Served:   Neurofibromatosis (von
     Recklinghausen's disease).
     
     Users Served:  Persons affected by Neurofibromatosis,
     their families, and health care professionals.
     
     The Organization:   Neurofibromatosis (NF) is a
     progressive genetic disorder, which can affect all areas
     of the nervous system and skin.  Symptoms of the disorder
     usually begin in childhood or adolescence when multiple
     benign growths appear on the brain, spinal cord, or skin;
     the optic nerves and hearing are often affected.  The
     National Neurofibromatosis Foundation (NNFF) was
     established in 1978 to provide information to individuals
     affected by NF and their families, physicians, and the
     general population.  The foundation was created to promote
     and support scientific research into the cause, treatment,
     and cure of NF.  The foundation's activities include
     public awareness campaigns and conferences on NF for
     medical professionals and the lay public.  The NNFF has
     State chapters, lists 75 NF clinics, and is affiliated
     with 24 foreign support groups.  The foundation financed
     and coordinated research leading to the discovery of the
     gene that causes NF1 and the gene product NF1.  Members of
     the foundation include affected individuals and their
     families as well as medical professionals and other
     interested individuals.  
     
     Information Services:  NNFF publishes a general quarterly
     newsletter, a research newsletter for scientists and
     healthcare professionals, and distributes various other
     educational publications and videos aimed at promoting NF
     awareness.  The foundation presently produces and
     disseminates an informational pamphlet in Spanish and
     French.  NNFF is instrumental in assisting persons
     affected with NF in finding proper medical, social, and
     genetic counseling.
     
     
     The National Odd Shoe Exchange
P.O. Box 56845
Phoenix, AZ  85079
(800) 843-1964

     Disabilities Served:    Amputations, injuries from
     accidents, birth defects, and mismatched feet.
     
     Users Served:    Disabled persons, their families, and
     podiatrists.
     
     The Organization:    The National Odd Shoe Exchange is a
     small, non-profit organization that helps people with foot
     size differences (mismates), amputee's, or victims of
     accidents or birth defects find shoes (or shoe) that fit. 
     There are membership fee and annual dues to belong to this
     service.
     
     
     The National Organization for Rare Disorders (NORD)
P.O. Box 8923
New Fairfield, CT  06812
(203) 746-6518
(800) 999-NORD

     Disabilities Served:   Rare diseases and disorders.
     
     Users Served:   People of all ages with rare, "orphan
     diseases"; their families; support groups and
     organizations; health professionals; researchers.
     
     The Organization:   The National Organization for Rare
     Disorders (NORD) was incorporated in 1983 as a voluntary,
     nonprofit organization dedicated to representing and
     serving people with "orphan diseases."  NORD's mission is
     to encourage increased identification, control, and
     treatment of orphan diseases through programs of
     education, service, and research.  An orphan disease is
     defined as one that affects fewer than 200,000 Americans.
     To date, there are more than 5,000 such conditions
     striking people of all ages, races, and ethnic
     backgrounds.  Many are genetic; others are acquired, such
     as Legionnaire's Disease, etc.  Still other "orphans" fall
     within the realm of widespread health conditions such as
     cancer and heart disease.  Orphan diseases collectively
     touch the lives of more than 20 million Americans and
     constitute this Nation's most significant health problem.
     
     NORD acts as a clearinghouse to provide information to the
     public and professionals so they may more readily
     understand and help to alleviate rare disorders.  Through
     a unique, computerized networking program, NORD links
     together people with the same disorders so they can
     provide each other with mutual support.  Also, NORD
     provides technical support to developing groups and
     organizations.  NORD also funds clinical research grants,
     creating hope for millions whose disorders are presently
     hopeless and untreatable.  In addition, NORD has played a
     major role in advancing research on orphan diseases and in
     developing new orphan drugs.
     
     Information Services:   NORD provides disease-specific
     printouts written in layman's language from a Rare Disease
     Database, which is nationally accessible through
     Compuserve.  Disease-specific national support groups and
     referral agencies and other pertinent information are also
     included.  Orphan Disease Update, NORD's newsletter, is
     published three times per year and includes resource
     information, progress in the field, and national
     organizational activities on behalf of people with rare
     disorders.  Other printed items include NORD brochures and
     Patient Networking Permission Forms.
     
     
     National Organization on Disability (N.O.D.)
910 Sixteenth Street, NW
Suite 600
Washington, DC  20006
(202) 293-5960 (Voice)
(202) 293-5968 (TDD)
(800) 248-ABLE
      
     Disabilities Served:  All disabilities.
     
     Users Served:  Disabled persons, parents, teachers,
     community-level administrators, national organizations,
     employers.
     
     The Organization:  The privately funded National
     Organization on Disability (N.O.D.), successor
     organization to the U.S. Council for the International
     Year of Disabled Persons, works to support community-based
     efforts to improve the lives of disabled people.  Emphasis
     is placed on the concept of partnership between
     able-bodied and disabled individuals in developing
     cooperative programs.  N.O.D. encourages organizations,
     corporations and others to support local efforts and
     offers technical assistance to the growing number of
     participating communities.  To date, there are 50 State
     representatives and approximately 3,000 local Community
     Partners of N.O.D.  The national organization sponsors
     annual programs for Community Partners and National
     Partner Organizations in which it awards cash prizes for
     progress made at these levels toward integrating citizens
     with disabilities into community life.
     
     Information Services:  The N.O.D. publishes a quarterly
     REPORT, which highlights the organization's program
     activities and current disability trends.  REPORT is
     available to the general public.  UPDATE, a bimonthly
     newsletter, is targeted to community partner groups and
     highlights replicable community projects and available
     resources.  N.O.D. has a clearinghouse, which also
     disseminates this information.  N.O.D. has a toll-free
     number, 1-800-248-ABLE, to handle individual inquiries.
     
     
     National Osteoporosis Foundation (NOF)
2100 M Street, NW
Suite 602
Washington, DC  20037
(202) 223-2226
     
     Disabilities Served:   Osteoporosis.
     
     Users Served:   Patients, families, health care
     professionals, researchers, and the public.
     
     The Organization:   The National Osteoporosis Foundation
     (NOF) is a resource for patients and health care
     professionals seeking up-to-date, medically sound
     information and program materials on the causes,
     prevention, and treatment of osteoporosis.  A voluntary,
     nonprofit health agency, NOF's membership includes
     individuals, professionals, and organizations.  NOF
     activities center around its five goals:  to increase the
     Federal research effort and ensure that osteoporosis
     assumes a prominent place on the national health agenda;
     to provide direct financial support for osteoporosis
     research through its Research Grant Program; to increase
     public awareness and knowledge about osteoporosis through
     the national education campaign known as National
     Osteoporosis Prevention Week; to educate physicians and
     other health care professionals through conferences,
     publications, and a speakers bureau; and to inform
     patients and their families.
     
     Information Services:   NOF serves as an information
     clearinghouse linking patients and their families with
     information, resources, and services, including referrals
     to physicians and support groups.
     
     Publications include a quarterly newsletter, The
     Osteoporosis Report; comprehensive educational materials
     for patients and physicians, such as a 40-page booklet,
     Boning Up on Osteoporosis; a brochure called Osteoporosis: 
     A Woman's Guide; Physician's Resource Manual;
     bibliographies; and a prevention week resource kit used by
     health care professionals and aging, women's, and youth
     organizations. 
     
     
     National Parkinson Foundation
1501 NW Ninth Avenue
Miami, FL 33136
(305) 547-6666
(800) 327-4545
(800) 433-7022
     
     Disabilities Served:   Parkinson's disease and many
     related neurological disorders.
     
     Users Served:    Disabled persons, caregivers, health care
     professionals, educators and researchers.
     
     The Organization:  The National Parkinson Foundation
     provides clinical, rehabilitative, and therapeutic
     treatment to Parkinsonians and those with related
     neurological disorders.  It supports research,
     domestically and worldwide, to find the cause and cure of
     Parkinson's disease.  The foundation is affiliated with
     the University of Miami School of Medicine, University of
     Southern California (Los Angeles) School of Medicine,
     Vanderbilt University School of Medicine, and Ethel Percy
     Andrus Gerontology Center of the University of Southern
     California, Yale University, and Loma Linda University.
     
     Information Services:   The foundation publishes a
     quarterly newsletter containing research and general
     information.  Additional publications include The
     Parkinson Patient, The Parkinson Handbook, Nutritional
     Considerations of Parkinson Disease, Psychological Factors
     in Managing Parkinson Disease, and An Example of Fighting
     Back - One Woman's Story.  All foundation publications are
     free in limited quantities.
     
     National Rehabilitation Association (NRA)
633 South Washington Street
Alexandria, VA  22314
(703) 836-0850 (Voice)
(703) 836-0852 (TDD)
     
     Disabilities Served:  Physical and mental disabilities.
     
     Users Served:  People with disabilities and their
     families, rehabilitation professionals, including
     rehabilitation educators and researchers.
     
     The Organization:  The National Rehabilitation Association
     (NRA) is one of the oldest and largest general
     rehabilitation associations in the country.  Established
     in 1925, its purpose is to promote rehabilitation services
     in order to enhance the quality of life for persons with
     disabilities.  The NRA includes eight affiliate
     associations and 60 chapters nationwide and has a
     membership of 18,000.  Membership is open to all persons
     interested in rehabilitation issues. 
     
     Information Services:  NRA publishes the Journal of
     Rehabilitation quarterly, the quarterly magazine Rehab USA
     and the NRA Newsletter eight times per year.  In addition,
     each of the eight associations also publishes professional
     journals and newsletters.  NRA also publishes a popular
     Accessibility Manual for conference and meeting sites and
     a yearly Mary Switzer Monograph on a current issue or
     topics in the field of rehabilitation. 
     
     
     National Rehabilitation Information Center (NARIC)
8455 Colesville Road
Suite 935
Silver Spring, MD  20910-3319
(301) 588-9284
(800) 346-2742 (Voice/TDD)
      
     Disabilities Served:  All disabilities.
     
     Users Served:  People with disabilities, parents,
     teachers, administrators, direct service providers,
     researchers, educators, students.
     
     The Organization:  The National Rehabilitation Information
     Center (NARIC) is a library and information center on
     disability and rehabilitation.  NARIC is funded by the
     National Institute on Disability and Rehabilitation
     Research (NIDRR), U.S. Department of Education, to collect
     and disseminate the results of federally funded research
     projects.  The collection also includes commercially
     published books, journal articles, and audiovisual
     materials.  
     
     Information Services:  The NARIC bibliographic data base,
     REHABDATA, covers all aspects of the rehabilitation field
     and contains citations and abstracts of the materials in
     the Center's collection.  The data base contains over
     30,000 citations.  NARIC performs customized searches of
     REHABDATA for a nominal charge.  The NARIC data base is
     also available publicly through BRS Information
     Technologies.  Copies of documents cited in the data base
     may be obtained for a photocopying fee.
     
     In addition to providing bibliographic searches and
     document delivery, NARIC's information specialists provide
     quick reference and referral services, helping inquirers
     locate names, addresses, statistics, and other factual
     information.  Users may consult NARIC's collection of
     materials at the Center.
     
     NARIC publishes a free newsletter, NARIC Quarterly.  Other
     free publications include brochures and resource guides. 
     The Center also publishes the NIDRR Program Directory, the
     NARIC Guide to Disability and Rehabilitation Periodicals,
     Directory of Librarians and Information Specialists in
     Disability and Rehabilitation, and the REHABDATA
     Thesaurus.  NARIC distributes, in limited quantities,
     Rehab BRIEFs, a NIDRR-funded publication that summarizes
     research findings, and produces a subject index of Rehab
     BRIEFs.
     
     NARIC's facilities are accessible to people with
     disabilities.  Patrons can use either the local or
     toll-free phone numbers to communicate via TDD.  Most of
     the publications produced by NARIC, including REHABDATA
     searches, are available in large-print or braille
     editions, and all are available on IBM-compatible
     diskettes.
     
     
     National Research Register for Hereditary Hearing
Loss
Boys Town National Research Hospital
55 North 30th Street
Omaha, NE  68131
(402) 498-6631 (TDD)
(402) 498-6739 (Voice)
     
     Disabilities Served:   Deafness, hearing impairment.
     
     Users Served:   Disabled persons and their families,
     health care professionals, researchers.
     
     The Organization:   The National Research Register for
     Hereditary Hearing Loss (Register) was established to
     identify families with hereditary hearing
     impairment/deafness who would be willing to participate in
     research projects that might be of benefit to them.  The
     register collects family information directly via
     questionnaire and medical, audiologic, and genetic
     information via authorization to release medical
     information.  This information is coded and stored in a
     computerized data base.  Principal investigators who
     desire to identify individuals and/or families first
     submit a written description of the research to be done
     and a description of the subjects needed for the research. 
     The register searches the data base and informs
     families/individuals that match the inclusion criteria of
     the project about the research.  Matching
     families/individuals contact the principal investigator
     directly or authorize the register to release information
     to the principal investigator.  No register information is
     given to anyone without written authorization.
     
     Information Services:   The register publishes a quarterly
     newsletter, the Hereditary Deafness Newsletter of America
     (HDNA), to inform families and nongenetic professionals
     about issues in hereditary deafness research.  Updates of
     research in hereditary deafness, descriptions of genetic
     syndromes involving deafness/hearing impairment, and
     answers to common questions are regular features of the
     HDNA.  The HDNA also features a feedback section that
     allows readers to express opinions on topics covered in
     the newsletter.  Copies of the HDNA are free for as long
     as there is funding for this project.  Donations are
     welcome, and back issues of the HDNA are available for
     postage and handling costs.
     
     
     National Resource Center for Paraprofessionals in
Special
 Education (NRC)
New Careers Training Laboratory
City University of New York
33 West 42nd Street
New York, NY  10036
(212) 840-1278
(212) 840-7619
     
     Disabilities Served:    All handicaps.
     
     Users Served:   Public school administrators, directors of
     community-based programs for disabled people, teacher
     educators, staff developers.
     
     The Organization:    The National Resource Center for
     Paraprofessionals in Special Education and Related
     Services (NRC) was established in 1979 by the New Careers
     Training Laboratory Center of the City University of New
     York.  Its mission is to promote an increase in the use of
     trained paraprofessionals in special education.
     
     Information Services:    NRC disseminates information for
     the use of employers, program managers, and trainers on
     such issues as skills and competencies needed by
     paraprofessionals, credentialing, new roles for
     paraprofessionals in education and related services,
     career mobility, and funding sources.  The center also has
     information on preservice and inservice training models
     and training materials in use by State and local education
     agencies and by institutions of higher education.
     
     Besides a quarterly newsletter, New Directions, NRC
     publications include the Paraprofessional Bibliography: 
     Training Materials, Resources and Programs for
     Paraprofessionals Working in Educational Programs for
     Persons with Handicapping Conditions (1981); Special
     Needs, Special People, which examines the state of
     training programs for special education paraprofessionals
     throughout the Nation (1980); Paraprofessionals in Special
     Education:  The State of the Art, which gives results of a
     survey of State departments of special education covering
     the use and training of paraprofessionals over the last
     decade; and The Employment of Paraprofessionals in Special
     Education.  There is a charge for postage and handling of
     the publications and a subscription fee for New
     Directions.
     
     In addition, technical assistance is available to State
     and local education agencies and institutions of higher
     education through the NRC.
     
     The center's services are available to all agencies
     concerned with the delivery of educational services to
     children with handicapping conditions.
     
     
     National Resource Center for Special Needs Adoption
3660 Waltrous Road
P.O. Box 337
Chelsea, MI  48118
(313) 475-8693

     Disabilities Served:   All disabilities.
     
     Users Served:   Adoption, child welfare, mental health and
     developmental disability professionals.
     
     The Organization:   The National Resource Center for
     Special Needs Adoption is the Training and Leadership
     Division of Spaulding for Children, a nonprofit child
     welfare agency in Michigan.  It provides training,
     consultation, and technical assistance to professionals
     throughout the Nation interested in permanency planning,
     adoption, and postadoption services for children with
     special needs and the families who adopt them.
     
     Information Services:   The National Resource Center's
     newsletter, The Roundtable,  is distributed to
     professionals throughout the country.  It features
     articles on practice, research, and current issues in
     special needs adoption and permanency planning.  The
     Center Source  is the center's order catalog, which
     features various videotapes and publications related to
     practice in special needs adoption and permanency planning
     for children with developmental disabilities.  There is no
     fee for either publication.  Quantities of these
     publications may be requested for conferences and special
     events.
     
     
     National Resource Institute on Children With
Handicaps
 (NRICH)
CDMRC WJ-10
University of Washington
Seattle, WA  98195
(206) 543-2213

     Disabilities Served:   Children and youth with
     disabilities.
     
     Users Served:   Professionals who serve children and youth
     with disabilities, and youth and their families.
     
     The Organization:   The National Resource Institute on
     Children with Handicaps (NRICH) provides resources to
     professionals who serve children and youth with
     disabilities and their families.
     
     NRICH is 1 of 10 National Child Welfare Resource Centers
     funded by the Administration for Children, Youth, and
     Families.  NRICH is located at the Child Development and
     Mental Retardation Center (CDMRC), a university affiliated
     program, at the University of Washington.
     
     NRICH taps the expertise of faculty and professionals at
     CDMRC in the specialized areas of developmental
     disabilities, family-based services, service organization,
     and research.
     
     NRICH offers specialized training, technical assistance,
     consultation, publications, and an information
     clearinghouse.
     
     Information Services:   NRICH has a clearinghouse
     accessible by phone or written inquiry, which offers a
     computerized compilation of over 1,000 references to
     books, articles, organizations and programs related to
     children, youth families, and disabilities.  To address
     the complex needs and issues related to care, services,
     and policy development for children with developmental
     disabilities, NRICH publishes Special Issues Information
     Capsules--articles addressing practice, policy, research
     issues, and other special topics.
     
     
     National Retinitis Pigmentosa Foundation
 (RP Foundation Fighting Blindness)
1401 Mt. Royal Avenue
Fourth Floor
Baltimore, MD  21217
(301) 225-9400
(301) 225-9409 (TDD)
(800) 638-2300 (Outside Maryland)
     
     Disabilities Served:  Blindness and visual impairments,
     caused by inherited retinal degenerative diseases.
     
     Users Served:  Disabled persons, parents, teachers,
     rehabilitation workers, ophthalmologists, optometrists,
     geneticists, mobility specialists, psychologists.
     
     The Organization:  The National Retinitis Pigmentosa
     Foundation funds research in retinitis pigmentosa (RP) and
     other retinal degenerative diseases.  It funds 13 research
     centers in the United States and Europe, each involved in
     different but coordinated areas of investigation into
     retinal degenerative diseases.  The RP Foundation
     maintains a national confidential registry of RP-affected
     persons for statistical and clinical research.  In
     addition the foundation has initiated an RP Retina Donor
     Program to assist the researchers' efforts.  The
     organization's 60 affiliates are involved in a variety of
     activities including information and referral, experience
     sharing, and fundraising.  Furthermore, the National RP
     Foundation is a part of the International Retinitis
     Pigmentosa Association, a coalition of 17 countries that
     coordinates research on a worldwide basis.
     
     Information Services:  The national office and its
     affiliates provide referral services to rehabilitation,
     psychological, medical, genetic, and vocational counseling
     agencies.  The RP Foundation publishes several factsheets,
     an annual report, and a quarterly newsletter for the lay
     reader.  The newsletter is available on cassette, and one
     brochure is available in Spanish.  There is no charge for
     single copies of all materials.  The RP Foundation holds
     regional and national educational workshops for volunteers
     and professionals, where leading speakers in the field of
     RP are featured.
     
     
     National Reye's Syndrome Foundation (NRSF)
426 North Lewis
Bryan, OH 43506
(419) 636-2679

     Disabilities Served:   Reye's syndrome.
     
     Users Served:  Physicians, general public.
     
     The Organization:  Formed in 1974, the National Reye's
     Syndrome Foundation (NRSF), a nonprofit organization, has
     grown to over 100 affiliates in 43 States.  It promotes
     awareness of Reye's syndrome, which strikes children and
     adults, most commonly after a viral illness such as flu or
     chicken pox.  If not diagnosed and treated, Reye's
     syndrome can lead to death, often within a few days.  NRSF
     provides funds for basic research and awareness of the
     disease and support and guidance to families who have
     experienced Reye's.
     
     Information Services:   NRSF disseminates literature to
     the lay community and the medical profession, such as
     brochures, awareness bulletins, and emergency room
     posters.  A brochure and an awareness bulletin are
     available in Spanish; an awareness bulletin can be
     requested in Vietnamese.  An audiovisual slide/tape on
     Reye's syndrome is available for the general public on a
     loan-free basis.  Two additional programs for inservice
     hospital training sessions are technical in nature and
     designed for members of the health profession.  A new
     documentary is also available in 16mm or VHS.  There is a
     nominal charge for large quantities of brochures.  The
     NRSF publishes a biannual newsletter, In the News.  The
     foundation compiles statistics and data on Reye's
     syndrome.
     
     
     The National Scoliosis Foundation
72 Mount Auburn Street
Watertown, MA  02172
(617) 926-0397
     
     Disabilities Served:  Scoliosis, kyphosis, lordosis.
     
     Users Served:  General public, school personnel, health
     care professionals (anyone seeking information on
     scoliosis).
     
     The Organization:  The National Scoliosis Foundation is a
     nonprofit organization focusing on educating the public,
     promoting school screening, and maintaining a resource
     center of information. 
     
     Information Services:  The foundation offers packets of
     information to parents and young people, adults with
     scoliosis, and health care professionals.  It publishes a
     biannual newsletter, The Spinal Connection, which includes
     an overview of the foundation's activities and services
     and a Medical Update Information column.
     
     
     National Society to Prevent Blindness (NSPB)
500 East Remington Road
Schaumburg, IL  60173
(800) 221-3004
     
     Disabilities Served:   Prevention of blindness and visual
     impairments.
     
     Users Served:   Parents, teachers, doctors, nurses, and
     safety professionals.
     
     The Organization:   The National Society to Prevent
     Blindness (NSPB), founded in 1908, works to prevent
     blindness by sponsoring community screening and testing
     programs, public and professional education, and research. 
     Community programs, carried on through 26 affiliated
     volunteer State agencies, concentrate on health education
     and free screening for the public.  These programs aim to
     detect, control, correct, or prevent glaucoma and cataract
     blindness; eye problems in children; eye accidents; and
     blindness caused by hereditary and congenital conditions,
     diabetes, and macular degeneration.  NSPB works for the
     implementation of laws for eye protection in hazardous
     environments.  It funds research in eye care and disease
     prevention.
     
     Information Services:   NSPB provides answers to questions
     about eye diseases, eye safety, vision defects, and eye
     checkups.  It publishes brochures and pamphlets on various
     subjects, such as glaucoma, cataracts, sunglasses, and
     provides single copies of most materials at no charge. 
     NSPB publishes a newsletter, three times a year.  Low-cost
     curriculum aids for teachers are also available.  A
     complete catalog of NSPB publications and films may be
     obtained by writing or calling NSPB.
     
          National Spinal Cord Injury Association
600 West Cummings Park
Suite 2000
Woburn, MA  01801
(800) 962-9629
     
     Disabilities Served:   Spinal cord injuries (SCI) caused
     by trauma and disease.
     
     Users Served:   Persons with disabilities and their
     families, medical and legal professionals, (physicians,
     nurses, therapists), social workers, rehabilitation
     counselors, the general public. 
     
     The Organization:   Founded by the Paralyzed Veterans of
     America in 1948, the National Paraplegia Foundation in
     1979 merged with the New England Spinal Cord Injury
     Foundation and adopted the present name.  Dedicated to
     programs of research and services, the National Spinal
     Cord Injury Association works through its more than 34
     chapters to develop comprehensive systems of quality care
     for paraplegics and quadriplegics.  Care is offered as a
     direct service by some chapters that give individual case
     consultations and advise on case management of people who
     are newly injured.  Other chapters make referrals to
     direct service providers.  All chapters emphasize personal
     contact between persons with spinal cord injuries and
     involve them in all aspects of activities.  Regional
     seminars and an annual conference give professionals,
     constituents, and other interested persons an opportunity
     to exchange and compare new developments in technological,
     environmental, and medical research.  Coping with the
     disability is facilitated by peer counseling, public
     awareness, advocacy, and environmental barrier removal.
     Information Services:   The association functions as a
     clearinghouse of information for SCI individuals and
     medical and other health care workers.  Information on
     independent living, rehabilitation programs, self-help
     devices, equipment, transportation, employment, education,
     personal care, and referrals are available from the
     National Spinal Cord Injury Resource Center at the
     national office and through chapters.  Individual case
     consultations and case management advice can also be
     requested; contacts may be arranged for person-to-person
     assistance and peer counseling, if appropriate. 
     Publications include Spinal Cord Injury Life, a quarterly
     journal, a National Resource Directory, Options:  Spinal
     Cord Injury and the Future, and 14 factsheets.  Interested
     persons may also request bibliographies of current and
     relevant research.  In general, there is no charge for
     services or samples of materials;  there is a minimal
     charge for publications.
     
     National Spinal Cord Injury Hotline (SCIH)
American Paralysis Association
2201 Argone Drive
Baltimore, MD 21218
(800) 526-3456 (Outside Maryland)
(800) 638-1733 (Maryland Only)
     
     Disabilities Served:   Spinal cord injuries.
     
     Users Served:  Disabled persons and their families and
     friends, health care professionals.
     
     The Organization:   The focus of the Spinal Cord Injury
     Hotline (SCIH) is to provide consumers, spinal cord injury
     patients, families, and friends with up-to-date
     information and referral resources.  Additionally, the
     caller is given peer support and encouragement.  Through a
     toll-free 24-hour hotline, spinal cord victims (both new
     and existing injuries) are linked with a local contact
     person with a similar level of injury and age who lives
     near the caller's community.  The contact person provides
     peer support and assistance in locating physicians,
     services, equipment, etc.
     
     Information Services:  The hotline provides specific
     information and referral on a variety of topics including
     acute injury care, rehabilitation, activities of daily
     living, research, local contacts, and spinal cord injury
     organizations.  Callers are referred to local contacts for
     specific questions about their community and accessing
     services in a particular area.  Some local contacts offer
     24-hour information and referral; all are operational at
     least 5 days a week during business hours.
     
     
     National Stroke Association (NSA)
300 East Hampden Avenue
Suite 240
Englewood, CO 80110
(303) 762-9922
     
     Disabilities Served:  Disabilities related to stroke.
     
     Users Served:  Stroke survivors and their families;
     physicians; nurses; physical, occupational, and speech
     therapists; other rehabilitation professionals;
     rehabilitation centers and community stroke organizations.
     
     The Organization:  The National Stroke Association (NSA)
     is the only organization focusing its efforts solely on
     stroke.  Its goal is the reduction of stroke incidence and
     provision of a strong, visible, nationwide education,
     information, and resource service for the survivors, their
     families, health professionals, and the lay community. 
     NSA also maintains a research program focused on the
     prevention, treatment, and rehabilitation of stroke.  The
     program is guided by the NSA Scientific Advisory
     Committee, which is composed of nationally recognized,
     stroke-knowledgeable medical professionals.  NSA was
     founded in 1984.  At present, it has chapters in Florida,
     Oregon, West Virginia, and Wisconsin.
     
     Information Services:  NSA publishes a quarterly
     newsletter, Be Stroke Smart, as a tool for exchanging
     stroke-related experiences and other information.  All NSA
     members receive this publication, which contains articles
     from practitioners, researchers, stroke survivors, and
     their families.  NSA also publishes  Stroke:  Clinical
     Updates for physicians.  This is an authoritative review
     of current clinical applications of new pharmaceutical
     agents and clinical protocols.  NSA also publishes a
     series of educational materials entitled Be Stroke Smart
     and a stroke recovery guide, The Road Ahead.
     
     NSA's Information Resource Center (IRC) has a broad range
     of stroke information and data on available services. 
     Available upon request is a Adaptive Equipment Resource
     Guide.  Audiovisual materials are available for loan.  In
     addition, inquirers are referred to local services and
     support groups when appropriate.
     
     
 National Stuttering Project (NSP)
 4601 Irving Street
 San Francisco, CA  94122
 (415) 566-5324
 
 Disabilities Served:   Stuttering.
     
     Users Served:   Disabled persons, parents, teachers, and
     speech therapists.
     
     The Organization:   Established in 1977, the National
     Stuttering Project (NSP) is a self-help organization run
     by and for people who stutter, serving over 4,000 members
     nationwide.  NSP provides information on all aspects of
     stuttering to people who stutter and the general public. 
     In 85 self-help group chapters, NSP runs biweekly meetings
     where people who stutter can come, share, learn about
     themselves, and have fun speaking in a specially designed
     meeting format.  NSP offers consultations in program
     development and technical assistance to school districts,
     speech clinics, hospitals, rehabilitation centers, and
     other agencies involved in speech services.
     
     Information Services:   The NSP publishes a monthly
     newsletter called Letting Go, which is available only to
     members.  Publications also include pamphlets and article
     reprints with such titles as What Teachers Can Do to Help
     the Child Who Stutters and A Personal Journey Through
     Stuttering.  A tape series, which includes a tape of a
     chapter meeting, and the handbook, Self Therapy for
     Stuttering, are available at nominal cost.  NSP has a
     Speech Pathology Referral Service, which provides
     information on experienced speech therapists.  Speakers
     and slide show presentations may be requested by schools
     and other organizations.
     
     
     National Tay-Sachs and Allied Diseases Association,
  Inc. (NTSAD)
 385 Elliot Street
 Newton, MA  02164
 (617) 964-5508
 
     Disabilities Served:  Tay-Sachs and other inborn errors of
     metabolism.
     
     Users Served:  Parents, physicians.
     
     The Organization:  National Tay-Sachs and Allied Diseases
     Association, Inc. (NTSAD) is an organization that supports
     research, provides educational literature on Tay-Sachs and
     the allied disorders, acts as a referral agency for
     families with afflicted children, and encourages
     screening.  Tay-Sachs is an inherited disorder caused by
     the absence of a vital enzyme, which results in
     destruction of the nervous system and fatality, usually by
     age five.  NTSAD provides information about screening for
     possible carriers of the Tay-Sachs gene and can direct
     interested persons to screening centers and genetic
     counseling services nationwide.  NTSAD supports the
     Quality Control Program to accredit laboratories doing
     analysis of samples.  To facilitate interaction between
     parents of children with these disorders, NTSAD has formed
     a Parent Peer Group Network to provide emotional support
     and offer practical guidance on a personal level.
     
     Information Services:  Brochures for lay and professional
     persons describe the disease and recommend preventive
     measures through carrier testing and genetic counseling. 
     A list of Tay-Sachs screening centers in the United
     States, Canada, and other foreign countries is available
     to medical professionals.  NTSAD publishes a semiannual
     newsletter, Breakthrough, to report on legislation,
     research developments, association activities, and chapter
     news.  One pamphlet is available in Russian and some
     information will shortly be available in French.  There is
     no charge for services or single publications.
     
     
     National Technical Information Service (NTIS)
 U.S. Department of Commerce
 5285 Port Royal Road
 Springfield, VA  22161
 (703) 487-4600 (General Information)
 (703) 487-4642 (Searches)
 (703) 487-4650 (Documents)
 
 Disabilities Served:   All handicaps.
     
     Users Served:   Business, educators, government, and the
     public.
     
     The Organization:   The National Technical Information
     Service (NTIS) is an agency created by Congress in 1950 to
     provide technical reports and other information products
     of specialized interest to business, educators,
     government, and the public.  NTIS is the central source
     for the public sale of United States and foreign
     government-sponsored research, development, and
     engineering reports and other analyses prepared by
     national and local government agencies, their contractors
     or grantees, and other technical groups.  The NTIS
     information collection exceeds 1.3 million titles, all for
     purchase.  About 200,000 of these are of foreign origin. 
     As directed under legislative mandate, NTIS functions on a
     cost recovery basis; all the costs of its products and
     services are paid from sales income.
     
     Information Services:   Customers may use NTIS's online
     computer service to identify abstracts of interest from
     the Bibliographic Database, which contains over one
     million federally sponsored research reports completed and
     published from 1964 to date.  Most of the documents cited
     are available only through NTIS.  This data base contains
     documents on handicapping conditions and programs for
     disabled persons, including rehabilitation, rehabilitation
     engineering, transportation, and health care.  Before
     initiating a search, users may consult with NTIS
     information specialists, who will determine the likelihood
     of retrieval of relevant documents.  Published searches on
     over 3,000 topics of wide interest may be ordered from
     NTIS.  These are listed in the Master Catalog of Published
     Searches, available without charge (ask for PR-186). 
     Direct United States online access to the Bibliographic
     Database may be arranged through BRS Information
     Technologies, DIALOG, the System Development Corporation.
     
     The Government Reports Announcements and Index Journal 
     lists summaries of U.S. Government research on a biweekly
     basis.  It is indexed by key word, personal and corporate
     author, government/contract grant number, and report
     number.  In addition, 26 Abstract Newsletters provide
     readers with research summaries within 3 weeks of their
     receipt by NTIS from the originating agencies.  Abstract
     Newsletters of interest to professionals in the
     handicapped field include the following:  Behavior and
     Society, Biomedical Technology and Human Factor
     Engineering, Health Planning, and Medicine and Biology.
     
     Selected Research in Microfiche (SRIM), a subscription
     service available in 500 subject categories, provides on a
     biweekly basis full text microfiche copies of reports in
     only the subject areas selected by the requestor.
     
     The Federal Software Exchange Center, operated by NTIS,
     serves as a clearinghouse of federally created computer
     programs.  An annual catalog lists products and the
     agencies from which they are available. 
     
     NTIS publishes many other periodicals and catalogs
     containing technical information on safety statistics,
     human services, municipal information systems, and other
     specialized subjects.  In addition, a number of
     periodicals and reports make available information on
     research performed outside of the United States, political
     and economic analyses of foreign countries, and foreign
     news releases and articles from periodicals.  The free
     catalog NTIS Information Services describes all products
     and services of the agency (ask for PR-827).
     
     NTIS also prepares a data base called Federal Research in
     Progress (FEDRIP), which carries summaries of research in
     progress from the Veterans Administration, the National
     Institutes of Health, the Department of Energy, the
     National Science Foundation, and other Federal agencies. 
     The file is updated twice a year and online access is
     available through DIALOG.  Output received by the user
     contains essential information about each project,
     including the supporting agency, the performing
     organization, the principal investigator, the time covered
     by the project, and, in most cases, a 200-word description
     of the research.  No further information product is
     available from NTIS from this file.  For further
     information on any project included in the file, contact
     the project's principal investigator at the address listed
     in the summary.
     
           National Technical Institute for the Deaf (NTID)
 Rochester Institute of Technology (RIT)
 Lyndon Baines Johnson
 P.O. Box 9887
 Rochester, NY  14623
 (716) 475-6400 (Voice)
 (716) 475-2181 (TDD)
  
 Disabilities Served:  Deafness and severe hearing
     impairments.
     
     Users Served:  Hearing-impaired students, their parents
     and teachers, and miscellaneous others who serve deaf
     people.  
     
     The Organization:  The National Technical Institute for
     the Deaf (NTID) was established by an act of Congress and
     is funded through the U.S. Department of Education.  Since
     1968, it has provided a 2- to 3-year technical education
     to deaf and severely hearing-impaired students.  Staff
     research in speech therapy, educational methods, and
     vocational training and placement is reported in
     professional journals as well as in publications of the
     Institute.  Sign language interpreter training, teaching
     internships, and workshops for employers, educators, and
     rehabilitation professionals are offered both on and off
     campus.  The Institute is one of nine colleges of
     Rochester Institute of Technology, and "mainstreaming"
     deaf students in classes elsewhere on campus has been
     accomplished with significant success.
     
     Information Services:  The Division of Public Affairs
     provides curriculum materials; communication packages for
     speech pathologists; orientation manuals and information
     on hearing aids for audiologists and consumers; special
     bibliographies and other data requested by researchers;
     and the NTID catalog, an Institute magazine, and an
     educational resources catalog.  There is a nominal charge
     for some materials.  Videotapes are captioned or
     interpreted.
     
     The National Center on Employment of the Deaf at NTID
     offers services in employee development, training, and
     information services.  Information and training are
     available to employers interested in hiring qualified deaf
     people.  Workshops are conducted onsite, or employers may
     attend seminars at NTID.  Consultation is also available
     in the areas of job analysis, accommodation in the
     workplace, and access to upward mobility for deaf
     employees.  Training and consulting are provided for
     placement professionals working with deaf persons
     concerning successful placement strategies for qualified
     deaf persons.
     
     
     National Therapeutic Recreation Society (NTRS)
 National Recreation and Park Association
 3101 Park Center Drive
 Suite 1200
 Alexandria, VA 22302
 (703) 820-4940
 
     Disabilities Served:  All disabilities.
     
     Users Served:  Therapeutic recreation specialists and
     paraprofessionals.
     
     The Organization:  The National Therapeutic Recreation
     Society (NTRS) is a membership organization for those who
     provide therapeutic recreation services for persons with
     disabilities in clinical facilities and in the community. 
     NTRS is a branch of the National Recreation and Park
     Association (NRPA).  It offers technical assistance and
     consulting services to agencies, institutions, and
     individuals on professional issues and new techniques in
     the field.
     
     Information Services:  NRPA publishes books and brochures
     on providing therapeutic recreation services to
     individuals with disabilities.  Titles include Standards
     of Practice for Therapeutic Recreation Service, Philosophy
     of Therapeutic Recreation:  Ideas and Issues, and Dynamic
     Leisure Programming for Older Adults.  NRPA sponsors
     regional and national conferences where workshops are held
     on such topics as program development, facility design,
     and professional issues and trends.  The Therapeutic
     Recreation Journal and the NTRS Report are available to
     members.
     
     
     National Tuberous Sclerosis Association, Inc. (NTSA)
8000 Corporate Drive
Landover, MD  20785
(800) 225-6872
     
     Disabilities Served:  Tuberous sclerosis (TS).
     
     Users Served:  Parents, neurologists, pediatricians,
     dermatologists and other medical specialists.
     
     The Organization:  The National Tuberous Sclerosis
     Association, Inc. (NTSA) was founded in 1975 by parents
     and concerned physicians of patients with this genetic
     disorder, which results in tumors in any organ including
     the brain, convulsions, skin lesions, and, in severe
     cases, mental retardation.  Research, accurate diagnosis,
     anticonvulsant therapy, and early developmental
     intervention are the goals of the organization. 
     Dissemination of information to the medical profession as
     well as to parents and the general public, advancement of
     research by fundraising, and annual meetings for
     researchers and for the association's membership of
     parents and professionals implement these goals.  The
     association has established a national Human Neurospecimen
     Bank and a case registry to assist scientists in their
     research.  The members of the association offer
     counseling, referral, and support services to other
     families of TS patients. 
     
     Information Services:  A parent booklet, an illustrated
     medical brochure, and a clinical brochure listing the
     location of NTSA State representatives are all free upon
     request.  A 20-minute slide presentation is available for
     loan.  A 30-second public service tape can be supplied to
     any local media.  NTSA attends most major medical
     conventions.  NTSA's quarterly newsletter provides
     up-to-date information on treatment and research.  An
     annual membership fee includes all mailings and a free
     newsletter subscription. 
     
     
     New Eyes for the Needy
 549 Millburn Avenue
 Short Hills, NJ  07078
 (201) 376-4903
 
     Disabilities Served:  Visual impairments.
     
     Users Served:  All interested persons.
     
     The Organization:  New Eyes for the Needy provides funds
     for new prescription glasses, and lenticular contact
     lenses (for cataract patients) to medically indigent
     persons who are not eligible for other sources of
     financial assistance.  New Eyes solicits metal frames in
     any condition, unbroken plastic frames with single vision
     lenses, sunglasses, artificial eyes, soft eyeglass cases,
     and any precious metal scraps such as old jewelry or
     silverware.  The organization ships reusable glasses to
     medical missions and welfare agencies abroad for
     redistribution.  Metal framed glasses and metal scrap are
     sent to be refined, and the proceeds furnish the funds to
     provide glasses for people in need in the United States.  
     
     Information Services:  New Eyes has organizational
     brochures describing its history, function, how a
     community group can organize a collection drive, and how
     donors should package and send materials to New Eyes. 
     Information about qualifying for financial assistance from
     New Eyes is given to lay and medical inquirers.
     
     New Medico Head Injury System 
14 Central Avenue
Lynn, MA  01901
(800) CARE TBI
     
     Disabilities Served:  Brain injury, neurological
     impairments.
     
     Users Served:  Individuals with neurological impairments.
     
     The Organization:  New Medico Head Injury System is a
     large network of brain injury treatment programs, with
     more than 35 facilities across the country.  Staff provide
     specialized care for individuals of all ages and for all
     levels of brain injury, from coma intervention through
     independent living.  New Medico's goal is to help each
     person reach the highest possible level of independence.
     
     Information Services:  New Medico distributes information
     about head injury and other neurological impairments
     through its 800 number, 
     (800) CARE TBI, ext. 4000.  The publications include
     Headlines, a general brain injury magazine; Understanding
     Brain Injury:  Acute Hospitalization, a family guide
     available to acute care hospitals; and After the Party, a
     videotape for adolescents about drinking and driving.  
     
     
     Obsessive Compulsive Foundation, Inc. (OCF)
 P.O. Box 9573
 New Haven, CT  06535
 (203) 772-0565
 
     Disabilities Served:   Obsessive compulsive disorder
     (OCD).
     
     Users Served:   Individuals with OCD, their families,
     mental health professionals, researchers.
     
     The Organization:   The Obsessive Compulsive Foundation,
     Inc. (OCF) is a national not-for-profit foundation
     dedicated to providing support, education, and advocacy
     for individuals with OCD, their family members, and the
     mental health community.
     
     Information Services:   The OCF publishes an informative
     newsletter bimonthly.  Other printed information available
     includes brochures, booklets, and a guide on the disorder
     and treatment modalities.  Some literature is available in
     Spanish.  The foundation has a nationwide directory of
     treatment referrals as well as over 160 self-help/support
     groups and affiliates.
     
     
     Office for Civil Rights (OCR)
 U.S. Department of Education
 400 Maryland Avenue, SW
 Washington, DC  20202
 (202) 732-1213 (Voice)
 (202) 732-1663 (TDD)
 
     Disabilities Served:   All handicaps.
     
     Users Served:   Disabled persons, parents, advocates,
     general public.  Also provides technical assistance to
     recipients that receive Federal financial assistance from
     the Department of Education.
     
     
     Information Services:   OCR maintains a headquarters
     office in Washington, DC, and 10 regional offices.  In
     addition to investigative activities, the regional offices
     are available to answer questions and provide technical
     assistance about civil rights compliance.  They are a
     source for printed material on Section 504.  For example,
     a brief description of the requirements of the
     Department's regulations under Section 504 can be obtained
     from the regional offices in the pamphlet, Section 504 of
     the Rehabilitation Act of 1973:  Handicapped Rights Under
     Federal Law.  This publication also lists the addresses
     and phone numbers of the regional offices and directs
     further inquiries and complaints to them.
     
     Procedures for Filing Complaints:  Section 504 complaints
     may be filed in one of the 10 regional offices located in
     Boston, MA; New York, NY; Philadelphia, PA; Atlanta, GA;
     Chicago, IL; Dallas, TX; Kansas City, MO; Denver, CO; San
     Francisco, CA; and Seattle, WA.
     
     
     Office for Civil Rights (OCR)
U.S. Department of Health and Human Services (DHHS)
Room 5410 Cohen Building
330 Independence Avenue, SW
Washington, DC  20201
(202) 619-0403 (Director's Office)
(202) 863-0100 (Voice)
(202) 863-0101 (TDD)
(800) 368-1019 (Voice, Outside Washington Area)
(800) 863-0101 (TDD, Outside Washington Area)
 
     Disabilities Served:  All handicaps.
     
     Users Served:  Individuals with handicaps, health care
     providers, human service agencies and the general public.
     
     The Organization:  The Office for Civil Rights (OCR) is
     responsible for investigating discrimination on the basis
     of race, color, national origin, sex, age, mental and
     physical handicap, and religion in programs receiving
     financial assistance from the U.S. Department of Health
     and Human Services (DHHS).  Recipients of funds from the
     Department include health care providers such as
     hospitals, nursing homes, family health centers and
     clinics; and human service providers such as State and
     local public assistance agencies, adoption agencies, and
     senior citizen centers.  OCR has the responsibility, as
     mandated by Congress, to implement and enforce Section 504
     of the Rehabilitation Act of 1973, as amended, which
     prohibits discrimination on the basis of mental or
     physical handicaps.  Section 504 is a national law that
     guarantees individuals with handicaps access to program
     services and employment.  OCR provides technical
     assistance to recipients of DHHS funds to help them
     achieve voluntary compliance with governing regulations.
     
     Information Services:  OCR maintains a headquarters unit
     in Washington and 10 regional offices.  Generally,
     complaints of discrimination should be filed with the
     regional offices; also, requests for assistance and
     information should be obtained from the regions. 
     Factsheets on definitions, regulations, policy statements,
     and guidelines relating to section 504 may be obtained
     from OCR.  Publications relating to section 504 include
     Your Rights as an Individual with Handicaps under Section
     504; Your Rights as a Person with HIV Infection, AIDS, or
     Related Conditions; Notice to Recipients of Financial
     Assistance from the DHHS; Section 504 Regulations, parts
     45 CFR 84 (Federally Assisted) and 45 CFR 85 (Federally
     Conducted); and Section 504 Briefing Guide.  Most section
     504 publications are available in large print, braille,
     and/or recording.  Publications are free but quantities
     are limited.
     
     Office of Cancer Communications
 National Cancer Institute (NCI)
 National Institutes of Health
 U.S. Department of Health and Human Services
 Bethesda, MD  20892
 (800) 422-6237
 
     Disabilities Served:   All cancers.
     
     Users Served:   Health professionals, cancer patients, and
     the general public.
     
     The Organization:   The National Cancer Institute (NCI)
     conducts and funds the Nation's major cancer research
     program.  NCI grants and contracts support cancer research
     in most of the Nation's university medical centers and
     many other non-Federal institutions.  NCI also coordinates
     the cancer research programs of Federal and private
     institutions in accordance with a constantly updated
     National Cancer Program, which encompasses the lines of
     research effort considered to be most important in solving
     the major problems of cancer.
     
     A network of Comprehensive Cancer Centers around the
     country engage in the wide range of cancer-related
     research and demonstration, encompassing basic research,
     diagnosis, treatment, rehabilitation, and public and
     patient education.  The centers also educate and train
     professionals in the various clinical and research
     specialties.
     
     NCI also supports Clinical Cancer Centers, specializing in
     cancer treatment, and Non-Clinical Cancer Centers, doing
     basic research.  Information about these programs is
     available from the Office of Cancer Communications.
     
     At the community level, patients may be admitted to
     clinical studies conducted by NCI Clinical Cooperative
     Groups.  These groups exist at hospitals throughout the
     United States and involve thousands of physicians.  
     
     Information Services:   To speed the translation of
     research results into widespread application, the National
     Cancer Act of 1981 authorized a Cancer Control Program to
     demonstrate and communicate to both the medical community
     and general public the latest advances in cancer
     prevention and management.  The program identifies cancer
     knowledge and technology and makes it available to health
     practitioners and the public through cooperative efforts
     with private and community organizations.  Prevention,
     detection, and treatment information is prepared by NCI
     and distributed through community-based organizations and
     Comprehensive Cancer Center's communications offices to
     high-risk groups.
     
     The Cancer Information Service (CIS) is a toll-free
     telephone service, which supplies information about cancer
     and resources available to cancer patients.  Regional CIS
     offices serve about 80 percent of the population of the
     United States; the remainder is served by the CIS at the
     National Cancer Institute in Bethesda, Maryland.  CIS
     offices can provide specific information on particular
     cancer sites, detection programs, local resources for
     cancer patients (e.g., treatment and rehabilitation
     facilities, home care assistance, availability of
     transportation), and facts about the process of patient
     referral to physicians and consultation among health
     professionals.  Information about possible causes of
     cancer, how to help prevent cancer, and how different
     forms of cancer are detected also is available.  For the
     nearest CIS office, call 1-800-4-CANCER.
     
     NCI's Office of Cancer Communications distributes printed
     materials free of charge to the general public, patients,
     and health professionals.  These include general pamphlets
     about cancer, its causes, preventions, and treatment, as
     well as publications on specific types of cancer,
     guidelines for patients undergoing therapy, and resource
     booklets for professionals.  A list of publications
     distributed by the NCI is available from the Office of
     Cancer Communications, listed above.
     
     NCI's organized dissemination projects, multimedia
     information activities, center on specific topics.  Health
     planners and communicators review the state of knowledge
     in particular subject areas and produce educational
     materials covering  topics such as treatment options,
     diagnosis, and prevention.  Dissemination projects have
     included smoking, breast cancer, coping with cancer, and
     asbestos.  Hundreds of thousands of patient information
     and physician kits are distributed, along with posters,
     slide-tape presentations, and booklets on each topic. 
     Materials are tested by NCI for effectiveness before being
     used in the projects.  The monthly Journal of the National
     Cancer Institute presents original reports of cancer
     research by scientists around the world.
      Office of Personnel Management (OPM)
 Office of Affirmative Recruiting and Employment
 Selective Placement Program
 1900 E Street, NW
 Room 6336
 Washington, DC 20415
 (202) 606-0870
 
     Disabilities Served:   All disabilities.
     
     Users Served:    Persons with disabilities, Federal agency
     program officials and supervisors.
     
     The Organization:  The Office of Personnel Management
     (OPM), as the central personnel agency of the Federal
     Government, provides  information on the selective
     placement program for persons with disabilities and
     monitors and coordinates Federal personnel regulations and
     policies to ensure that disabled individuals are not
     adversely affected by barriers in the personnel system. 
     Another major focus is on providing  technical assistance
     to agency program officials on the Federal personnel
     system, on the development of understanding about
     disabilities, job and work site modifications, and on
     available resources for obtaining rehabilitation
     assistance.
     
     Information Services:   OPM provides, through a national
     system of job information centers, information on Federal
     employment for disabled individuals.   Selective Placement
     Coordinators in each agency recruit and provide counseling
     for job placement.  They also work with supervisors to
     increase awareness of the capabilities of people with
     disabilities. 
     
     
     Office of Technology Transfer (OTT)
 Department of Veterans Affairs
 Prosthetics Research & Development Center
 103 South Gay Street
 Baltimore, MD  21202
 (301) 962-1800
 
     Disabilities Served:   Spinal cord injuries, amputees,
     vision and hearing impairments.
     
     Users Served:   Veterans, researchers and interested
     persons.
     
     The Organization:   The Office of Technology Transfer
     (OTT) publishes the Journal of Rehabilitation Research &
     Development, annual progress reports, and clinical
     supplements.
     
     Information Services:   The rehabilitation data base
     contains contents of the  Journal of Rehabilitation
     Research & Development and some related information,
     available through Compuserve.  The Office of Technology
     Transfer Resource Center contains over 4,000 books and
     technical reports and 150 journals in the fields of
     rehabilitation engineering, spinal cord injury, sensory
     aids, orthotics, prosthetics, amputation, and gerontology.
     
     
     Office of Vocational and Adult Education (OVAE)
 U.S. Department of Education
 400 Maryland Avenue, SW
 Washington, DC  20202
 (202) 732-2251
 
     Disabilities Served:   All handicaps.
     
     Users Served:   Youth and adults with disabilities.
     
     The Organization:   The function of the Office of
     Vocational and Adult Education (OVAE), U.S. Department of
     Education, is to assist the States to expand, improve,
     modernize and develop quality vocational and adult
     education programs to meet the needs of the Nation's
     existing and future work force and to promote the
     development of adult education resources nationally.  OVAE
     works to ensure that individuals who are handicapped have
     access to quality vocational and adult education and
     literary programs.
     
     Information Services:   Vocational education programs are
     offered by local education agencies, postsecondary
     institutions, and community-based groups according to the
     needs of the existing and future work force for marketable
     skills.  Adult education programs are offered by local
     education agencies as well as community-based
     organizations, churches and other groups.  OVAE provides
     technical assistance to the States related to the
     provision of vocational-technical education, adult
     education, and literacy to persons with handicapping
     conditions.  The State offices of vocational and adult
     education, in turn, pass on the information to the local
     education agencies for application to local programs.
           Office on Smoking and Health
 Technical Information Center (TIC)
 U.S. Department of Health and Human Services
 Park Building
 Room 1-16
 5600 Fishers Lane
 Rockville, MD  20857
 (301) 443-1690
 
     Disabilities Served:  Smoking-related health problems.
     
     Users Served:  Researchers and health professionals.
     
     The Organization:  Established in 1978, the Office on
     Smoking and Health is the U.S. Public Health Service
     program most concerned about the health hazards of
     smoking.  Its Technical Information Center (TIC) collects,
     organizes, and disseminates the world's literature on
     smoking and its effects on health.  TIC's scientific and
     technical collection comprises over 55,000 hard copy
     reports on all aspects of smoking and health.  In
     addition, a bibliographic data base has more than 50,000
     records in machine-readable form.  The "Smoking and
     Health" data base is available to the public on DIALOG,
     File 160.
     
     Information Services:  Technical and public education
     publications may be obtained from the Center and include
     the Bibliography on Smoking and Health  and the Smoking
     and Health Bulletin, a current awareness periodical
     listing references on all aspects of smoking and health. 
     Reprints of articles included in the Bulletin are
     available on a limited basis.  There is no charge for TIC
     services and publications.
     
     
     ORBIT Search Service
 A Division of Maxwell Online, Inc.
 8000 Westpark Drive
 McLean, VA  22102
 (800) 955-0906
 (703) 442-0900
 
     ORBIT Search Service, a division of Maxwell Online, Inc.
     is an international leader in online information service. 
     ORBIT users have instant access to more than 100
     computerized databases that are heavily concentrated in
     the areas of science, technology, and patents.
     
     ORBIT is searched via easy-to-learn English language
     commands.  Along with these commands, the searcher enters
     words, names, dates, or numbers that describe a chosen
     subject.  In return, the system supplies records of
     information sources, in many cases providing a detailed
     abstract of the original text.
     
     
     The Orton Dyslexia Society (ODS)
 724 York Road
 Baltimore, MD  21204
 (301) 296-0232
 
     Disabilities Served:  Dyslexia.
     
     Users Served:  Disabled persons, parents, teachers, health
     care professionals.
     
     The Organization:  The Orton Dyslexia Society (ODS) is an
     international membership organization for professionals,
     dyslexics, and parents of dyslexic children.  Its purposes
     are to disseminate information related to dyslexia and to
     guide persons with dyslexia and parents of dyslexic
     children to available resources for diagnosis,
     remediation, and tutoring.  ODS has 44 volunteer branches,
     which serve the needs of their individual communities by
     offering guidance, workshops, and seminars.
     
     Information Services:  ODS can provide some general
     information to inquirers by phone or by letter; most
     information requests are met through a variety of ODS
     publications on dyslexia and related learning
     disabilities.  There is a charge for books and a nominal
     fee for most pamphlets and article reprints.  The ODS
     Annals of Dyslexia (formerly the ODS Bulletin) is a
     compilation of scientific papers delivered at its annual
     conference, containing therapy applications and articles
     about the state of the art.  Audiotapes of individual
     conference papers are available.  ODS also publishes a
     quarterly newsletter, Perspectives on Dyslexia, containing
     pertinent local and national information.
     
     
     Osteogenesis Imperfecta Foundation, Inc. (OI)
P.O. Box 14807
Clearwater, FL  34629
(813) 855-7077 (Editorial Office)
(516) 325-8992 (Administrative Office)
     
     Disabilities Served:  Osteogenesis imperfecta (brittle
     bone disorder).
     
     Users Served:  People with osteogenesis imperfecta,
     parents, teachers, health care professionals.
     
     The Organization:  The mission of the Osteogenesis
     Imperfecta Foundation, Inc. is to improve the quality of
     life for individuals affected by osteogenesis imperfecta
     (OI) through research, education, awareness, and mutual
     support.
     
     The foundation was organized in 1970 by parents of
     children with osteogenesis imperfecta.  Characterized by
     fragility of bone and often by stunted growth, the
     condition displays a wide range of severity.  Management
     of the disorder and treatment of symptoms, which may
     include hearing and dental problems as well as frequent
     fractures are now available at many hospitals and medical
     centers.  Public awareness and fundraising to support
     research are other activities of the organization.
     
     Information Services:  Medical information, care and
     management techniques, and emotional support are available
     through contacting the foundation office.  Pamphlets
     describing the disorder and its management; a guide to
     education for children with osteogenesis imperfecta;
     reprints of articles by parents, researchers, and health
     care professionals; a quarterly newsletter, BREAKTHROUGH;
     and referrals to local support groups and 
     peer contacts are available from the foundation.
     
     
 Paralyzed Veterans of America (PVA)
 801 Eighteenth Street, NW
 Washington, DC  20006
 (202) 872-1300
  
     Disabilities Served:  Paralysis caused by spinal cord
     injury or disease.
     
     Users Served:  Paralyzed veterans, families, health care
     professionals, and the broad universe of persons with a
     disability.
     
     The Organization:  Paralyzed Veterans of America (PVA) is
     a national information and advocacy agency working to
     restore spinal cord injured or diseased veterans' bodies
     and life potentials as closely as humanly possible to
     those of Americans not suffering spinal cord dysfunctions. 
     It supports and funds research related to spinal cord
     treatment, rehabilitation, and regeneration.  A national
     advocacy program focuses on transportation, architectural
     barriers, wheelchair design, and education opportunities. 
     PVA representatives plead claims for veterans before the
     Department of Veterans Affairs.  The organization has more
     than 40 chapters and subchapters, which help the PVA carry
     out its programs.  One of PVA's chapter-oriented programs
     trains nurses in the care and treatment of spinal cord
     impaired patients.  PVA sponsors and supports wheelchair
     sports and recreation.
     
     Information Services:  PVA publishes brochures and other
     materials on such subjects as architectural barriers,
     research related to spinal cord injury, veterans benefits,
     disability-related legislation, and sports.  It provides
     statistical data (e.g., VA health care utilization) and
     technical assistance materials on architectural barrier
     removal and adaptive devices.  PVA also publishes two
     magazines, Paraplegia News and Sports and Spokes.
     
     
     Parent Care
 101 1/2 Union Street
 Alexandria, VA  22314
 (703) 836-4678
  
     Disabilities Served:  Handicaps resulting from premature
     birth.
     
     Users Served:  Perinatal professionals, psychologists,
     hospital administrators, occupational therapists,
     behavioral scientists, developmental specialists, social
     workers, parents, and concerned citizens.
     
     The Organization:  Parent Care, formerly Parents of
     Premature and High-Risk Infants, Inc. (PPHRI) was
     established in 1982 by a group of parents and
     professionals to provide a national focal point for
     information, referral, and support for families of infants
     who require special care at birth.  The goals of the
     organization are to support families with critically ill
     newborns, to encourage communication between parents and
     perinatal professionals, to initiate and support parent
     support groups, to facilitate networking between parent
     support groups and health care agencies, and to enhance
     public awareness of the special needs of families of
     premature and high-risk infants.
     
     Information Services:  Parent Care publishes a quarterly
     newsletter, Parent Care News Briefs, which is free to
     members.  It also publishes a Resource Directory, which
     lists support groups throughout the country and reviews
     books and other materials in this field.  There is a small
     charge for most materials (members receive reduced rates).
     
     For information regarding membership, educational
     materials, and proceedings from Parent Care conferences,
     contact the national headquarters at the above address.
     
      Parkinson's Disease Foundation, Inc. (PDF)
 William Black Medical Research Building
 Columbia-Presbyterian Medical Center
 650 West 168th Street
 New York, NY  10032
 (212) 923-4700
 (800) 457-6676
  
     Disabilities Served:  Parkinson's disease and related
     disorders.
     
     Users Served:  People with Parkinson's disease, family
     members, health care professionals.
     
     The Organization:  The Parkinson's Disease Foundation,
     Inc. (PDF) is primarily a research organization.  It
     supports the Parkinson Research Laboratories at
     Columbia-Presbyterian Medical Center, where research is
     conducted in the various neurosciences.  Patient care and
     services are provided through Presbyterian Hospital's
     Vanderbilt Clinic and Neurological Institute.  In 1960,
     the foundation established a Brain Bank at Columbia
     University's College of Physicians and Surgeons to give
     scientists the opportunity to study the brains of deceased
     Parkinson patients.  The foundation awards research grants
     and fellowships to investigators at Columbia and other
     medical schools.  It sponsors symposia at which scientists
     from all over the world present findings of their research
     relating to Parkinson's disease.  The foundation also
     sponsors patient conferences.
     
     Information Services:  Proceedings from the symposia and
     other reports are published.  For the lay and professional
     inquirer, the foundation provides general information
     about Parkinson's disease.  Some information is available
     in Spanish.  These booklets are published by the
     foundation specifically for patients and families:  The
     Parkinson Patient at Home, Exercises for the Parkinson
     Patient, and Parkinson's Disease:  Progress, Promise and
     Hope.  The foundation publishes a quarterly newsletter
     reporting on research developments and other items of
     interest.  The foundation will refer patients and family
     members to specialists and to self-help groups.
     
      Parkinson's Educational Program 
 3900 Birch Street 
 Suite 105
 Newport Beach, CA  92660
 (714) 250-2975
 (800) 344-7872
 
 Disabilities Served:   Parkinson's disease.
     
     Users Served:   Individuals with Parkinson's, their family
     members and friends, health care providers, general
     public.
     
     The Organization:   The Parkinson's Educational Program is
     a nonprofit association with the following purpose:  to
     promote the establishment of support groups for people
     with Parkinson's, their families and friends; to assist
     the support groups in the services they offer to their
     communities; to help protect the rights of people with
     Parkinson's and their family members; to educate the
     public to an understanding of Parkinson's; to encourage
     and support education of health care providers with the
     objectives of helping in an early diagnosis and a better
     understanding of the total treatment needed for people
     with Parkinson's and their family members; to promote,
     encourage, and assist in any way possible in the search
     for the causes and cure of this disease; to provide peer
     counseling services/materials.
     
     Information Services:   Parkinson's Educational Program
     maintains a complete catalog of books, aids for easier
     living, audio and videotapes and articles dealing with all
     aspects of living with Parkinson's and what has been and
     is being done in research.  There is no membership fee;
     however, the monthly newsletter Pep Exchange is by
     subscription of $15/year in the United States and $25
     outside of the United States.
     
     
     Parkside Medical Services Corporation
 205 West Touhy Avenue
 Park Ridge, IL  60068
 (708) 698-4700
 (800) PARKSIDE
 
     Disabilities Served:   Chemical dependency and psychiatric
     disorders.
     
     Users Served:   Disabled persons, professionals, and
     general public.
     
     The Organization:   Parkside Medical Services Corporation
     is a nonprofit provider of substance abuse treatment.  The
     company is a division of the Lutheran General Health Care
     System, which is headquartered in Park Ridge, Illinois. 
     Parkside operates chemical dependency and psychiatric
     treatment facilities for adults and adolescents in more
     than 100 locations throughout the United States and
     Sweden.
     
     Information Services:   Parkside distributes information
     on various programs and locations of treatment facilities
     to professionals and the general public.  This information
     can be obtained by writing the corporate office or by
     calling the Parkside Crisis Center at (800) PARKSIDE.
     
     
     Partners of the Americas
 PATH (Partners Appropriate Technology for the
 Handicapped)
  Americas Program
 1424 K Street, NW
 Suite 700
 Washington, DC  20005
 (202) 628-3300
 
     Disabilities Served:  All persons with disabilities.
     
     Users Served:  Partners of the Americas promotes economic
     and social development through 60 bilateral partnerships
     linking States of the United States with countries or
     areas of Latin America and the Caribbean.  Volunteers on
     both sides work together in community projects to improve
     agriculture, economic development, employment
     opportunities for low-income citizens, health and
     nutrition, services for disabled persons, and emergency
     preparedness.
     
     The Organization:  The Partners of the Americas and the
     partner rehabilitation program involve a network of people
     and programs addressing the needs of disabled persons,
     their families, and communities.  Partner volunteers
     disseminate information, provide training, and implement
     projects aimed at improving the lives of disabled persons. 
     Priority areas include teacher training, materials
     development, early detection, resource center development,
     development of self-help and parent groups, public
     awareness campaigns, and vocational development.  All
     exchanges take place between one of 46 States and 31
     countries in Latin America and the Caribbean where linkage
     has been established.
     
     Information Services:  Brochures are available for program
     areas including emergency preparedness, International
     Training Program, and Fellow Program (leadership
     training).  Various publications are available on programs
     in special education and rehabilitation services.  Some
     publications are available in Spanish and Portuguese. 
     Technical assistance is provided through the exchange of
     professionals between partnerships.
     
     
     Pediatric Projects, Inc. (PPI)
 P.O. 571555
 Tarzana, CA  91357
 (818) 705-3660
 
     Disabilities Served:  All handicaps, including emotional
     disabilities caused by pediatric hospitalization.
     
     Users Served:  Children in health care, parents, teachers,
     health science professionals.
     
     The Organization:   Pediatric Projects, Inc. (PPI) is an
     international, nonprofit, public benefit corporation that
     serves as an educational and advocacy group, promoting the
     mental health of children in health care.  PPI develops
     and distributes medically oriented therapeutic toys and
     books for children and publications for parents and
     professionals about helping children cope with illness,
     disability, treatment, and hospitalization.  In addition
     to materials, the organization provides educational
     sessions and consultations to encourage quality mental
     health approaches to the physical care of ill or disabled
     children.
     
     Information Services:   Besides brochures about the
     organization, PPI provides information about preparing
     children psychologically for treatment and
     hospitalization, developing therapeutic child life
     programs in medical settings, and assisting children and
     their families in coping with illness.  Pediatric Mental
     Health is a bimonthly newsletter available by
     subscription.  It includes articles on parenting play and
     preparation for treatment and hospitalization, with
     interviews and reports of research, written in readable
     style.  Issues in Pediatric Mental Health is a monograph
     series, covering gaps in practice and research and
     providing extensive bibliographies.  PPI also publishes
     books for children, parents, and professionals on coping
     with treatment and hospitalization and an extensive series
     of bibliographies on specific illnesses, disabilities and
     treatments.  PPI also publishes Medical Toys & Books, a
     quarterly newsletter that reviews medically oriented
     materials for use with toddlers through teens.  Curriculum
     materials in the form of both fiction and nonfiction books
     help children understand the disabilities of their
     friends, neighbors, and classmates.  Some publications are
     available in Spanish.
     
     Also available from PPI are two video cassette series. 
     Growing Up With Cancer is a two-part series about school
     reentry after cancer treatment.  A
          r. Rogers series for young children discusses going to the
     hospital, having an operation, and having a cast.
     
     All publications, videos, and medically oriented toys are
     available by mail order for reasonable charges.  Catalog
     requests should be sent to PPI.
     
     Pediatric Projects, Inc. provides technical assistance to
     medical and nursing staffs in developing new programs and
     improving existing ones so that attention is given to the
     mental health and development of children in clinics and
     hospitals.  Consultation, seminars and workshops are
     available for a fee. 
     
     
     People First International
 P.O. Box 12642
 Salem, OR  97309
 (503) 362-0336
 
     Disabilities Served:   Mental retardation and other
     developmental disabilities.
     
     Users Served:   Persons with mental retardation or other
     developmental disabilities.
     
     The Organization:   People First International is a
     self-advocacy organization of persons with mental
     retardation or other developmental disabilities.  They
     meet in local chapters to learn to speak for themselves,
     learn leadership skills, and take actions to improve their
     lives.  People First began in Salem, Oregon, in 1974. 
     Since then, State and local chapters have been established
     across the United States and Canada and in England,
     Australia, and other foreign countries.  The most recent
     International People First Convention was held in London,
     England, in 1989.
     
     The international office provides assistance to groups
     seeking to establish chapters.
     
     Information Services:   Information about People First and
     setting up local chapters is available from the
     organization.  Materials include a "how to" booklet and an
     officers' handbook.  There is a charge for the information
     packet.  A Hollywood-produced movie "We are People First"
     is available through James Stanfield House in Los Angeles.
     
      Perkins School for the Blind
 175 North Beacon Street
 Watertown, MA  02172
 (617) 924-3434
  
 Disabilities Served:  Blindness, deaf-blindness, and
     multihandicapped students.
     
     Users Served:  Disabled persons.
     
     The Organization:  Perkins School for the Blind has been
     committed to serving blind, visually impaired, deaf-blind,
     and multi-impaired students and clients since it was
     chartered in 1829.  Programs and services are structured
     to develop students and clients' maximum potential
     intellectually, physically, mentally, and socially.  The
     school serves clients age birth to adult on a residential
     and day basis through Infant/Toddler and Preschool
     Programs, a Lower School (elementary education) Program, a
     Deaf-Blind Program, a Secondary Services (Jr. and Sr. High
     School) Program, a Severe Impaired Program, and an Adult
     Services Program, which includes a Head Injury Unit. 
     Outreach services are provided locally, nationally, and
     internationally in a wide variety of areas.  A teacher
     training program is offered in cooperation with Boston
     College.  The Howe Press, a division of Perkins,
     manufactures the Perkins Brailler as well as other
     appliances and materials for blind students.  A historical
     museum on campus is open to the public.  While Perkins is
     a private school, tuition is usually paid by the State or
     local agency that refers the student.
     
     Information Services:  Nineteen curricula in areas such as
     academics, self-care, home economics, mobility, and
     physical education are available through the Perkins
     School.  In addition, many publications are available
     through the Howe Press.  The Howe Press has lists of
     curriculum materials and publications for educators and
     parents including a Bibliography of the Deaf-Blind, Speech
     Beginnings for the Deaf-Blind Child, and the Perkins Sign
     Language Directory.  Price lists for appliances (including
     the braille typewriter) and for publications are available
     on request. 
     
     
     The Phoenix Society for Burn Survivors, Inc.
11 Rust Hill Road
Levittown, PA  19056
(215) 946-BURN
(800) 888-BURN (Toll Free for Burn Survivors)
     
     Disabilities Served:  Burn survivors.
     
     Users Served:  Burn survivors and their families.
     
     The Organization:  A worldwide self-help organization
     established in 1977 for burn survivors and their families,
     the Phoenix Society for Burn Survivors, Inc. works to ease
     the psychosocial adjustment of severely burned persons
     during and after hospitalization so that they can return
     to normal lives within their communities.  While anyone
     with an interest in the goals of the society is free to
     join, members are in large part recovered burn victims,
     who volunteer to help patients and their families on a
     one-to-one basis.  Members work under the supervision of
     attending hospital staff.
     
     Information Services:  Burn survivors and their families
     who would like to get in touch with other burn survivors
     for counseling or help may contact the Phoenix Society for
     referral to the nearest regional coordinator.  If there is
     no coordinator close enough, the society will make
     arrangements for a volunteer to contact the inquirer.
     
     The society publishes a quarterly newsletter, The Icarus
     File, which is included with membership.  Nonmembers may
     subscribe for a nominal charge.  In addition, a list of
     audiovisual materials on fire prevention, burn care, true
     life stories of burn victims, and other topics is
     available from the society.  Information and/or assistance
     is available in Spanish; the society is prepared to make
     arrangements for other languages as necessary.
     
     
     Polio Information Center (PIC)
 510 Main Street
 Suite A446
 Roosevelt Island, NY  10044
 (212) 223-0353
 
     Disabilities Served:   Poliomyelitis and postpolio.
     
     Users Served:   Disabled persons, physicians, health
     professionals.
     
     The Organization:   The Polio Information Center (PIC)
     attempts to locate and list on computer postpolio
     individuals throughout the country in order to gather
     information about present health status, disseminate
     information on postpolio research, and locate health care
     professionals who are knowledgeable about postpolio care. 
     PIC offers referral services for people who had polio to
     physicians and other health care professionals.  The
     center has begun networking across the country.  As they
     are organized, regional groups are listed with the center
     and become part of the national network.
     
     Information Services:   The center provides referrals to
     local physicians around the country who are familiar with
     postpolio care.  Referrals are also made to support groups
     across the country.  The PIC maintains a computer listing
     of over 2,000 individuals who had polio and knowledgeable
     physicians.  Statistical data on types of polio, medical
     problems, and years of onset are available.  Membership
     dues are charged.
     
     
     Prader-Willi Syndrome Association
 6490 Excelsior Boulevard
 Suite E-102
 St. Louis Park, MN  55426
 (612) 926-1947
 
     Disabilities Served:  Prader-Willi syndrome.
     
     Users Served:  Parents, teachers, health care
     professionals.
     
     The Organization:  Prader-Willi syndrome is a rare
     condition that results from a birth defect.  Those with
     this sporadically occurring disorder suffer obesity, if
     untreated, short stature, poor muscle tone, and mental
     retardation in 95 percent of the cases.  Association
     members are parents and professionals, who share knowledge
     and experience about the syndrome and how to manage it. 
     Parent groups across the country hold informal meetings
     and often invite professional speakers to address them. 
     There are 27 chapters of the association.
     
     Information Services:  The association's bimonthly
     newsletter contains tips from parents and professionals on
     management of a Prader-Willi syndrome child; diet is
     emphasized.  Prader-Willi Syndrome:  A Handbook for
     Parents contains information on behavior and learning
     capacity of the Prader-Willi child as well as tips on
     management, diet, and exercise.  Prader-Willi Syndrome, an
     overview by Suzanne Cassidy, M.D., may also be purchased. 
     There is a nominal charge for materials.  An overview of
     the syndrome is available in French and Spanish.  The
     association provides information to parents regarding
     physicians or hospitals with specific knowledge of the
     syndrome.
     
      President's Committee on Employment of People With 
  Disabilities (PCEPD)
 1111 20th Street, NW
 6th Floor
 Washington, DC  20036
 (202) 653-5044
 
     Disabilities Served:   All types.
     
     Users Served:   Persons with disabilities, organizations
     of and for people with disabilities, employers, labor
     leaders, physicians, rehabilitation and placement
     specialists, and the general public.
     
     The Organization:   The President's Committee on
     Employment of People With Disabilities (PCEPD) is a
     public-private partnership of national and State
     organizations and individuals working together to improve
     the lives of people with physical, mental, and sensory
     disabilities by increasing their opportunities for
     employment.  The Committee is currently composed of some
     600 members.  Included among these are employers, training
     and rehabilitation specialists, educators, labor leaders,
     veterans organizations, medical and health professionals,
     service organizations, community leaders as well as
     individuals with disabilities, their organizations, and
     their advocates.
     
     The President's Committee serves an advocacy and public
     awareness role in fostering job opportunities for people
     with disabilities.  As part of this effort, PCEPD works
     with autonomous committees on employment of people with
     disabilities at State and local levels, as well as
     produces its own publications and services.  The Committee
     has a leading role in establishing an acceptable climate
     in industry and labor toward hiring individuals with
     disabilities.
     
     PCEPD has organized around the national committee a number
     of standing committees, which deal with special topics. 
     The Committee has produced sensitizing campaigns to
     educate various publics on the employment needs of people
     with disabilities.
     
     Information Services:   PCEPD provides information
     primarily in the area of employment and has published
     numerous pamphlets on related topics.  General information
     is provided on the Committee's activities, and selected
     materials published by PCEPD are sent on request.  All
     services are free.
     
     PCEPD also publishes a monthly newsletter, Tips and
     Trends,  and a quarterly magazine, Worklife, which carries
     articles about people with disabilities, employment
     programs, trends, and related topics.
     
     PCEPD sponsors the Job Accommodation Network, a data base
     system for providing information on resolving
     accommodation problems so individuals with disabilities
     can enter the work force.
     
     
     President's Committee on Mental Retardation (PCMR)
 Wilbur J. Cohen Building
 Room 5325
 330 Independence Avenue, SW
 Washington, DC  20201
 (202) 619-0634
  
 Disabilities Served:  Mental retardation.
     
     Users Served:  Government officials, general public.
     
     The Organization:  The President's Committee on Mental
     Retardation (PCMR), established by Executive Order 11280
     of May 11, 1966, is composed of 21 citizen members,
     appointed by the President, and six cabinet members (ex
     officio).  The Secretary of Health and Human Services is
     chairperson.  The primary objectives of the Committee are
     to advise and assist the President and the Secretary of
     Health and Human Services on all matters pertaining to
     mental retardation; evaluate national, State, and local
     efforts; help coordinate Federal activities; facilitate
     communication between Federal, State, and local agencies;
     inform the public about mental retardation; and mobilize
     support for related activities to promote
     self-sufficiency.
     
     The Committee's principal activities are directed toward
     the prevention of mental retardation, enhancement of the
     quality of life of persons with mental retardation,
     promotion of the legal rights of retarded citizens, and
     increased public sensitivity and awareness regarding
     people with mental retardation, both nationally and
     internationally.
     
     Information Services:  PCMR provides single copies of
     publications free of charge.  Major publications available
     are Reports to the President:  The Mentally Retarded
     Worker:  An Economic Discovery (1983) and Mental
     Retardation:  Plans for the Future (1985); Parents
     Concerns and Advice:  A Summary of Interview Findings
     (1985); Assessment of the National Effort to Combat Mental
     Retardation from Biomedical Causes (1983); National Open
     Forum on Prevention of Mental Retardation from
     Environmental and Psychosocial Causes (1984); and
     Community Forum on Employment of Handicapped People - "A
     Primer" (1985).
     
     
     P.R.I.D.E. Foundation (Promote Real Independence for
 the Disabled
  and Elderly)
 71 Plaza Court
 Groton, CT  06340
 (203) 445-1448
  
     Disabilities Served:  All disabilities.
     
     Users Served:  Disabled persons, parents, teachers, and
     professionals.
     
     The Organization:  The P.R.I.D.E. Foundation is a
     nonprofit organization whose primary objective is to
     provide assistance for handicapped and elderly persons in
     the areas of homemaking, independence in dressing,
     personal grooming, and fashionable apparel.
     
     Information Services:  For a fee, P.R.I.D.E. provides
     technical assistance to health agencies, social service
     groups, and voluntary organizations in the areas of
     clothing design and other homemaking skills.  Direct
     services to disabled and elderly persons and their
     families include sewing assistance, adapting patterns and
     designs to meet the clothing needs of persons with
     specific disabilities, training in sewing machine
     operation, and the provision of household devices for use
     in the kitchen, bedroom and bathroom.  Many of these
     services are offered through the mail.
     
     P.R.I.D.E. makes available a clothing exhibit, "The Travel
     Trunk," for a rental fee of $50.  This exhibit contains
     approximately 30 to 50 sample garments, which have been
     especially designed for persons with various disabling
     conditions.
     
     P.R.I.D.E. provides brochures on dressing, grooming, home
     management, and fashionable apparel for disabled and
     elderly persons.  The foundation also disseminates a
     number of publications including a curriculum guide for
     advanced inservice training for homemaker/home health
     aids; sewing instruction manuals; pattern design and
     clothing modification manuals; a bibliography of
     resources; an information sheet for scoliosis patients; a
     clothing lesson plan for training of care givers who
     provide assistance in dressing and grooming; and other
     materials designed to teach the disabled homemaker or
     service provider.  There is a charge for all items except
     brochures.
     
     
     Project Head Start
 Administration for Children, Youth and Families
 Office of Human Development Services
 U.S. Department of Health and Human Services
 P.O. Box 1182
 Washington, DC  20013
 (202) 245-0562
  
 Disabilities Served:  All disabilities.
     
     Users Served:  Disabled children, child care
     professionals, 3- to 5-year-old disabled children from
     low-income families.
     
     The Organization:  Project Head Start, administered by the
     Administration for Children, Youth and Families, was
     reauthorized by the Omnibus Budget Reconciliation Act of
     1981 (P.L. 97-35).  The law requires that no less than 10
     percent of enrollment opportunities in Head Start programs
     in each State be available for handicapped children and
     that services be provided to meet their special needs. 
     HHS regional offices award grants to local public and
     private agencies for the purpose of operating Head Start
     programs in their communities.  Intended primarily for
     preschool children from low income families, the program
     serves over 450,000 children through almost 1,300 grantees
     located in rural and urban areas throughout the United
     States and territories.  Of the enrollment for the 1988-89
     Head Start program year, children professionally diagnosed
     as handicapped accounted for 13.5 percent of the total.
     
     Information Services:  Local Head Start programs are the
     main source of information about specific services and
     eligibility.  General information about Head Start is
     available from the national office and includes an annual
     report and a directory of local Head Start programs listed
     by State.  Materials for the child care professional can
     be obtained only from the Superintendent of Documents,
     U.S. Government Printing Office, Washington, DC  20402.
     
      Project on Science, Technology and Disability
 American Association for the Advancement of Science
 (AAAS)
 1333 H Street, NW
 Washington, DC 20005
 (202) 326-6672 (Voice/TDD)
 
 Disabilities Served:  All disabilities.
     
     Users Served:  Students and scientists/engineers with
     disabilities, teachers,  counselors, parents,
     rehabilitation engineers, college administrators.
     
     The Organization:  The Project on Science, Technology and
     Disability was launched in 1975 as the American
     Association for the Advancement of Science (AAAS) advocate
     for disabled professionals and students engaged in
     science.  The project also acts as an information center
     for disabled individuals, parents, teachers, and employers
     in areas pertaining to science education and careers. 
     Through surveys, studies, symposia, and workshops, the
     project has collected information about science education
     and employment opportunities for disabled persons.  Using
     the information it collects, the project consults with
     universities, professional scientific societies, and the
     Federal Government to identify the accessibility and
     program needs of disabled scientists and students and to
     suggest strategies to meet those needs.
     
     Information Services:  The project publishes reports,
     guides, and directories based on its activities, including
     Barrier Free Meeting:  A Guide for Professional
     Associations, a step-by-step system for achieving
     accessibility at professional meetings; a Resource
     Directory for Scientists and Engineers with Disabilities
     (2nd edition), containing names and biographical data of
     disabled scientists who will consult with those working to
     improve science education and career opportunities for
     people with disabilities; Science for Handicapped Students
     in Higher Education, based on a study of barriers to
     postsecondary science education; Scientific and
     Engineering Societies:  Resources for Career Planning, a
     listing of counseling, referral, and placement services of
     scientific professional associations and a source book on
     career counseling in science;  A Research Agenda on
     Science and Technology for the Handicapped, the findings
     of a project and workshop researching science and
     technology for people with disabilities; Out of School
     Programs in Science, a listing of science programs that
     take place outside of the traditional classroom; Within
     Reach:  Out of School Science Opportunities for Youth, a
     guide for students with disabilities, their parents,
     teachers, and counselors.
     
      
     Project STAR
 77B Warren Street
 Brighton, MA  02135
 (617) 783-7300
 
 Disabilities Served:  HIV infection.
     
     Users Served:   Drug-exposed children with HIV infection
     and their families.
     
     The Organization:   Project STAR is a collaborative
     program that provides direct services to 46 children with
     HIV infection and their families.  The children are under
     the age of 6 and all demonstrate some degree of
     developmental delay.  Services include early intervention,
     case management, daycare, transportation, and parent and
     sibling support.
     
     
     Project WIN Outreach
 77B Warren Street
 Brighton, MA  02135
 (617) 783-7300
 
 Disabilities Served:   HIV infection.
     
     Users Served:   Professionals who are serving, or planning
     to serve, drug- exposed children with HIV infection and
     their families.
     
     The Organization:   Project WIN Outreach provides training
     and technical assistance to professionals who are serving,
     or planning to serve, drug- exposed children with HIV
     infection and their families.  WIN Outreach staff provides
     two types of training:  replication and awareness. 
     Replication training is designed to help teams replicate
     or adapt the transdisciplinary and transagency procedures,
     models we have implemented and refined in our federally
     funded demonstration grants.  Awareness training provides
     information regarding the special service needs,
     characteristics, and issues of families whose children are
     HIV-infected.
     
     Information Services:   A manual entitled Community
     Service Delivery for Children with HIV Infection and Their
     Families:  A Manual for Planners, Service Providers,
     Families and Advocates provides guidelines for developing
     community-based, family-centered services for children
     with HIV infection and their families.
     
      PsycINFO
 American Psychological Association
 1200 17th Street, NW
 Washington, DC  20036
 (800) 336-4980
 (703) 247-7829
 
 Disabilities Served:  All handicaps.
     
     Users Served:  Psychologists, educators, health care
     professionals.
     
     The Organization:  Part of the American Psychological
     Association,  a professional society of psychologists and
     educators,  PsycINFO is a family of interrelated
     information services providing a variety of ways to access
     the world's published literature in psychology and related
     behavioral and social sciences.
     
     Information Services:  PsycINFO publishes the
     Psychological Abstracts (PA) index, a comprehensive
     monthly compilation of nonevaluative summaries of the
     world's literature in psychology and related disciplines. 
     Each year PsycINFO scans materials from over 1,300
     periodicals and conference reports, technical reports, and
     monographs for inclusion in PA and the PsycINFO data base. 
     Among the 17 major classification categories according to
     which abstracts are grouped are the following:  "Physical
     and Psychological Disorders," "Psychometrics," "Treatment
     and Prevention," and "Educational Psychology," which
     includes special education.  Documents on the
     characteristics of physically and psychologically disabled
     populations and their treatment may be found under these
     categories.  PA's Volume Index, an annual subject and
     author index, is sent to all subscribers to PA; cumulative
     indexes from 1969-71, 1972-74, 1975-77, 1978-80, and
     1981-83 are available.
     
     PsycScan publications, quarterly current awareness
     journals, are available in the areas of clinical,
     developmental and applied experimental psychology, and
     applied psychoanalysis.  A sixth quarterly journal,
     PsycScan: LD/MR, covers learning disabilities,
     communication disorders, and mental retardation.
     
     The PsycINFO data base contains nearly 750,000 items
     published from 1967 to the present.  Approximately 33
     percent of the documents included in this online data base
     concern characteristics of physically and psychologically
     impaired persons and their treatment.  In addition, about
     14 percent of the documents in the data base are on
     educational topics; items on handicapped students form a
     subset of these records.  Many of the terms used by
     PsycINFO's information specialists to search this file are
     related to specific handicapping conditions and treatment,
     including physical and mental disorders; attitudes towards
     mental illness, mental retardation, physical handicaps,
     and sensory handicaps; rehabilitation; and special
     education and mainstreaming.  These key words are listed
     in the Thesaurus of Psychological Index Terms, which may
     be purchased from PsycINFO.  Descriptions of PsycINFO
     services and price information are available upon request. 
     
     
     Direct online access to the PsycINFO data base may be
     arranged through BRS Information Technologies or DIALOG
     Information Services, Inc.  PsycINFO also offers PASAR, a
     fee-based search service of the data base.
     
     
     Quota International, Inc.
 1420 21st Street, NW
 Washington, DC  20036
 (202) 331-9694
 
 Disabilities Served:    Hearing and speech impaired
     persons.
     
     Users Served:  Persons with hearing and speech impairments
     and their families, health care professionals.
     
     The Organization:   Quota International, Inc. is a
     nonprofit service organization of executives and
     professionals, serving deaf and hearing and speech
     impaired persons through the Quota Foundation.  The
     foundation was established in order to assist the more
     than 400 local Quota Clubs in their activities, which
     inform the public about the capabilities and potential of
     hearing impaired persons; inform the public of special
     needs of hearing and speech impaired people and services
     available to them; and ensure accessibility to all public
     services for hearing and speech impaired people.
     
     Information Services:   Publications include the Shatter
     Silence brochure and four pamphlets on: The Effects of
     Noise Pollution on Hearing Loss, Closed Captioned
     Television for Hearing-Impaired Persons, Hearing Loss in
     Adults, and Early Detection of Hearing Loss in Infants.
     
     
 Reclamation, Inc.
 2502 Waterford
 San Antonio, TX  78217
 (512) 824-8618
 
 Disabilities Served:  Mental illness.
     
     Users Served:   Former mental patients.
     
     The Organization:   Reclamation, Inc., is an alliance of
     former mental patients trying to help eliminate the stigma
     of mental illness.  It is a private nonprofit corporation
     chartered by the State of Texas, May 7, 1974.  It was
     organized in San Antonio, Texas, at the office of the
     Mental Health Association by eight former mental patients. 
     Some of the goals of this organization include helping
     mental patients get out and stay out of mental hospitals
     by assistance in the areas of resocialization, employment,
     and housing; promoting the operation of a facility
     patterned after Fountain House and run entirely by former
     mental patients; assisting patients and their families in
     understanding of and adjustment to each other; developing
     a unified voice of the mental health patient for
     participation in the consumer group movement; monitoring
     the media for stigmatizing presentations and encouraging
     them to make amends, acting as a nonprofit political force
     in relation to mental health issues.
     
     Information Services:  Publications include a brochure
     describing program and services and Positive Visability, a
     newsletter published on a quarterly basis.
     
     
     Recording for the Blind (RFB)
 20 Roszel Road
 Princeton, NJ 08540
 (609) 452-0606
 (800) 221-4792
 
 Disabilities Served:  Blindness and visual impairments;
     physical and perceptual disabilities that prevent the
     person from reading normal printed material.
     
     Users Served:  People with print disabilities, as well as
     counselors, teachers, parents and health care
     professionals who act on their behalf.
     
     The Organization:  Recording for the Blind (RFB) supplies
     taped educational books in cassette form, free on loan to
     handicapped students and professionals.  RFB serves
     students of many ages, as well as people no longer in
     school who use educational books to pursue careers or
     personal interests.  RFB accepts requests to tape
     textbooks that are not already contained in its Master
     Tape Library.  Those titles are then added to the
     library's approximately 77,000 titles at the average rate
     of 3,000 each year.  Tapes are produced at 32 recording
     studios nationwide.  RFB makes referrals to alternative
     sources for taped material as necessary.
     
     Information Services:   A print catalog, listing books
     available on tape as of early 1990, can be requested for a
     charge.  In lieu of the catalog, "borrowers" may call RFB
     toll free at (800) 221-4792 to order or inquire about
     specific titles.  Also available is a Subject Reference
     System, which provides subject access to RFB's entire
     library.  Taped books include textbooks, research
     materials, and a variety of computer manuals.  RFB also
     records fiction, drama, and poetry in a number of
     languages.  A print newsletter, RFB News, is published 3
     to 4 times per year, and a Borrower News Cassette is
     distributed annually.  A "Guide to Using RFB's Services"
     is available in print and on cassette.  Borrowers pay a
     one-time $25 registration fee and are billed for postage
     only if they request tapes not to be sent via Free Matter
     for the Blind.  Borrower applications will be sent upon
     request.
     
     
     Recovery, Inc.
 The Association of Nervous and Former Mental
 Patients
 802 North Dearborn Street
 Chicago, IL  60610
 (312) 337-5661
 
 Disabilities Served:  Emotional disorders and mental
     illness (aftercare).
     
     Users Served:  Disabled persons.
     
     The Organization:  Founded in 1937 to provide self-help
     aftercare for released patients of psychiatrist Abraham
     Low, Recovery, Inc., uses Low's techniques of describing
     and coping with daily problems to prevent relapse or
     chronicity.  All leadership is voluntary and groups follow
     procedures established by Dr. Low.  Health care
     professionals are welcome as observers, but weekly
     meetings are conducted by members who are lay leaders and
     former patients.  It is not necessary to have been under
     the treatment of a physician or to have been hospitalized
     to join Recovery; many members come through personal
     referrals or publicity as well as professional referral. 
     There are 1,000 chapters in the United States, Canada,
     Ireland, the United Kingdom, and Puerto Rico.
     
     Information Services:  The techniques on which the
     organization is based are presented in the handbook by Dr.
     Low, Mental Health Through Will Training (available also
     in Spanish and French).  Other Low lectures are available
     on cassettes or records; topics range from "The Fear of
     Life Ebbing Away" to "The Obsession of Being
     Contaminated."  Pamphlets on the organization, a bimonthly
     newsletter, reprints of articles describing the
     organization, a publications list, and a directory of
     group meetings can be requested.  The organization prefers
     to offer demonstration meetings instead of speakers at
     gatherings of professionals or for other interested
     organizations.  Contact the headquarters office for
     information on this service.
     
     
     Registry of Interpreters for the Deaf, Inc. (RID)
8719 Colesville Road 
Suite 310
Silver Spring, MD  20910
(301) 608-0050
     
     Disabilities Served:   Deaf and hard-of-hearing
     individuals.
     
     Users Served:   Sign language interpreters.
     
     The Organization:   The Registry of Interpreters for the
     Deaf (RID) is a national professional association of more
     than 4,000 sign language interpreters established in 1964
     and incorporated in 1972 as a nonprofit organization.  The
     organization initiates, sponsors, promotes, and implements
     policies and activities that will further the profession
     of interpretation of American Sign Language and the
     transliteration of English.  RID is the only national
     certifying body in the country for sign language
     interpreters.  Members subscribe to a code of ethics.
     
     Information Services:   RID publishes and distributes a
     bimonthly newsletter, Views, which focuses on topics of
     professional concern to interpreters and their clients, as
     well as publications dealing with the interpreting
     process.  Individuals and organizations contacting RID may
     also request information about careers in interpreting,
     the RID National Testing System, finding and hiring an
     interpreter, tips on using interpreter services,
     interpreter preparation programs, and interpreter services
     provider agencies.  A free brochure is available to those
     who request it.
     
     
     Rehabilitation International (RI)
 25 East 21st Street
 New York, NY  10010
 (212) 420-1500 (Voice)
 (212) 420-1752 (TDD)
 
 Disabilities Served:   All handicaps.
     
     Users Served:   Organizations in the disability field and
     government ministries.
     
     The Organization:   Founded in 1922, Rehabilitation
     International (RI) is a world organization for disability
     prevention and rehabilitation with more than 135 member
     organizations in 83 countries and 10 international member
     organizations.  RI assists member organizations in
     establishing and improving rehabilitation programs,
     cooperates with other international organizations in
     advancing the welfare of disabled people, and organizes
     international and regional conferences and seminars.  RI
     has consultative status with the United Nations and its
     specialized agencies such as UNESCO, UNICEF, ILO, and WHO.
     
     Information Services:   RI edits the International Journal
     of Rehabilitation Research, which contains articles on
     research projects, methodological problems and solutions
     in rehabilitation research, and basic theoretical aspects
     of rehabilitation.  RI's quarterly newspaper,
     International Rehabilitation Review, reports on
     international, regional, and national developments.  The
     Newsletter of the Secretary General of Rehabilitation
     International is published three or four times per year to
     provide organizational news to member groups and key
     associates.  Also available is One-in-Ten, a quarterly
     newsletter on childhood disabilities, their prevention,
     and rehabilitation, produced by the Joint Technical
     Support Program of UNICEF and RI.  This RI/UNICEF
     Technical Support Program is an ongoing project to help
     UNICEF field offices and personnel in developing countries
     to integrate rehabilitation and disability prevention
     services within their primary health care programs. 
     Recent RI publications include Forging Linkages: 
     Modifying Disability Benefit Programs to Encourage
     Employment; Ethical Issues in Disability and
     Rehabilitation (report of an international conference,
     copublished with World Institute on Disability and World
     Rehabilitation Fund); Proceedings of 1988 World
     Rehabilitation Congress; and special issue (1990) of
     One-in-Ten on "Community-Based Rehabilitation." A
     publications list and organizational description are
     available free of charge.  Many publications are available
     in languages other than English.
     
     
     Rehabilitation Services Administration (RSA)
 Office of Special Education and Rehabilitative
 Services
 U.S. Department of Education
 Switzer Building
 330 C Street, SW
 Washington, DC  20202-2531
 (202) 732-1282
 
 Disabilities Served:   All handicaps.
     
     Users Served:   Professionals in rehabilitation and
     related fields, and disabled persons.
     
     The Organization:   The Rehabilitation Services
     Administration (RSA) supports a variety of services to
     assist disabled individuals to maximize their potential
     for employment and independent living.  Programs are
     designed to reduce dependency, increase self-reliance, and
     utilize the productive capabilities of disabled
     individuals.  Priority is focused on severely disabled
     individuals.
     
     RSA's major components, which work directly with the
     programs, are the Office of Program Operations and Office
     of Developmental Programs.  The Office of Program
     Operations has the primary responsibility for
     administering the Basic State Grants, Client Assistance,
     and Independent Living--Part A programs, Supported
     Employment VI-C Formula and discretionary grants, and
     programs authorized by the Randolph-Sheppard Act.  The
     Basic State Grants program makes grants to States for the
     provision and administration of vocational rehabilitation
     services to assist physically and mentally handicapped
     individuals in becoming gainfully employed.  Services
     provided include diagnosis, counseling, placement,
     training, and physical and mental restoration.  The Client
     Assistance program makes grants to States to provide
     assistance in informing and advising clients and
     applicants of available benefits under the Rehabilitation
     Act and, upon their request to assist them in their
     relationships with project programs and facilities
     providing services.  This includes assistance in pursuing
     legal, administrative, or other appropriate remedies to
     ensure the protection of the rights of such individuals
     under the Rehabilitation Act.  The Independent
     Living--Part A program makes grants to States to assist in
     providing comprehensive services for independent living. 
     These services are designed for individuals whose
     disabilities are so severe that they do not presently have
     the potential for employment but who nevertheless may
     benefit from rehabilitation services that will enable them
     to live and function independently.
     
     The Office of Program Operations also oversees the
     implementation of the Randolph-Sheppard Act and provides
     leadership and consultation for public and private
     agencies serving persons who are blind and visually
     handicapped.  Some of the functions relating to the
     Randolph-Sheppard Act include developing guidelines and
     regulations for Federal departments and blind licenses to
     conduct vending facilities programs, working with State
     agencies to increase the range and number of employment
     opportunities for blind persons, providing technical
     consultation, and interpreting provisions of the act for
     the convening and operation of State and Federal
     arbitration panels.
     
     The Office of Developmental Programs provides leadership
     in and manages RSA's discretionary program development
     activities including support for training, rehabilitation
     facilities, service projects and Independent Living--Parts
     B and C initiatives.  Discretionary grants are awarded for
     projects of national significance and for projects meeting
     the unique needs of special handicapped populations.
     
     Service projects are funded to demonstrate methods of
     expanding assistance to underserved disability groups,
     develop new and innovative approaches to meeting the needs
     of severely disabled clients, and provide special training
     and employment opportunities to severely disabled
     individuals.  Activities include Projects with Industry,
     Special Projects for the Severely Disabled, Migratory
     Workers Projects, Service Grants to Indian Tribes, Helen
     Keller National Center for Deaf/Blind Youths and Adults,
     and Special Recreation.
     
     The Independent Living Center program provides grants for
     the establishment and operation of independent living
     centers, which offer an array of services to assist
     clients to function independently.  These grants are
     available to any designated State unit which administers
     the State plan under Section 705 of the Rehabilitation
     Act.
     
     Training projects increase the number and improve the
     skills of personnel qualified to provide vocational
     rehabilitation and independent living services to
     handicapped individuals.
     
     Information Services:   Individual inquiries to RSA are
     handled by the Correspondence Control Unit, 9202)
     732-1369. 
     
     
 Research to Prevent Blindness
 598 Madison Avenue
 New York, NY  10022
 (212) 752-4333
 
     Disabilities Served:  Blindness and visual impairments.
     
     Users Served:  Ophthalmologists, ophthalmic scientists,
     other visual researchers, general public.
     
     The Organization:  Research to Prevent Blindness (RPB)
     provides financial support to ophthalmology departments of
     more than 60 medical schools in the United States for the
     purpose of scientific research on the causes, prevention,
     diagnosis, and treatment of visual disorders.  It has
     supported the development of techniques such as laser
     treatment, vitrectomy, microsurgery, and therapeutic use
     of contact lenses as well as extensive basic studies of
     the eye and its diseases.  Incentives are provided to
     attract outstanding scientists to eye research through
     annual awards.
     
     Information Services:  RPB provides information concerning
     vision research to news media, legislators, practicing
     opthalmologists, and the public.  The RPB National Science
     Writers Seminar in Eye Research, conducted every several
     years, brings together outstanding vision scientists, news
     editors, and writers for reports and discussions of
     progress in the management and prevention of blinding eye
     diseases.  RPB publishes the formal scientific reports for
     dissemination to the Nation's practicing eye physicians. 
     RPB answers general inquiries about eye research on a
     limited basis.  It does not offer scientific advice or
     recommendations on individual eye problems.  All
     applications for support of vision research must be made
     through chairmen of departments of ophthalmology.
     
     
 RESNA
 1101 Connecticut Avenue, NW
 Suite 700
 Washington, DC  20036
 (202) 857-1199
 
     Disabilities Served:  All disabilities.
     
     Users Served:  Disabled persons, teachers, physicians,
     occupational and physical therapists, orthotists,
     prosthetists, rehabilitation engineers, service providers,
     manufacturers of rehabilitation technology.
     
     The Organization:  RESNA is an organization concerned with
     the exploitation of science and technology in the
     rehabilitation process.  Founded in 1979, its purpose is
     to promote and support the development, dissemination,
     integration, and utilization of knowledge in
     rehabilitation engineering and to assure that these
     efforts result in the highest quality of care and service
     delivery for all disabled citizens.  RESNA's role is to
     serve as a catalyst and information center to address
     current issues that must be resolved so that disabled
     persons can enjoy independent living to the fullest extent
     possible.
     
     RESNA's membership includes rehabilitation professionals
     drawn from all pertinent disciplines, providers, and
     consumers.  Interaction between these groups promotes
     understanding and better service to those who can benefit
     directly from the application of rehabilitation
     engineering technology.  Membership benefits include a
     central role in formulating and influencing policy
     relating  to the delivery of technology to disabled
     citizens, a forum for information exchange, publications,
     and participation in regional and national conferences. 
     RESNA's diverse discipline groups act as task forces to
     define their own objectives and roles in the service
     delivery process and interact with each other to assure
     effective functioning of the delivery system.  Such task
     forces include consumers, health care practitioners,
     inventors and designers, researchers, manufacturers and
     distributors, authorizers and providers, and legislators. 
     RESNA also sponsors the Easter Seal Society Student Design
     Competition (for able as well as disabled students) in
     conjunction with its annual conference.
     
     Information Services:  An organizational brochure and
     membership information are available from RESNA.  The
     association publishes RESNA News, a bimonthly newsletter,
     as well as the proceedings of the RESNA annual conference. 
     Other publications includeAssistive Technology Sourcebook. 
     There is a charge for all publications, with a discount
     for RESNA members.  The membership fee includes a
     subscription to the quarterly newsletter.  The annual
     conference program is available in braille at the time of
     the meeting for registrants.
     
     When possible, RESNA will refer people to experts residing
     in their local area, selected from the RESNA membership
     list.
     
     
     Resources for Rehabilitation
 33 Bedford Street
 Suite 19A
 Lexington, MA  02173
 (617) 862-6455
 
     Disabilities Served:   Hearing and speech impairments,
     arthritis, stroke, diabetes, osteoporosis, epilepsy,
     multiple sclerosis, mobility impairments, low back pain,
     spinal cord injuries, and vision impairment and blindness.
     
     Users Served:   Professionals who provide services to
     individuals with disabilities and chronic conditions and
     individuals with these disabilities.
     
     The Organization:   Resources for Rehabilitation is a
     nonprofit organization dedicated to providing training and
     information to health and rehabilitation professionals.
     
     Information Services:   The organization provides
     directories, desk reference books, and special
     publications designed for distribution by professionals to
     individuals with disabilities and chronic conditions.
     
     Resources for People with Disabilities and Chronic
     Conditions.  This directory contains chapters on spinal
     cord injuries, low back pain, diabetes, multiple
     sclerosis, hearing and speech impairments, vision
     impairment and blindness, and epilepsy.  Information on
     organizations, publications, environmental adaptations,
     and assistive equipment is provided as well as special
     information for children and youth.
     
     Meeting Needs of Employees with Disabilities.  Provides
     employers and counselors with the information they need to
     help people with disabilities retain or obtain employment. 
     Information on government programs and laws, supported
     employment, training programs, environmental adaptations,
     and transition from school to work.  Chapters on mobility,
     vision, hearing, and speech impairments include
     information on products and services that enable employers
     to accommodate the needs of people with disabilities.
     
     
     Respiratory Nursing Society (RNS)
 5700 Old Orchard Road
 First Floor
 Skokie, IL  60077
 (708) 966-8673
 
     Disabilities Served:   Pulmonary dysfunction.
     
     Users Served:   Respiratory nurses.
     
     The Organization:   The Respiratory Nursing Society (RNS)
     is the professional association for nurses who care for
     clients with pulmonary dysfunction and who are interested
     in the promotion of pulmonary health.  RNS was created in
     January 1990 to promote coordinated, comprehensive
     high-level nursing care for these clients by fostering
     respiratory nurses personal and professional development;
     providing educational opportunities through which nurses
     can enhance their knowledge and skills; and conducting,
     participating in, and disseminating research.  RNS holds
     its first annual meeting in February 1991.
     
     Information Services:   RNS publishes a bimonthly
     newsletter, Perspectives in Respiratory Nursing.
     
      RP Foundation Fighting Blindness
 1401 Mt. Royal Avenue
 4th Floor
 Baltimore, MD  21217
 (800) 638-2300
 (301) 225-9409 (TDD)
 (301) 225-9400 (Local)
 
     Disabilities Served:   Visual impairment.
     
     Users Served:   Persons with retinitis pigmentosa (RP),
     Usher syndrome, and other inherited retinal degenerative
     diseases; their families, professionals and the public.
     
     The Organization:   The National Retinitis Pigmentosa
     Foundation, Inc., d.b.a the RP Foundation Fighting
     Blindness, supports research into the causes, prevention,
     and treatment of retinitis pigmentosa and allied inherited
     retinal degenerative diseases.  The foundation also
     compiles a registry of persons affected by these diseases
     and coordinates a retina donor program (postmortem eyes
     used in research studies).  The RP Foundation also has
     volunteer affiliates and sponsors research centers in the
     United States and abroad.
     
     Information Services:   The RP Foundation Fighting
     Blindness provides literature to the general public and
     professionals.  Among its informational brochures are
     pieces about RP, Usher syndrome, and related conditions. 
     The foundation issues a periodic newsletter, Fighting
     Blindness News.  The newsletter reports on research
     findings, special events, and human services; it is
     available at no cost.  An annual report is also published. 
     A national conference for persons with inherited retinal
     degenerative disease, their families, and interested
     persons is planned approximately every 2 years.  Included
     are sessions on research, coping, and low vision devices. 
     Affiliates also hold ongoing meetings and events.
     
     
     Rubella Project
 Developmental Disabilities Center
 St. Luke's Roosevelt Hospital Center
 428 West 59th Street
 New York, NY  10019
 (212) 523-6280
  
     Disabilities Served:  Rubella, and conditions arising from
     its complications.
     
     Users Served:  Disabled persons, parents, physicians.
     
     The Organization:  The Rubella Project was established for
     research, training, and service in prevention and
     management of rubella and congenital rubella and for
     research in rubella vaccines.  The project provides
     medical and allied services to children with congenital
     rubella in the New York metropolitan area and is a
     national referral center for unusual complications
     associated with rubella and rubella vaccines.
     
     Information Services:  The Rubella Project responds to
     telephone and mail inquiries related to the disease and
     current management techniques.  It makes referrals to
     diagnostic centers located in the northeastern United
     States.  A bibliography of scientific articles related to
     congenital rubella and rubella vaccine is available from
     the Project.  Some information is available in Spanish.
     
     
     
     Rubinstein-Taybi (RTS) Parent Group
 414 East Kansas
 Smith Center, KS  66967
 (913) 282-6237
 
     Disabilities Served:   Rubinstein-Taybi syndrome (RTS).
     
     Users Served:  Families who have children diagnosed with
     Rubinstein-Taybi syndrome.  The organization also tries to
     provide information to educators, health care providers,
     and others who seek information on RTS.
     
     The Organization:   The Rubinstein-Taybi (RTS) Parent
     Group was created in July 1984 to provide contact for
     families who have children who have been diagnosed with
     RTS.
     
     Information Services:   The organization provides families
     in the group with general information on Rubinstein-Taybi
     syndrome along with a booklet about the families in the
     group, contact addresses, and special help that the group
     has learned about the various problems associated with
     RTS.  It also has periodic packets of information and
     updates for the families.
     
     For others requesting information, the organization tries
     to give them as possible.  A pamphlet, Rubinstein-Taybi
     Syndrome, provides information to interested persons.  The
     organization also tries to supply information on new
     reports or updates that they might have access to.
     
 
 Science for the Handicapped Association 
 c/o George Davis
 Science Center
 Moorhead State University
 Moorhead, MN  56563
 (218) 236-2904
  
     Disabilities Served:  All handicaps.
     
     Users Served:  Disabled persons, teachers.
     
     The Organization:  The Science for the Handicapped
     Association (SHA), which has as its main objective the
     promotion of science for all levels of handicapped
     students, organizes sessions on science for disabled
     people at conventions of the National Science Teachers
     Association.  SHA cooperates with agencies and
     organizations that have similar goals.
     
     Information Services:  The association has published a
     bibliography on science and disabled persons and publishes
     a newsletter several times a year covering science
     education programs, grants, aids, and equipment and
     containing annotated listings of current articles on
     science and disabled persons.  In addition, SHA provides
     assistance to individuals who request help with special
     needs in science programs for handicapped students.
     
     
     S.E.E.  (Signing Exact English) Center for the
 Advancement of Deaf 
  Children
 10443 Los Alamitos Boulevard
 Los Alamitos, CA  90720
 (213) 430-1467 (Voice/TDD)
 
     Disabilities Served:   Hearing impairment, deafness,
     delayed language.
     
     Users Served:   Children, parents, interpreters, aides,
     teachers and other professionals who work in the areas
     indicated above.
     
     The Organization:   The S.E.E. Center is a charitable
     nonprofit organization concerned with improvements in
     development of language capabilities of hearing impaired
     or language delayed individuals.  Another of the goals is
     the improvement of early intervention in the United States
     related to hearing impairment or delayed language.  In
     addition, the organization is developing standards for
     measuring the signing skills of interpreters and teachers.
     
     Information Services:   The S.E.E. Center operates in a
     number of ways:
     
     1.   Referral Service--Voice, TDD, and mail service help
     parents of     newly determined hearing impaired children
     locate services and      professional assistance.
     
     2.   Publications--Parent Packets provide basic
     information to help      understanding of deafness and its
     impact.  This includes references  for added information. 
     Question sheets provide lists of questions for    parents
     to ask various service groups to determine their  
     appropriateness.
     
     3.   Workshops and Seminars--These provide skill building
     for parents,   educational interpreters, and teachers
     using sign language.     Seminars are tailored for
     specific groups involved with hearing   impaired children.
     
     4.   Grants--The S.E.E. Center is currently completing a
     3-year Federal      grant to establish criteria for
     determining sign language skill level of     teachers and
     interpreters.
     
     5.   Videotapes--Tapes have been prepared to provide basic
          information regarding causes and clues of deafness
     and approaches      to handling the communication
     requirements and to demonstrate    the effectiveness of an
     English-based sign system.
     
     
     Self Help for Hard of Hearing People (SHHH)
 7800 Wisconsin Avenue
 Bethesda, MD  20814
 (301) 657-2248 (Voice)
 (301) 657-2249 (TDD)
 
     Disabilities Served:  Hearing impairment.
     
     Users Served:  Disabled persons, parents, teachers,
     audiologists, otolaryngologists, rehabilitation agencies.
     
     The Organization:  Incorporated in 1979, Self Help for
     Hard of Hearing People (SHHH) is an international
     educational organization of hard of hearing persons and
     others concerned with this disabling condition.  SHHH
     seeks to educate hearing-impaired persons about hearing
     loss detection, management, and prevention of further loss
     and to develop public and professional acceptance of the
     needs of hard of hearing people.  Over 250 chapters have
     been formed.
     
     Information Services:  SHHH publishes a bimonthly journal
     about hearing loss and relevant aids, communication
     techniques, and programs and a newsletter for chapter
     organizers.  The organization also offers information and
     referral services and annual conventions.  Publications
     are available on a variety of topics including hearing
     aids, assistive listening devices, communication access
     systems for groups and large rooms, the psychological
     effects of hearing loss, and assertiveness training for
     hard of hearing people.  There is a charge for most
     publications.
     
     
     Sensory Aids Foundation (SAF)
 399 Sherman Avenue
 Suite 12
 Palo Alto, CA  94306
 (415) 329-0430
 
     Disabilities Served:  Blindness and visual impairment,
     deafness/hearing disorders. 
     
     Users Served:  Disabled persons, employers, rehabilitation
     counselors.
     
     The Organization:  The Sensory Aids Foundation (SAF) is a
     nonprofit organization in operation since 1972, which
     introduces employers to the kinds of services and
     equipment they need in order to employ handicapped
     persons.  Major services provided are (1) employer
     orientation to sensory aids equipment and assistive
     devices used in making jobs accessible for handicapped
     people, (2) identification of specific jobs that
     handicapped persons may perform competitively, (3)
     identification of equipment used by handicapped persons,
     (4) identification of new areas of employment for
     handicapped persons, and (5) maintenance of the Computer
     Education, Training and Evaluation Center (CETEC) for
     hands-on training on computer access equipment and
     evaluation of new devices.
     
     Information Services:  Services are provided to potential
     employers, rehabilitation counselors, and handicapped
     persons.  SAF publishes Technology Update, (a bimonthly
     subscription newsletter).  Technology Update is concerned
     with new equipment, new applications, and new techniques
     to assist visually impaired persons.
     
      Sertoma International/Sertoma Foundation
 1912 East Meyer Blvd.
 Kansas City, MO  64132
 (816) 333-8320
 
     Disabilities Served:   Communication disorders (hearing
     and speech).
     
     Users Served:   The general public through a network of
     civic service clubs and speech, and hearing centers.
     
     The Organization:   Sertoma International is a civic
     service organization founded April 11, 1912, in Kansas
     City, Missouri.  SERvice to MANkind is its motto, and its
     35,000 members belong to about 950 Clubs in the United
     States, Canada, and Mexico.  Women are first invited to
     join Sertoma in 1985.
     
     The clubs' primary sponsorship activities focus on helping
     people with speech and hearing problems, but it also has
     programs in the areas of youth, national heritage, drug
     awareness and recognizing community service by
     non-Sertomans.  The clubs also do various local projects
     unrelated to the international programs.
     
     The Sertoma Foundation is the fundraising arm of Sertoma. 
     The foundation's mission is to support the approved
     charitable and educational programs of Sertoma through
     effective fundraising, investment of funds and
     distribution of proceeds.  The foundation awards more than
     $100,000 per year in grants to Sertoma Clubs for various
     speech and hearing projects.
     
     The foundation has a nationwide network of 258 affiliates,
     which include speech and hearing clinics, speech pathology
     and audiology departments of universities and hospitals,
     etc.  Affiliates join with Sertoma Clubs and the
     foundation to provide speech and hearing services to local
     communities.  The foundation provides, among other things,
     educational grants for affiliate's staff members to attend
     conventions, workshops, and other training events to
     enhance professionals skills.
     
     Information Services:   The foundation has funded various
     projects, among them a hearing conservation program titled
     "Quiet Pleases."  The program is a series of videotapes
     and education kits which address hearing and speech
     issues.  "Quiet Pleases" is distributed via Sertoma Clubs. 
     For additional information contact Sertoma International.
     
      Shriners Hospitals for Crippled Children
 Tampa, FL  33607
 (813) 281-0300
  
 Disabilities Served:  Children's orthopaedic or burn
     disabilities.
     
     Users Served:  Disabled children up to age 18.
     
     The Organization:  The Shriner's first children's
     orthopaedic hospital opened in 1922 as the official
     philanthropy of the fraternal order.  There are now 19
     orthopaedic hospitals and three burn institutes serving
     children up to age 18 in the United States, Mexico, and
     Canada.  Diagnosis and treatment are offered solely on the
     basis of medical and financial need, at no charge to the
     patient's family.  The burn institutes accept children who
     need immediate care or those needing plastic surgery and
     rehabilitation ("healed" burns).  Research on the causes
     of crippling and scarring and on methods of treatment is
     conducted at each Shrine Hospital.  Members' assessments,
     charitable bequests, and a variety of fundraising
     activities support this network of patient care and
     research facilities.
     
     Information Services:  Application forms for hospital
     admission, brochures on the hospitals and burn institutes,
     and donation and bequest forms are available from local
     Shrine Temples or from the International Headquarters. 
     Eligibility for treatment is determined on the basis of
     applications, which are completed by parents or guardians,
     the referring physician, and a local Shrine sponsor.  For
     emergency admission to burn institutes or hospitals, call
     Shriners Hospital for Crippled Children in Tampa, Florida,
     (813) 281-0300.  Toll-free numbers:  (800) 237-5055; for
     Florida, (800) 282-9161.
     
     
     Sibling Information Network
 A.J. Pappanikou Center
 University Affiliated Program
 991 Main Street
 East Hartford, CT 06108
 (203) 282-7050 
 
     Disabilities Served:  All disabilities.
     
     Users Served:  Siblings, parents, teachers, physicians,
     physician therapists, educators, psychologists.
     
     The Organization:  The Sibling Information Network, a
     recently formed organization for professionals and
     individuals interested in siblings of handicapped children
     and their problems, offers support and assistance to those
     working in this area.
     
     Information Services:  The network works to provide a
     common information base, serving as a clearinghouse for
     research and other professional activities related to
     siblings of handicapped children.  The network's quarterly
     newsletter, available free to members, reports on
     activities of members, literature for siblings of
     handicapped children, and other topics of interest.  The
     network has published a collection of articles taken from
     the newsletter, a list of sibling groups and programs, a
     bibliography of journal articles on siblings, a
     bibliography of children's literature, and list a of
     audiovisual materials about children with various
     disabilities.  The newsletter and publications are geared
     toward the membership (nominal dues are charged), but
     materials are provided to others if requested.
     
     
     Sick Kids (Need) Involved People, Inc. (SKIP)
 216 Newport Drive
 Severna Park, MD  21146
 (301) 647-0164
 
     Disabilities Served:  Disabilities in children which
     require dependency on medical technology, particularly
     related to home care.
     
     Users Served:  Disabled persons, parents and family
     members, and health care professionals.
     
     The Organization:  Sick Kids (Need) Involved People, Inc.
     (SKIP) is a national education, resource, and support
     organization founded to foster and promote the feasibility
     of specialized pediatric home care for medically fragile
     children.  Assuring the highest possible quality of life
     obtainable for these children who are dependent on medical
     technology is the ultimate goal.  SKIP has approximately
     25 chapters nationwide and is expanding in all areas of
     the country.  Chapters provide information, education, and
     support over the telephone and through group meetings. 
     Professionals such as physicians, social workers,
     psychologists, and counselors participate in group
     meetings through educational presentations and as
     facilitators to encourage parental interaction.  Parent
     networking to offer peer support and mutual aid is an
     important component of SKIP services.
     
     Information Services:  SKIP puts out printed materials and
     sponsors educational presentations dealing with home care
     of technology-dependent children.  Donations for
     individual membership are requested but are not required.
     
     
 The Simon Foundation for Continence
 P.O. Box 835
 Wilmette, IL  60091
 (708) 864-3913
 (800) 23 SIMON
 
     Disabilities Served:   Loss of bladder and/or bowel
     control.
     
     Users Served:   Individuals with incontinence, their
     families, and health care professionals.
     
     The Organization:   The Simon Foundation for Continence
     was established as a not-for-profit organization in 1983. 
     The mission is to bring the topic out of the closet,
     remove the stigma associated with incontinence, and
     provide information to sufferers, their families, and the
     medical professionals who provide their care.  The
     foundation is a membership organization, serving people
     worldwide, with offices in Chicago and Toronto.
     
     Information Services:   The Simon Foundation distributes
     information about incontinence to members, the medical
     profession, and the general public.  Available are The
     Informer, a quarterly newsletter; Managing Incontinence: 
     A Guide to Living With the Loss of Bladder Control, a
     hardbound book (available also in Japanese and Spanish);
     and numerous factsheets.  Educational videos for the
     health care professionals are also available.  The
     foundation's self-help group"I WILL MANAGE" provides
     support for those individuals whose incontinence has yet
     to be cured.
     
     
     Sister Kenny Institute
 Division of Abbott-Northwestern Hospital
 800 East 28th Street at Chicago Avenue
 Minneapolis, MN  55407
 (612) 863-4457 (Voice)
 (612) 863-5163 (TDD)
 
     Disabilities Served:   Musculoskeletal and neurological
     disorders.
     
     Users Served:   Disabled persons, parents, and other
     family members.
     
     The Organization:   Sister Kenny Institute is a nationally
     renowned JCAH and CARF accredited comprehensive
     rehabilitation facility located on the campus of
     Abbott-Northwestern Hospital in Minneapolis.  Sister Kenny
     Institute provides effective, affordable, goal-oriented
     rehabilitative patient care, research, education, and
     other activities that enhance the quality of life for
     persons with physical disabilities.
     
     Sister Kenny Institute is a full-service acute care
     facility.  Patients receive 24-hour rehabilitation
     nursing, therapy, counseling, education, and a daily visit
     by a psychiatrist, a specialist in physical medicine and
     rehabilitation.  Patients also have 24-hour access to the
     complete medical services of Abbott-Northwestern Hospital,
     one of the Upper Midwest's most comprehensive medical
     centers.
     
     Sister Kenny Institute has specialized inpatient and
     outpatient programs for people with stroke, spinal cord
     injury, and brain injury and for persons who have
     undergone rhizotomy surgery.  Features of these programs
     include Brain Injury Program, Spinal Cord Program, Stroke
     Program, and Rhizotomy Program.  Sister Kenny Institute
     also provides inpatient and outpatient services for those
     with arthritis, musculoskeletal disorders, chronic pain,
     postpolio complications, neurological disorders, and
     speech or language disorders.  The following specialized
     programs are geared toward returning the client to work: 
     chronic pain rehabilitation, vocational services, work
     injury, and hand rehabilitation services.
     
     All patients at sister Kenny Institute receive
     individualized treatment programs, which are goal-oriented
     and time-specific.  Timely reports and ongoing
     communication with case managers are important components
     of a patient's stay at Sister Kenny.
     
     Providing the most cost-effective care is also an ongoing
     objective.  Sister Kenny Institute's Day Hospital program
     is designed for transition from the intensive inpatient
     stay to a structured but less intense outpatient day
     program.
     
     An Accommodations Department in the Wasie Center is
     available for family members and outpatients not living in
     the metro area.  The facility offers reasonably priced
     rooms and is connected directly to the hospital.
     
     Information Services:  A wide variety of health care
     materials are prepared and published by the institute for
     health professionals, patients, and their families.  The
     catalog lists publications and audiovisuals on range of
     motion exercises; managing specific hand problems; patient
     care; transfers and positioning; pain, stroke, heart,
     back, bowel and bladder, and hand and leg care; and
     patient education and community education.  A newsletter,
     Independent, is published two to three times per year and
     contains about 30 percent external information of interest
     to disabled persons and others.  Sister Kenny Institute
     provides inservice training in all aspects of
     rehabilitation for insurance personnel.  For more
     information on Sister Kenny Institute, please call (612)
     863-4457.
     
     
     Sjogren's Syndrome Foundation Inc.
 382 Main Street
 Port Washington, NY  11050
 (516) 767-2866
 
     Disabilities Served:   Health problems related to
     Sjogren's syndrome (SS) and its many symptoms (dry eyes,
     mouth, etc).
     
     Users Served:  Individuals with Sjogren's syndrome, health
     professionals.
     
     The Organization:   The Sjogren's Syndrome Foundation,
     Inc., is a not-for-profit mutual aid organization whose
     purpose is to educate patients and their families and help
     them cope with the problems and frustrations related to
     this disease, to increase public and medical awareness
     about Sjogren's Syndrome, to stimulate medical interest
     and research to find better treatments, and to develop a
     cure for Sjogren's syndrome.
     
     Information Services:   The Sjogren's Syndrome Foundation
     Inc., publishes a monthly newsletter, The Moisture
     Seekers; a handbook, The Sjogren's Syndrome Handbook:  An
     Authoritative Guide for Patients ($19.95 plus $2.50
     shipping and tax); a basic information leaflet (also
     available in Spanish); and special articles related to SS
     problems.
     
     
     Small Business Administration (SBA)
 Special Projects Section
 Office of Business Loans
 1441 L Street, NW
 Washington, DC 20416
 (202) 653-6570
 
 Disabilities Served:  All handicaps of a permanent nature
     that make an individual competitively disadvantaged in the
     type business pursued. 
     
     Users Served:  Disabled persons, nonprofit organizations
     established to employ handicapped persons.
     
     The Organization:  The Small Business Administration (SBA)
     was established to encourage, assist, and protect the
     interests of small businesses.  Financial assistance is
     available through Handicapped Assistance Loans to small
     business concerns 100 percent owned or to be owned by
     handicapped individuals and to nonprofit organizations
     established to employ handicapped persons for not less
     than 75 percent of the man hours required for the direct
     production or services provided for sale by the
     organization.
     
     No financial assistance will be provided if funds are
     otherwise available from the applicant's own resources,
     from a private institution or from other Federal, State,
     or local programs, including SBA's Guaranty Loan Program.
     
     SBA may guarantee up to 90 percent, not in excess of
     $155,000 or 85 percent of loans up to an exposure of
     $750,000 for SBA, of a loan made by a private lending
     institution.  Direct loans by SBA have an administrative
     ceiling of $150,000.  Interest rates on direct loans are 3
     percent per year.  Interest rates on guaranteed loans are
     set by the participating lending institution and must be
     legal and reasonable and within a maximum allowable
     amount, which is set periodically by SBA.  No direct loan
     can be approved if a guaranteed loan is available. Direct
     loan funds are limited and are subject to the amount of
     congressional appropriations. 
     
     Information Services:   SBA provides information about the
     Handicapped Assistance Loan Program to any interested
     individual.  SBA has offices located in major cities where
     individuals can apply for information and other small
     business training.  For the addresses of these offices,
     write to the address above.
     
     
     Smith-Kettlewell Eye Research Institute
 Rehabilitation Engineering Center and
   Rehabilitation Engineering Service
 2232 Webster Street
 San Francisco, CA  94115
 (415) 561-1619
 
     Disabilities Served:   Blindness, low vision,
     deaf-blindness.
     
     Users Served:  Disabled adults and children,
     rehabilitation professionals, special educators.
     
     The Organization:   The Smith-Kettlewell Rehabilitation
     Engineering Center is a nonprofit research and development
     program within the Smith-Kettlewell Eye Research
     Institute.  The Center designs and builds electronic
     devices:  (1) as prototypes for eventual manufacture by
     industry, or (2) as research devices which the Center
     evaluates in terms of need and efficacy for the target
     consumers.  The program is funded by the National
     Institute on Disability and Rehabilitation Research.
     
     The Smith-Kettlewell Rehabilitation Engineering Service
     contracts to do custom design and fabrication of
     electronic devices on a fee-for-service basis.
     
     Both the Rehabilitation Engineering Center and the
     Rehabilitation Engineering Service focus on
     "low-technology, high-utility" devices.
     
     Information Services:  An Annual Report of Progress  is
     available from the Rehabilitation Engineering Center.  In
     addition, the Center publishes a subscription quarterly,
     The Smith-Kettlewell Technical File.  Intended for readers
     with at least moderate sophistication in electronics, this
     publication is available in braille, talking book
     cassette, and IBM 5-1/4" floppy disk.
     
     Smith-Kettlewell Rehabilitation Engineering personnel are
     available to answer questions concerning blindness and low
     vision, especially as related to technology.  They are
     also available to speak on these topics.
     
     
     Social Security Administration (SSA)
 6401 Security Boulevard
 Baltimore, MD  21235
 (301) 965-7700 (Voice)
 (800) 325-0778 (TDD)
 (800) 2334-5772 (Voice)
 
 Disabilities Served:   All handicaps.
     
     Users Served:   Persons with disabilities.
     
     The Organization:   The Social Security Administration
     (SSA) administers a national program of contributory
     social insurance that pays benefits when earnings stop or
     are reduced because a worker retires, dies, or becomes
     disabled.  Disability insurance (SSDI) provides a partial
     replacement of monthly earnings to disabled persons who
     meet work requirements for eligibility.  After 24 months
     of receiving benefits under SSDI, persons automatically
     qualify for hospital and medical insurance under medicare. 
     (Persons of any age who need kidney dialysis or kidney
     transplant for permanent kidney failure also may be
     eligible for medicare.  Medicare protection for these
     people starts with the third month after they begin
     maintenance dialysis.  Under certain conditions,
     protection can begin earlier).
     
     Supplemental Security Income (SSI), a noncontributory
     program financed out of general Federal funds, is also
     administered by SSA.  SSI provides monthly payments to
     indigent aged, blind, and disabled persons, without regard
     to prior employment, with limited income and resources.
     
     More than 1,300 local Social Security offices are
     responsible for processing applications and claims for
     SSDI and SSI programs; they also determine eligibility for
     medicare, although medicare claims are processed by
     independent contractors or carriers.
     
     Information Services:   The Social Security Administration
     operates a toll-free telephone number, 1-800-234-5772. 
     Callers can speak to a representative from 7:00 a.m. to
     7:00 p.m. weekdays.  Most Social Security business can be
     handled by phone.  People can, however, contact a local
     Social Security office.  SSA publishes some 50 booklets on
     its programs, including specialized programs for the
     disabled.  Those booklets and the Medicare Handbook are
     available, free of charge.  Some publications are
     available in braille and in Spanish.
     
     
     Society for the Advancement of Travel for the
 Handicapped (SATH)
 26 Court Street
 Brooklyn, NY  11242
 (718) 858-5483
 
 Disabilities Served:   All handicaps.
     
     Users Served:   Persons with disabilities seeking
     information on travel, organizations for and of
     handicapped people, travel-related industries personnel
     involved in providing travel and tourism services.  Those
     involved in recreational therapy.
     
     The Organization:   The Society for the Advancement of
     Travel for the Handicapped (SATH) is a nonprofit society
     (Tax exempt 501(c) 3) that offers advice and assistance in
     all matters relating to travel and tourism for handicapped
     persons.  Further, it acts as advocate for these people in
     matters relating to such travel and tourism before
     Congress, where it has had a seat on the Congressional
     Caucus on Travel and Tourism Advisory Board since its
     inception.
     
     In the international field, it has been an affiliate
     member of the World  Tourism Organization for the last 5
     years.  In 1985 as a result of pressure from the society,
     the World Tourism Organization set up a working party on
     travel and tourism for handicapped people, and SATH has
     chaired it since its inception.  As a result, the
     organization has added tourism for handicapped persons to
     its ongoing program and SATH has produced a Report on
     Tourism for Handicapped People and a Code of Conduct; the
     first of these was distributed to all members in early
     1988, and the second is in committee and will no doubt be
     accepted in 1991.
     
     Information Services:   SATH produces a regular travel
     newsletter for the handicapped traveler, SATH News, as
     well as information sheets on most types of travel-related
     problems of the handicapped tourist.  In 1985 it published
     a guide for handicapped visitors to the United States in
     conjunction with USTTA, Greyhound Bus Company and ASTA. 
     This is distributed both by SATH and the USTTA office
     overseas.  Other material includes information sheets on
     travel facilities available in a number of countries.
     
     
     Sociological Abstracts, Inc. (SAI)
P.O. Box 22206
San Diego, CA 92192
(619) 695-8803

     Disabilities Served:   All handicaps.
     
     Users Served:  Researchers, administrators, professionals.
     
     The Organization::  Founded in 1953 by a group of
     sociologists, Sociological Abstracts, Inc. (SAI) has
     continued to provide nonevaluative abstracts from core and
     relevant journal literature in sociology and related
     disciplines.  SAI's collection contains materials on the
     sociological aspects of handicapping conditions, including
     major diseases, mental illnesses, and physical
     disabilities, provided the authors are sociologists and/or
     the articles are written from the conceptual view of
     sociology.
     
     Information Services:  Researchers, administrators, and
     other users may obtain custom searches of SAI, including
     searches of pre-1963 records and of related data bases. 
     Cost estimates for these searches may be prepared in
     advance without obligation.
     
     In addition to Sociological Abstracts, SAI's major
     subscription journal, Linguistics and Language Behavior
     Abstracts (LLBA), is also available on a subscription
     basis.  This journal is devoted to linguistics and related
     disciplines, and its contents may be searched by SAI. 
     LLBA contains abstracts on learning disabilities from a
     large serial base.
     The following publications are also available from SAI:
     International Review of Publications in Sociology (IRPS),
     which lists abstracts of sociology books and book reviews
     published in sociology journals; Supplements, containing
     abstracts of papers presented at regional, national, and
     international meetings of sociologists; and Social
     Planning/Policy & Development Abstracts (SOPODA), SAI's
     new publication of nonevaluative abstracts in the three
     title areas.
     
     Searches of the SA, LLBA, SOPODA, and IRPS files are
     available online through DIALOG and BRS.  In Europe SA is
     available on Data-Star and DIMDI.  SA and SOPODA are
     offered on CD-ROM as Sociofile, from Silver Platter
     Information.
     
     
     Spina Bifida Association of America (SBAA)
1700 Rockville Pike
Suite 250
Rockville, MD 20852
(800) 621-3141
(301) 770-7222

     Disabilities Served:  Spina bifida, with related
     hydrocephalus.
     
     Users Served:  Parents, teachers.
     
     The Organization:  Organized in 1974, the Spina Bifida
     Association of America (SBAA) began and continues a
     primary emphasis on local parent and patient support
     groups.  Activities also include public education,
     research, advocacy, and sponsorship of an annual
     conference for professionals and lay persons on medical,
     social, educational, and legal issues relating to this
     disability.  A Medical Advisory Board identifies national
     medical needs and evaluates current medical advances,
     reporting on these to the membership.  The Professional
     Advisory Board for Education studies current educational
     programs for children with spina bifida.  SBAA continues
     to work closely with the National Easter Seal Society and
     the March of Dimes Birth Defects Foundation, and the
     American Academy of Pediatrics.
     
     Information Services:  Publications and public education
     materials are available through 100 local chapters in the
     United States and Canada; chapters also sponsor parent,
     teenage, and young adult support groups.  Publications
     include:  The Child with Spina Bifida;  Giant Steps for
     Steven; Introduction to Spina Bifida; El Nino Con Espina
     Bifida; You are Special - 
          ou're the One; The Needs of Children With Spina Bifida;
     Residential Issues for Today; a bimonthly newsletter,
     Spina Bifida Insights; and manuals for parents and
     teachers.  Material on organizing SBAA chapters, copy for
     radio spots, publicity and media presentations, and a
     directory of chapters can be requested.  There is a
     nominal charge; price lists will be mailed.  SBAA will
     make referrals to local chapters and/or treatment centers
     as necessary.  Video and audiotapes are available for
     rental or purchase. 
     
     
     Spinal Cord Society (SCS)
Wendell Road
Fergus Falls, MN  56537
(218) 739-5252

     Disabilities Served:  Spinal cord injury.  
     
     Users Served:  Disabled persons and their families,
     physicians interested in spinal cord treatment,
     neuroscientists.
     
     The Organization:  The Spinal Cord Society (SCS) is an
     international organization of persons with spinal cord
     injuries, their families and friends, and dedicated
     scientists and physicians who are all working toward the
     ultimate goal of cure through improved treatment methods
     and research.  The SCS raises funds to support a targeted
     research program aimed at nerve regeneration in the
     central nervous system.  The society also performs public
     awareness functions.  The SCS has over 200 chapters in the
     United States and in foreign countries.
     
     In addition to its support of reversal-oriented pure and
     applied medical research, the SCS maintains a data bank of
     chronic spinal cord injury case histories, which are
     continuously monitored for improving treatment and guiding
     research; this data and referral service is available to
     SCS members.  The case histories are used for screening
     patients for referral to other physicians or to the Spinal
     Center, based in the University of Minnesota Hospitals and
     Clinics.
     
     Information Services:  Brochures describing the activities
     of the Spinal Cord Society are available.  A newsletter,
     published monthly, contains up-to-date information on the
     latest treatments and research.  A subscription is
     included in the annual membership fee.  SCS also has a
     variety of films, available to chapters, service clubs,
     and other interested groups.
     
     Spinal Network
P.O. Box 4162
Boulder, CO  80306
(303) 449-5412
     
     Disabilities Served:   Paralysis:  spinal cord injury,
     multiple sclerosis, spina bifida, postpolio.
     
     Users Served:   People who use wheelchairs, physical
     rehabilitation professionals.  
     
     The Organization:  Spinal Network was formed in 1985 to
     provide a central data base for people who use wheelchairs
     to find answers, connections, and resources.  As a result
     of this organization, Spinal Network published Spinal
     Network:  The Total Resource for the Wheelchair Community,
     a 372-page resource guide.  They also sell and distribute
     a wide variety of books on all aspects of disability.
     
     Information Services:   Spinal Network publishes Spinal
     Network:  The Total Resource for the Wheelchair Community,
     a 372-page resource guide with chapters on medical
     information, sports and recreation, travel, computers, sex
     and romance, civil rights, a description of disability
     organizations in North America, and a State-by-State
     listing of resources.  It also publishes Spinal Network
     Extra, a quarterly magazine for people who use
     wheelchairs. 
     
     
     Stuttering Resource Foundation
123 Oxford Road
New Rochelle, NY  10804
(914) 632-3925
(800) 232-4775

     Disabilities Served:   Stuttering.
     
     Users Served:   Stutterers, parents of stutterers and
     children at risk of becoming stutterers, friends,
     relatives and employers of stutterers, teachers, speech
     pathologists, medical doctors, media (TV, radio, print),
     students (all levels call us for information and we have
     spoken to classes), community groups, libraries,
     psychologists, social workers.
     
     The Organization:   The Stuttering Resource Foundation was
     formed in October 1987.  Since its inception, the
     Stuttering Resource Foundation has  written and published
     a booklet, The Stutterer in the Classroom, which is being
     used as a guide throughout the United States and Canada;
     produced eight nationally televised public service
     announcements; appeared on a variety of television and
     radio shows; published quarterly editions of the
     newsletter; and begun work on a national directory of
     programs that deal with stuttering.  The foundation is
     presently in the process of organizing groups for parents
     of children who stutter or are at risk of stuttering.  All
     information is sent with no fee and no membership charge. 
     Each person who calls the foundation is sent a letter,
     suggesting possible professionals to contact, the name of
     the nearest support group(s), and any specific information
     relevant to their needs, as well as general information on
     stuttering.  Each person is automatically placed on the
     mailing list to receive Update and to be informed of
     further developments.  In addition, the foundation now
     keeps a list of individuals willing to participate in
     research for the National Institute of Deafness and
     Communication Disorders (NIDCD) of the NIH.
     
     Information Services:   The Stuttering Resource Foundation
     provides a teacher's guide, The Stutterer in the
     Classroom; a book for parents, Does Your Child Stutter? by
     Peter Ramig, Ph.D.; eight public service announcements
     (professional quality on 3/4" and 1" tape, as well as
     home, 1/2" copies); other pamphlets and brochures; a
     quarterly newsletter, Update; a listing of programs in the
     United States and Canada that deal with stuttering (soon
     to be a formal directory); a bibliography of all writings
     on stuttering during the past decade (done through a
     computer data search); and a listing of other
     organizations that deal with stuttering.
     
     
     Technical Aids and Assistance for the Disabled
Center
 (TAAD)
1950 West Roosevelt Road
Chicago, IL  60608
(312) 421-3373
(800) 346-2939
     
     Disabilities Served:   Visual, physical, and learning
     disabilities.
     
     Users Served:   Disabled persons, health care
     professionals, educators and general public.
     
     The Organization:   The Technical Aids and Assistance for
     the Disabled Center (TAAD) is an environment created by
     COPH-2 (Committee on Personal Computers and the
     Handicapped) to provide options in using personal computer
     technology to persons with disabilities.
     
     The TAAD Center provides advocacy and services with an
     emphasis and perspective on selection and application of
     microcomputers that is an alternative to the conventional
     approach of the rehabilitation network.  The center's
     approach allows the end users to make informed decisions
     as to which systems or devices best meet their needs. 
     This is accomplished by (1) providing hands-on use of
     various computers, adaptive aids, and software; (2)
     drawing upon consumer experiences via COPH-2 Bulletin
     Board; and (3) providing technical information through the
     collection and dissemination of printed materials,
     videotapes, and software and via the AppleLink data base. 
     Other services include equipment loans, workshops and
     product demonstrations, and advocacy before manufacturers,
     equipment dealers, rehabilitation providers, educators,
     and others.  The TAAD Center is a charter member of the
     Alliance for Technology Access (ATA).
     
     
     Technology Utilization Program (TU)
National Aeronautics and Space Administration (NASA)
500 Independence Avenue, SW
Washington, DC  20546
(202) 755-2420

     Disabilities Served:   All handicaps.
     
     Users Served:   Disabled persons, rehabilitation
     engineers, health care professionals, researchers.
     
     The  Organization:   The National Aeronautics and Space
     Administration (NASA) Technology Utilization Program (TU),
     as part of its mission, adapts aerospace technology to the
     development of equipment for the prevention of illness and
     the care of sick, handicapped, and elderly persons. 
     NASA's TU Program operates in areas from bioengineering to
     human services delivery.  Among the products that have
     been developed using aerospace technology are rechargeable
     pacemakers; portable cassette units for
     electrocardiograms; coin operated high blood pressure
     machines; a voice controlled wheelchair that responds to
     35 one-word commands; "Meals for the Homebound," food
     which can be easily prepared and is designed for mailing
     and long storage without refrigeration; a foldable walker
     designed for use on stairs; and a cardiology mannequin
     that can simulate 40 heart disease conditions with a high
     degree of realism for the education of medical students in
     cardiology.
     
     Information Services:   Information on manufacturers of
     technological innovations such as the ones listed above
     can be obtained by writing to NASA's Scientific and
     Technical Information Facility, TU Office, P.O. Box 8756,
     Baltimore-Washington International Airport, Baltimore, MD 
     21240,  (301) 859-5300, ext. 210.  Also available is a
     general brochure that describes many of the technical
     products from NASA's TU Program entitled, Technologies for
     the Handicapped and the Aged.  NASA Tech Briefs, a free
     indexed quarterly journal utilized by the United States
     engineering community and other professionals, describes
     innovations.  NASA SP's, a series on complex technological
     advances, are also available.
     
     Other services sponsored by the NASA TU Program are
     available through the Industrial Applications Centers,
     which provide access to the world's largest depository of
     technical data; the State Technology Application Centers
     (STAC), which apply technology to specific needs in
     States; and NASA's Computer Software and Management
     Information Center (COSMIC), which makes selected computer
     programs from NASA available to engineers and researchers.
     
     
     Tel-Med, Inc.
National Headquarters
952 South Mt. Vernon Avenue
P.O. Box 1768
Colton, CA  92324
(714) 825-6034
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Disabled persons and their families,
     general public.
     
     The Organization:  Tel-Med is a library of tape-recorded
     health care messages, which are disseminated nationwide to
     over 370 hospitals, medical societies, universities, and
     other agencies that are licensed to sponsor Tel-Med
     programs.  Licensees set up telephone lines to communicate
     taped messages to the public.  An individual calls,
     selects a tape, and an operator plays the appropriate
     message.  The 3- to 5-minute tapes are written by
     physicians and other health care specialists and are
     reviewed periodically to insure that they contain the most
     current information on the subject.  Tapes are also
     reviewed by local community medical boards of the
     sponsoring agents. 
     
     Information Services:  Tel-Med's library consists of more
     than 600 tapes on health care subjects.  Of specific
     interest to handicapped persons are Tel-Med's series of
     tapes on diabetes, eye care and hearing, and cancer. 
     Tel-Med also produces tapes on arthritis-rheumatism, cleft
     lip and palate, cystic fibrosis, muscular dystrophy,
     sickle cell anemia, multiple sclerosis, brain damage
     recovery, Social Security, and SSI and State disability
     insurance.  The selection of tapes available varies among
     licensees.
     
     Tel-Med sends organizational brochures, including
     information on licensing procedures, and a list of Tel-Med
     licensees, upon request.  Tel-Med publishes a newsletter
     for licensees and will provide them with copies of
     resources used to document the tape.
     
     
     Tele-Consumer Hotline
1910 "K" Street, NW
Suite 610
Washington, DC  20006
(800) 332-1124 (Voice/TDD)
(202) 223-4371 (Voice/TDD)
     
     Disabilities Served:   Hearing, speech, cognitive, motion,
     and vision impairments.  Focus is on people who have an
     inquiry or challenge related to use of the telephone.
     
     Users Served:   Disabled persons and their associates
     (friends, family, and co-workers), rehabilitation
     professionals, information specialists, etc.
     
     The Organization:   The Tele-Consumer is a nonprofit,
     independent consumer information service established in
     1984 to assist consumers through the changes in telephone
     services that resulted from the breakup of the phone
     company.  It receives financial and technical support from 
     AT&T Communications, Pacific Bell, Bell Atlantic,
     Southwestern Bell Telephone, South Central Bell, and
     NYNEX.
     
     Information Services:   The Special Needs Program was
     established to meet the unique information needs of
     persons with disabilities.  Publications include a
     comparison chart of TDD/Voice relay services throughout
     the country, a Shoppers Guide to special telephone
     equipment (listing available devices, distributors, and
     prices), a list of TDD directories throughout the United
     States, and much more.
     
     The hotline also provides free telephone assistance and
     publications on topics such as how to select a long
     distance company, how to select a phone, how to save money
     on your phone bill, what to do when your phone doesn't
     work, where to complain about telemarketing fraud, and
     many other issues.
     
     Telecommunications for the Deaf, Inc. (TDI)
814 Thayer Avenue
Silver Spring, MD  20910
(301) 589-3786 (Voice/TDD)
(301) 589-3006 (TDD)
 
     Disabilities Served:  Deafness, hearing impairments,
     deaf-blindness, and speech impediments.
     
     Users Served:  Disabled persons, parents, teachers, people
     with normal hearing and speech, general public with
     telecommunications interests and concerns.
     
     The Organization:  Telecommunications for the Deaf, Inc.,
     (TDI) serves members, people with deafness and hearing
     impairments, and the general public with their needs of
     telecommunications by providing public information about
     telecommunications and deafness/hearing impairment,
     assuring equal access to telecommunications technologies
     and services, supporting legislation affecting
     Telecommunications Devices for the Deaf (TDD) users, and
     monitoring telecommunications issues and concerns across
     the country.
     
     Information Services:  TDI publishes the International
     Telephone Directory of TDD Users, annually, which includes
     the TDD numbers of Federal, State, local agencies,
     businesses and organizations that serve deaf and
     hearing-impaired persons.  TDI also publishes GA-SK
     Newsletter quarterly for TDI members.  Nominal dues
     entitle members to the directory and GA-SK Newsletter.
     
     
     The Telephone Pioneers of America (TPA)
22 Cortlandt Street
25th Floor
New York, NY  10007
(212) 393-4397
     
     Disabilities Served:   All disabilities.
     
     Users Served:   Individuals and community agencies.
     
     The Organization:   The Telephone Pioneers of America
     (TPA) is an industry-related volunteer organization.  The
     TPA is a nonprofit association, and its membership
     comprises more than 800,000 long-term and retired
     employees of the telecommunications industry.  The
     organization has 104 chapters in 12 regions in the United
     States and Canada.
     
     Information Services:   The TPA provides numerous
     services, in many cases using technical skills of
     volunteers gained on the job and applying them toward the
     needs of disabled people.  Pioneers invented the game of
     beep baseball, a variation of softball played with a
     beeping ball that enables visually impaired people to
     participate.  The TPA continues as the sole manufacturer
     of beep baseball equipment.  In 1961, the U.S.  Library of
     Congress designated Pioneers as the official repair
     organization for the talking book program.  Talking books
     are recording machines that enable visually impaired
     people to hear what they cannot read.   A variety of
     devices, such as telephones, doorbells and smoke
     detectors, have been designed to substitute light signals
     for the conventional tones as an aid for hearing impaired
     people.  The TPA also improves access to recreation areas
     by constructing ramps and refitting playgrounds.  Another
     recreational device made by Pioneers is the hand-operated
     tricycle (HOT).  HOT trikes are made for children who
     cannot use their legs but who can power the trike by
     pumping handlebars designed with a crank mechanism.
     
     
     Terri Gotthelf Lupus Research Institute
50 Washington Street
South Norwalk, CT  06854
(203) 852-0807
(800) 825-8787

     Disabilities Served:   Lupus.
     
     Users Served:   Those affected by lupus and the general
     public seeking information on the disease.
     
     The Organization:   The Terri Gotthelf Lupus Research
     Institute was founded to help the millions of lupus
     victims in the world and to encourage, coordinate, and
     direct future progress in the etiology, diagnosis, and
     treatment of this disease.  The institute's primary
     emphasis is to grant Lupus Research Scholar Awards to
     clinicians and scientists interested in the
     multidisciplinary aspects of lupus to carry out 3-year
     projects under the direction of senior scientists at
     leading lupus research facilities.  The institute also
     provides informational services to the public and to those
     affected by lupus through a national hotline service,
     through informational publications in the national media
     and press, and through public service announcements. 
     Other activities include the publishing of materials that
     bring to the attention of clinicians, scientists, and the
     public new accomplishments in lupus research; the
     convening of scientific meetings to bring together
     clinicians and scientists from various fields related to
     lupus; and the dissemination of data, information, and
     publications on various aspects of lupus.
     
     Information Services:   The institute provides a national
     hotline service; a journal; newsletters; and a pamphlet on
     the symptoms of lupus, Lupus:  The 11 Quiet Alarms.
     
     
     Tourette Syndrome Association (TSA)
42-40 Bell Boulevard
Bayside, NY  11361
(718) 224-2999
     
     Disabilities Served:   Gilles de la Tourette syndrome
     (TS).
     
     Users Served:   Disabled persons, parents, teachers,
     physicians, other health care and educational
     professionals.
     
     The Organization:   Established in 1972 by patients and
     their families, the Tourette Syndrome Association (TSA)
     offers information and moral support to others affected by
     this condition through its approximately 50 chapters in
     the United States, Canada, and Europe.  Tourette syndrome
     is a neurological movement disorder, characterized by
     rapidly repetitive multiple movements called "tics" and
     involuntary vocalizations.  Neuropsychiatric symptoms that
     characterize this genetic disorder appear in childhood and
     may be misdiagnosed for an average of 10 years, creating
     severe psychological damage in the patient and family. 
     For this reason, association activities emphasize early
     identification and treatment.  Education of professionals
     as well as the general public is conducted through
     publications and the media to alert physicians and
     families to the signs and symptoms of the syndrome.  Since
     the cause and cure are not known, the association supports
     medical research through grant awards, fundraising, and
     solicitation of autopsy brain tissue for the TSA Brain
     Bank.
     
     Information Services:   As the only clearinghouse of
     information on TS, the association maintains a current
     referral file of physicians throughout the country who are
     working with patients.  Exhibits are held at medical
     conventions each year to acquaint more physicians with
     current research and treatment.  The TSA Newsletter
     reports on medical progress throughout the world as well
     as on activities of local chapters.  Lists of insurance
     companies, TS chapters, bibliographies and article
     reprints for professionals and patients, membership
     information, and public education films and tapes, "Stop
     It! I Can't," "I'm a Person, Too," "Tourette Syndrome:  A
     Guide to Diagnosis ," "TS:  A Panel of Experts," "Tourette
     Syndrome:  The Parent's Perspective--Diplomacy in Action,"
     "The Gift of Hope," and "Talking About TS" are available
     on request.  Recent publications focus on making Tourette
     syndrome understandable to the school nurse, special
     educator, the school psychologist, and service providers. 
     A pamphlet is available in Spanish and French. 
     Publications are available for a nominal charge.
     
     
     Trace Research and Development Center on
Communication,
 Control and Computer Access for Handicapped
Individuals
S-151 Waisman Center
1500 Highland Avenue
Madison, WI  53705
(608) 262-6966 (Voice)
(608) 263-5408 (TDD)

     Disabilities Served:  Physical disabilities, speech and
     language disorders (all disabilities served in the area of
     computer access).
     
     Users Served:   Disabled persons, parents, teachers,
     physicians, physical therapists, occupational therapists,
     speech pathologists, rehabilitation engineers, and
     researchers.
     
     The Organization:   The Trace Center was formed in 1971 to
     address the communication problems faced by nonvocal
     severely disabled children and adults.  The Center is
     primarily concerned with research and development in the
     areas of augmentative communication (conversation and
     writing) and computer access for individuals with physical
     disabilities.  In 1983, it received a grant from the
     National Institute of Handicapped Research to conduct
     research as a Rehabilitation Engineering Center.  The
     Center does not manufacture or distribute equipment but
     will make referrals to specific sources of information
     regarding equipment, software, service centers, related
     professionals, and other information networks.  Current
     projects involve efforts to make standard computer
     hardware and software accessible to disabled individuals;
     to standardize electronic communication aids, which will
     provide compatibility between devices from different
     manufacturers; and to develop interfaces, which allow
     disabled individuals to use nonstandard input devices to
     access standard computers.
     
     Information Services:   The Trace Center publishes
     brochures and pamphlets on a variety of topics in the
     areas of funding resources, augmentative communicative
     principles and systems, and information on microcomputers
     and computer access for disabled persons.  The Center
     further aims to meet its objectives of commercial
     facilitation and information dissemination through a
     series of workshops, articles available through the
     Reprint Service, and the development and updating of
     publications.  Publications include Trace Resource Book, a
     reference volume listing and describing currently
     available products for communication, control, and
     computer access for people with disabilities.  Information
     on specific aids available, software and hardware,
     manufacturers, and other resources is provided to
     individuals, parents, educators, researchers, and
     clinicians.  All information is available in alternative
     formats for people unable to read or handle print
     materials.  Audiovisuals covering equipment development in
     the areas of augmentative communication and computer
     access, training materials, and perspectives on the
     disabled population are available.  There is a nominal
     charge for most materials  from the Center and from the
     Reprint Service, which operates on a cost recovery basis.
     
     
     Traumatic Brain Injury Research/Education
Association
 (TBI Association)
25432 Seventh
Grosse IIe, MI  48138
(313) 671-8366

     Disabilities Served:   All disabilities associated with
     head injury and related neurological disorders.
     
     Users Served:   Health care professionals, and providers
     of services and products.
     
     The Organization:   The Traumatic Brain Injury
     Research/Education Association (TBI Association) is a
     nonprofit, multidisciplinary organization of professionals
     providing services and products to brain-injured persons
     and their families.  The TBI was founded to encourage
     research and education on the causes, prevention, and
     treatment of traumatic brain injury; provide a forum for
     exchange of information and ideas among providers of
     service and treatment; formulate and support the highest
     possible standards of care of brain trauma patients; and
     provide continuing growth and development of professionals
     furnishing services and products.
     
     Case management services are available from the TBI
     Association to disabled persons and family members within
     the State of Michigan.  Referrals to appropriate programs,
     treatment facilities, and health care professionals are
     made nationwide.
     
     Information Services:   The TBI Association publishes a
     bimonthly newsletter which contains information about
     people and products, abstracts, new products and
     resources, classified ads, monograph listings, and a
     comment section.  A quarterly journal covers research
     findings, field reports, features, book reviews, letters
     and reports on treatment programs, and techniques.  Both
     publications are available by subscription.
     
     TBI Association members are invited to participate as
     presenters, faculty members and/or registrants at
     conferences and seminars, including international
     travel/education events.  Other services offered to
     members include data and literature search through the
     association's computer link-ups, a monograph distribution
     service and computer program exchange, a consultant's
     listing (for members wishing to provide consulting
     services in their areas of expertise), an information and
     referral file, an abstract service, and research grants,
     as they become available.  Both individual/professional
     and corporate memberships are available.  Members receive
     information services at cost; there is a small fee for
     nonmembers.   
     
     
     Travel Information Service
Moss Rehabilitation Hospital
1200 West Tabor Road
Philadelphia, PA  19141
(215) 456-9600 (Voice)
(215) 456-9602 (TDD)

     Disabilities Served:  Physical disabilities.
     
     Users Served:  Disabled persons and their families, travel
     organizations and agencies, and health care professionals.
     
     The Organization:  Moss Rehabilitation Hospital's Travel
     Information Service collects and disseminates worldwide
     travel accessibility information to requestors in the
     United States and abroad.
     
     Information Services:  The Travel Information Service
     prepares information packages on accessible travel from
     material in its files and mails them to requestors. 
     Referrals are made by telephone, by mail, or in person to
     appropriate travel information resources that can assist
     disabled people in planning a trip.  There is a nominal
     charge for materials to cover postage and handling.
     
          TRIPOD GRAPEVINE
2901 North Keystone Street
Burbank, CA  91504
(818) 972-2080 (Voice/TDD)
(800) 352-8888 (Voice/TDD)
(800) 2-TRIPOD (Voice/TDD California Only)
     
     Disabilities Served:   Deaf.
     
     Users Served:   Parents and professionals.
     
     The Organization:   The purpose of the TRIPOD GRAPEVINE is
     to assist families concerned with the vital issues that
     arise when rearing a deaf or hard of hearing child (i.e.,
     family acceptance, emotional well-being, education, social
     skills, legal rights, vocational/career education
     opportunities, etc.).  Since there is no one encompassing
     answer in deafness, each of our responses is individually
     researched to provide unbiased up-to-date information.
     
     Information Services:   When a family with a deaf or hard
     of hearing child needs someone to listen, an idea, an
     article to read, or the name of someone nearby with a
     similar experience, TRIPOD's GRAPEVINE is just a phone
     call away.  TRIPOD has a National Advisory Board of
     experts in deafness and child development.  In addition,
     TRIPOD has developed extensive files, which can be used
     researching responses to specific questions.  The files
     are constantly updated.
     
     TRIPOD also loans and sells an award-winning videotape
     "Language Says It All" and Part II, "Once Upon a Time".
     
     "Language Says It All" focuses on how four families come
     to understand and fulfill their deaf child's need for
     language.  Mothers and fathers speak candidly about their
     feelings, the effect on brothers and sisters, and the
     frustrations of finding new ways to communicate.
     
     "Once Upon a Time", Part II of "Language Says It All,"
     reminds us how important storytime is to parent and child. 
     Michael's dad and Loren's mom describe how they felt when
     they didn't know "the sign" and share what they did.
     
     Sense is a quarterly newsletter with articles about child
     development, speech, and sign of interest to parents and
     professionals sent to individuals who request it.
     
     
     United Cerebral Palsy Associations, Inc. (UCPA)
1522 K Street, NW
Suite 1112
Washington, DC  20005
(202) 842-1266
(800) USA-5UCP
     
     Disabilities Served:   Cerebral palsy and other severe
     physical disabilities.
     
     Users Served:   Persons with cerebral palsy and others
     with severe disabilities and multiple services needs, and
     the families of both.
     
     The Organization:   The United Cerebral Palsy
     Associations, Inc. (UCPA) is a national network of over
     170 local affiliates in 45 States.  The mission of UCPA is
     to affect positively the quality of life for persons with
     cerebral palsy and also others with severe disabilities
     and multiple service needs and the families of both and to
     prevent cerebral palsy and minimize its effect.  UCPA is a
     dynamic network of people committed to the following
     purposes:  to assure the rights and entitlements of
     persons with disabilities; to equip and enable individuals
     with cerebral palsy and other severe disabilities to
     obtain the fullest possible employment, productivity, and
     participation in an integrated community; to support
     freedom of choice by assuring multiple options in daily
     living; to provide a continuity of quality human services;
     to improve living conditions in all circumstances; to
     present factual material for the awareness and
     understanding of all segments of the public; to involve
     persons with cerebral palsy and also others with severe
     disabilities in decision-making processes affecting their
     lives; and to mobilize human and financial resources to
     accomplish the above.
     
     Information Services:   UCPA provides information,
     materials, and training to inform individuals with
     disabilities and their families about laws and regulations
     as well as appropriate programs and services and to
     empower them to translate laws into practice.  UCPA
     produces four publications--Word from Washington, Family
     Support Bulletin, The Networker, and Affiliate
     Update--plus other materials to promote community
     awareness and improve public attitudes about the
     capabilities and contributions of individuals with
     disabilities.
     
          United Leukodystrophy Foundation (ULF)
2304 Highland Drive
Sycamore, IL  60178
(815) 895-3211
(800) 728-5483

     Disabilities Served:   Leukodystrophy.
     
     Users Served:   Families and professionals concerned with
     leukodystrophy.
     
     The Organization:   The purposes of the United
     Leukodystrophy Foundation (ULF) are to provide
     information, assist in identifying resources, coordinate a
     communication network among families, increase public
     awareness, and promote research.
     
     Information Services:   ULF provides a brochure, a
     quarterly newsletter, disease specific materials, and an
     annual national conference.
     
     
     United Parkinson Foundation (UPF)
360 West Superior Street
Chicago, IL  60610
(312) 664-2344
 
     Disabilities Served:  Parkinson's disease.
     
     Users Served:  Disabled persons and their families, health
     care professionals.
     
     The Organization:  The United Parkinson Foundation (UPF)
     is a membership organization for Parkinson's disease
     patients and their families.  UPF assembles information
     about the disease and disseminates it to members and
     nonmembers alike.  UPF also gives financial assistance to
     scientists who are studying the disease.
     
     Information Services:  Booklets on exercise, research, and
     therapies are available at no cost to Parkinson's disease
     patients and their families; and the information in the
     booklets is supplemented by UPF's quarterly newsletter. 
     This information is also available to nonpatients;
     subscription cost is $25 per year.  The organization
     maintains a national list of diagnostic, treatment, and
     rehabilitation centers for the patient, and it can provide
     the names of retail outlets for obtaining prosthetic
     devices and special equipment.  At the request of the
     patient, UPF will contact the patient's employer to
     explain Parkinson's disease and the work limitations, if
     any.  UPF sponsors scientific symposia on Parkinson's
     disease for lay audiences.  Professionals are permitted
     onsite use of UPF's collection of reprints of scientific
     papers.
     
     
     United Scleroderma Foundation, Inc. (USF)
P.O. Box 350
Watsonville, CA 95077-0350
(408) 728-2202

     Disabilities Served:  Scleroderma.
     
     Users Served:  Disabled persons and their families,
     physicians, rheumatologists and dermatologists, other
     health care professionals.
     
     The Organization:  The mission of the United Scleroderma
     Foundation (USF), a nonprofit organization established in
     1975, is to provide educational and emotional support for
     scleroderma patients and their families.  The USF is
     committed to increasing awareness of this devastating
     disease and raising essential research dollars to
     determine its cause, enhance treatment, and find a cure. 
     There are USF chapters throughout North America.
     
     Scleroderma literally means hard skin.  Localized
     scleroderma involves the skin and subcutaneous tissues;
     systemic scleroderma, which is more serious, can affect
     the entire body system.
     
     Information Services:  The foundation disseminates
     pamphlets on scleroderma and its various manifestations,
     the Scleroderma Handbook for patients, and the Scleroderma
     Digest.  Members receive a quarterly newsletter, which
     reports on medical treatment, research, chapter news,
     workshop information, and helpful hints.  Many chapters
     also publish quarterly or monthly newsletters and offer
     accredited workshops.   Membership (dues charged) entitles
     the donor to a full literature packet and four
     newsletters; otherwise there is a nominal charge for
     publications.  Brochures are available in Spanish.  USF
     will refer patients and their families to physicians in
     their areas and to a local chapter if available.
          U.S. Bureau of the Census
Customer Services
Washington, DC  20233
(301) 763-4100 (General Information)
(301) 763-8300 (Disability Data Information)
     
     Disabilities Served:   Data published on disability.
     
     Users Served:   All persons interested in statistics on
     population, housing, business, government, and other areas
     covered in Census Bureau data products.
     
     The Organization:  The Bureau of the Census is the
     principal statistical agency of the Federal Government. 
     It collects the population and housing census every 10
     years, economic censuses every 5 years, and a variety of
     monthly, quarterly, and annual surveys.  The Census Bureau
     collects information by asking questions of households,
     businesses, and governments.  It also prepares estimates
     and projections of the population.  The results appear in
     over 2,000 reports and other data products a year covering
     a wide variety of topics and geographic areas.  For
     complete information on Census Bureau products and
     services, see the annual Census Catalog and Guide.  The
     monthly newsletter, Census and You, is also a useful
     source of information.  Contact Customer Services for
     information on how to order.
     
     Information Services:  The Census Bureau issues disability
     statistics in printed reports, microfiche, computer tape,
     and other media.  The statistics include data from the
     1990 census (to become available beginning in 1992) on
     work disability, mobility limitations, and self-care
     limitations; the 1980 census on work disability and public
     transportation disability; the Current Population Survey
     (occasional P-23 series reports) on work disability; and
     the Survey of Income and Program Participation (SIPP;
     various P-70 series reports) on functional limitations,
     need for assistance, children's disability status,
     conditions causing disability, and limitations on major
     life activities.
     
     University Microfilms International (UMI)
300 North Zeeb Road
Ann Arbor, MI 48106
(313) 761-4700
(800) 521-0600 (For Information)
(800) 521-3042 (For Ordering)
     
     Disabilities Served:  All handicaps.
     
     Users Served:  Researchers, health care professionals,
     teachers.
     
     The Organization:  University Microfilms International
     (UMI) was founded in 1938 to provide researchers with
     difficult-to-obtain books and articles.  Its publications
     include dissertations, masters theses, books, periodicals,
     and monographs, which are printed, photocopied, or
     microfilmed.  UMI also operates information retrieval
     systems to access the more than one million published
     dissertations accepted at North American colleges and
     universities.  Recently this program has been broadened to
     include some foreign universities.
     
     Information Services:  Customers may order searches of
     UMI's Comprehensive Dissertation Database.  Computer
     printouts delivered to the user include the dissertation
     title, author, advisor, page and volume reference to
     Dissertation Abstracts International (DAI), and UMI
     monthly publication giving concise author-prepared
     summaries of dissertations.
     
     Users may also consult the Comprehensive Dissertation
     Index (CDI), which gives bibliographic information on
     almost every doctoral dissertation accepted in North
     America since 1861.  CDI contains more than 5,000 titles
     on deafness, blindness, mental retardation, birth defects,
     special education, rehabilitation and other disabling
     conditions, and related subjects.  Users with computer
     terminals may access CDI directly through arrangement with
     BRS Information Technologies or DIALOG (see separate
     entries).
     
     UMI also has several research collections in health
     available on microfiche including the National
     Rehabilitation Information Center's Rehabilitation &
     Handicapped Literature collection.
     
     Urban Mass Transportation Administration (UMTA)
400 7th Street, SW 
Room 9314
Washington, DC  20590
(202) 366-4043
     
     Disabilities Served:   All disabilities.
     
     Users Served:   General public.
     
     The Organization:   The Urban Mass Transportation
     Administration more commonly known as UMTA, is one of nine
     major agencies housed within the U.S. Department of
     Transportation.  Headed by an administrator appointed by
     the President (with the advice and consent of the Senate),
     UMTA administers a program of financial assistance for the
     providers of urban and rural public mass transportation. 
     The Urban Mass Transportation Administration Act of 1964,
     as amended, is the statutory authority for UMTA's
     programs.
     
     UMTA functions through a Washington headquarters office,
     plus 10 regional offices in cities from coast-to-coast,
     all operating under principles contained in a National
     Transportation Policy released by President George Bush on
     March 8, 1990.
     
     The areas of research and technical assistance within the
     UMTA program have seen considerable evolution during the
     agency's short history.  While originally motivated by a
     desire to deploy new technologies developed by America's
     space program into a mass transit environment, in more
     recent years the program has evolved into more
     policy-oriented work aimed at evaluating current
     methodologies, providing stable and reliable sources of
     data and information, and conducting demonstrations in
     improved management techniques.  UMTA's technical
     assistance efforts have also been used to assist mass
     transit operators comply with new requirements and
     responsibilities they must meet in such areas as reduced
     vehicle emissions, accessibility for disabled persons, and
     a whole range of issues in the general area of civil
     rights.
     
     Information Services:   Contact UMTA for additional
     information.
     
     Very Special Arts (VSA)
1331 F Street, NW
Suite 800
Washington, DC  20004
(202) 628-2800 (Voice)
(202) 737-0645 (TDD)
     
     Disabilities Served:  All disabilities.
     
     Users Served:   Individuals with disabilities, parents,
     teachers and other service providers through a national
     and international network of VSA affiliates.
     
     The Organization:   Very Special Arts (VSA) is an
     educational affiliate of the John F. Kennedy Center for
     the Performing Arts in Washington, DC.  Founded in 1974, 
     Very Special Arts (formerly National Committee on Arts for
     the Handicapped) coordinates arts programs and festivals
     for people with physical and mental disabilities.  Very
     Special Arts programs are implemented through a network of
     local, State, and national organizations, including
     educational and cultural institutions, arts agencies,
     associations for disabled people, and health and
     rehabilitation organizations.  These groups work in turn
     with parents, teachers, volunteers, trainers, artists,
     health specialists, and other experts to develop talents
     and skills in participants of all ages, from preschoolers
     to senior citizens.
     
     Information Services:   Published materials about model
     programs and demonstration projects are available at a
     nominal charge through the VSA National Office.  Contact
     information for individual VSA State and international
     programs is also available through the VSA National
     Office.
     
     
     VISION Foundation , Inc.
818 Mt. Auburn Street
Watertown, MA 02172
(617) 926-4232
(800) 852-3029 (Massachusetts Only)

     Disabilities Served:   Blindness, visual impairment.
     
     Users Served:    Disabled persons, optometrists,
     ophthalmologists, social workers.
     
     The Organization:   VISION Foundation, Inc., is a
     self-help organization whose primary goal is to assist
     persons with sight loss in adjusting to their disability
     and receiving services.  In addition to the information
     and referral program described below, support services are
     available to persons in Massachusetts through self-help
     groups.
     
     Information Services:   The foundation operates a
     nationwide information center,  which handles inquiries on
     the availability of large print materials and aids and
     appliances, Social Security and other benefits and
     services, travel, housing, employment, recreation, and
     other areas.  The foundation also distributes materials in
     large print, braille, and recorded formats, such as
     catalogs, self-help tapes, and brochures.  VISION Views,
     the foundation's annual newsletter, is available in large
     print and on cassette.  Coping with Sight Loss:  The
     VISION Resource Book may be purchased in large print.  A
     VISION Resource List available in large print and on
     cassette, an annual listing of more than 150 brochures,
     pamphlets and catalogs, is available free of charge; there
     is a handling fee for items ordered.  While the foundation
     primarily serves disabled consumers, professionals working
     with visually impaired persons will find these
     publications of interest.  VISION Resource Update is a
     newsletter published bimonthly, on cassette and in large
     print; it is a membership benefit.
     
     
     Visiting Nurse Associations of America (VNAA)
3801 East Florida Avenue
Suite 206
Denver, CO  80210
(303) 753-0218
(800) 426-2547

     Disabilities Served:  All disabilities approved for home
     care services by attending physician.
     
     Users Served:  Disabled persons, health care
     professionals, general public.
     
     The Organization:  Visiting Nurse Associations of America
     (VNAA) is a coalition representing nonprofit
     community-based home health care providers.  By calling
     our 800 line you can obtain the name, address, and
     telephone number for any of the 443 visiting nurse
     organizations in the United States. Visiting nurse
     agencies offer a wide range of community-based services,
     including home care, hospice, infusion care, specialized
     pediatric and maternal/child care programs, enterostomal
     therapy, and other specialized nursing services, as well
     as physical, speech and occupational therapy.  In addition
     to skilled services, VNA's provide personal care,
     homemaking, social services, nutritional counseling and
     friendly visiting. 
     
     Information Services:  VNAA maintains a toll-free number
     for patient referral.
     
     
     Vocational Evaluation and Work Adjustment
Association
 (VEWAA)
National Rehabilitation Association
633 South Washington Street
Alexandria, VA  22314
(703) 836-2209

     Disabilities Served:   All disabilities.
     
     Users Served:   Vocational evaluators, work adjustment
     specialists.
     
     The Organization:   Vocational Evaluation and Work
     Adjustment Association (VEWAA) is a nonprofit professional
     association founded in 1967 to promote the professions and
     services of vocational evaluation and work adjustment. 
     VEWAA is a division of the National Rehabilitation
     Association.  It comprises membership that provides
     services to disabled and nondisabled people who need
     assistance with vocational development or career
     decision-making.
     
     The national association supports the activities of almost
     50 State chapters and 7 regional chapters.  Individual
     members provide vocational assessment and adjustment
     services within a variety of settings, such as
     rehabilitation, vocational and special education,
     corrections, job training and manpower development,
     employment and career development, industrial and personal
     injury, welfare and homeless programs, and business and
     industry.
     
     Through the commitment of its members, VEWAA provides a
     variety of professional development activities; conducts a
     biannual national Issues Forum; and consults with and
     gives guidance to accreditation bodies at national and
     State levels, etc.
     
     Information Services:   Contact organization for
     information.
     
     Voice Indexing for the Blind, Inc. (VIB)
7420 Westlake Terrace 
Suite 203
Bethesda, MD  20817
(301) 469-9470
     
     Disabilities Served:  All disabilities that make it
     difficult or impossible to use printed reference
     materials.
     
     Users Served:  Disabled persons, teachers, librarians and
     agencies serving the blind and visually handicapped.
     
     The Organization:  Voice Indexing for the Blind (VIB) is a
     nonprofit organization of volunteers devoted to increasing
     access by print-handicapped persons to publish reference
     works and informal personal files, address lists, recipes,
     etc. through a technique called voice indexing.  Voice
     indexing provides "headlines" to direct the blind reader
     to specific portions of recorded material.  Using a
     4-track cassette player, the tape is scanned at "fast
     forward" speed by index term, thus saving much time in
     locating items within a reference work or in less formal
     personal files.  VIB is involved in developing procedures
     for voice indexing, instructing individuals and groups in
     the technique, publishing a list of voice-indexed
     materials that are generally available and preparing
     voice-indexed recordings of reference materials on
     contract for wide distribution.
     
     Information Services:  VIB produces a brochure which gives
     an introductory description of the nature and purpose of
     voice indexing and procedures for informal sequential
     voice indexing.  Other publications available include
     Voice Indexing Manual, a detailed technical procedure for
     producing voice-indexed cassettes, and Voice-Indexed
     Cassettes:  A List of Titles that are Generally Available
     (1990 edition in preparation).  VIB will consult by
     letter, phone, or in person on the suitability of
     materials for the voice indexing and methods of doing the
     voice indexing.  There is a nominal fee for consultation
     and/or preparation of voice-indexed tapes and for the
     manual.  Most cassettes that VIB produces have braille
     labels.  The bibliography is widely distributed on a
     voice-indexed cassette.
     
     
     Williams Syndrome Association
1611 Clayton Spur Court
Ellisville, MO  63011
(314) 227-4411
     
     Disabilities Served:  People with Williams syndrome.
     
     Users Served:  Families of children with Williams
     syndrome, Williams syndrome adults; educational and
     medical professionals with Williams syndrome clients.
     
     The Organization:  The Williams Syndrome Association was
     established in 1983 to provide support and assistance to
     families with the Williams child and to provide
     professionals with access to groups of Williams
     individuals for possible study.  The association's goals
     are also to locate those other Williams families unaware
     of the association; to become a visable group in the
     medical, scientific, educational and professional
     communities in order to facilitate referrals of newly
     diagnosed individuals; and to encourage medical and
     behavioral research aimed at finding the cause of Williams
     syndrome in order to improve methods of social integration
     of the Williams individual.
     
     Information Services:  The association publishes the
     Williams Syndrome Newsletter every 2 months along with a
     brochure, Facts About Williams.  A handbook, Handbook for
     Parents/Handbook for Teachers, is available for a small
     fee.  An audiovisual library of past meetings and
     conventions and a print library of articles dealing with
     Williams syndrome are also available.
     
     
     Wilson's Disease Association
P.O. Box 75324
Washington, DC  20013
(703) 636-3014 or
(703) 636-3003

     Disabilities Served:  Wilson's disease and Menkes'
     syndrome.
     
     Users Served:  Disabled persons, parents, physicians and
     other health care professionals, genetic counselors, and
     social workers.
     
     The Organization:  The Wilson's Disease Association is a
     nonprofit self-help and advocacy group whose main purpose
     is to give aid and support to the families and victims of
     Wilson's disease and related diseases.  Wilson's disease
     is a rare genetic disorder characterized by excess storage
     of copper in the body tissues, particularly in the liver,
     kidneys, brain, and corneas of the eyes.  The association
     fosters research, disseminates information, disburses
     funds for research, and provides direct financial aid to
     patients.
     
     Information Services:  The association's biannual
     newsletter contains information on current research,
     pertinent legislation, and advocacy activities.  Pamphlets
     about the symptoms, diagnosis, and treatment of Wilson's
     disease are available free of charge, up to 50 copies. 
     The association can refer patients to physicians
     specializing in Wilson's and related diseases and to
     researchers.  The association also maintains a data base
     of articles from medical journals and books that deal with
     various aspects of the disease.
     
     
     World Institute on Disability (WID)
510 16th Street, Suite 100
Oakland, CA  94612
(415) 763-4100

     Disabilities Served:  All disabilities. 
     
     Users Served:  Disabled persons and their families,
     government agencies, legislative bodies, disability
     organizations, centers for independent living, media,
     international visitors.
     
     The Organization:  The World Institute on Disability (WID)
     is a public policy institute seeking solutions to major
     problems faced by people of all ages with disabilities. 
     It was founded in 1983 by disabled people who have
     extensive personal and professional knowledge of
     disability-related issues and who were among the founders
     of the independent living movement.  WID has focused on
     areas that have significant impact on the basic human
     rights and needs of disabled individuals.  There areas
     include public education, service systems consultation,
     and national and international development of independent
     living.
     
     WID in conjunction with InfoUse and the Western Consortium
     for Public Health of the University of California has been
     awarded a 5-year grant to establish a National Research
     and Training Center on Public Policy in Independent
     Living.  Over the next 5 years, WID will analyze the
     Nation's most effective personal assistance programs
     building on previous surveys and research in this area. 
     Training priorities will focus on identification of
     successful approaches to creating barrier-free supportive
     environments and empowering consumers and their families.
     
     WID in partnership with Rehabilitation International has
     administered the IDEAS project through which fellowships
     are provided to experts to study exemplary disability
     programs in Europe and the Americas which could benefit
     the USA.  The IDEAS grant has just been extended for
     another 3 years.
     
     With seed money from the telecommunications industry, WID
     is convening a panel of leaders from the disability
     community to evaluate current initiatives and technology
     and make recommendations how this burgeoning industry can
     best serve the disability community.
     
     Recognizing that AIDS has become a disabling condition, a
     new program will be started to transfer the peer support
     model to the AIDS community.
     
     WID is promoting independent living concepts in the
     international disability community by giving workshops,
     hosting international visitors, exchanging information,
     and participating in international conferences.
     
     Information Services:  Publications include The Need for
     Personal Assistance; Attending to America:  Personal
     Assistance for Independent Living (also available: 
     Executive Summary of Attending to America); Access to
     Health Care, Vol. 1, Nos. 1 & 2, Measuring the Health
     Insurance Needs of Persons with Disabilities and Chronic
     Illness, and Nos. 3 & 4, Strategies for Adapting the
     Private and Public health Insurance Systems to the Needs
     of Disabled Persons; Quality of Life:  A Report on
     Employment, Housing, Recreation and Social Relationships
     obtained from 218 adults with developmental disabilities.
     
     The institute offers information on all aspects of
     attendant care services, independent living, and study
     results from the IDEAS project in foreign countries.
     
     
     World Recreation Association of the Deaf/USA (WRAD)
P.O. Box 3211
Quartz Hill, CA  93586
(805) 943-8879 (TDD)

     Disabilities Served:   Deafness, hearing impairments,
     families and friends of deaf people.
     
     Users Served:   Deaf people and their families, parents of
     deaf children, sign language students, and professionals.
     
     The Organization:   The World Recreation Association of
     the Deaf (WRAD) is a nonprofit recreational, educational,
     and cultural organization made up of deaf, hearing
     impaired, and hearing people who live in all parts of the
     world.  WRAD celebrates the differences and diversities of
     people and encourages interaction among the membership,
     for stimulating and exciting exchange of ideas, concepts,
     and information.
     
     Information Services:   WRAD provides sign language
     interpreters in recreation and cultural activities for the
     deaf and hard of hearing community, especially in national
     parks; newsletter for members, the WRAD News on a
     quarterly basis plus local chapter newsletters and flyers
     of events and special attractions; many local, State, and
     national activities including skiing, educational
     lectures, bicycling, camping, water sports, and much more;
     leadership training to both adults and youth groups in
     schools and in the community; handbooks that offer growth
     of recreational programs for deaf people; and
     instructional lessons and seminars to members.  WRAD
     receives internship programs from colleges. 
     
     
     Youth Development Information Center (YDIC)
National Agricultural Library
10301 Baltimore Boulevard
Beltsville, MD  20705
(301) 344-3719
     
     Disabilities Served:   All disabilities related to youth.
     
     Users Served:   Professionals, educators, researchers, and
     organizations concerned with youth.
     
     The Organization:    The Youth Development Information
     Center (YDIC) is a joint project of the Extension Service
     (USDA) and the National Agricultural Library.  As a
     reference center, it provides services focused on all
     aspects of youth development.
     
     Information Services:   The Center maintains a national
     collection of books, journal articles, dissertations,
     theses, reports, curricula, and other resources relevant
     to youth development.  It provides reference and referral
     services to assist the user in finding answers to specific
     questions pertaining to youth development.  Brief
     complimentary literature searches of computerized data
     bases are performed on a request specific topic.  There is
     a cost for exhaustive searches.
     

